Re: How much is actually positional? genetics, in utero(etc) FOR ALL

December 17, 2005

HI Sandy,

I read that your daughter has brachio, my son Dylan had the same thing.

His head was not bad when born, and I had him in the different chairs when

he was young, so I beleive he ended up with positional brachio with some

plagio ( he was flatter on the left than the right)...but

anyways....repositioning was too hard for me...so we ended up getting the

DOC band when he was around 6 mos old......and he graduated yesterday at 8

mos old.....the OT at CT said he did well, there is some more correction

that can be made, but my husband and I were tired of all this and so we

didnt go for a second band.....I just hope that was the right decison ( my

husband gets mad when I mention it....he is happy...and says it cant be

perfect)....so all in all, I beleive if I knew to turn his head at night, he

might not have been in this situation too......he slept 10 hrs a night on

his back since he was 8 weeks old....I didnt post his last pictures

yet....but you can see his beginning pics and half way through under " my

plagio kids " ....under Dylan ......Good Luck! Carol ( mom to Dylan, 8

mos old, DOC band from 9/30/05 to 12/16/05)

How much is actually positional? genetics, in

> utero (etc)

>> FOR ALL

>>

>> You know I was talking with a friend of mine tonight and she was

>> updating me on her newborn, who is 3+ weeks now. He doesnt sleep

>> well flat, so he tends to sleep in a swing, bouncer, or car seat,

>> etc. Well anyways, I started thinking just how much of positional

>> plagio is actually positional? Could some of this be genetic?

>> Afterall how many second, and third time parents are here, going

>> through the same thing? At 3 weeks old Leah was hardly put down,

>> well except to sleep and to be honest she was sleeping on our

> chests

>> alot! But her head had already noticeable gotten flat,more on the

>> left then the right. Repositioning started and then the entire

> back

>> started flattening and eventually diagnosed with brachy and

> plagio!

>> She didnt spend more time on her head then other babies with round

>> heads? My friends babies head is PERFECTLY round, despite all

>> the " hard " surfaces. Leahs head was kind of tall and flat from

> day

>> 1. Her eye assymmetry was apparent right away (when looking back

> on

>> pictures). In-utero issues, genetics?

>>

>> Then you wonder how much of this started in the womb? But even if

> it

>> started in the womb, why do some VERY cone shaped heads round out

> in

>> 48 hours and others not? If we shaved our own heads, how flat or

>> assymetric would they be? I know these are alot of questions that

> we

>> just dont have the answers to. More studies need to be done on

> this

>> medical condition and its effects, both short term and long term.

> I

>> could ask probably a hundred questions and maybe one has a

> answer...

>> it can be frustrating at times. Which I am sure all of you know

> all

>> too well. Are there more studies that I am missing? Does anyone

>> else have comments? Frustrations to air, or just something to say

> or

>> add? Would love to hear I am not the only one wondering! I often

>> think wht could I have been done differently during pregnancy or

> the

>> first weeks after delivery.

>>

>> Please dont get me wrong, I am not throwing a pitty party

> here...lol

>> I love my baby, I wouldnt trade her or all this for anything. We

> are

>> lucky when compared to the many other birth defects and childhood

>> illnesses. I just would love to share questions, possible

> answers,

>> feelings etc. Of course youdont have to if you dont want to!

>>

>> Mommy to Leah (8 m/o brachy/plagio & tort)

>> DOCband baby as of 10/10

>>

>

> For more plagio info

December 17, 2005