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Hi,

My four-month-old son was born breech with torticollis and

plagiocephaly (flattening and facial asymmetry – eyes and ears) on

11/03/05. We were lucky. Our pediatrician diagnosed him when he was

a week old with it. We’ve been seeing a physical therapist for five

weeks now and I’ve been regularly doing various arm, neck, head and

shoulder exercises for 4-5 times a day. We’re seeing someone at

cranial technology tomorrow to determine whether a band is warranted or not

(first assessment).

I’ve been finding the various exercises, pt and doctors’

visits overwhelming, but have found this site to be a great source of support.

It’s a relief to me knowing that other mothers are tearing their hair out

from the exercises, pt, and comments from family, friends, and strangers.

I, too, wanted to scream when people say, “oh, it’s not too bad.”

Sure, it’s not their baby and they’re not dealing with their baby crying

when you lay him down to turn his head or taking them to a physical therapist

twice a week and watching him shriek there.

I’m really thankful for the comments and advice about

cranial technology and plagiocephaly. Whoever made the comparison to

dental braces with the band deserves a big hug from me because it did reduce

some of my fears and anxieties. I’m hoping that cranial technology will

say that a band is warranted to correct my son’s head. I know my

son has mild plagiocephaly, but I can’t see how his eyes and ears will

become symmetrical with physical therapy alone.

Thanks,

Carolyn Fox in NYC

Mum to Malcolm Fox 11/3/05

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Hi,

My four-month-old son was born breech with torticollis and

plagiocephaly (flattening and facial asymmetry – eyes and ears) on

11/03/05. We were lucky. Our pediatrician diagnosed him when he was

a week old with it. We’ve been seeing a physical therapist for five

weeks now and I’ve been regularly doing various arm, neck, head and

shoulder exercises for 4-5 times a day. We’re seeing someone at

cranial technology tomorrow to determine whether a band is warranted or not

(first assessment).

I’ve been finding the various exercises, pt and doctors’

visits overwhelming, but have found this site to be a great source of support.

It’s a relief to me knowing that other mothers are tearing their hair out

from the exercises, pt, and comments from family, friends, and strangers.

I, too, wanted to scream when people say, “oh, it’s not too bad.”

Sure, it’s not their baby and they’re not dealing with their baby crying

when you lay him down to turn his head or taking them to a physical therapist

twice a week and watching him shriek there.

I’m really thankful for the comments and advice about

cranial technology and plagiocephaly. Whoever made the comparison to

dental braces with the band deserves a big hug from me because it did reduce

some of my fears and anxieties. I’m hoping that cranial technology will

say that a band is warranted to correct my son’s head. I know my

son has mild plagiocephaly, but I can’t see how his eyes and ears will

become symmetrical with physical therapy alone.

Thanks,

Carolyn Fox in NYC

Mum to Malcolm Fox 11/3/05

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  • 1 year later...

Welcome! A red bleeding sore is NOT normal and should NOT happen all

the time. Which brand of helmet do you have?? Hopefully the ortho

can adjust it properly and she won't have any more issues. If the

spots become problematic you can often ask for a new band - free of

charge - if the ortho can't get it adjusted properly. Good luck!

Sheila, mom to , 18 months, DOCband

>

> This is the first week my daughter had the helmet on. She had a red

> sore and within an hour it split and was bleeding. Is this going to

> happen all of the time? We are going back to the ortho to get re-

> fitted.

>

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