Re: Bobbi - Questions for you re: Kaitlyn

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Hi , I sent you an email thru my other email with pics!!!! Email me back to that one if you want!!aleecarboni <aleecarboni@...> wrote: Bobbi -Can I ask you a few questions? You mentioned that your daughter was premature and has a narrow head... how early was she? Does she suffer from Scaph? How long has she been in the helmet? I would love to see your "after" pictures if you wouldn't mind sharing them (aleecarboni@...). It is hard to find people that are dealing with Scaph - CT only had one example of it in fact. Our son was diagnosed with Tortocolis and Plagio at about 3 months - after PT for a few months, we went forward with consulting for a band. He's now 6 months (4 months adjusted, born at 31 weeks) and just received

his band yesterday. It is encouraging that your daughter showed such quick improvement. I hope, hope for the same. I'm not looking for perfection - just want the back protusion to be softened and a little better asymmetry.What a great thing if your Daughter gets the band off early!Son - 6 months, DOC band, Tortocolis and Scaph (flattening of right side of head) > > >> > Since we can only post 5 pics on here at a time what I NEED is > > someone who is an "expert" on plagiocephaly and would take a look at > > some pics of Kaitlyns head. I have some pics that were taken before > > she had her helmet (like 2-3 months ago) and a few that were just > > taken yesterday and last week and I'm telling you there is a BIG > > difference in my eyes!!

Here's the thing.....she was diagnosed at 4 > > 1/2 months with torticollis then it took 2 1/2 months to get in > > (stupid insurace co) to see the cranial facial specialist/plastic > > surgeon and then another 2 weeks to get the helmet but anyways I'm > > wondering if she even needs the helmet because if you look at her > > before the helmet pics and the now pics her head shape looks > > soooooooooo much better in my eyes but wanted others opinions who > > have been thru this to take a look at them. > > > > If anyone would be willing to look at them and would give me their > > HONEST opinion please give me your email addy and I will email them > > from my other email addy so you can see them better and can compare > > the difference!!! > > > > I called her physical therapist up (we are all done with therapy

as > > of last week, YAY!!) because I trust her opinion and emailed her the > > pics and she said she will take a look at them and give me her > > opinion BUT who else do I ask about this? Should I call up the > > cranial facial specialist or her orthotist and ask. What I wanna know > > is since Kaitlyn was a preemie her head shape was more "noticable" I > > guess you could say BUT now that she is growing and is older her head > > seems to be rounding out more so is the helmet necessary, as she > > grows more will it just only get better? She still has a tiny bit of > > a forehead protrusion but it's not as bad as it was so will she > > outgrow that like she did the "narrowness/pointedness" of her head or > > will that require surgery or continue with the helmet but it won't be > > on as long? > > > > Please

someone help LOL!!> > > > Bobbi > > Mommy to Kaitlyn , 8 months old> > Torticollis, positional plagiocephaly, banded on 12-15-05> > Michigan> >>

DSL Something to write home about. Just $16.99/mo. or less

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Hi , I sent you an email thru my other email with pics!!!! Email me back to that one if you want!!aleecarboni <aleecarboni@...> wrote: Bobbi -Can I ask you a few questions? You mentioned that your daughter was premature and has a narrow head... how early was she? Does she suffer from Scaph? How long has she been in the helmet? I would love to see your "after" pictures if you wouldn't mind sharing them (aleecarboni@...). It is hard to find people that are dealing with Scaph - CT only had one example of it in fact. Our son was diagnosed with Tortocolis and Plagio at about 3 months - after PT for a few months, we went forward with consulting for a band. He's now 6 months (4 months adjusted, born at 31 weeks) and just received

his band yesterday. It is encouraging that your daughter showed such quick improvement. I hope, hope for the same. I'm not looking for perfection - just want the back protusion to be softened and a little better asymmetry.What a great thing if your Daughter gets the band off early!Son - 6 months, DOC band, Tortocolis and Scaph (flattening of right side of head) > > >> > Since we can only post 5 pics on here at a time what I NEED is > > someone who is an "expert" on plagiocephaly and would take a look at > > some pics of Kaitlyns head. I have some pics that were taken before > > she had her helmet (like 2-3 months ago) and a few that were just > > taken yesterday and last week and I'm telling you there is a BIG > > difference in my eyes!!

Here's the thing.....she was diagnosed at 4 > > 1/2 months with torticollis then it took 2 1/2 months to get in > > (stupid insurace co) to see the cranial facial specialist/plastic > > surgeon and then another 2 weeks to get the helmet but anyways I'm > > wondering if she even needs the helmet because if you look at her > > before the helmet pics and the now pics her head shape looks > > soooooooooo much better in my eyes but wanted others opinions who > > have been thru this to take a look at them. > > > > If anyone would be willing to look at them and would give me their > > HONEST opinion please give me your email addy and I will email them > > from my other email addy so you can see them better and can compare > > the difference!!! > > > > I called her physical therapist up (we are all done with therapy

as > > of last week, YAY!!) because I trust her opinion and emailed her the > > pics and she said she will take a look at them and give me her > > opinion BUT who else do I ask about this? Should I call up the > > cranial facial specialist or her orthotist and ask. What I wanna know > > is since Kaitlyn was a preemie her head shape was more "noticable" I > > guess you could say BUT now that she is growing and is older her head > > seems to be rounding out more so is the helmet necessary, as she > > grows more will it just only get better? She still has a tiny bit of > > a forehead protrusion but it's not as bad as it was so will she > > outgrow that like she did the "narrowness/pointedness" of her head or > > will that require surgery or continue with the helmet but it won't be > > on as long? > > > > Please

someone help LOL!!> > > > Bobbi > > Mommy to Kaitlyn , 8 months old> > Torticollis, positional plagiocephaly, banded on 12-15-05> > Michigan> >>

DSL Something to write home about. Just $16.99/mo. or less