Guest guest Posted January 5, 2006 Report Share Posted January 5, 2006 Independent Study Survey For Those Affected With Celiac Disease1. What is your age?A. 12 and younger 27%B. 13-18 7%C. 19-30 23%D. 31 or older 43%2. What is your gender?A. Male 20% B. Female 80%3. What is your description of Celiac Disease?Lots of Varied Interesting Descriptions! Most People used the most common definition mentioning auto-immune disease, gluten, and its effects.4. What have been your symptoms before diagnosis?No Symptoms, Diarrhea, Gas, Bloating, Nausea, Vomiting, damaged tooth enamel, malnutrition, loss of hair, Mental Fogginess, Pain, Restless Leg Syndrome, Infertility, Mood Swings, Depression, Anxiety, Loss of Concentration, weight gain, weight loss, headaches, stomach aches, Excessive Hunger, Loss of Apetite, Low Iron, Fatigue, Rash, anemia, chronic sinus infections, decreased immune system, easily bruised, and acid reflux, speech delay, lactose intolerance, Dermatitis Herpetiformis, and indigestion. 5. How many people do you know that have Celiac Disease?A. 0-2 60%B. 3-6 30%C. 7-9 3%D. 10 or above 7%6. How long did it take for Celiac Disease to become your diagnosis? A. 1-6 months 33%B. 7-11 months 10%C. 1 year 4%D. 2 years 10%E. 3 years or longer 43%7. Have you been to a restaurant since you were diagnosed?A. Yes 97% B. No 3%8. Have you had any bad experiences with uncooperative restaurants? A. Yes 50% B. No 50%9. How long have you been diagnosed and gluten free?A. 1 month or less 3%B. 2-6 months 23%C. 7-12 months 30%D. 2 years or more 44%10. Have you ever heard of Celiac Disease before your diagnosis?A. Yes 47% B. No 53%11. Do you think there is enough awareness about Celiac Disease? A. Yes 0% B. No 100% (Duh!)12. Do you eat a lot of mainstream foods?A. Yes 67% B. No 33%Any other comments or opinions?Your Responses Were Fantastic! They ranged from life stories to comments on the new labeling laws and I especially enjoyed the responses written by parents on behalf of their children. They were all wonderful and extremely interesting. I learned so much about this disease and about different people's perspectives on it, while enjoying myself in the process. I can't thank everyone enough about this. My Independent Study is due on January 10th and I will be sharing most of your comments and experiences with my class. I have recieved over 35 responses and was excited when every single one popped up in my email inbox for me to read. Thank You guys so much and, if you have any more questions on the survey or results, please let me know. Quote Link to comment Share on other sites More sharing options...
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