Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 Hi , You're not being paranoid! Regression may be rare but it does happen. Since you're finding her in a not so good position I'd check her throught out the night for a few months. I know it stinks to have to get up in the middle of the night but it might be worth it. I hope you'll be posting her before and after pictures. Congratulations Olivia You're a DOCband Grad! I hope you'll be sticking around here. >> Hello to all,> Just wondering what you all think. We graduated today after > only 12 weeks in the doc band. Olivia went from 3.1 to 2.1 standard > deviations for Brachycephaly. But she only went from 5mm to 4mm for > cranial vault assymetry, no change in mid face but it was only 1mm, > and from 5mm to 1mm at skull base. I am pleased with the skull base > obviously and I know no one really has a perfect head shape, but the > cranial vault assymetry just has me wondering if I should have pushed > to continue for that. It is just mm's and since the brachy was the > significant reason we got the band I am not aware of the norms for > these other measures. > On another note, just wondering if anyone knows what age the AAP > back to sleep thing goes to? My daughter will roll to her tummy and > many times I find her in that position but I also find her flat on > that head turned to her favorite side sometimes. I know regression > is unlikely, but she is only 10.5 months and she has hypotonia which > has kept her behind in her motor development so I wonder if this > could be a scenario where regression could happen. > Sorry if I am being a paranoid mommy, just want the best for my > daughter as I am sure you all understand. > > and Olivia> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 Hi , You're not being paranoid! Regression may be rare but it does happen. Since you're finding her in a not so good position I'd check her throught out the night for a few months. I know it stinks to have to get up in the middle of the night but it might be worth it. I hope you'll be posting her before and after pictures. Congratulations Olivia You're a DOCband Grad! I hope you'll be sticking around here. >> Hello to all,> Just wondering what you all think. We graduated today after > only 12 weeks in the doc band. Olivia went from 3.1 to 2.1 standard > deviations for Brachycephaly. But she only went from 5mm to 4mm for > cranial vault assymetry, no change in mid face but it was only 1mm, > and from 5mm to 1mm at skull base. I am pleased with the skull base > obviously and I know no one really has a perfect head shape, but the > cranial vault assymetry just has me wondering if I should have pushed > to continue for that. It is just mm's and since the brachy was the > significant reason we got the band I am not aware of the norms for > these other measures. > On another note, just wondering if anyone knows what age the AAP > back to sleep thing goes to? My daughter will roll to her tummy and > many times I find her in that position but I also find her flat on > that head turned to her favorite side sometimes. I know regression > is unlikely, but she is only 10.5 months and she has hypotonia which > has kept her behind in her motor development so I wonder if this > could be a scenario where regression could happen. > Sorry if I am being a paranoid mommy, just want the best for my > daughter as I am sure you all understand. > > and Olivia> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 Would love to post her pics but don't have a scanner. I am sticking around though. Although lately I lurk more than anything since most of her issues are with her hypotonia. > > > > Hello to all, > > Just wondering what you all think. We graduated today after > > only 12 weeks in the doc band. Olivia went from 3.1 to 2.1 standard > > deviations for Brachycephaly. But she only went from 5mm to 4mm for > > cranial vault assymetry, no change in mid face but it was only 1mm, > > and from 5mm to 1mm at skull base. I am pleased with the skull base > > obviously and I know no one really has a perfect head shape, but the > > cranial vault assymetry just has me wondering if I should have pushed > > to continue for that. It is just mm's and since the brachy was the > > significant reason we got the band I am not aware of the norms for > > these other measures. > > On another note, just wondering if anyone knows what age the AAP > > back to sleep thing goes to? My daughter will roll to her tummy and > > many times I find her in that position but I also find her flat on > > that head turned to her favorite side sometimes. I know regression > > is unlikely, but she is only 10.5 months and she has hypotonia which > > has kept her behind in her motor development so I wonder if this > > could be a scenario where regression could happen. > > Sorry if I am being a paranoid mommy, just want the best for my > > daughter as I am sure you all understand. > > > > and Olivia > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 Would love to post her pics but don't have a scanner. I am sticking around though. Although lately I lurk more than anything since most of her issues are with her hypotonia. > > > > Hello to all, > > Just wondering what you all think. We graduated today after > > only 12 weeks in the doc band. Olivia went from 3.1 to 2.1 standard > > deviations for Brachycephaly. But she only went from 5mm to 4mm for > > cranial vault assymetry, no change in mid face but it was only 1mm, > > and from 5mm to 1mm at skull base. I am pleased with the skull base > > obviously and I know no one really has a perfect head shape, but the > > cranial vault assymetry just has me wondering if I should have pushed > > to continue for that. It is just mm's and since the brachy was the > > significant reason we got the band I am not aware of the norms for > > these other measures. > > On another note, just wondering if anyone knows what age the AAP > > back to sleep thing goes to? My daughter will roll to her tummy and > > many times I find her in that position but I also find her flat on > > that head turned to her favorite side sometimes. I know regression > > is unlikely, but she is only 10.5 months and she has hypotonia which > > has kept her behind in her motor development so I wonder if this > > could be a scenario where regression could happen. > > Sorry if I am being a paranoid mommy, just want the best for my > > daughter as I am sure you all understand. > > > > and Olivia > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 My soon to be(in July) 5 year old (my plagio baby) has low muscle tone. She recieves PT twice a week in her special ed preschool. She's always had low tone. She was treated through EI for about a year. She was all caught up with her peers. She's now behind them once again. Is your baby receiving PT? We have a couple of babies here with low tone. Feel free to post about it!! > > > > > > Hello to all, > > > Just wondering what you all think. We graduated today after > > > only 12 weeks in the doc band. Olivia went from 3.1 to 2.1 > standard > > > deviations for Brachycephaly. But she only went from 5mm to 4mm > for > > > cranial vault assymetry, no change in mid face but it was only > 1mm, > > > and from 5mm to 1mm at skull base. I am pleased with the skull > base > > > obviously and I know no one really has a perfect head shape, but > the > > > cranial vault assymetry just has me wondering if I should have > pushed > > > to continue for that. It is just mm's and since the brachy was > the > > > significant reason we got the band I am not aware of the norms for > > > these other measures. > > > On another note, just wondering if anyone knows what age the > AAP > > > back to sleep thing goes to? My daughter will roll to her tummy > and > > > many times I find her in that position but I also find her flat on > > > that head turned to her favorite side sometimes. I know > regression > > > is unlikely, but she is only 10.5 months and she has hypotonia > which > > > has kept her behind in her motor development so I wonder if this > > > could be a scenario where regression could happen. > > > Sorry if I am being a paranoid mommy, just want the best for > my > > > daughter as I am sure you all understand. > > > > > > and Olivia > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 My soon to be(in July) 5 year old (my plagio baby) has low muscle tone. She recieves PT twice a week in her special ed preschool. She's always had low tone. She was treated through EI for about a year. She was all caught up with her peers. She's now behind them once again. Is your baby receiving PT? We have a couple of babies here with low tone. Feel free to post about it!! > > > > > > Hello to all, > > > Just wondering what you all think. We graduated today after > > > only 12 weeks in the doc band. Olivia went from 3.1 to 2.1 > standard > > > deviations for Brachycephaly. But she only went from 5mm to 4mm > for > > > cranial vault assymetry, no change in mid face but it was only > 1mm, > > > and from 5mm to 1mm at skull base. I am pleased with the skull > base > > > obviously and I know no one really has a perfect head shape, but > the > > > cranial vault assymetry just has me wondering if I should have > pushed > > > to continue for that. It is just mm's and since the brachy was > the > > > significant reason we got the band I am not aware of the norms for > > > these other measures. > > > On another note, just wondering if anyone knows what age the > AAP > > > back to sleep thing goes to? My daughter will roll to her tummy > and > > > many times I find her in that position but I also find her flat on > > > that head turned to her favorite side sometimes. I know > regression > > > is unlikely, but she is only 10.5 months and she has hypotonia > which > > > has kept her behind in her motor development so I wonder if this > > > could be a scenario where regression could happen. > > > Sorry if I am being a paranoid mommy, just want the best for > my > > > daughter as I am sure you all understand. > > > > > > and Olivia > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 Yes, Olivia gets EI PT. She has not progressed as well as we would like because she freaks out whenever the PT tries to move her. At 8 months old she was about 3 months delayed. She is normally the most easy going baby I have ever known, ie didn't even flinch with the doc band, slept through the night the first night and never pulled at it or even touched it really. But as soon as she sees the PT she starts screaming. Kind of like a panic attack. We are now heading down the diagnostic path with no news so far. and Olivia > > > > > > > > Hello to all, > > > > Just wondering what you all think. We graduated today after > > > > only 12 weeks in the doc band. Olivia went from 3.1 to 2.1 > > standard > > > > deviations for Brachycephaly. But she only went from 5mm to 4mm > > for > > > > cranial vault assymetry, no change in mid face but it was only > > 1mm, > > > > and from 5mm to 1mm at skull base. I am pleased with the skull > > base > > > > obviously and I know no one really has a perfect head shape, but > > the > > > > cranial vault assymetry just has me wondering if I should have > > pushed > > > > to continue for that. It is just mm's and since the brachy was > > the > > > > significant reason we got the band I am not aware of the norms for > > > > these other measures. > > > > On another note, just wondering if anyone knows what age the > > AAP > > > > back to sleep thing goes to? My daughter will roll to her tummy > > and > > > > many times I find her in that position but I also find her flat on > > > > that head turned to her favorite side sometimes. I know > > regression > > > > is unlikely, but she is only 10.5 months and she has hypotonia > > which > > > > has kept her behind in her motor development so I wonder if this > > > > could be a scenario where regression could happen. > > > > Sorry if I am being a paranoid mommy, just want the best for > > my > > > > daughter as I am sure you all understand. > > > > > > > > and Olivia > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 Yes, Olivia gets EI PT. She has not progressed as well as we would like because she freaks out whenever the PT tries to move her. At 8 months old she was about 3 months delayed. She is normally the most easy going baby I have ever known, ie didn't even flinch with the doc band, slept through the night the first night and never pulled at it or even touched it really. But as soon as she sees the PT she starts screaming. Kind of like a panic attack. We are now heading down the diagnostic path with no news so far. and Olivia > > > > > > > > Hello to all, > > > > Just wondering what you all think. We graduated today after > > > > only 12 weeks in the doc band. Olivia went from 3.1 to 2.1 > > standard > > > > deviations for Brachycephaly. But she only went from 5mm to 4mm > > for > > > > cranial vault assymetry, no change in mid face but it was only > > 1mm, > > > > and from 5mm to 1mm at skull base. I am pleased with the skull > > base > > > > obviously and I know no one really has a perfect head shape, but > > the > > > > cranial vault assymetry just has me wondering if I should have > > pushed > > > > to continue for that. It is just mm's and since the brachy was > > the > > > > significant reason we got the band I am not aware of the norms for > > > > these other measures. > > > > On another note, just wondering if anyone knows what age the > > AAP > > > > back to sleep thing goes to? My daughter will roll to her tummy > > and > > > > many times I find her in that position but I also find her flat on > > > > that head turned to her favorite side sometimes. I know > > regression > > > > is unlikely, but she is only 10.5 months and she has hypotonia > > which > > > > has kept her behind in her motor development so I wonder if this > > > > could be a scenario where regression could happen. > > > > Sorry if I am being a paranoid mommy, just want the best for > > my > > > > daughter as I am sure you all understand. > > > > > > > > and Olivia > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 Hi Jennie, Don't be surprised if you never get any news. Most babies/kids with low tone aren't diagnosed with any ailment. A lot of them have low tone and it's not known why. I always thought was behind in her milestones b/c of the tort. While it did have something to do with it, it's not the only reason. Her low tone has something to do with it too. I took her to PT 3 times a week for 3 months to treat her tort. Her tort was fully resolved when we were released from PT. I breathed a sigh of relief, I thought she'd be on track now. But she wasn't, so my ped had me contact EI. They came to my house for PT and OT. She didn't sit up by until she was like 10 months old. She was significantly delayed. They released her about a year later and again I breathed a sigh of relief, ok NOW she'll be on track. At her annual physical last year my ped told me to contact my school district to have her evaluated. She didn't like how floppy was and she was concerned about her speech. I had her tested and she now attends a special education pre school for PT, OT and speech. This coming Sept she'll be going into a 15:1:1 intergrated, special education kindergarten class. Have you thought about trying a different physical therapist? The girl we had was great, but when she was out sick we had to have a guy. HATED this guy as soon as he'd touch her she'd freak out. It was just something about him that she didn't like. Maybe it's the same with your daughter. Anyway it may be worth trying a new PT, it might make all the difference to her. How is she when you do exercises with her? It's really great that you're so on top of things with her. You're a good mom. -- In Plagiocephaly , " Chad Damon " <chadwick1000@...> wrote: > > Yes, Olivia gets EI PT. She has not progressed as well as we would > like because she freaks out whenever the PT tries to move her. At 8 > months old she was about 3 months delayed. She is normally the most > easy going baby I have ever known, ie didn't even flinch with the doc > band, slept through the night the first night and never pulled at it > or even touched it really. But as soon as she sees the PT she starts > screaming. Kind of like a panic attack. We are now heading down the > diagnostic path with no news so far. > > and Olivia > > > > > > > > > > > > > > > Hello to all, > > > > > Just wondering what you all think. We graduated today > after > > > > > only 12 weeks in the doc band. Olivia went from 3.1 to 2.1 > > > standard > > > > > deviations for Brachycephaly. But she only went from 5mm to > 4mm > > > for > > > > > cranial vault assymetry, no change in mid face but it was > only > > > 1mm, > > > > > and from 5mm to 1mm at skull base. I am pleased with the > skull > > > base > > > > > obviously and I know no one really has a perfect head shape, > but > > > the > > > > > cranial vault assymetry just has me wondering if I should > have > > > pushed > > > > > to continue for that. It is just mm's and since the brachy > was > > > the > > > > > significant reason we got the band I am not aware of the > norms for > > > > > these other measures. > > > > > On another note, just wondering if anyone knows what age > the > > > AAP > > > > > back to sleep thing goes to? My daughter will roll to her > tummy > > > and > > > > > many times I find her in that position but I also find her > flat on > > > > > that head turned to her favorite side sometimes. I know > > > regression > > > > > is unlikely, but she is only 10.5 months and she has > hypotonia > > > which > > > > > has kept her behind in her motor development so I wonder if > this > > > > > could be a scenario where regression could happen. > > > > > Sorry if I am being a paranoid mommy, just want the best > for > > > my > > > > > daughter as I am sure you all understand. > > > > > > > > > > and Olivia > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 Hi Jennie, Don't be surprised if you never get any news. Most babies/kids with low tone aren't diagnosed with any ailment. A lot of them have low tone and it's not known why. I always thought was behind in her milestones b/c of the tort. While it did have something to do with it, it's not the only reason. Her low tone has something to do with it too. I took her to PT 3 times a week for 3 months to treat her tort. Her tort was fully resolved when we were released from PT. I breathed a sigh of relief, I thought she'd be on track now. But she wasn't, so my ped had me contact EI. They came to my house for PT and OT. She didn't sit up by until she was like 10 months old. She was significantly delayed. They released her about a year later and again I breathed a sigh of relief, ok NOW she'll be on track. At her annual physical last year my ped told me to contact my school district to have her evaluated. She didn't like how floppy was and she was concerned about her speech. I had her tested and she now attends a special education pre school for PT, OT and speech. This coming Sept she'll be going into a 15:1:1 intergrated, special education kindergarten class. Have you thought about trying a different physical therapist? The girl we had was great, but when she was out sick we had to have a guy. HATED this guy as soon as he'd touch her she'd freak out. It was just something about him that she didn't like. Maybe it's the same with your daughter. Anyway it may be worth trying a new PT, it might make all the difference to her. How is she when you do exercises with her? It's really great that you're so on top of things with her. You're a good mom. -- In Plagiocephaly , " Chad Damon " <chadwick1000@...> wrote: > > Yes, Olivia gets EI PT. She has not progressed as well as we would > like because she freaks out whenever the PT tries to move her. At 8 > months old she was about 3 months delayed. She is normally the most > easy going baby I have ever known, ie didn't even flinch with the doc > band, slept through the night the first night and never pulled at it > or even touched it really. But as soon as she sees the PT she starts > screaming. Kind of like a panic attack. We are now heading down the > diagnostic path with no news so far. > > and Olivia > > > > > > > > > > > > > > > Hello to all, > > > > > Just wondering what you all think. We graduated today > after > > > > > only 12 weeks in the doc band. Olivia went from 3.1 to 2.1 > > > standard > > > > > deviations for Brachycephaly. But she only went from 5mm to > 4mm > > > for > > > > > cranial vault assymetry, no change in mid face but it was > only > > > 1mm, > > > > > and from 5mm to 1mm at skull base. I am pleased with the > skull > > > base > > > > > obviously and I know no one really has a perfect head shape, > but > > > the > > > > > cranial vault assymetry just has me wondering if I should > have > > > pushed > > > > > to continue for that. It is just mm's and since the brachy > was > > > the > > > > > significant reason we got the band I am not aware of the > norms for > > > > > these other measures. > > > > > On another note, just wondering if anyone knows what age > the > > > AAP > > > > > back to sleep thing goes to? My daughter will roll to her > tummy > > > and > > > > > many times I find her in that position but I also find her > flat on > > > > > that head turned to her favorite side sometimes. I know > > > regression > > > > > is unlikely, but she is only 10.5 months and she has > hypotonia > > > which > > > > > has kept her behind in her motor development so I wonder if > this > > > > > could be a scenario where regression could happen. > > > > > Sorry if I am being a paranoid mommy, just want the best > for > > > my > > > > > daughter as I am sure you all understand. > > > > > > > > > > and Olivia > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 She has fought me also with the exercises until I backed off and let her take the lead. When she seems motivated and is trying to reach for things out of her base of support and comfort zone I try to help her with her transitions. She also didn't sit well until 9.5 months. I haven't really thought about changing PT's she seems knowledgeable and tries with Olivia, I will have to keep an eye on that. Thanks for saying I am a good mom, I don't always feel that way, it is easy to fall into wondering if her restrictions are my fault like I didn't force tummy time enough or repo her aggressively enough. I am sure you all know how that can go. Thanks for the encouragement. > > > > > > > > > > > > Hello to all, > > > > > > Just wondering what you all think. We graduated today > > after > > > > > > only 12 weeks in the doc band. Olivia went from 3.1 to 2.1 > > > > standard > > > > > > deviations for Brachycephaly. But she only went from 5mm to > > 4mm > > > > for > > > > > > cranial vault assymetry, no change in mid face but it was > > only > > > > 1mm, > > > > > > and from 5mm to 1mm at skull base. I am pleased with the > > skull > > > > base > > > > > > obviously and I know no one really has a perfect head shape, > > but > > > > the > > > > > > cranial vault assymetry just has me wondering if I should > > have > > > > pushed > > > > > > to continue for that. It is just mm's and since the brachy > > was > > > > the > > > > > > significant reason we got the band I am not aware of the > > norms for > > > > > > these other measures. > > > > > > On another note, just wondering if anyone knows what age > > the > > > > AAP > > > > > > back to sleep thing goes to? My daughter will roll to her > > tummy > > > > and > > > > > > many times I find her in that position but I also find her > > flat on > > > > > > that head turned to her favorite side sometimes. I know > > > > regression > > > > > > is unlikely, but she is only 10.5 months and she has > > hypotonia > > > > which > > > > > > has kept her behind in her motor development so I wonder if > > this > > > > > > could be a scenario where regression could happen. > > > > > > Sorry if I am being a paranoid mommy, just want the best > > for > > > > my > > > > > > daughter as I am sure you all understand. > > > > > > > > > > > > and Olivia > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 She has fought me also with the exercises until I backed off and let her take the lead. When she seems motivated and is trying to reach for things out of her base of support and comfort zone I try to help her with her transitions. She also didn't sit well until 9.5 months. I haven't really thought about changing PT's she seems knowledgeable and tries with Olivia, I will have to keep an eye on that. Thanks for saying I am a good mom, I don't always feel that way, it is easy to fall into wondering if her restrictions are my fault like I didn't force tummy time enough or repo her aggressively enough. I am sure you all know how that can go. Thanks for the encouragement. > > > > > > > > > > > > Hello to all, > > > > > > Just wondering what you all think. We graduated today > > after > > > > > > only 12 weeks in the doc band. Olivia went from 3.1 to 2.1 > > > > standard > > > > > > deviations for Brachycephaly. But she only went from 5mm to > > 4mm > > > > for > > > > > > cranial vault assymetry, no change in mid face but it was > > only > > > > 1mm, > > > > > > and from 5mm to 1mm at skull base. I am pleased with the > > skull > > > > base > > > > > > obviously and I know no one really has a perfect head shape, > > but > > > > the > > > > > > cranial vault assymetry just has me wondering if I should > > have > > > > pushed > > > > > > to continue for that. It is just mm's and since the brachy > > was > > > > the > > > > > > significant reason we got the band I am not aware of the > > norms for > > > > > > these other measures. > > > > > > On another note, just wondering if anyone knows what age > > the > > > > AAP > > > > > > back to sleep thing goes to? My daughter will roll to her > > tummy > > > > and > > > > > > many times I find her in that position but I also find her > > flat on > > > > > > that head turned to her favorite side sometimes. I know > > > > regression > > > > > > is unlikely, but she is only 10.5 months and she has > > hypotonia > > > > which > > > > > > has kept her behind in her motor development so I wonder if > > this > > > > > > could be a scenario where regression could happen. > > > > > > Sorry if I am being a paranoid mommy, just want the best > > for > > > > my > > > > > > daughter as I am sure you all understand. > > > > > > > > > > > > and Olivia > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 , I totally know how you're feeling!! was my 5th child, I still feel like I should have had her tort and plagio treated sooner. I think I became too lax, you know what I mean? She was an NICU baby and I attributed a lot to that. I guess part of me didn't want to see that there really was a problem. I try not to dwell on that too much, I need to use my energy in positive ways to help . It does get easier as they get older. I've come to terms with it and I'm very, very hopeful that will catch up to her peers. You're doing the best you can, and that's what matters most. -- In Plagiocephaly , " Chad Damon " <chadwick1000@...> wrote: > > She has fought me also with the exercises until I backed off and let > her take the lead. When she seems motivated and is trying to reach > for things out of her base of support and comfort zone I try to help > her with her transitions. She also didn't sit well until 9.5 > months. I haven't really thought about changing PT's she seems > knowledgeable and tries with Olivia, I will have to keep an eye on > that. Thanks for saying I am a good mom, I don't always feel that > way, it is easy to fall into wondering if her restrictions are my > fault like I didn't force tummy time enough or repo her aggressively > enough. I am sure you all know how that can go. > > Thanks for the encouragement. > > > > > > > > > > > > > > > > > > Hello to all, > > > > > > > Just wondering what you all think. We graduated > today > > > after > > > > > > > only 12 weeks in the doc band. Olivia went from 3.1 to > 2.1 > > > > > standard > > > > > > > deviations for Brachycephaly. But she only went from 5mm > to > > > 4mm > > > > > for > > > > > > > cranial vault assymetry, no change in mid face but it was > > > only > > > > > 1mm, > > > > > > > and from 5mm to 1mm at skull base. I am pleased with the > > > skull > > > > > base > > > > > > > obviously and I know no one really has a perfect head > shape, > > > but > > > > > the > > > > > > > cranial vault assymetry just has me wondering if I should > > > have > > > > > pushed > > > > > > > to continue for that. It is just mm's and since the > brachy > > > was > > > > > the > > > > > > > significant reason we got the band I am not aware of the > > > norms for > > > > > > > these other measures. > > > > > > > On another note, just wondering if anyone knows what > age > > > the > > > > > AAP > > > > > > > back to sleep thing goes to? My daughter will roll to > her > > > tummy > > > > > and > > > > > > > many times I find her in that position but I also find > her > > > flat on > > > > > > > that head turned to her favorite side sometimes. I know > > > > > regression > > > > > > > is unlikely, but she is only 10.5 months and she has > > > hypotonia > > > > > which > > > > > > > has kept her behind in her motor development so I wonder > if > > > this > > > > > > > could be a scenario where regression could happen. > > > > > > > Sorry if I am being a paranoid mommy, just want the > best > > > for > > > > > my > > > > > > > daughter as I am sure you all understand. > > > > > > > > > > > > > > and Olivia > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 , I totally know how you're feeling!! was my 5th child, I still feel like I should have had her tort and plagio treated sooner. I think I became too lax, you know what I mean? She was an NICU baby and I attributed a lot to that. I guess part of me didn't want to see that there really was a problem. I try not to dwell on that too much, I need to use my energy in positive ways to help . It does get easier as they get older. I've come to terms with it and I'm very, very hopeful that will catch up to her peers. You're doing the best you can, and that's what matters most. -- In Plagiocephaly , " Chad Damon " <chadwick1000@...> wrote: > > She has fought me also with the exercises until I backed off and let > her take the lead. When she seems motivated and is trying to reach > for things out of her base of support and comfort zone I try to help > her with her transitions. She also didn't sit well until 9.5 > months. I haven't really thought about changing PT's she seems > knowledgeable and tries with Olivia, I will have to keep an eye on > that. Thanks for saying I am a good mom, I don't always feel that > way, it is easy to fall into wondering if her restrictions are my > fault like I didn't force tummy time enough or repo her aggressively > enough. I am sure you all know how that can go. > > Thanks for the encouragement. > > > > > > > > > > > > > > > > > > Hello to all, > > > > > > > Just wondering what you all think. We graduated > today > > > after > > > > > > > only 12 weeks in the doc band. Olivia went from 3.1 to > 2.1 > > > > > standard > > > > > > > deviations for Brachycephaly. But she only went from 5mm > to > > > 4mm > > > > > for > > > > > > > cranial vault assymetry, no change in mid face but it was > > > only > > > > > 1mm, > > > > > > > and from 5mm to 1mm at skull base. I am pleased with the > > > skull > > > > > base > > > > > > > obviously and I know no one really has a perfect head > shape, > > > but > > > > > the > > > > > > > cranial vault assymetry just has me wondering if I should > > > have > > > > > pushed > > > > > > > to continue for that. It is just mm's and since the > brachy > > > was > > > > > the > > > > > > > significant reason we got the band I am not aware of the > > > norms for > > > > > > > these other measures. > > > > > > > On another note, just wondering if anyone knows what > age > > > the > > > > > AAP > > > > > > > back to sleep thing goes to? My daughter will roll to > her > > > tummy > > > > > and > > > > > > > many times I find her in that position but I also find > her > > > flat on > > > > > > > that head turned to her favorite side sometimes. I know > > > > > regression > > > > > > > is unlikely, but she is only 10.5 months and she has > > > hypotonia > > > > > which > > > > > > > has kept her behind in her motor development so I wonder > if > > > this > > > > > > > could be a scenario where regression could happen. > > > > > > > Sorry if I am being a paranoid mommy, just want the > best > > > for > > > > > my > > > > > > > daughter as I am sure you all understand. > > > > > > > > > > > > > > and Olivia > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2006 Report Share Posted March 17, 2006 Hello. I just wanted to comment on this... my Daughter didn't have Brachy, but she started at 14mm cranial vault asymm and graduated at 4mm. 4 mm isn't perfect but she looks great and I'm sure that Olivia does too. As far as the AAP standards for the back to sleep. I believe they say back to sleep until they can at least roll over both ways and/or are 1 year old. Jen (19.5 mo), tort resolved, Hanger Band Grad (4 years) --- In Plagiocephaly , " Chad Damon " <chadwick1000@...> wrote: > > Hello to all, > Just wondering what you all think. We graduated today after > only 12 weeks in the doc band. Olivia went from 3.1 to 2.1 standard > deviations for Brachycephaly. But she only went from 5mm to 4mm for > cranial vault assymetry, no change in mid face but it was only 1mm, > and from 5mm to 1mm at skull base. I am pleased with the skull base > obviously and I know no one really has a perfect head shape, but the > cranial vault assymetry just has me wondering if I should have pushed > to continue for that. It is just mm's and since the brachy was the > significant reason we got the band I am not aware of the norms for > these other measures. > On another note, just wondering if anyone knows what age the AAP > back to sleep thing goes to? My daughter will roll to her tummy and > many times I find her in that position but I also find her flat on > that head turned to her favorite side sometimes. I know regression > is unlikely, but she is only 10.5 months and she has hypotonia which > has kept her behind in her motor development so I wonder if this > could be a scenario where regression could happen. > Sorry if I am being a paranoid mommy, just want the best for my > daughter as I am sure you all understand. > > and Olivia > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2006 Report Share Posted March 17, 2006 Hello. I just wanted to comment on this... my Daughter didn't have Brachy, but she started at 14mm cranial vault asymm and graduated at 4mm. 4 mm isn't perfect but she looks great and I'm sure that Olivia does too. As far as the AAP standards for the back to sleep. I believe they say back to sleep until they can at least roll over both ways and/or are 1 year old. Jen (19.5 mo), tort resolved, Hanger Band Grad (4 years) --- In Plagiocephaly , " Chad Damon " <chadwick1000@...> wrote: > > Hello to all, > Just wondering what you all think. We graduated today after > only 12 weeks in the doc band. Olivia went from 3.1 to 2.1 standard > deviations for Brachycephaly. But she only went from 5mm to 4mm for > cranial vault assymetry, no change in mid face but it was only 1mm, > and from 5mm to 1mm at skull base. I am pleased with the skull base > obviously and I know no one really has a perfect head shape, but the > cranial vault assymetry just has me wondering if I should have pushed > to continue for that. It is just mm's and since the brachy was the > significant reason we got the band I am not aware of the norms for > these other measures. > On another note, just wondering if anyone knows what age the AAP > back to sleep thing goes to? My daughter will roll to her tummy and > many times I find her in that position but I also find her flat on > that head turned to her favorite side sometimes. I know regression > is unlikely, but she is only 10.5 months and she has hypotonia which > has kept her behind in her motor development so I wonder if this > could be a scenario where regression could happen. > Sorry if I am being a paranoid mommy, just want the best for my > daughter as I am sure you all understand. > > and Olivia > Quote Link to comment Share on other sites More sharing options...
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