Re: 3D CT confirmed cranio

[Guest guest]

,

I have to tell you, your strength throughout this has been amazing!

This can't be easy for you, and your handling it so well. You should

be very proud of yourself Mom. :-) Please know that , you and

your family are in my prayers. If you ever need to talk, email me your

phone number. I'll be thinking about you and Clarie. Good luck

tomorrow, please let us know how you make out.

Hugs,

>

> Well, we finally got the 3D CT scan done. The good news is that

> 's sagittal suture is not fused as originally thought. The bad

> news is that left lambdoid suture is definitely fused. We're going to

> see the neuro tomorrow. We're going on a stand-by basis and just

> hanging out at the clinic all day until he can see us. I want to know

> what his plan is now.

>

> That 3D CT is really cool. The pics are amazing. You can see a pic of

> it here. http://img.photobucket.com/albums/v213/Osburnsa/plagio%

> 20pics/CT.jpg My CDrom isn't working so I couldn't upload the CD they

> gave me, but I took a pic with my phone and it came out really well.

> Oh, and cooperated and slept through the scan so they didn't

> need to sedate her. That was nice.

>

> I'll let you know what happens tomorrow.

>

> and

>

[Guest guest]

,

I have to tell you, your strength throughout this has been amazing!

This can't be easy for you, and your handling it so well. You should

be very proud of yourself Mom. :-) Please know that , you and

your family are in my prayers. If you ever need to talk, email me your

phone number. I'll be thinking about you and Clarie. Good luck

tomorrow, please let us know how you make out.

Hugs,

>

> Well, we finally got the 3D CT scan done. The good news is that

> 's sagittal suture is not fused as originally thought. The bad

> news is that left lambdoid suture is definitely fused. We're going to

> see the neuro tomorrow. We're going on a stand-by basis and just

> hanging out at the clinic all day until he can see us. I want to know

> what his plan is now.

>

> That 3D CT is really cool. The pics are amazing. You can see a pic of

> it here. http://img.photobucket.com/albums/v213/Osburnsa/plagio%

> 20pics/CT.jpg My CDrom isn't working so I couldn't upload the CD they

> gave me, but I took a pic with my phone and it came out really well.

> Oh, and cooperated and slept through the scan so they didn't

> need to sedate her. That was nice.

>

> I'll let you know what happens tomorrow.

>

> and

>

[Guest guest]

good luck tomorrow! was so brave too sleeping

through all that. How sweet.

Sherry

>

> Well, we finally got the 3D CT scan done. The good news is that

> 's sagittal suture is not fused as originally thought. The

bad

> news is that left lambdoid suture is definitely fused. We're going

to

> see the neuro tomorrow. We're going on a stand-by basis and just

> hanging out at the clinic all day until he can see us. I want to

know

> what his plan is now.

>

> That 3D CT is really cool. The pics are amazing. You can see a

pic of

> it here. http://img.photobucket.com/albums/v213/Osburnsa/plagio%

> 20pics/CT.jpg My CDrom isn't working so I couldn't upload the CD

they

> gave me, but I took a pic with my phone and it came out really

well.

> Oh, and cooperated and slept through the scan so they didn't

> need to sedate her. That was nice.

>

> I'll let you know what happens tomorrow.

>

> and

>

[Guest guest]

good luck tomorrow! was so brave too sleeping

through all that. How sweet.

Sherry

>

> Well, we finally got the 3D CT scan done. The good news is that

> 's sagittal suture is not fused as originally thought. The

bad

> news is that left lambdoid suture is definitely fused. We're going

to

> see the neuro tomorrow. We're going on a stand-by basis and just

> hanging out at the clinic all day until he can see us. I want to

know

> what his plan is now.

>

> That 3D CT is really cool. The pics are amazing. You can see a

pic of

> it here. http://img.photobucket.com/albums/v213/Osburnsa/plagio%

> 20pics/CT.jpg My CDrom isn't working so I couldn't upload the CD

they

> gave me, but I took a pic with my phone and it came out really

well.

> Oh, and cooperated and slept through the scan so they didn't

> need to sedate her. That was nice.

>

> I'll let you know what happens tomorrow.

>

> and

>

[Guest guest]

,

Please let us know what the nuero says. My prayers are with you.

CAROLG

>

> Well, we finally got the 3D CT scan done. The good news is that

> 's sagittal suture is not fused as originally thought. The

bad

> news is that left lambdoid suture is definitely fused. We're going

to

> see the neuro tomorrow. We're going on a stand-by basis and just

> hanging out at the clinic all day until he can see us. I want to

know

> what his plan is now.

>

> That 3D CT is really cool. The pics are amazing. You can see a

pic of

> it here. http://img.photobucket.com/albums/v213/Osburnsa/plagio%

> 20pics/CT.jpg My CDrom isn't working so I couldn't upload the CD

they

> gave me, but I took a pic with my phone and it came out really

well.

> Oh, and cooperated and slept through the scan so they didn't

> need to sedate her. That was nice.

>

> I'll let you know what happens tomorrow.

>

> and

>

[Guest guest]

,

Please let us know what the nuero says. My prayers are with you.

CAROLG

>

> Well, we finally got the 3D CT scan done. The good news is that

> 's sagittal suture is not fused as originally thought. The

bad

> news is that left lambdoid suture is definitely fused. We're going

to

> see the neuro tomorrow. We're going on a stand-by basis and just

> hanging out at the clinic all day until he can see us. I want to

know

> what his plan is now.

>

> That 3D CT is really cool. The pics are amazing. You can see a

pic of

> it here. http://img.photobucket.com/albums/v213/Osburnsa/plagio%

> 20pics/CT.jpg My CDrom isn't working so I couldn't upload the CD

they

> gave me, but I took a pic with my phone and it came out really

well.

> Oh, and cooperated and slept through the scan so they didn't

> need to sedate her. That was nice.

>

> I'll let you know what happens tomorrow.

>

> and

>

[Guest guest]

I'm so sorry to hear that. Please know we will be thinking of you

and let us know what the Dr says.

Jen

(19.5 mo), tort resovled, Hanger Band Grad

(4 years)

>

> Well, we finally got the 3D CT scan done. The good news is that

> 's sagittal suture is not fused as originally thought. The

bad

> news is that left lambdoid suture is definitely fused. We're going

to

> see the neuro tomorrow. We're going on a stand-by basis and just

> hanging out at the clinic all day until he can see us. I want to

know

> what his plan is now.

>

> That 3D CT is really cool. The pics are amazing. You can see a

pic of

> it here. http://img.photobucket.com/albums/v213/Osburnsa/plagio%

> 20pics/CT.jpg My CDrom isn't working so I couldn't upload the CD

they

> gave me, but I took a pic with my phone and it came out really

well.

> Oh, and cooperated and slept through the scan so they didn't

> need to sedate her. That was nice.

>

> I'll let you know what happens tomorrow.

>

> and

>

[Guest guest]

I'm so sorry to hear that. Please know we will be thinking of you

and let us know what the Dr says.

Jen

(19.5 mo), tort resovled, Hanger Band Grad

(4 years)

>

> Well, we finally got the 3D CT scan done. The good news is that

> 's sagittal suture is not fused as originally thought. The

bad

> news is that left lambdoid suture is definitely fused. We're going

to

> see the neuro tomorrow. We're going on a stand-by basis and just

> hanging out at the clinic all day until he can see us. I want to

know

> what his plan is now.

>

> That 3D CT is really cool. The pics are amazing. You can see a

pic of

> it here. http://img.photobucket.com/albums/v213/Osburnsa/plagio%

> 20pics/CT.jpg My CDrom isn't working so I couldn't upload the CD

they

> gave me, but I took a pic with my phone and it came out really

well.

> Oh, and cooperated and slept through the scan so they didn't

> need to sedate her. That was nice.

>

> I'll let you know what happens tomorrow.

>

> and

>

[Guest guest]

Thanks, . I needed that little pat on the back. We met with the

neuro and he said he feels the surgery would be our best option. He

said a band " might " work, but if it were his child he would just fix it

because that will definitely work. I went and spoke with the orthotist

at Hanger to get their feelings on the matter. The guy was really nice

and told me that while they could definitely put a band on her and

improve the shape some, the degree of improvement would be minimal due

to the extent of the synostosis. Our neuro wants me to meet with the

plastic surgeon to make sure he's in agreement about the surgery. Our

appt isn't until April 4th. I was going to call this morning to see

about moving it up, when out of the blue the plastic surgeon's office

called me and asked if we can bring in today. (Her angels are

looking out for her, I guess.) So, we'll be seeing the plastic surgeon

this afternoon. The neuro said if the plastic surgeon agrees, he would

wa

nt to do the surgery ASAP. I'm surprisingly calm about the whole

thing. I guess I just want to do it and get her on the road to

recovery. She'll probably still need a helmet after the surgery. I

guess we'll see. Now I'm just trying to figure out if I should just go

with Hanger here in town if we do need a helmet. I need to hear some

positive Hanger stories.

&

Re: 3D CT confirmed cranio

Plagiocephaly

<span><p><span><p>

<tt>

,<BR>

I have to tell you, your strength throughout this has been amazing!<BR>

This can't be easy for you, and your handling it so well. You should<BR>

be very proud of yourself Mom. :-) Please know that , you and<BR>

your family are in my prayers. If you ever need to talk, email me

your<BR>

phone number. I'll be thinking about you and Clarie. Good luck<BR>

tomorrow, please let us know how you make out.<BR>

Hugs,<BR>

<BR>

[Guest guest]

Thanks, . I needed that little pat on the back. We met with the

neuro and he said he feels the surgery would be our best option. He

said a band " might " work, but if it were his child he would just fix it

because that will definitely work. I went and spoke with the orthotist

at Hanger to get their feelings on the matter. The guy was really nice

and told me that while they could definitely put a band on her and

improve the shape some, the degree of improvement would be minimal due

to the extent of the synostosis. Our neuro wants me to meet with the

plastic surgeon to make sure he's in agreement about the surgery. Our

appt isn't until April 4th. I was going to call this morning to see

about moving it up, when out of the blue the plastic surgeon's office

called me and asked if we can bring in today. (Her angels are

looking out for her, I guess.) So, we'll be seeing the plastic surgeon

this afternoon. The neuro said if the plastic surgeon agrees, he would

wa

nt to do the surgery ASAP. I'm surprisingly calm about the whole

thing. I guess I just want to do it and get her on the road to

recovery. She'll probably still need a helmet after the surgery. I

guess we'll see. Now I'm just trying to figure out if I should just go

with Hanger here in town if we do need a helmet. I need to hear some

positive Hanger stories.

&

Re: 3D CT confirmed cranio

Plagiocephaly

<span><p><span><p>

<tt>

,<BR>

I have to tell you, your strength throughout this has been amazing!<BR>

This can't be easy for you, and your handling it so well. You should<BR>

be very proud of yourself Mom. :-) Please know that , you and<BR>

your family are in my prayers. If you ever need to talk, email me

your<BR>

phone number. I'll be thinking about you and Clarie. Good luck<BR>

tomorrow, please let us know how you make out.<BR>

Hugs,<BR>

<BR>