Guest guest Posted January 7, 2006 Report Share Posted January 7, 2006 We all know how tough it is for families to take this seriously, but I want to pass along a positive trend in our family. My oldest sister, after more than a year of my " nagging " about celiac, has finally gotten a biopsy. She has had: folate deficiency, B12 deficiency, delayed gastric emptying (blamed on her diabetes), many neuro symptoms (blamed on poss. MS) and chronic diarrhea. Surprise, surprise, the biopsy results came back " inconclusive " and they want her to take the blood draws again. Now they were miffed at her for asking the person doing the endoscopy to go to the distal duodenum-- and she is not sure they did, she was led to believe that they only went to the mid-duodenum; yet still it was inconclusive. She is really wondering what it might have said if they had gone completely distal like they should have. She is already suspicious because the endoscopy report only said " intestine appears normal " , they didn't address the presence of skin folds, inflammation or anything, just " normal " . Of course I suggested she make sure she get a copy of the path report to make sure of the reading there too. But another weird part of this??? No one has referred her to GI yet! No wonder so many people get missed. I thank goodness that all of the internet research I did when my kids were getting diagnosed is paying off. I know I was a pain in the butt about continuing to bring up the celiac possibilities, but hey, if it means the wellness of my sister I will fight like I did for my kids. I love them too much to do otherwise. Cheryl in Tampa Quote Link to comment Share on other sites More sharing options...
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