Guest guest Posted December 8, 2002 Report Share Posted December 8, 2002 > Hey everyone!!! > Vaughn had his surgery 12-6 and is recovering just fine. Glad to hear that!! > Also,how long does it take before you start feeling the effects of > being Hypo. Vaughn's endo said he would have 20 days of feeling just > fine. The 21st day he would start having symptoms. Yeah, cause someone comes in at midnight on the 20th day and sucks out all the T4 in your body, which suddenly turns on hypo symptoms. This is too funny!! Ok, seriously, now... > I KNOW! YMMV!!! Now see how smart you are? Honest, I'm not sure where your Endo came up with it. there is NO magical day when you start having symptoms. As you can probably repeat by heart, some people hardly even notice symptoms, some notice a lot, and the rest of us are in the middle. Timing differs, too, but the longer you are hypo the more strong the symptoms USUALLY are, till a few weeks after the RAI, when you start back uphill, whether it be up an ant hill or Mt Everest. > I was just wondering how long it took everyone. Is Vaughn going to be taking Cytomel for the first part of the hypo experience, or just staying off of meds altogether? I've used Cytomel for the first 2 times, and after the first week or so, I started to notice VERY slight brainfog and cool waves going up my arms every now and then, but nothing too much. On the 21st day, my whole body falls apart..no, just a little hypo humor (I'm very easily amused..or irritated..right now :-)). Until I'm off the Cytomel (about 4 weeks after stopping my T4), I'm just a tiny bit tired and a tiny bit brainfogged and a tiny bit cold and a tiny bit of a few other things. It progresses a bit after that as time goes on,. I'm at a point now (8 days off all meds, with much of my T4 storage already gone anyhow), where I am noticing a lot of stuff - nothing dreadful. But that's me. I'm one of those in-betweeners :-). Cheers, Alisa..who will stop babbling now, but is still laughing at the magic 21st day..I think your Endo has given us a new group joke!! Currently Hypo :-) off meds for scan 12/16/02: on LID day 10 2/15/2002: Nodule found 2/27/2002: FNA 3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!! 4/9/2002: TT - Stage 2 pap 2.5 x 2 x 1.6 cm nodule, dx Hashimotos 5/28/2002: TBS and 100 mCi RAI 6/6/2002: TBS - No sign of mets Age: 48 -- Location: near Seattle WA --- Check out my posts: Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472 My LID - http://groups.yahoo.com/group/Thyca/message/15872 My RAI - http://groups.yahoo.com/group/Thyca/message/15873 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2002 Report Share Posted December 8, 2002 > Hey everyone!!! > Vaughn had his surgery 12-6 and is recovering just fine. Glad to hear that!! > Also,how long does it take before you start feeling the effects of > being Hypo. Vaughn's endo said he would have 20 days of feeling just > fine. The 21st day he would start having symptoms. Yeah, cause someone comes in at midnight on the 20th day and sucks out all the T4 in your body, which suddenly turns on hypo symptoms. This is too funny!! Ok, seriously, now... > I KNOW! YMMV!!! Now see how smart you are? Honest, I'm not sure where your Endo came up with it. there is NO magical day when you start having symptoms. As you can probably repeat by heart, some people hardly even notice symptoms, some notice a lot, and the rest of us are in the middle. Timing differs, too, but the longer you are hypo the more strong the symptoms USUALLY are, till a few weeks after the RAI, when you start back uphill, whether it be up an ant hill or Mt Everest. > I was just wondering how long it took everyone. Is Vaughn going to be taking Cytomel for the first part of the hypo experience, or just staying off of meds altogether? I've used Cytomel for the first 2 times, and after the first week or so, I started to notice VERY slight brainfog and cool waves going up my arms every now and then, but nothing too much. On the 21st day, my whole body falls apart..no, just a little hypo humor (I'm very easily amused..or irritated..right now :-)). Until I'm off the Cytomel (about 4 weeks after stopping my T4), I'm just a tiny bit tired and a tiny bit brainfogged and a tiny bit cold and a tiny bit of a few other things. It progresses a bit after that as time goes on,. I'm at a point now (8 days off all meds, with much of my T4 storage already gone anyhow), where I am noticing a lot of stuff - nothing dreadful. But that's me. I'm one of those in-betweeners :-). Cheers, Alisa..who will stop babbling now, but is still laughing at the magic 21st day..I think your Endo has given us a new group joke!! Currently Hypo :-) off meds for scan 12/16/02: on LID day 10 2/15/2002: Nodule found 2/27/2002: FNA 3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!! 4/9/2002: TT - Stage 2 pap 2.5 x 2 x 1.6 cm nodule, dx Hashimotos 5/28/2002: TBS and 100 mCi RAI 6/6/2002: TBS - No sign of mets Age: 48 -- Location: near Seattle WA --- Check out my posts: Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472 My LID - http://groups.yahoo.com/group/Thyca/message/15872 My RAI - http://groups.yahoo.com/group/Thyca/message/15873 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2002 Report Share Posted December 8, 2002 > Hey everyone!!! > Vaughn had his surgery 12-6 and is recovering just fine. Glad to hear that!! > Also,how long does it take before you start feeling the effects of > being Hypo. Vaughn's endo said he would have 20 days of feeling just > fine. The 21st day he would start having symptoms. Yeah, cause someone comes in at midnight on the 20th day and sucks out all the T4 in your body, which suddenly turns on hypo symptoms. This is too funny!! Ok, seriously, now... > I KNOW! YMMV!!! Now see how smart you are? Honest, I'm not sure where your Endo came up with it. there is NO magical day when you start having symptoms. As you can probably repeat by heart, some people hardly even notice symptoms, some notice a lot, and the rest of us are in the middle. Timing differs, too, but the longer you are hypo the more strong the symptoms USUALLY are, till a few weeks after the RAI, when you start back uphill, whether it be up an ant hill or Mt Everest. > I was just wondering how long it took everyone. Is Vaughn going to be taking Cytomel for the first part of the hypo experience, or just staying off of meds altogether? I've used Cytomel for the first 2 times, and after the first week or so, I started to notice VERY slight brainfog and cool waves going up my arms every now and then, but nothing too much. On the 21st day, my whole body falls apart..no, just a little hypo humor (I'm very easily amused..or irritated..right now :-)). Until I'm off the Cytomel (about 4 weeks after stopping my T4), I'm just a tiny bit tired and a tiny bit brainfogged and a tiny bit cold and a tiny bit of a few other things. It progresses a bit after that as time goes on,. I'm at a point now (8 days off all meds, with much of my T4 storage already gone anyhow), where I am noticing a lot of stuff - nothing dreadful. But that's me. I'm one of those in-betweeners :-). Cheers, Alisa..who will stop babbling now, but is still laughing at the magic 21st day..I think your Endo has given us a new group joke!! Currently Hypo :-) off meds for scan 12/16/02: on LID day 10 2/15/2002: Nodule found 2/27/2002: FNA 3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!! 4/9/2002: TT - Stage 2 pap 2.5 x 2 x 1.6 cm nodule, dx Hashimotos 5/28/2002: TBS and 100 mCi RAI 6/6/2002: TBS - No sign of mets Age: 48 -- Location: near Seattle WA --- Check out my posts: Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472 My LID - http://groups.yahoo.com/group/Thyca/message/15872 My RAI - http://groups.yahoo.com/group/Thyca/message/15873 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2002 Report Share Posted December 8, 2002 Hi, Becky - I'm happy to entertain (see how funny we hypo people can be?) :-). Cytomel is synthetic T3, the actual thyroid hormone that does stuff in our bodies. The T4 we take is what the thyroid mostly produces, or would if we had one. Then, it gets converted to T3 inside us and does its' thing to not make us hypo. While the T4 takes about 6 weeks to clear our system, the T3 takes about 2. It's given sometimes to reduce the length of time you're off all meds, letting you feel more normal longer, theoretically. It does work for me. Those who don't use it feel they get a more gradual slide into hypodom (or is that hypodee?..I'm on a roll here). With the cytomel, you feel a bit more normal longer, then have a faster slide to hypo. Some people like it and some don't. I can't give a comparison, since I've used it both times. I would definitely recommend that Vaughn at least ask the doc for some to use for a few weeks after his RAI, along with the T4 he will be starting, to give him a " jump start " toward feeling back to his normal self, though one of the docs at the conference mentioned that kids with thyca, as with most illnesses, tend to bounce back from this stuff faster than the rest of us anyway. It's an unusual medication, in that we are allowed to self-medicate to some degree, because the only purpose in taking it is to make ourselves feel better. Don't know if the max/day is different for kids, but for adults at least, you can take up to 2 - 25mcg tablets a day. I didn't take any for several days, then took a half tablet, twice a day, worked my way up to 2 a day before stopping it on Thanksgiving. As with most things, has a Cytomel archive with all you ever want to know: http://groups.yahoo.com/group/Thyca/message/13804 Cheers, Alisa..keeper of the 21st day T4 sucking monster Currently Hypo :-) off meds for scan 12/16/02: on LID day 10 2/15/2002: Nodule found 2/27/2002: FNA 3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!! 4/9/2002: TT - Stage 2 pap 2.5 x 2 x 1.6 cm nodule, dx Hashimotos 5/28/2002: TBS and 100 mCi RAI 6/6/2002: TBS - No sign of mets Age: 48 -- Location: near Seattle WA --- Check out my posts: Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472 My LID - http://groups.yahoo.com/group/Thyca/message/15872 My RAI - http://groups.yahoo.com/group/Thyca/message/15873 > Alisa: > > You crack me up!!!!! I don't know where he gets his info from either. I am > in the process of checking out some other Drs. I don't think Vaughn will be > on anything. Does Cytomel help? What is it? By the way, just to be on the > safe side I think I'll lock all the doors on the 21st day just in case it is > some T4 sucking monster! > Thanks for the info > Beckyved] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2002 Report Share Posted December 8, 2002 Hi, Becky - I'm happy to entertain (see how funny we hypo people can be?) :-). Cytomel is synthetic T3, the actual thyroid hormone that does stuff in our bodies. The T4 we take is what the thyroid mostly produces, or would if we had one. Then, it gets converted to T3 inside us and does its' thing to not make us hypo. While the T4 takes about 6 weeks to clear our system, the T3 takes about 2. It's given sometimes to reduce the length of time you're off all meds, letting you feel more normal longer, theoretically. It does work for me. Those who don't use it feel they get a more gradual slide into hypodom (or is that hypodee?..I'm on a roll here). With the cytomel, you feel a bit more normal longer, then have a faster slide to hypo. Some people like it and some don't. I can't give a comparison, since I've used it both times. I would definitely recommend that Vaughn at least ask the doc for some to use for a few weeks after his RAI, along with the T4 he will be starting, to give him a " jump start " toward feeling back to his normal self, though one of the docs at the conference mentioned that kids with thyca, as with most illnesses, tend to bounce back from this stuff faster than the rest of us anyway. It's an unusual medication, in that we are allowed to self-medicate to some degree, because the only purpose in taking it is to make ourselves feel better. Don't know if the max/day is different for kids, but for adults at least, you can take up to 2 - 25mcg tablets a day. I didn't take any for several days, then took a half tablet, twice a day, worked my way up to 2 a day before stopping it on Thanksgiving. As with most things, has a Cytomel archive with all you ever want to know: http://groups.yahoo.com/group/Thyca/message/13804 Cheers, Alisa..keeper of the 21st day T4 sucking monster Currently Hypo :-) off meds for scan 12/16/02: on LID day 10 2/15/2002: Nodule found 2/27/2002: FNA 3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!! 4/9/2002: TT - Stage 2 pap 2.5 x 2 x 1.6 cm nodule, dx Hashimotos 5/28/2002: TBS and 100 mCi RAI 6/6/2002: TBS - No sign of mets Age: 48 -- Location: near Seattle WA --- Check out my posts: Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472 My LID - http://groups.yahoo.com/group/Thyca/message/15872 My RAI - http://groups.yahoo.com/group/Thyca/message/15873 > Alisa: > > You crack me up!!!!! I don't know where he gets his info from either. I am > in the process of checking out some other Drs. I don't think Vaughn will be > on anything. Does Cytomel help? What is it? By the way, just to be on the > safe side I think I'll lock all the doors on the 21st day just in case it is > some T4 sucking monster! > Thanks for the info > Beckyved] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2002 Report Share Posted December 8, 2002 Hi, Becky - I'm happy to entertain (see how funny we hypo people can be?) :-). Cytomel is synthetic T3, the actual thyroid hormone that does stuff in our bodies. The T4 we take is what the thyroid mostly produces, or would if we had one. Then, it gets converted to T3 inside us and does its' thing to not make us hypo. While the T4 takes about 6 weeks to clear our system, the T3 takes about 2. It's given sometimes to reduce the length of time you're off all meds, letting you feel more normal longer, theoretically. It does work for me. Those who don't use it feel they get a more gradual slide into hypodom (or is that hypodee?..I'm on a roll here). With the cytomel, you feel a bit more normal longer, then have a faster slide to hypo. Some people like it and some don't. I can't give a comparison, since I've used it both times. I would definitely recommend that Vaughn at least ask the doc for some to use for a few weeks after his RAI, along with the T4 he will be starting, to give him a " jump start " toward feeling back to his normal self, though one of the docs at the conference mentioned that kids with thyca, as with most illnesses, tend to bounce back from this stuff faster than the rest of us anyway. It's an unusual medication, in that we are allowed to self-medicate to some degree, because the only purpose in taking it is to make ourselves feel better. Don't know if the max/day is different for kids, but for adults at least, you can take up to 2 - 25mcg tablets a day. I didn't take any for several days, then took a half tablet, twice a day, worked my way up to 2 a day before stopping it on Thanksgiving. As with most things, has a Cytomel archive with all you ever want to know: http://groups.yahoo.com/group/Thyca/message/13804 Cheers, Alisa..keeper of the 21st day T4 sucking monster Currently Hypo :-) off meds for scan 12/16/02: on LID day 10 2/15/2002: Nodule found 2/27/2002: FNA 3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!! 4/9/2002: TT - Stage 2 pap 2.5 x 2 x 1.6 cm nodule, dx Hashimotos 5/28/2002: TBS and 100 mCi RAI 6/6/2002: TBS - No sign of mets Age: 48 -- Location: near Seattle WA --- Check out my posts: Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472 My LID - http://groups.yahoo.com/group/Thyca/message/15872 My RAI - http://groups.yahoo.com/group/Thyca/message/15873 > Alisa: > > You crack me up!!!!! I don't know where he gets his info from either. I am > in the process of checking out some other Drs. I don't think Vaughn will be > on anything. Does Cytomel help? What is it? By the way, just to be on the > safe side I think I'll lock all the doors on the 21st day just in case it is > some T4 sucking monster! > Thanks for the info > Beckyved] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2002 Report Share Posted December 8, 2002 Hey everyone!!! Vaughn had his surgery 12-6 and is recovering just fine. This surgery went much better than the first one. He is staying at Grandma's (hating every minute of it!) because I'm not comfortable with him being home by himself. If I don't work, I don't get paid. The question I have is regarding calcium levels. His surgeon said he had 1 parathyroid on one side and 2 on the other. His calcium level was 8.6. They told me 8.9 was considered low so 8.6 wasn't TOO low. Is this right ? What level of calcium is low enough to have to take additional meds? Also, how long does it take before you start feeling the effects of being Hypo. Vaughn's endo said he would have 20 days of feeling just fine. The 21st day he would start having symptoms. I KNOW! YMMV!!! I was just wondering how long it took everyone. Thanks! Lots of hugs to everyone. Becky AKA the crazy mother Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2002 Report Share Posted December 9, 2002 Sorry to piggyback on the wrong conversation thread but I can't seem to access my yahoo account. Keep telling me my password is invalid, any advice on how to fix this is appreciated. My hypo question to you all since I can't get into the archives is this. I had my TT on November 4th and have my scan set for the 16th, been off Cytomel since November 30th. The last two days in addition to aches, pains and exhaustion, my eyes have swelled up almost shut from what I can only assume is major league water retention. Since I remember someone else mentioning this too, I am chalking it up to hypo hell (why the heck not, everything else seems to be). That being said, anyone have any idea how to make the swelling go down? I am still working and I don't want to scare my poor colleagues and clients off. Thanks, Balogh Goodwin Procter LLP 599 Lexington Avenue New York, NY 10022 Phone: Fax: Re: Re: Vaughn's surgery " aproctorus " wrote: > I'm happy to entertain (see how funny we hypo people can be?) :-). yeah, especially when you try to string together a coherent paragraph :-) > Cheers, > Alisa..keeper of the 21st day T4 sucking monster so THAT'S what's cluttering the attic ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2002 Report Share Posted December 9, 2002 Sorry to piggyback on the wrong conversation thread but I can't seem to access my yahoo account. Keep telling me my password is invalid, any advice on how to fix this is appreciated. My hypo question to you all since I can't get into the archives is this. I had my TT on November 4th and have my scan set for the 16th, been off Cytomel since November 30th. The last two days in addition to aches, pains and exhaustion, my eyes have swelled up almost shut from what I can only assume is major league water retention. Since I remember someone else mentioning this too, I am chalking it up to hypo hell (why the heck not, everything else seems to be). That being said, anyone have any idea how to make the swelling go down? I am still working and I don't want to scare my poor colleagues and clients off. Thanks, Balogh Goodwin Procter LLP 599 Lexington Avenue New York, NY 10022 Phone: Fax: Re: Re: Vaughn's surgery " aproctorus " wrote: > I'm happy to entertain (see how funny we hypo people can be?) :-). yeah, especially when you try to string together a coherent paragraph :-) > Cheers, > Alisa..keeper of the 21st day T4 sucking monster so THAT'S what's cluttering the attic ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2002 Report Share Posted December 9, 2002 Sorry to piggyback on the wrong conversation thread but I can't seem to access my yahoo account. Keep telling me my password is invalid, any advice on how to fix this is appreciated. My hypo question to you all since I can't get into the archives is this. I had my TT on November 4th and have my scan set for the 16th, been off Cytomel since November 30th. The last two days in addition to aches, pains and exhaustion, my eyes have swelled up almost shut from what I can only assume is major league water retention. Since I remember someone else mentioning this too, I am chalking it up to hypo hell (why the heck not, everything else seems to be). That being said, anyone have any idea how to make the swelling go down? I am still working and I don't want to scare my poor colleagues and clients off. Thanks, Balogh Goodwin Procter LLP 599 Lexington Avenue New York, NY 10022 Phone: Fax: Re: Re: Vaughn's surgery " aproctorus " wrote: > I'm happy to entertain (see how funny we hypo people can be?) :-). yeah, especially when you try to string together a coherent paragraph :-) > Cheers, > Alisa..keeper of the 21st day T4 sucking monster so THAT'S what's cluttering the attic ! Quote Link to comment Share on other sites More sharing options...
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