Guest guest Posted January 4, 2006 Report Share Posted January 4, 2006 We're going in on the 10th also. Our appt. is at 9:15a. What time is yours? Maybe we can hook up!!! Maggie"Carol G." <GATTVA@...> wrote: Hello everyone,My wish for the new year is that all our babies(little and big) are happy and healthy. We are so lucky to have these special little people in our lives, and sometimes with all that is going on it is so hard to remember that we need to just be thankful we can hold them and love them. Happy New Year Everyone!!!Ok Dominick time: We go to Richmond tomorrow to see the eye surgeon and find out about surgery. He is wearing his glasses better, but the patching has not started yet so I don't know if they will schedule the surgery yet or wait and see how that goes. Either way I'm prepared for the worst and hoping for the best.We go to CT on the 10th of January to have his head rechecked. I honestly hope it is just me being crazy. I have been really good about not looking at it every five minutes,lol. I know there has been some regression, but I just can't tell if that has caused the remaining asymmetry that he had when he graduated to look worse or it has actually regressed that much. I'll leave it to the experts at CT ndale, they are always my voice of reason,lol. I am just not happy with his headshape right now, but if this is as good as it gets then that's what it is. It is still soooooo much better than it was before treatment and I am incredibly grateful for that.His sensory intergration issues are all over the map, and once I can get my life in order here I will set up his evaluation with the child study team and I have to call his regular OT today for another appointment. We are finding different ways to help him cope with his issues and he is doing good. He is learning sign language and now signs "eat" when he wants food. He is really pushing the limits with sensory seeking issues....falling backwards in his playpen, banging his head or hitting it with something,you name it, if it gives him input he's doing it,lol. We bought him a stuffed animal vibrator bear from Walmart which has been a wonderful tool. He likes to stand on it and vibrate,lol. Music has proven to be his favorite thing. He loves all music, but especially went crazy when BB King played the blues. He was bobbing and swiveling...looked like a mini Stevie Wonder,LOL. I am glad he has found something he likes so much, up till now nothing has held his attention.He has finally found something he will watch for more than a second...the Elmo's World videos......Yippie. He mostly just repeats the sounds and dances when they sing, doesn't really watch it long, but that's ok.I am adding a picture to the holiday file of the gang in Santa hats on thier way to grandma's for Christmas Eve. I love it even though you can hardly see my 15 yr old's face through the hair,lol. I guess I should be happy he let me take a picture with him in it. That's about all for now, I'll let you know how the eye doc goes tomorrow. CAROLG DSL Something to write home about. Just $16.99/mo. or less Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2006 Report Share Posted January 4, 2006 We're going in on the 10th also. Our appt. is at 9:15a. What time is yours? Maybe we can hook up!!! Maggie"Carol G." <GATTVA@...> wrote: Hello everyone,My wish for the new year is that all our babies(little and big) are happy and healthy. We are so lucky to have these special little people in our lives, and sometimes with all that is going on it is so hard to remember that we need to just be thankful we can hold them and love them. Happy New Year Everyone!!!Ok Dominick time: We go to Richmond tomorrow to see the eye surgeon and find out about surgery. He is wearing his glasses better, but the patching has not started yet so I don't know if they will schedule the surgery yet or wait and see how that goes. Either way I'm prepared for the worst and hoping for the best.We go to CT on the 10th of January to have his head rechecked. I honestly hope it is just me being crazy. I have been really good about not looking at it every five minutes,lol. I know there has been some regression, but I just can't tell if that has caused the remaining asymmetry that he had when he graduated to look worse or it has actually regressed that much. I'll leave it to the experts at CT ndale, they are always my voice of reason,lol. I am just not happy with his headshape right now, but if this is as good as it gets then that's what it is. It is still soooooo much better than it was before treatment and I am incredibly grateful for that.His sensory intergration issues are all over the map, and once I can get my life in order here I will set up his evaluation with the child study team and I have to call his regular OT today for another appointment. We are finding different ways to help him cope with his issues and he is doing good. He is learning sign language and now signs "eat" when he wants food. He is really pushing the limits with sensory seeking issues....falling backwards in his playpen, banging his head or hitting it with something,you name it, if it gives him input he's doing it,lol. We bought him a stuffed animal vibrator bear from Walmart which has been a wonderful tool. He likes to stand on it and vibrate,lol. Music has proven to be his favorite thing. He loves all music, but especially went crazy when BB King played the blues. He was bobbing and swiveling...looked like a mini Stevie Wonder,LOL. I am glad he has found something he likes so much, up till now nothing has held his attention.He has finally found something he will watch for more than a second...the Elmo's World videos......Yippie. He mostly just repeats the sounds and dances when they sing, doesn't really watch it long, but that's ok.I am adding a picture to the holiday file of the gang in Santa hats on thier way to grandma's for Christmas Eve. I love it even though you can hardly see my 15 yr old's face through the hair,lol. I guess I should be happy he let me take a picture with him in it. That's about all for now, I'll let you know how the eye doc goes tomorrow. CAROLG DSL Something to write home about. Just $16.99/mo. or less Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2006 Report Share Posted January 5, 2006 Maggie, How cool. Our appointment is at 1:00, but I will probably be in a bit early to talk and catch up on everything,lol. What type of appt do you have? Casting or adjustment? CAROLG > Hello everyone, > My wish for the new year is that all our babies(little and big) are > happy and healthy. We are so lucky to have these special little > people in our lives, and sometimes with all that is going on it is so > hard to remember that we need to just be thankful we can hold them > and love them. Happy New Year Everyone!!! > > Ok Dominick time: We go to Richmond tomorrow to see the eye surgeon > and find out about surgery. He is wearing his glasses better, but the > patching has not started yet so I don't know if they will schedule > the surgery yet or wait and see how that goes. Either way I'm > prepared for the worst and hoping for the best. > We go to CT on the 10th of January to have his head rechecked. I > honestly hope it is just me being crazy. I have been really good > about not looking at it every five minutes,lol. I know there has been > some regression, but I just can't tell if that has caused the > remaining asymmetry that he had when he graduated to look worse or it > has actually regressed that much. I'll leave it to the experts at CT > ndale, they are always my voice of reason,lol. I am just not > happy with his headshape right now, but if this is as good as it gets > then that's what it is. It is still soooooo much better than it was > before treatment and I am incredibly grateful for that. > His sensory intergration issues are all over the map, and once I can > get my life in order here I will set up his evaluation with the child > study team and I have to call his regular OT today for another > appointment. We are finding different ways to help him cope with his > issues and he is doing good. He is learning sign language and now > signs " eat " when he wants food. He is really pushing the limits with > sensory seeking issues....falling backwards in his playpen, banging > his head or hitting it with something,you name it, if it gives him > input he's doing it,lol. We bought him a stuffed animal vibrator bear > from Walmart which has been a wonderful tool. He likes to stand on it > and vibrate,lol. Music has proven to be his favorite thing. He loves > all music, but especially went crazy when BB King played the blues. > He was bobbing and swiveling...looked like a mini Stevie Wonder,LOL. > I am glad he has found something he likes so much, up till now > nothing has held his attention. > He has finally found something he will watch for more than a > second...the Elmo's World videos......Yippie. He mostly just repeats > the sounds and dances when they sing, doesn't really watch it long, > but that's ok. > I am adding a picture to the holiday file of the gang in Santa hats > on thier way to grandma's for Christmas Eve. I love it even though > you can hardly see my 15 yr old's face through the hair,lol. I guess > I should be happy he let me take a picture with him in it. That's > about all for now, I'll let you know how the eye doc goes tomorrow. > CAROLG > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2006 Report Share Posted January 5, 2006 Maggie, How cool. Our appointment is at 1:00, but I will probably be in a bit early to talk and catch up on everything,lol. What type of appt do you have? Casting or adjustment? CAROLG > Hello everyone, > My wish for the new year is that all our babies(little and big) are > happy and healthy. We are so lucky to have these special little > people in our lives, and sometimes with all that is going on it is so > hard to remember that we need to just be thankful we can hold them > and love them. Happy New Year Everyone!!! > > Ok Dominick time: We go to Richmond tomorrow to see the eye surgeon > and find out about surgery. He is wearing his glasses better, but the > patching has not started yet so I don't know if they will schedule > the surgery yet or wait and see how that goes. Either way I'm > prepared for the worst and hoping for the best. > We go to CT on the 10th of January to have his head rechecked. I > honestly hope it is just me being crazy. I have been really good > about not looking at it every five minutes,lol. I know there has been > some regression, but I just can't tell if that has caused the > remaining asymmetry that he had when he graduated to look worse or it > has actually regressed that much. I'll leave it to the experts at CT > ndale, they are always my voice of reason,lol. I am just not > happy with his headshape right now, but if this is as good as it gets > then that's what it is. It is still soooooo much better than it was > before treatment and I am incredibly grateful for that. > His sensory intergration issues are all over the map, and once I can > get my life in order here I will set up his evaluation with the child > study team and I have to call his regular OT today for another > appointment. We are finding different ways to help him cope with his > issues and he is doing good. He is learning sign language and now > signs " eat " when he wants food. He is really pushing the limits with > sensory seeking issues....falling backwards in his playpen, banging > his head or hitting it with something,you name it, if it gives him > input he's doing it,lol. We bought him a stuffed animal vibrator bear > from Walmart which has been a wonderful tool. He likes to stand on it > and vibrate,lol. Music has proven to be his favorite thing. He loves > all music, but especially went crazy when BB King played the blues. > He was bobbing and swiveling...looked like a mini Stevie Wonder,LOL. > I am glad he has found something he likes so much, up till now > nothing has held his attention. > He has finally found something he will watch for more than a > second...the Elmo's World videos......Yippie. He mostly just repeats > the sounds and dances when they sing, doesn't really watch it long, > but that's ok. > I am adding a picture to the holiday file of the gang in Santa hats > on thier way to grandma's for Christmas Eve. I love it even though > you can hardly see my 15 yr old's face through the hair,lol. I guess > I should be happy he let me take a picture with him in it. That's > about all for now, I'll let you know how the eye doc goes tomorrow. > CAROLG > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2006 Report Share Posted January 5, 2006 I think this will be our last 'adjustment' appointment. Caelan has had her band for 8-9w now....she got it on Nov. 8th when she was one week shy of turning 6m. She's done fabulously... If you're up in No.VA "early" and want to meet for a coffee or a quick lunch, let me know!!! Maggie & Aidan (b. 10.05.03) Caelan (b. 05.16.05...DocBanded on 11.08.05)"Carol G." <GATTVA@...> wrote: Maggie,How cool. Our appointment is at 1:00, but I will probably be in a bit early to talk and catch up on everything,lol. What type of appt do you have? Casting or adjustment? CAROLG> Hello everyone,> My wish for the new year is that all our babies(little and big) are > happy and healthy. We are so lucky to have these special little > people in our lives, and sometimes with all that is going on it is so > hard to remember that we need to just be thankful we can hold them > and love them. Happy New Year Everyone!!!> > Ok Dominick time: We go to Richmond tomorrow to see the eye surgeon > and find out about surgery. He is wearing his glasses better, but the > patching has not started yet so I don't know if they will schedule > the surgery yet or wait and see how that goes. Either way I'm > prepared for the worst and hoping for the best.> We go to CT on the 10th of January to have his head rechecked. I > honestly hope it is just me being crazy. I have been really good > about not looking at it every five minutes,lol. I know there has been > some regression, but I just can't tell if that has caused the > remaining asymmetry that he had when he graduated to look worse or it > has actually regressed that much. I'll leave it to the experts at CT > ndale, they are always my voice of reason,lol. I am just not > happy with his headshape right now, but if this is as good as it gets > then that's what it is. It is still soooooo much better than it was > before treatment and I am incredibly grateful for that.> His sensory intergration issues are all over the map, and once I can > get my life in order here I will set up his evaluation with the child > study team and I have to call his regular OT today for another > appointment. We are finding different ways to help him cope with his > issues and he is doing good. He is learning sign language and now > signs "eat" when he wants food. He is really pushing the limits with > sensory seeking issues....falling backwards in his playpen, banging > his head or hitting it with something,you name it, if it gives him > input he's doing it,lol. We bought him a stuffed animal vibrator bear > from Walmart which has been a wonderful tool. He likes to stand on it > and vibrate,lol. Music has proven to be his favorite thing. He loves > all music, but especially went crazy when BB King played the blues. > He was bobbing and swiveling...looked like a mini Stevie Wonder,LOL. > I am glad he has found something he likes so much, up till now > nothing has held his attention.> He has finally found something he will watch for more than a > second...the Elmo's World videos......Yippie. He mostly just repeats > the sounds and dances when they sing, doesn't really watch it long, > but that's ok.> I am adding a picture to the holiday file of the gang in Santa hats > on thier way to grandma's for Christmas Eve. I love it even though > you can hardly see my 15 yr old's face through the hair,lol. I guess > I should be happy he let me take a picture with him in it. That's > about all for now, I'll let you know how the eye doc goes tomorrow.> CAROLG> > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2006 Report Share Posted January 5, 2006 I think this will be our last 'adjustment' appointment. Caelan has had her band for 8-9w now....she got it on Nov. 8th when she was one week shy of turning 6m. She's done fabulously... If you're up in No.VA "early" and want to meet for a coffee or a quick lunch, let me know!!! Maggie & Aidan (b. 10.05.03) Caelan (b. 05.16.05...DocBanded on 11.08.05)"Carol G." <GATTVA@...> wrote: Maggie,How cool. Our appointment is at 1:00, but I will probably be in a bit early to talk and catch up on everything,lol. What type of appt do you have? Casting or adjustment? CAROLG> Hello everyone,> My wish for the new year is that all our babies(little and big) are > happy and healthy. We are so lucky to have these special little > people in our lives, and sometimes with all that is going on it is so > hard to remember that we need to just be thankful we can hold them > and love them. Happy New Year Everyone!!!> > Ok Dominick time: We go to Richmond tomorrow to see the eye surgeon > and find out about surgery. He is wearing his glasses better, but the > patching has not started yet so I don't know if they will schedule > the surgery yet or wait and see how that goes. Either way I'm > prepared for the worst and hoping for the best.> We go to CT on the 10th of January to have his head rechecked. I > honestly hope it is just me being crazy. I have been really good > about not looking at it every five minutes,lol. I know there has been > some regression, but I just can't tell if that has caused the > remaining asymmetry that he had when he graduated to look worse or it > has actually regressed that much. I'll leave it to the experts at CT > ndale, they are always my voice of reason,lol. I am just not > happy with his headshape right now, but if this is as good as it gets > then that's what it is. It is still soooooo much better than it was > before treatment and I am incredibly grateful for that.> His sensory intergration issues are all over the map, and once I can > get my life in order here I will set up his evaluation with the child > study team and I have to call his regular OT today for another > appointment. We are finding different ways to help him cope with his > issues and he is doing good. He is learning sign language and now > signs "eat" when he wants food. He is really pushing the limits with > sensory seeking issues....falling backwards in his playpen, banging > his head or hitting it with something,you name it, if it gives him > input he's doing it,lol. We bought him a stuffed animal vibrator bear > from Walmart which has been a wonderful tool. He likes to stand on it > and vibrate,lol. Music has proven to be his favorite thing. He loves > all music, but especially went crazy when BB King played the blues. > He was bobbing and swiveling...looked like a mini Stevie Wonder,LOL. > I am glad he has found something he likes so much, up till now > nothing has held his attention.> He has finally found something he will watch for more than a > second...the Elmo's World videos......Yippie. He mostly just repeats > the sounds and dances when they sing, doesn't really watch it long, > but that's ok.> I am adding a picture to the holiday file of the gang in Santa hats > on thier way to grandma's for Christmas Eve. I love it even though > you can hardly see my 15 yr old's face through the hair,lol. I guess > I should be happy he let me take a picture with him in it. That's > about all for now, I'll let you know how the eye doc goes tomorrow.> CAROLG> > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2006 Report Share Posted January 6, 2006 Maggie, Wow, the last adjustment, how exciting. Maybe I'll see you, I never know what's going on because I have three other kids and you know how that goes. I keep saying we have to get an ndale party together someday, so we can all get together. CAROLG > > Hello everyone, > > My wish for the new year is that all our babies(little and big) are > > happy and healthy. We are so lucky to have these special little > > people in our lives, and sometimes with all that is going on it is > so > > hard to remember that we need to just be thankful we can hold them > > and love them. Happy New Year Everyone!!! > > > > Ok Dominick time: We go to Richmond tomorrow to see the eye surgeon > > and find out about surgery. He is wearing his glasses better, but > the > > patching has not started yet so I don't know if they will schedule > > the surgery yet or wait and see how that goes. Either way I'm > > prepared for the worst and hoping for the best. > > We go to CT on the 10th of January to have his head rechecked. I > > honestly hope it is just me being crazy. I have been really good > > about not looking at it every five minutes,lol. I know there has > been > > some regression, but I just can't tell if that has caused the > > remaining asymmetry that he had when he graduated to look worse or > it > > has actually regressed that much. I'll leave it to the experts at > CT > > ndale, they are always my voice of reason,lol. I am just not > > happy with his headshape right now, but if this is as good as it > gets > > then that's what it is. It is still soooooo much better than it was > > before treatment and I am incredibly grateful for that. > > His sensory intergration issues are all over the map, and once I > can > > get my life in order here I will set up his evaluation with the > child > > study team and I have to call his regular OT today for another > > appointment. We are finding different ways to help him cope with > his > > issues and he is doing good. He is learning sign language and now > > signs " eat " when he wants food. He is really pushing the limits > with > > sensory seeking issues....falling backwards in his playpen, banging > > his head or hitting it with something,you name it, if it gives him > > input he's doing it,lol. We bought him a stuffed animal vibrator > bear > > from Walmart which has been a wonderful tool. He likes to stand on > it > > and vibrate,lol. Music has proven to be his favorite thing. He > loves > > all music, but especially went crazy when BB King played the blues. > > He was bobbing and swiveling...looked like a mini Stevie > Wonder,LOL. > > I am glad he has found something he likes so much, up till now > > nothing has held his attention. > > He has finally found something he will watch for more than a > > second...the Elmo's World videos......Yippie. He mostly just > repeats > > the sounds and dances when they sing, doesn't really watch it long, > > but that's ok. > > I am adding a picture to the holiday file of the gang in Santa hats > > on thier way to grandma's for Christmas Eve. I love it even though > > you can hardly see my 15 yr old's face through the hair,lol. I > guess > > I should be happy he let me take a picture with him in it. That's > > about all for now, I'll let you know how the eye doc goes tomorrow. > > CAROLG > > > > > > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2006 Report Share Posted January 6, 2006 Maggie, Wow, the last adjustment, how exciting. Maybe I'll see you, I never know what's going on because I have three other kids and you know how that goes. I keep saying we have to get an ndale party together someday, so we can all get together. CAROLG > > Hello everyone, > > My wish for the new year is that all our babies(little and big) are > > happy and healthy. We are so lucky to have these special little > > people in our lives, and sometimes with all that is going on it is > so > > hard to remember that we need to just be thankful we can hold them > > and love them. Happy New Year Everyone!!! > > > > Ok Dominick time: We go to Richmond tomorrow to see the eye surgeon > > and find out about surgery. He is wearing his glasses better, but > the > > patching has not started yet so I don't know if they will schedule > > the surgery yet or wait and see how that goes. Either way I'm > > prepared for the worst and hoping for the best. > > We go to CT on the 10th of January to have his head rechecked. I > > honestly hope it is just me being crazy. I have been really good > > about not looking at it every five minutes,lol. I know there has > been > > some regression, but I just can't tell if that has caused the > > remaining asymmetry that he had when he graduated to look worse or > it > > has actually regressed that much. I'll leave it to the experts at > CT > > ndale, they are always my voice of reason,lol. I am just not > > happy with his headshape right now, but if this is as good as it > gets > > then that's what it is. It is still soooooo much better than it was > > before treatment and I am incredibly grateful for that. > > His sensory intergration issues are all over the map, and once I > can > > get my life in order here I will set up his evaluation with the > child > > study team and I have to call his regular OT today for another > > appointment. We are finding different ways to help him cope with > his > > issues and he is doing good. He is learning sign language and now > > signs " eat " when he wants food. He is really pushing the limits > with > > sensory seeking issues....falling backwards in his playpen, banging > > his head or hitting it with something,you name it, if it gives him > > input he's doing it,lol. We bought him a stuffed animal vibrator > bear > > from Walmart which has been a wonderful tool. He likes to stand on > it > > and vibrate,lol. Music has proven to be his favorite thing. He > loves > > all music, but especially went crazy when BB King played the blues. > > He was bobbing and swiveling...looked like a mini Stevie > Wonder,LOL. > > I am glad he has found something he likes so much, up till now > > nothing has held his attention. > > He has finally found something he will watch for more than a > > second...the Elmo's World videos......Yippie. He mostly just > repeats > > the sounds and dances when they sing, doesn't really watch it long, > > but that's ok. > > I am adding a picture to the holiday file of the gang in Santa hats > > on thier way to grandma's for Christmas Eve. I love it even though > > you can hardly see my 15 yr old's face through the hair,lol. I > guess > > I should be happy he let me take a picture with him in it. That's > > about all for now, I'll let you know how the eye doc goes tomorrow. > > CAROLG > > > > > > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
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