Guest guest Posted February 9, 2006 Report Share Posted February 9, 2006 I never realized my daughter had the head deformity called brachycephaly, and none of her pediatricians told me anything when we could had simplely used the band or the halmet. It is now too late to do this nonsurgical procedure because she is 3 years old. I have an appointment with a pediatric neurosurgeon but I am scared of any mayor surgery options. Can anybody tell me what kind of treatments options do I have right now? Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2006 Report Share Posted February 9, 2006 I never realized my daughter had the head deformity called brachycephaly, and none of her pediatricians told me anything when we could had simplely used the band or the halmet. It is now too late to do this nonsurgical procedure because she is 3 years old. I have an appointment with a pediatric neurosurgeon but I am scared of any mayor surgery options. Can anybody tell me what kind of treatments options do I have right now? Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2006 Report Share Posted February 9, 2006 Hello , I am wondering how you ended up determining that your daughter has brachycephaly? I too am wondering if that is what my daughter is suffering from. I'm going to a neurosurgeon on Monday to see if he can give us some insight. I've been told that he is very conservative about helmut use, so I'm not sure what, if anything he'll recommend. My daughter is now 5 months old. I realize that your daughter is much older. I wish I had some good advice for you, but am also just now familiarizing myself with the condition. Good luck! Best, Sydney (5 months old, possible brachycephaly)amandaclaudiadiego <maricarmenz@...> wrote: I never realized my daughter had the head deformity called brachycephaly, and none of her pediatricians told me anything when we could had simplely used the band or the halmet. It is now too late to do this nonsurgical procedure because she is 3 years old. I have an appointment with a pediatric neurosurgeon but I am scared of any mayor surgery options. Can anybody tell me what kind of treatments options do I have right now? Thanks. Relax. virus scanning helps detect nasty viruses! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2006 Report Share Posted February 9, 2006 Hello , I am wondering how you ended up determining that your daughter has brachycephaly? I too am wondering if that is what my daughter is suffering from. I'm going to a neurosurgeon on Monday to see if he can give us some insight. I've been told that he is very conservative about helmut use, so I'm not sure what, if anything he'll recommend. My daughter is now 5 months old. I realize that your daughter is much older. I wish I had some good advice for you, but am also just now familiarizing myself with the condition. Good luck! Best, Sydney (5 months old, possible brachycephaly)amandaclaudiadiego <maricarmenz@...> wrote: I never realized my daughter had the head deformity called brachycephaly, and none of her pediatricians told me anything when we could had simplely used the band or the halmet. It is now too late to do this nonsurgical procedure because she is 3 years old. I have an appointment with a pediatric neurosurgeon but I am scared of any mayor surgery options. Can anybody tell me what kind of treatments options do I have right now? Thanks. Relax. virus scanning helps detect nasty viruses! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2006 Report Share Posted February 9, 2006 , Brachycephaly is flatness across the back of the head. It often increases head height. Why don't you print up the severity assessment here and take it with you to the doctor? Click on brachycephaly at the bottom of the page. If your doctor isn't helmet friendly why don't you go and get an assessment from a provider too? Cranial Tech offers free ones. You can also check out the group's database. I don't know if other places will charge for consultations and I can't speak to their experience levels so you'd have to do your homework. > I never realized my daughter had the head deformity called > brachycephaly, and none of her pediatricians told me anything when we > could had simplely used the band or the halmet. It is now too late to > do this nonsurgical procedure because she is 3 years old. I have an > appointment with a pediatric neurosurgeon but I am scared of any mayor > surgery options. Can anybody tell me what kind of treatments options > do I have right now? Thanks.> > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2006 Report Share Posted February 9, 2006 , Brachycephaly is flatness across the back of the head. It often increases head height. Why don't you print up the severity assessment here and take it with you to the doctor? Click on brachycephaly at the bottom of the page. If your doctor isn't helmet friendly why don't you go and get an assessment from a provider too? Cranial Tech offers free ones. You can also check out the group's database. I don't know if other places will charge for consultations and I can't speak to their experience levels so you'd have to do your homework. > I never realized my daughter had the head deformity called > brachycephaly, and none of her pediatricians told me anything when we > could had simplely used the band or the halmet. It is now too late to > do this nonsurgical procedure because she is 3 years old. I have an > appointment with a pediatric neurosurgeon but I am scared of any mayor > surgery options. Can anybody tell me what kind of treatments options > do I have right now? Thanks.> > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2006 Report Share Posted February 9, 2006 Hello there , Thanks. I have checked out the assessment and it does seem that this is what's going on. I think I will take it on Monday. I don't want to second guess what he's going to suggest, but am still very concerned by the fact that he requires a full 3D CT scan before he will proceed with any treatment (I'm really opposed to this) and apparently likes to let time go by to see if the head will resolve on its own. I don't want to let too much time go by, as you know. I appreciate the referral to CT and wish there was one in our area (outside of Nashville, TN), but am out of luck. There is another group that I have spoken to and they do offer free consults. They are called Restorative Health Services. They carry a specialty band that they have designed and make on-site. They worked in conjunction with a pediatric plastic surgeon at Vanderbilt Children's Hospital to do so. They sound pretty good. Seems the only issue would be the difficulty of getting a referral/prescription from a doctor, as my Ped wasn't at all concerned about it. Best, rmanias <manias@...> wrote: , Brachycephaly is flatness across the back of the head. It often increases head height. Why don't you print up the severity assessment here and take it with you to the doctor? Click on brachycephaly at the bottom of the page. If your doctor isn't helmet friendly why don't you go and get an assessment from a provider too? Cranial Tech offers free ones. You can also check out the group's database. I don't know if other places will charge for consultations and I can't speak to their experience levels so you'd have to do your homework. >> Hello ,> > I am wondering how you ended up determining that your daughter has brachycephaly? I too am wondering if that is what my daughter is suffering from. I'm going to a neurosurgeon on Monday to see if he can give us some insight. I've been told that he is very conservative about helmut use, so I'm not sure what, if anything he'll recommend. My daughter is now 5 months old. I realize that your daughter is much older. I wish I had some good advice for you, but am also just now familiarizing myself with the condition. Good luck!> > Best,> > > Sydney (5 months old, possible brachycephaly)> > amandaclaudiadiego maricarmenz@... wrote:> I never realized my daughter had the head deformity called > brachycephaly, and none of her pediatricians told me anything when we > could had simplely used the band or the halmet. It is now too late to > do this nonsurgical procedure because she is 3 years old. I have an > appointment with a pediatric neurosurgeon but I am scared of any mayor > surgery options. Can anybody tell me what kind of treatments options > do I have right now? Thanks.> > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2006 Report Share Posted February 9, 2006 Hello there , Thanks. I have checked out the assessment and it does seem that this is what's going on. I think I will take it on Monday. I don't want to second guess what he's going to suggest, but am still very concerned by the fact that he requires a full 3D CT scan before he will proceed with any treatment (I'm really opposed to this) and apparently likes to let time go by to see if the head will resolve on its own. I don't want to let too much time go by, as you know. I appreciate the referral to CT and wish there was one in our area (outside of Nashville, TN), but am out of luck. There is another group that I have spoken to and they do offer free consults. They are called Restorative Health Services. They carry a specialty band that they have designed and make on-site. They worked in conjunction with a pediatric plastic surgeon at Vanderbilt Children's Hospital to do so. They sound pretty good. Seems the only issue would be the difficulty of getting a referral/prescription from a doctor, as my Ped wasn't at all concerned about it. Best, rmanias <manias@...> wrote: , Brachycephaly is flatness across the back of the head. It often increases head height. Why don't you print up the severity assessment here and take it with you to the doctor? Click on brachycephaly at the bottom of the page. If your doctor isn't helmet friendly why don't you go and get an assessment from a provider too? Cranial Tech offers free ones. You can also check out the group's database. I don't know if other places will charge for consultations and I can't speak to their experience levels so you'd have to do your homework. >> Hello ,> > I am wondering how you ended up determining that your daughter has brachycephaly? I too am wondering if that is what my daughter is suffering from. I'm going to a neurosurgeon on Monday to see if he can give us some insight. I've been told that he is very conservative about helmut use, so I'm not sure what, if anything he'll recommend. My daughter is now 5 months old. I realize that your daughter is much older. I wish I had some good advice for you, but am also just now familiarizing myself with the condition. Good luck!> > Best,> > > Sydney (5 months old, possible brachycephaly)> > amandaclaudiadiego maricarmenz@... wrote:> I never realized my daughter had the head deformity called > brachycephaly, and none of her pediatricians told me anything when we > could had simplely used the band or the halmet. It is now too late to > do this nonsurgical procedure because she is 3 years old. I have an > appointment with a pediatric neurosurgeon but I am scared of any mayor > surgery options. Can anybody tell me what kind of treatments options > do I have right now? Thanks.> > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2006 Report Share Posted February 9, 2006 , As long as cranio isn't suspected you have the write to ask for and receive a prescription. That's what I did both times. I didn't wait for the doctor to suggest it. Actually with my daughter I just called and asked for it. I never even discussed plagio with her doctor. She got flat so quickly. I wasn't expecting it for as old as she was! I understand your concerns about a CT Scan. We never needed one thankfully! I see the place you are looking at is in our database. There are some parental references there if you want to email them. Here's the link Plagiocephaly/database? query=Tennessee & method=reportRows & tbl=8 Good luck at the appointment! Mom to Dane (4 yo) and Cece (13 mo) DOC Grads > > I never realized my daughter had the head deformity called > > brachycephaly, and none of her pediatricians told me anything when we > > could had simplely used the band or the halmet. It is now too late to > > do this nonsurgical procedure because she is 3 years old. I have an > > appointment with a pediatric neurosurgeon but I am scared of any mayor > > surgery options. Can anybody tell me what kind of treatments options > > do I have right now? Thanks. > > > > > > > > > > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2006 Report Share Posted February 9, 2006 , As long as cranio isn't suspected you have the write to ask for and receive a prescription. That's what I did both times. I didn't wait for the doctor to suggest it. Actually with my daughter I just called and asked for it. I never even discussed plagio with her doctor. She got flat so quickly. I wasn't expecting it for as old as she was! I understand your concerns about a CT Scan. We never needed one thankfully! I see the place you are looking at is in our database. There are some parental references there if you want to email them. Here's the link Plagiocephaly/database? query=Tennessee & method=reportRows & tbl=8 Good luck at the appointment! Mom to Dane (4 yo) and Cece (13 mo) DOC Grads > > I never realized my daughter had the head deformity called > > brachycephaly, and none of her pediatricians told me anything when we > > could had simplely used the band or the halmet. It is now too late to > > do this nonsurgical procedure because she is 3 years old. I have an > > appointment with a pediatric neurosurgeon but I am scared of any mayor > > surgery options. Can anybody tell me what kind of treatments options > > do I have right now? Thanks. > > > > > > > > > > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2007 Report Share Posted August 19, 2007 Hi, my daughter had brachy but very little plagio. She started at 4.5 mm and about 98%, and ended at 3.5 mm and about 86%. We were pleased with the results but her head is not perfect. The top/back is still flat (I'm not sure if that is the parietal bone area). When we finished at 10 mo the ortho said it might continue to improve on its own, but it didn't. You can see pics under our Plagio Babies S/ Sydney M. I think if I were you I would get a second band. Have you discussed it with your ortho? -christine sydney 19 mo starband grad > > Hi there. My son is just about done with his first helmet. He started > at 14mm assymetry and 96% Brachy. Right now he is at 5mm assymetry > and 93% Brachy. > The Brachy is bothering me the most especially since it doesn't seem to > have come out at all up top near the parietal bones. > I am just wondering if anyone has gotten a second helmet for Brachy and > how much correction I can expect with a second helmet. > Quote Link to comment Share on other sites More sharing options...
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