Re: Any chance of natural correction?

[Guest guest]

Hello. There is usually a chance of it somewhat correcting on its

own, however, there is no guarantee. It sounds as if your Son may

also have torticollis which is a shortening of the neck muscle on one

side. Is he able to turn his head all the way to the left? If it

seems as if he is having trouble with tunring his head, always favors

turning it to one side and/or doesn't have a good range of motion,

you will want to talk to the Dr about Physical Therapy. Torticollis

is a common cause of plagiocephaly.

At your Son's age, time is of the essence, as far as starting Helmet

therapy. If you are not happy with how his head looks now, pursuing

helmet therapy would be in your best interest, since there is no

guarantee it will improve on its own. Yes, helmet therapy can be

expensive though Insurance often covers it (all or in part), though

sometimes you have to fight to get the coverage. Others have also

taken out loans and/or had fundraisers to raise the $ when their

Insurance didn't cover it. What you have to think of is if you

didn't do anything, and your Son's head shape never improves... would

you regret it and/or feel guilty later? If the answer is yes, then

it would be a good idea to get the ball rolling as soon as possible.

At 8 months old, you most likely would not really see results with

repositioning him, as the Dr suggested to you.

I have a friend whose Son had moderate to severe plagiocephaly as a

baby. She listened to the Dr when they said it would " round out on

its own " and she did nothing for him. He is now 4 years old, still

has a mishapen head, misaligned ears and some facial asymmetry. I

don't mean to scare you or upset you... but you still have time to

correct it now.

Jen

(19 mo), tort resolved, Hanger Band Grad

(4 years)

>

> My son will be 8 months old on the 22nd and his head is misshapen

on

> the right side of the back (the side that he favors). His ears are

not

> symmetrical and the other side of his head seems to bulge out a

little

> bit. We asked out pediatrician about this months ago and they just

> told us to put him on the other side of his head when he sleeps. We

> tried and tried but when we wake up in the morning he's on the

right

> side again.

>

> At his 6 month appointment they measured his head but didn't say a

> word about the plagiocephaly. I completely forgot to ask about it

too

> since I had a million other questions to ask. I really thought that

> once he started sitting up all the time it would correct himself,

but

> it hasn't.

>

> My question is, is there any chance at all that it will still

correct

> itself? We really can't afford thousands of dollars for a helmet. I

> know we're really running out of time. I really wish we would have

> done something earlier. I feel so terrible.

>

[Guest guest]

Hello. There is usually a chance of it somewhat correcting on its

own, however, there is no guarantee. It sounds as if your Son may

also have torticollis which is a shortening of the neck muscle on one

side. Is he able to turn his head all the way to the left? If it

seems as if he is having trouble with tunring his head, always favors

turning it to one side and/or doesn't have a good range of motion,

you will want to talk to the Dr about Physical Therapy. Torticollis

is a common cause of plagiocephaly.

At your Son's age, time is of the essence, as far as starting Helmet

therapy. If you are not happy with how his head looks now, pursuing

helmet therapy would be in your best interest, since there is no

guarantee it will improve on its own. Yes, helmet therapy can be

expensive though Insurance often covers it (all or in part), though

sometimes you have to fight to get the coverage. Others have also

taken out loans and/or had fundraisers to raise the $ when their

Insurance didn't cover it. What you have to think of is if you

didn't do anything, and your Son's head shape never improves... would

you regret it and/or feel guilty later? If the answer is yes, then

it would be a good idea to get the ball rolling as soon as possible.

At 8 months old, you most likely would not really see results with

repositioning him, as the Dr suggested to you.

I have a friend whose Son had moderate to severe plagiocephaly as a

baby. She listened to the Dr when they said it would " round out on

its own " and she did nothing for him. He is now 4 years old, still

has a mishapen head, misaligned ears and some facial asymmetry. I

don't mean to scare you or upset you... but you still have time to

correct it now.

Jen

(19 mo), tort resolved, Hanger Band Grad

(4 years)

>

> My son will be 8 months old on the 22nd and his head is misshapen

on

> the right side of the back (the side that he favors). His ears are

not

> symmetrical and the other side of his head seems to bulge out a

little

> bit. We asked out pediatrician about this months ago and they just

> told us to put him on the other side of his head when he sleeps. We

> tried and tried but when we wake up in the morning he's on the

right

> side again.

>

> At his 6 month appointment they measured his head but didn't say a

> word about the plagiocephaly. I completely forgot to ask about it

too

> since I had a million other questions to ask. I really thought that

> once he started sitting up all the time it would correct himself,

but

> it hasn't.

>

> My question is, is there any chance at all that it will still

correct

> itself? We really can't afford thousands of dollars for a helmet. I

> know we're really running out of time. I really wish we would have

> done something earlier. I feel so terrible.

>

[Guest guest]

Don't feel bad about this...most PEDs dismiss plagio and say " it will

round out, " which it will to some degree. It really depends on the

severity. From what I'm told, a child's head forms all the way until

they're 4-5yrs old. However, what makes this so difficult is that

untreated plagio really is subjective. It may round out to where

you/he don't notice it with hair...or it may not round as much as

you'd like and bother him. It's in the eye of the beholder-my dad

didn't think my son's looked " that bad " but it was very noticable to

me(of course WE as moms notice every scrape, bruise, mole!).

If you want to pursue this, then I would look into getting an

assesment from Cranial Tech or Starband or another place. You can call

your PED and just ask for a referrel(yes, it may be time to become

" hysterical mom " and demanding!). I don't think that Cranial Tech

requires a referrel for the first visit/assessment(don't quote me on

that), but they will need a letter of medical necessity if you decide

to do it.

If you can, I would just get an assessment somewhere and get

measurements to have an informed decision. This is a difficult thing

to go through...so if you can, explore all of your options. Good luck!

Keep us posted!

Bye, (Max DOCbanded 2/7)

>

> My son will be 8 months old on the 22nd and his head is misshapen on

> the right side of the back (the side that he favors). His ears are not

> symmetrical and the other side of his head seems to bulge out a little

> bit. We asked out pediatrician about this months ago and they just

> told us to put him on the other side of his head when he sleeps. We

> tried and tried but when we wake up in the morning he's on the right

> side again.

>

> At his 6 month appointment they measured his head but didn't say a

> word about the plagiocephaly. I completely forgot to ask about it too

> since I had a million other questions to ask. I really thought that

> once he started sitting up all the time it would correct himself, but

> it hasn't.

>

> My question is, is there any chance at all that it will still correct

> itself? We really can't afford thousands of dollars for a helmet. I

> know we're really running out of time. I really wish we would have

> done something earlier. I feel so terrible.

>

[Guest guest]

Don't feel bad about this...most PEDs dismiss plagio and say " it will

round out, " which it will to some degree. It really depends on the

severity. From what I'm told, a child's head forms all the way until

they're 4-5yrs old. However, what makes this so difficult is that

untreated plagio really is subjective. It may round out to where

you/he don't notice it with hair...or it may not round as much as

you'd like and bother him. It's in the eye of the beholder-my dad

didn't think my son's looked " that bad " but it was very noticable to

me(of course WE as moms notice every scrape, bruise, mole!).

If you want to pursue this, then I would look into getting an

assesment from Cranial Tech or Starband or another place. You can call

your PED and just ask for a referrel(yes, it may be time to become

" hysterical mom " and demanding!). I don't think that Cranial Tech

requires a referrel for the first visit/assessment(don't quote me on

that), but they will need a letter of medical necessity if you decide

to do it.

If you can, I would just get an assessment somewhere and get

measurements to have an informed decision. This is a difficult thing

to go through...so if you can, explore all of your options. Good luck!

Keep us posted!

Bye, (Max DOCbanded 2/7)

>

> My son will be 8 months old on the 22nd and his head is misshapen on

> the right side of the back (the side that he favors). His ears are not

> symmetrical and the other side of his head seems to bulge out a little

> bit. We asked out pediatrician about this months ago and they just

> told us to put him on the other side of his head when he sleeps. We

> tried and tried but when we wake up in the morning he's on the right

> side again.

>

> At his 6 month appointment they measured his head but didn't say a

> word about the plagiocephaly. I completely forgot to ask about it too

> since I had a million other questions to ask. I really thought that

> once he started sitting up all the time it would correct himself, but

> it hasn't.

>

> My question is, is there any chance at all that it will still correct

> itself? We really can't afford thousands of dollars for a helmet. I

> know we're really running out of time. I really wish we would have

> done something earlier. I feel so terrible.

>

[Guest guest]

Thank you so much to both of you ladies for your replies. I am

switching peds and am going to call this morning to make an

appointment with the new ped. I want him looked at right away. I was

thinking about it a lot and exactly what you said, I can't imagine

when he's older resenting us because we didn't do something to " fix "

him early on.

I just really wish I would have started researching earlier on so we

could have been doing treatment already rather than waiting til now.

But I really believed my ped when he told me his head would correct

itself naturally.

The ped also told us he did not have tort when we asked about him

favoring one side but I beg to differ now. The way he holds his

head, he always has it cocked to one side.

I took pictures of his head, how do I post them here? I'd like to

get opinions on if you think it is moderate or severe.

Thanks for your help!

> >

> > My son will be 8 months old on the 22nd and his head is

misshapen on

> > the right side of the back (the side that he favors). His ears

are not

> > symmetrical and the other side of his head seems to bulge out a

little

> > bit. We asked out pediatrician about this months ago and they

just

> > told us to put him on the other side of his head when he sleeps.

We

> > tried and tried but when we wake up in the morning he's on the

right

> > side again.

> >

> > At his 6 month appointment they measured his head but didn't say

a

> > word about the plagiocephaly. I completely forgot to ask about

it too

> > since I had a million other questions to ask. I really thought

that

> > once he started sitting up all the time it would correct

himself, but

> > it hasn't.

> >

> > My question is, is there any chance at all that it will still

correct

> > itself? We really can't afford thousands of dollars for a

helmet. I

> > know we're really running out of time. I really wish we would

have

> > done something earlier. I feel so terrible.

> >

>

[Guest guest]

Thank you so much to both of you ladies for your replies. I am

switching peds and am going to call this morning to make an

appointment with the new ped. I want him looked at right away. I was

thinking about it a lot and exactly what you said, I can't imagine

when he's older resenting us because we didn't do something to " fix "

him early on.

I just really wish I would have started researching earlier on so we

could have been doing treatment already rather than waiting til now.

But I really believed my ped when he told me his head would correct

itself naturally.

The ped also told us he did not have tort when we asked about him

favoring one side but I beg to differ now. The way he holds his

head, he always has it cocked to one side.

I took pictures of his head, how do I post them here? I'd like to

get opinions on if you think it is moderate or severe.

Thanks for your help!

> >

> > My son will be 8 months old on the 22nd and his head is

misshapen on

> > the right side of the back (the side that he favors). His ears

are not

> > symmetrical and the other side of his head seems to bulge out a

little

> > bit. We asked out pediatrician about this months ago and they

just

> > told us to put him on the other side of his head when he sleeps.

We

> > tried and tried but when we wake up in the morning he's on the

right

> > side again.

> >

> > At his 6 month appointment they measured his head but didn't say

a

> > word about the plagiocephaly. I completely forgot to ask about

it too

> > since I had a million other questions to ask. I really thought

that

> > once he started sitting up all the time it would correct

himself, but

> > it hasn't.

> >

> > My question is, is there any chance at all that it will still

correct

> > itself? We really can't afford thousands of dollars for a

helmet. I

> > know we're really running out of time. I really wish we would

have

> > done something earlier. I feel so terrible.

> >

>

[Guest guest]

I agree with Jen. Helmet therapy is the most effective and quickest means

to correct plagiocephaly.

Forget what the doctor or doctors are telling or advising you for a moment.

Put yourself in the driver's seat with your son's condition. What do you

think about your son's head? Does it bother you? Do you notice the

plagiocephaly? If so, look into helmet therapy. Consider the consequences

if you do or do not get your son a band. Will the shape stay the same,

improve or worsen if you do or do not get the band, bearing in mind that

there are no guarantees in life? What are your expectations about your

son's head?

If you need reassurance, get a second or third opinion. If possible, see a

cranial facial specialist. Ask the doctors if this was their FIRST child or

grandchild and they had flattening and facial asymmetry, what would they do?

How long would they wait before pursuing helmet therapy? Essentially, you

want to ask what they would do in your shoes. However, I think it's

important to stipulate if it was their first child or grandchild because

people are generally quicker to react and less apt let conditions slide with

a firstborn, but, of course, that's only my opinion.

Remember none of us want our babies to wear a helmet but we realize it may

be a necessary evil like immunization shots. Like many here, I wish my

son's head would round out naturally and his facial asymmetry would remedy

itself too naturally. However, it hasn't until now and I honestly don't

think it will without medical intervention. I'm not looking for perfection,

but son has a little baldness of the affected side of his head and his ears,

eyes, cheeks, and forehead are misaligned. Personally, I don't think I

could live with the guilt if I didn't try to explore all avenues and every

possible means within my capacity years down the road, but everyone is

different.

I say follow your gut instinct and be happy with your decision and don't

second guess yourself. At the end of the day, you're the parent; not the

doctors. You have to be the advocate for your son and decide what's best

for him. Good luck.

Carolyn in NYC

Mum to Malcolm - 4 mos - plagio and tort

Re: Any chance of natural correction?

Hello. There is usually a chance of it somewhat correcting on its

own, however, there is no guarantee. It sounds as if your Son may

also have torticollis which is a shortening of the neck muscle on one

side. Is he able to turn his head all the way to the left? If it

seems as if he is having trouble with tunring his head, always favors

turning it to one side and/or doesn't have a good range of motion,

you will want to talk to the Dr about Physical Therapy. Torticollis

is a common cause of plagiocephaly.

At your Son's age, time is of the essence, as far as starting Helmet

therapy. If you are not happy with how his head looks now, pursuing

helmet therapy would be in your best interest, since there is no

guarantee it will improve on its own. Yes, helmet therapy can be

expensive though Insurance often covers it (all or in part), though

sometimes you have to fight to get the coverage. Others have also

taken out loans and/or had fundraisers to raise the $ when their

Insurance didn't cover it. What you have to think of is if you

didn't do anything, and your Son's head shape never improves... would

you regret it and/or feel guilty later? If the answer is yes, then

it would be a good idea to get the ball rolling as soon as possible.

At 8 months old, you most likely would not really see results with

repositioning him, as the Dr suggested to you.

I have a friend whose Son had moderate to severe plagiocephaly as a

baby. She listened to the Dr when they said it would " round out on

its own " and she did nothing for him. He is now 4 years old, still

has a mishapen head, misaligned ears and some facial asymmetry. I

don't mean to scare you or upset you... but you still have time to

correct it now.

Jen

(19 mo), tort resolved, Hanger Band Grad

(4 years)

>

> My son will be 8 months old on the 22nd and his head is misshapen

on

> the right side of the back (the side that he favors). His ears are

not

> symmetrical and the other side of his head seems to bulge out a

little

> bit. We asked out pediatrician about this months ago and they just

> told us to put him on the other side of his head when he sleeps. We

> tried and tried but when we wake up in the morning he's on the

right

> side again.

>

> At his 6 month appointment they measured his head but didn't say a

> word about the plagiocephaly. I completely forgot to ask about it

too

> since I had a million other questions to ask. I really thought that

> once he started sitting up all the time it would correct himself,

but

> it hasn't.

>

> My question is, is there any chance at all that it will still

correct

> itself? We really can't afford thousands of dollars for a helmet. I

> know we're really running out of time. I really wish we would have

> done something earlier. I feel so terrible.

>

For more plagio info

[Guest guest]

I agree with Jen. Helmet therapy is the most effective and quickest means

to correct plagiocephaly.

Forget what the doctor or doctors are telling or advising you for a moment.

Put yourself in the driver's seat with your son's condition. What do you

think about your son's head? Does it bother you? Do you notice the

plagiocephaly? If so, look into helmet therapy. Consider the consequences

if you do or do not get your son a band. Will the shape stay the same,

improve or worsen if you do or do not get the band, bearing in mind that

there are no guarantees in life? What are your expectations about your

son's head?

If you need reassurance, get a second or third opinion. If possible, see a

cranial facial specialist. Ask the doctors if this was their FIRST child or

grandchild and they had flattening and facial asymmetry, what would they do?

How long would they wait before pursuing helmet therapy? Essentially, you

want to ask what they would do in your shoes. However, I think it's

important to stipulate if it was their first child or grandchild because

people are generally quicker to react and less apt let conditions slide with

a firstborn, but, of course, that's only my opinion.

Remember none of us want our babies to wear a helmet but we realize it may

be a necessary evil like immunization shots. Like many here, I wish my

son's head would round out naturally and his facial asymmetry would remedy

itself too naturally. However, it hasn't until now and I honestly don't

think it will without medical intervention. I'm not looking for perfection,

but son has a little baldness of the affected side of his head and his ears,

eyes, cheeks, and forehead are misaligned. Personally, I don't think I

could live with the guilt if I didn't try to explore all avenues and every

possible means within my capacity years down the road, but everyone is

different.

I say follow your gut instinct and be happy with your decision and don't

second guess yourself. At the end of the day, you're the parent; not the

doctors. You have to be the advocate for your son and decide what's best

for him. Good luck.

Carolyn in NYC

Mum to Malcolm - 4 mos - plagio and tort

Re: Any chance of natural correction?

Hello. There is usually a chance of it somewhat correcting on its

own, however, there is no guarantee. It sounds as if your Son may

also have torticollis which is a shortening of the neck muscle on one

side. Is he able to turn his head all the way to the left? If it

seems as if he is having trouble with tunring his head, always favors

turning it to one side and/or doesn't have a good range of motion,

you will want to talk to the Dr about Physical Therapy. Torticollis

is a common cause of plagiocephaly.

At your Son's age, time is of the essence, as far as starting Helmet

therapy. If you are not happy with how his head looks now, pursuing

helmet therapy would be in your best interest, since there is no

guarantee it will improve on its own. Yes, helmet therapy can be

expensive though Insurance often covers it (all or in part), though

sometimes you have to fight to get the coverage. Others have also

taken out loans and/or had fundraisers to raise the $ when their

Insurance didn't cover it. What you have to think of is if you

didn't do anything, and your Son's head shape never improves... would

you regret it and/or feel guilty later? If the answer is yes, then

it would be a good idea to get the ball rolling as soon as possible.

At 8 months old, you most likely would not really see results with

repositioning him, as the Dr suggested to you.

I have a friend whose Son had moderate to severe plagiocephaly as a

baby. She listened to the Dr when they said it would " round out on

its own " and she did nothing for him. He is now 4 years old, still

has a mishapen head, misaligned ears and some facial asymmetry. I

don't mean to scare you or upset you... but you still have time to

correct it now.

Jen

(19 mo), tort resolved, Hanger Band Grad

(4 years)

>

> My son will be 8 months old on the 22nd and his head is misshapen

on

> the right side of the back (the side that he favors). His ears are

not

> symmetrical and the other side of his head seems to bulge out a

little

> bit. We asked out pediatrician about this months ago and they just

> told us to put him on the other side of his head when he sleeps. We

> tried and tried but when we wake up in the morning he's on the

right

> side again.

>

> At his 6 month appointment they measured his head but didn't say a

> word about the plagiocephaly. I completely forgot to ask about it

too

> since I had a million other questions to ask. I really thought that

> once he started sitting up all the time it would correct himself,

but

> it hasn't.

>

> My question is, is there any chance at all that it will still

correct

> itself? We really can't afford thousands of dollars for a helmet. I

> know we're really running out of time. I really wish we would have

> done something earlier. I feel so terrible.

>

For more plagio info

[Guest guest]

The same thing has happened to me. I

noticed the flattening at 5 weeks of age (left side). My son’s Ped kept

telling me that it would round out by the time he was 6 months old. At his 6

month check up he told me that he didn’t like the way it looked. He

referred us to a plastic surgeon whom we couldn’t get in to until he was

7 months old (that appt was Monday). He basically told us that it was a mild

case and it was our decision as to whether we wanted to do helmet therapy. He

said that he could guarantee that it wouldn’t get any worse but he couldn’t

tell me how much better it would get. His eyes, nose, and mouth are all

symmetric but his ears are slightly off. We were faced with a tough decision,

but we have decided to do what we can while we can and go ahead with the helmet

therapy. We have an appt on Monday for a consultation and we won’t

actually get the helmet until 3 weeks after that…so he will be 8 months

when he actually gets it. I blame the Ped for letting this go on too long! I’m

not looking forward to this at all. This support group has given me a lot of

insight and confidence. Good luck to all of you!

, Mom of Will (7mths –

getting helmet in 3 weeks)

From:

Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of skytza05

Sent: Wednesday, March 15, 2006

9:30 AM

Plagiocephaly

Subject: Re: Any chance

of natural correction?

Thank you so much to both of

you ladies for your replies. I am

switching peds and am going to call this morning

to make an

appointment with the new ped. I want him looked at

right away. I was

thinking about it a lot and exactly what you said,

I can't imagine

when he's older resenting us because we didn't do

something to " fix "

him early on.

I just really wish I would have started

researching earlier on so we

could have been doing treatment already rather

than waiting til now.

But I really believed my ped when he told me his

head would correct

itself naturally.

The ped also told us he did not have tort when we

asked about him

favoring one side but I beg to differ now. The way

he holds his

head, he always has it cocked to one side.

I took pictures of his head, how do I post them

here? I'd like to

get opinions on if you think it is moderate or

severe.

Thanks for your help!

> >

> > My son will be 8 months old on the 22nd

and his head is

misshapen on

> > the right side of the back (the side

that he favors). His ears

are not

> > symmetrical and the other side of his

head seems to bulge out a

little

> > bit. We asked out pediatrician about this

months ago and they

just

> > told us to put him on the other side of

his head when he sleeps.

We

> > tried and tried but when we wake up in

the morning he's on the

right

> > side again.

> >

> > At his 6 month appointment they measured

his head but didn't say

a

> > word about the plagiocephaly. I

completely forgot to ask about

it too

> > since I had a million other questions to

ask. I really thought

that

> > once he started sitting up all the time

it would correct

himself, but

> > it hasn't.

> >

> > My question is, is there any chance at

all that it will still

correct

> > itself? We really can't afford thousands

of dollars for a

helmet. I

> > know we're really running out of time. I

really wish we would

have

> > done something earlier. I feel so

terrible.

> >

>

[Guest guest]

The same thing has happened to me. I

noticed the flattening at 5 weeks of age (left side). My son’s Ped kept

telling me that it would round out by the time he was 6 months old. At his 6

month check up he told me that he didn’t like the way it looked. He

referred us to a plastic surgeon whom we couldn’t get in to until he was

7 months old (that appt was Monday). He basically told us that it was a mild

case and it was our decision as to whether we wanted to do helmet therapy. He

said that he could guarantee that it wouldn’t get any worse but he couldn’t

tell me how much better it would get. His eyes, nose, and mouth are all

symmetric but his ears are slightly off. We were faced with a tough decision,

but we have decided to do what we can while we can and go ahead with the helmet

therapy. We have an appt on Monday for a consultation and we won’t

actually get the helmet until 3 weeks after that…so he will be 8 months

when he actually gets it. I blame the Ped for letting this go on too long! I’m

not looking forward to this at all. This support group has given me a lot of

insight and confidence. Good luck to all of you!

, Mom of Will (7mths –

getting helmet in 3 weeks)

From:

Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of skytza05

Sent: Wednesday, March 15, 2006

9:30 AM

Plagiocephaly

Subject: Re: Any chance

of natural correction?

Thank you so much to both of

you ladies for your replies. I am

switching peds and am going to call this morning

to make an

appointment with the new ped. I want him looked at

right away. I was

thinking about it a lot and exactly what you said,

I can't imagine

when he's older resenting us because we didn't do

something to " fix "

him early on.

I just really wish I would have started

researching earlier on so we

could have been doing treatment already rather

than waiting til now.

But I really believed my ped when he told me his

head would correct

itself naturally.

The ped also told us he did not have tort when we

asked about him

favoring one side but I beg to differ now. The way

he holds his

head, he always has it cocked to one side.

I took pictures of his head, how do I post them

here? I'd like to

get opinions on if you think it is moderate or

severe.

Thanks for your help!

> >

> > My son will be 8 months old on the 22nd

and his head is

misshapen on

> > the right side of the back (the side

that he favors). His ears

are not

> > symmetrical and the other side of his

head seems to bulge out a

little

> > bit. We asked out pediatrician about this

months ago and they

just

> > told us to put him on the other side of

his head when he sleeps.

We

> > tried and tried but when we wake up in

the morning he's on the

right

> > side again.

> >

> > At his 6 month appointment they measured

his head but didn't say

a

> > word about the plagiocephaly. I

completely forgot to ask about

it too

> > since I had a million other questions to

ask. I really thought

that

> > once he started sitting up all the time

it would correct

himself, but

> > it hasn't.

> >

> > My question is, is there any chance at

all that it will still

correct

> > itself? We really can't afford thousands

of dollars for a

helmet. I

> > know we're really running out of time. I

really wish we would

have

> > done something earlier. I feel so

terrible.

> >

>

[Guest guest]

Hi skytza,

Our ped kept ignoring me everytime I mentioned baby's head... " it'll

round out on it's own " " his hair will cover it " ... <--I hate that!

One time he told me " what is it whith all these moms and baby's

heads? "

Next visit I just came armed with a lot of info from the net and I

brought my husband to block the door until we got a prescription to

see a especialist. :) But we didn't change peds because of that,

we like him otherwise,

so my question is: do you have to change peds to get a Rx?

Time is of the essence. Get a free consult at CT, inform yourself

and if you decide to do something about it don't waste any time.

skytza, did you use to post at Baby and Me?

Tulip & baby

plagio, 7 months, (generic/starband + God's help) Los Angeles.

> >

> > Don't feel bad about this...most PEDs dismiss plagio and say " it

> will

> > round out, " which it will to some degree. It really depends on

the

> > severity. From what I'm told, a child's head forms all the way

> until

> > they're 4-5yrs old. However, what makes this so difficult is that

> > untreated plagio really is subjective. It may round out to where

> > you/he don't notice it with hair...or it may not round as much as

> > you'd like and bother him. It's in the eye of the beholder-my dad

> > didn't think my son's looked " that bad " but it was very

noticable

> to

> > me(of course WE as moms notice every scrape, bruise, mole!).

> >

> > If you want to pursue this, then I would look into getting an

> > assesment from Cranial Tech or Starband or another place. You

can

> call

> > your PED and just ask for a referrel(yes, it may be time to

become

> > " hysterical mom " and demanding!). I don't think that Cranial Tech

> > requires a referrel for the first visit/assessment(don't quote

me

> on

> > that), but they will need a letter of medical necessity if you

> decide

> > to do it.

> >

> > If you can, I would just get an assessment somewhere and get

> > measurements to have an informed decision. This is a difficult

> thing

> > to go through...so if you can, explore all of your options. Good

> luck!

> > Keep us posted!

> > Bye, (Max DOCbanded 2/7)

> >

> > --- In Plagiocephaly , " skytza05 " <skytza05@>

wrote:

> > >

> > > My son will be 8 months old on the 22nd and his head is

> misshapen on

> > > the right side of the back (the side that he favors). His ears

> are not

> > > symmetrical and the other side of his head seems to bulge out

a

> little

> > > bit. We asked out pediatrician about this months ago and they

> just

> > > told us to put him on the other side of his head when he

sleeps.

> We

> > > tried and tried but when we wake up in the morning he's on the

> right

> > > side again.

> > >

> > > At his 6 month appointment they measured his head but didn't

say

> a

> > > word about the plagiocephaly. I completely forgot to ask about

> it too

> > > since I had a million other questions to ask. I really thought

> that

> > > once he started sitting up all the time it would correct

> himself, but

> > > it hasn't.

> > >

> > > My question is, is there any chance at all that it will still

> correct

> > > itself? We really can't afford thousands of dollars for a

> helmet. I

> > > know we're really running out of time. I really wish we would

> have

> > > done something earlier. I feel so terrible.

> > >

> >

>

[Guest guest]

Hi skytza,

Our ped kept ignoring me everytime I mentioned baby's head... " it'll

round out on it's own " " his hair will cover it " ... <--I hate that!

One time he told me " what is it whith all these moms and baby's

heads? "

Next visit I just came armed with a lot of info from the net and I

brought my husband to block the door until we got a prescription to

see a especialist. :) But we didn't change peds because of that,

we like him otherwise,

so my question is: do you have to change peds to get a Rx?

Time is of the essence. Get a free consult at CT, inform yourself

and if you decide to do something about it don't waste any time.

skytza, did you use to post at Baby and Me?

Tulip & baby

plagio, 7 months, (generic/starband + God's help) Los Angeles.

> >

> > Don't feel bad about this...most PEDs dismiss plagio and say " it

> will

> > round out, " which it will to some degree. It really depends on

the

> > severity. From what I'm told, a child's head forms all the way

> until

> > they're 4-5yrs old. However, what makes this so difficult is that

> > untreated plagio really is subjective. It may round out to where

> > you/he don't notice it with hair...or it may not round as much as

> > you'd like and bother him. It's in the eye of the beholder-my dad

> > didn't think my son's looked " that bad " but it was very

noticable

> to

> > me(of course WE as moms notice every scrape, bruise, mole!).

> >

> > If you want to pursue this, then I would look into getting an

> > assesment from Cranial Tech or Starband or another place. You

can

> call

> > your PED and just ask for a referrel(yes, it may be time to

become

> > " hysterical mom " and demanding!). I don't think that Cranial Tech

> > requires a referrel for the first visit/assessment(don't quote

me

> on

> > that), but they will need a letter of medical necessity if you

> decide

> > to do it.

> >

> > If you can, I would just get an assessment somewhere and get

> > measurements to have an informed decision. This is a difficult

> thing

> > to go through...so if you can, explore all of your options. Good

> luck!

> > Keep us posted!

> > Bye, (Max DOCbanded 2/7)

> >

> > --- In Plagiocephaly , " skytza05 " <skytza05@>

wrote:

> > >

> > > My son will be 8 months old on the 22nd and his head is

> misshapen on

> > > the right side of the back (the side that he favors). His ears

> are not

> > > symmetrical and the other side of his head seems to bulge out

a

> little

> > > bit. We asked out pediatrician about this months ago and they

> just

> > > told us to put him on the other side of his head when he

sleeps.

> We

> > > tried and tried but when we wake up in the morning he's on the

> right

> > > side again.

> > >

> > > At his 6 month appointment they measured his head but didn't

say

> a

> > > word about the plagiocephaly. I completely forgot to ask about

> it too

> > > since I had a million other questions to ask. I really thought

> that

> > > once he started sitting up all the time it would correct

> himself, but

> > > it hasn't.

> > >

> > > My question is, is there any chance at all that it will still

> correct

> > > itself? We really can't afford thousands of dollars for a

> helmet. I

> > > know we're really running out of time. I really wish we would

> have

> > > done something earlier. I feel so terrible.

> > >

> >

>

[Guest guest]

Good for you! I'm glad that you are going to pursue things and go

see a new ped.

You can still see very good correction with a band at your Son's

age. Good luck with everything!

You can post pics in the photo section under plagio babies (and then

the first letter of your Son's first name. Just open that folder,

and click on add picture. If you have any problems, the moderators

should be able to help you add the pics.

Keep us posted

Jen

(19 mo), tort resolved, Hanger Band Grad

(4 years)

> >

> > Don't feel bad about this...most PEDs dismiss plagio and say " it

> will

> > round out, " which it will to some degree. It really depends on the

> > severity. From what I'm told, a child's head forms all the way

> until

> > they're 4-5yrs old. However, what makes this so difficult is that

> > untreated plagio really is subjective. It may round out to where

> > you/he don't notice it with hair...or it may not round as much as

> > you'd like and bother him. It's in the eye of the beholder-my dad

> > didn't think my son's looked " that bad " but it was very noticable

> to

> > me(of course WE as moms notice every scrape, bruise, mole!).

> >

> > If you want to pursue this, then I would look into getting an

> > assesment from Cranial Tech or Starband or another place. You can

> call

> > your PED and just ask for a referrel(yes, it may be time to become

> > " hysterical mom " and demanding!). I don't think that Cranial Tech

> > requires a referrel for the first visit/assessment(don't quote me

> on

> > that), but they will need a letter of medical necessity if you

> decide

> > to do it.

> >

> > If you can, I would just get an assessment somewhere and get

> > measurements to have an informed decision. This is a difficult

> thing

> > to go through...so if you can, explore all of your options. Good

> luck!

> > Keep us posted!

> > Bye, (Max DOCbanded 2/7)

> >

> > --- In Plagiocephaly , " skytza05 " <skytza05@>

wrote:

> > >

> > > My son will be 8 months old on the 22nd and his head is

> misshapen on

> > > the right side of the back (the side that he favors). His ears

> are not

> > > symmetrical and the other side of his head seems to bulge out a

> little

> > > bit. We asked out pediatrician about this months ago and they

> just

> > > told us to put him on the other side of his head when he

sleeps.

> We

> > > tried and tried but when we wake up in the morning he's on the

> right

> > > side again.

> > >

> > > At his 6 month appointment they measured his head but didn't

say

> a

> > > word about the plagiocephaly. I completely forgot to ask about

> it too

> > > since I had a million other questions to ask. I really thought

> that

> > > once he started sitting up all the time it would correct

> himself, but

> > > it hasn't.

> > >

> > > My question is, is there any chance at all that it will still

> correct

> > > itself? We really can't afford thousands of dollars for a

> helmet. I

> > > know we're really running out of time. I really wish we would

> have

> > > done something earlier. I feel so terrible.

> > >

> >

>

[Guest guest]

Good for you! I'm glad that you are going to pursue things and go

see a new ped.

You can still see very good correction with a band at your Son's

age. Good luck with everything!

You can post pics in the photo section under plagio babies (and then

the first letter of your Son's first name. Just open that folder,

and click on add picture. If you have any problems, the moderators

should be able to help you add the pics.

Keep us posted

Jen

(19 mo), tort resolved, Hanger Band Grad

(4 years)

> >

> > Don't feel bad about this...most PEDs dismiss plagio and say " it

> will

> > round out, " which it will to some degree. It really depends on the

> > severity. From what I'm told, a child's head forms all the way

> until

> > they're 4-5yrs old. However, what makes this so difficult is that

> > untreated plagio really is subjective. It may round out to where

> > you/he don't notice it with hair...or it may not round as much as

> > you'd like and bother him. It's in the eye of the beholder-my dad

> > didn't think my son's looked " that bad " but it was very noticable

> to

> > me(of course WE as moms notice every scrape, bruise, mole!).

> >

> > If you want to pursue this, then I would look into getting an

> > assesment from Cranial Tech or Starband or another place. You can

> call

> > your PED and just ask for a referrel(yes, it may be time to become

> > " hysterical mom " and demanding!). I don't think that Cranial Tech

> > requires a referrel for the first visit/assessment(don't quote me

> on

> > that), but they will need a letter of medical necessity if you

> decide

> > to do it.

> >

> > If you can, I would just get an assessment somewhere and get

> > measurements to have an informed decision. This is a difficult

> thing

> > to go through...so if you can, explore all of your options. Good

> luck!

> > Keep us posted!

> > Bye, (Max DOCbanded 2/7)

> >

> > --- In Plagiocephaly , " skytza05 " <skytza05@>

wrote:

> > >

> > > My son will be 8 months old on the 22nd and his head is

> misshapen on

> > > the right side of the back (the side that he favors). His ears

> are not

> > > symmetrical and the other side of his head seems to bulge out a

> little

> > > bit. We asked out pediatrician about this months ago and they

> just

> > > told us to put him on the other side of his head when he

sleeps.

> We

> > > tried and tried but when we wake up in the morning he's on the

> right

> > > side again.

> > >

> > > At his 6 month appointment they measured his head but didn't

say

> a

> > > word about the plagiocephaly. I completely forgot to ask about

> it too

> > > since I had a million other questions to ask. I really thought

> that

> > > once he started sitting up all the time it would correct

> himself, but

> > > it hasn't.

> > >

> > > My question is, is there any chance at all that it will still

> correct

> > > itself? We really can't afford thousands of dollars for a

> helmet. I

> > > know we're really running out of time. I really wish we would

> have

> > > done something earlier. I feel so terrible.

> > >

> >

>

[Guest guest]

I didn't like our ped much anyway. They screwed up our billing and

were sending the info to the wrong insurance. Bunch of idiots if you

ask me. I wanted to switch anyway.

We did get an appointment for 4:50 today at the new ped already. I'm

definitely going in there armed with info! If they brush me off too

I'm going to blow my top.

And by the way, yes I did used to post at Baby & Me. What was your

name there?

> > > >

> > > > My son will be 8 months old on the 22nd and his head is

> > misshapen on

> > > > the right side of the back (the side that he favors). His

ears

> > are not

> > > > symmetrical and the other side of his head seems to bulge

out

> a

> > little

> > > > bit. We asked out pediatrician about this months ago and

they

> > just

> > > > told us to put him on the other side of his head when he

> sleeps.

> > We

> > > > tried and tried but when we wake up in the morning he's on

the

> > right

> > > > side again.

> > > >

> > > > At his 6 month appointment they measured his head but didn't

> say

> > a

> > > > word about the plagiocephaly. I completely forgot to ask

about

> > it too

> > > > since I had a million other questions to ask. I really

thought

> > that

> > > > once he started sitting up all the time it would correct

> > himself, but

> > > > it hasn't.

> > > >

> > > > My question is, is there any chance at all that it will

still

> > correct

> > > > itself? We really can't afford thousands of dollars for a

> > helmet. I

> > > > know we're really running out of time. I really wish we

would

> > have

> > > > done something earlier. I feel so terrible.

> > > >

> > >

> >

>

[Guest guest]

I didn't like our ped much anyway. They screwed up our billing and

were sending the info to the wrong insurance. Bunch of idiots if you

ask me. I wanted to switch anyway.

We did get an appointment for 4:50 today at the new ped already. I'm

definitely going in there armed with info! If they brush me off too

I'm going to blow my top.

And by the way, yes I did used to post at Baby & Me. What was your

name there?

> > > >

> > > > My son will be 8 months old on the 22nd and his head is

> > misshapen on

> > > > the right side of the back (the side that he favors). His

ears

> > are not

> > > > symmetrical and the other side of his head seems to bulge

out

> a

> > little

> > > > bit. We asked out pediatrician about this months ago and

they

> > just

> > > > told us to put him on the other side of his head when he

> sleeps.

> > We

> > > > tried and tried but when we wake up in the morning he's on

the

> > right

> > > > side again.

> > > >

> > > > At his 6 month appointment they measured his head but didn't

> say

> > a

> > > > word about the plagiocephaly. I completely forgot to ask

about

> > it too

> > > > since I had a million other questions to ask. I really

thought

> > that

> > > > once he started sitting up all the time it would correct

> > himself, but

> > > > it hasn't.

> > > >

> > > > My question is, is there any chance at all that it will

still

> > correct

> > > > itself? We really can't afford thousands of dollars for a

> > helmet. I

> > > > know we're really running out of time. I really wish we

would

> > have

> > > > done something earlier. I feel so terrible.

> > > >

> > >

> >

>

[Guest guest]

You may recieve some natural correction over time, but this is

usually slight and will probably not realign the ears or correct the

bulging enough that you would say it's all gone now. Contact your

insurance company and see if they cover any type of band. You can

also ask other how they came up with ways to fundraise for thiers.

Some people have gone to thier churches and the church will take up a

collection, there are many ways to get help outside the normal

ways....be creative. Good Luck.

CAROLG

>

> My son will be 8 months old on the 22nd and his head is misshapen

on

> the right side of the back (the side that he favors). His ears are

not

> symmetrical and the other side of his head seems to bulge out a

little

> bit. We asked out pediatrician about this months ago and they just

> told us to put him on the other side of his head when he sleeps. We

> tried and tried but when we wake up in the morning he's on the

right

> side again.

>

> At his 6 month appointment they measured his head but didn't say a

> word about the plagiocephaly. I completely forgot to ask about it

too

> since I had a million other questions to ask. I really thought that

> once he started sitting up all the time it would correct himself,

but

> it hasn't.

>

> My question is, is there any chance at all that it will still

correct

> itself? We really can't afford thousands of dollars for a helmet. I

> know we're really running out of time. I really wish we would have

> done something earlier. I feel so terrible.

>

[Guest guest]

You may recieve some natural correction over time, but this is

usually slight and will probably not realign the ears or correct the

bulging enough that you would say it's all gone now. Contact your

insurance company and see if they cover any type of band. You can

also ask other how they came up with ways to fundraise for thiers.

Some people have gone to thier churches and the church will take up a

collection, there are many ways to get help outside the normal

ways....be creative. Good Luck.

CAROLG

>

> My son will be 8 months old on the 22nd and his head is misshapen

on

> the right side of the back (the side that he favors). His ears are

not

> symmetrical and the other side of his head seems to bulge out a

little

> bit. We asked out pediatrician about this months ago and they just

> told us to put him on the other side of his head when he sleeps. We

> tried and tried but when we wake up in the morning he's on the

right

> side again.

>

> At his 6 month appointment they measured his head but didn't say a

> word about the plagiocephaly. I completely forgot to ask about it

too

> since I had a million other questions to ask. I really thought that

> once he started sitting up all the time it would correct himself,

but

> it hasn't.

>

> My question is, is there any chance at all that it will still

correct

> itself? We really can't afford thousands of dollars for a helmet. I

> know we're really running out of time. I really wish we would have

> done something earlier. I feel so terrible.

>

[Guest guest]

skytza, I often wondered what happened to you. If I recall

correctly, there were a few bumps on the road during your pregnancy.

Glad to hear your baby is ok, we were pretty worried about you.

Several members at BAM (me included) asked about you and somebody

said you were banned from the forums, is this true? 0_0

Anyways, good luck getting all your referrals. We had to take an x-

ray and see a neuro surgeon before we could get the band.

It seemed like a struggle at first and we had to make a million

phone calls but once they approved it everything moved really fast.

best of luck to you and your baby.

Tulip and baby Chris.

> > > > >

> > > > > My son will be 8 months old on the 22nd and his head is

> > > misshapen on

> > > > > the right side of the back (the side that he favors). His

> ears

> > > are not

> > > > > symmetrical and the other side of his head seems to bulge

> out

> > a

> > > little

> > > > > bit. We asked out pediatrician about this months ago and

> they

> > > just

> > > > > told us to put him on the other side of his head when he

> > sleeps.

> > > We

> > > > > tried and tried but when we wake up in the morning he's on

> the

> > > right

> > > > > side again.

> > > > >

> > > > > At his 6 month appointment they measured his head but

didn't

> > say

> > > a

> > > > > word about the plagiocephaly. I completely forgot to ask

> about

> > > it too

> > > > > since I had a million other questions to ask. I really

> thought

> > > that

> > > > > once he started sitting up all the time it would correct

> > > himself, but

> > > > > it hasn't.

> > > > >

> > > > > My question is, is there any chance at all that it will

> still

> > > correct

> > > > > itself? We really can't afford thousands of dollars for a

> > > helmet. I

> > > > > know we're really running out of time. I really wish we

> would

> > > have

> > > > > done something earlier. I feel so terrible.

> > > > >

> > > >

> > >

> >

>

[Guest guest]

skytza, I often wondered what happened to you. If I recall

correctly, there were a few bumps on the road during your pregnancy.

Glad to hear your baby is ok, we were pretty worried about you.

Several members at BAM (me included) asked about you and somebody

said you were banned from the forums, is this true? 0_0

Anyways, good luck getting all your referrals. We had to take an x-

ray and see a neuro surgeon before we could get the band.

It seemed like a struggle at first and we had to make a million

phone calls but once they approved it everything moved really fast.

best of luck to you and your baby.

Tulip and baby Chris.

> > > > >

> > > > > My son will be 8 months old on the 22nd and his head is

> > > misshapen on

> > > > > the right side of the back (the side that he favors). His

> ears

> > > are not

> > > > > symmetrical and the other side of his head seems to bulge

> out

> > a

> > > little

> > > > > bit. We asked out pediatrician about this months ago and

> they

> > > just

> > > > > told us to put him on the other side of his head when he

> > sleeps.

> > > We

> > > > > tried and tried but when we wake up in the morning he's on

> the

> > > right

> > > > > side again.

> > > > >

> > > > > At his 6 month appointment they measured his head but

didn't

> > say

> > > a

> > > > > word about the plagiocephaly. I completely forgot to ask

> about

> > > it too

> > > > > since I had a million other questions to ask. I really

> thought

> > > that

> > > > > once he started sitting up all the time it would correct

> > > himself, but

> > > > > it hasn't.

> > > > >

> > > > > My question is, is there any chance at all that it will

> still

> > > correct

> > > > > itself? We really can't afford thousands of dollars for a

> > > helmet. I

> > > > > know we're really running out of time. I really wish we

> would

> > > have

> > > > > done something earlier. I feel so terrible.

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Thanks Tulip. We didn't have any luck at the new ped yesterday as

you can tell from my latest post. Tomorrow I am going to call the NS

and see what they say.

Were you in the August Babies group on BAM? Yes quite a few of us

were banned from there when we joined their " enemy " site after all

the stuff with Augustmommy2005 happened (remember that??).

I think that's around when things were really going bad with my

pregnancy but he amazed all of the doctors and made it here safe! He

was born at 37 weeks at 3 lbs 7 oz due to the IUGR and they found

out that the umbilical cord had only 2 vessels instead of 3 like it

should have. The doctors aren't sure if that's what caused all the

problems or not, they think it might have been an infection in my

uterus even though I was tested for just about everything you can

imagine and came back negative for all of them.

But anyway, I'm sorry to hear your baby has to go through this as

well. I'm still trying to remember what your user name was.. Tulip

just doesn't sound familiar to me.

Here's Ethan's website in case you wanted to see a picture (or a

million!) of him: http://www.bundleofjoys.com/sites/ethan

Take Care!

> > > > > >

> > > > > > My son will be 8 months old on the 22nd and his head is

> > > > misshapen on

> > > > > > the right side of the back (the side that he favors).

His

> > ears

> > > > are not

> > > > > > symmetrical and the other side of his head seems to

bulge

> > out

> > > a

> > > > little

> > > > > > bit. We asked out pediatrician about this months ago and

> > they

> > > > just

> > > > > > told us to put him on the other side of his head when he

> > > sleeps.

> > > > We

> > > > > > tried and tried but when we wake up in the morning he's

on

> > the

> > > > right

> > > > > > side again.

> > > > > >

> > > > > > At his 6 month appointment they measured his head but

> didn't

> > > say

> > > > a

> > > > > > word about the plagiocephaly. I completely forgot to ask

> > about

> > > > it too

> > > > > > since I had a million other questions to ask. I really

> > thought

> > > > that

> > > > > > once he started sitting up all the time it would correct

> > > > himself, but

> > > > > > it hasn't.

> > > > > >

> > > > > > My question is, is there any chance at all that it will

> > still

> > > > correct

> > > > > > itself? We really can't afford thousands of dollars for

a

> > > > helmet. I

> > > > > > know we're really running out of time. I really wish we

> > would

> > > > have

> > > > > > done something earlier. I feel so terrible.

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Thanks Tulip. We didn't have any luck at the new ped yesterday as

you can tell from my latest post. Tomorrow I am going to call the NS

and see what they say.

Were you in the August Babies group on BAM? Yes quite a few of us

were banned from there when we joined their " enemy " site after all

the stuff with Augustmommy2005 happened (remember that??).

I think that's around when things were really going bad with my

pregnancy but he amazed all of the doctors and made it here safe! He

was born at 37 weeks at 3 lbs 7 oz due to the IUGR and they found

out that the umbilical cord had only 2 vessels instead of 3 like it

should have. The doctors aren't sure if that's what caused all the

problems or not, they think it might have been an infection in my

uterus even though I was tested for just about everything you can

imagine and came back negative for all of them.

But anyway, I'm sorry to hear your baby has to go through this as

well. I'm still trying to remember what your user name was.. Tulip

just doesn't sound familiar to me.

Here's Ethan's website in case you wanted to see a picture (or a

million!) of him: http://www.bundleofjoys.com/sites/ethan

Take Care!

> > > > > >

> > > > > > My son will be 8 months old on the 22nd and his head is

> > > > misshapen on

> > > > > > the right side of the back (the side that he favors).

His

> > ears

> > > > are not

> > > > > > symmetrical and the other side of his head seems to

bulge

> > out

> > > a

> > > > little

> > > > > > bit. We asked out pediatrician about this months ago and

> > they

> > > > just

> > > > > > told us to put him on the other side of his head when he

> > > sleeps.

> > > > We

> > > > > > tried and tried but when we wake up in the morning he's

on

> > the

> > > > right

> > > > > > side again.

> > > > > >

> > > > > > At his 6 month appointment they measured his head but

> didn't

> > > say

> > > > a

> > > > > > word about the plagiocephaly. I completely forgot to ask

> > about

> > > > it too

> > > > > > since I had a million other questions to ask. I really

> > thought

> > > > that

> > > > > > once he started sitting up all the time it would correct

> > > > himself, but

> > > > > > it hasn't.

> > > > > >

> > > > > > My question is, is there any chance at all that it will

> > still

> > > > correct

> > > > > > itself? We really can't afford thousands of dollars for

a

> > > > helmet. I

> > > > > > know we're really running out of time. I really wish we

> > would

> > > > have

> > > > > > done something earlier. I feel so terrible.

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Sorry to hear about the new ped. I just read your new post and

looked at your pictures. I'm very happy for you and Ethan.

I forgot to say before, my name @ BAM is sapphires, I didn't post

that much so I don't know if you remember me, but I read a lot of

your posts. I was part of the august thread but I missed all the

action because they deleted a lot of stuff and when I asked for a

link to the other site my post got deleted too. LOL

oh well, it's good to hear from you.

Looking at the pics you posted here, it seems like Ethan may have

some tort? maybe some physical therapy could help? by all means go

to CT even if it's a drive. I have to drive 2 hours to see our OT,

so I understand that it's difficult, especially for you working full

time.

This site has a lot of good info, maybe in the files or database

sections you can find a good NS in your area. Also, look for info on

agressive positioning. It's not easy to be vigilant at all times but

I'm positive it helped baby's head a lot while we waited for his

appointments.

Good luck, remember our little miracles deserve all of our efforts.

Tulip.

> > > > > > >

> > > > > > > My son will be 8 months old on the 22nd and his head

is

> > > > > misshapen on

> > > > > > > the right side of the back (the side that he favors).

> His

> > > ears

> > > > > are not

> > > > > > > symmetrical and the other side of his head seems to

> bulge

> > > out

> > > > a

> > > > > little

> > > > > > > bit. We asked out pediatrician about this months ago

and

> > > they

> > > > > just

> > > > > > > told us to put him on the other side of his head when

he

> > > > sleeps.

> > > > > We

> > > > > > > tried and tried but when we wake up in the morning

he's

> on

> > > the

> > > > > right

> > > > > > > side again.

> > > > > > >

> > > > > > > At his 6 month appointment they measured his head but

> > didn't

> > > > say

> > > > > a

> > > > > > > word about the plagiocephaly. I completely forgot to

ask

> > > about

> > > > > it too

> > > > > > > since I had a million other questions to ask. I really

> > > thought

> > > > > that

> > > > > > > once he started sitting up all the time it would

correct

> > > > > himself, but

> > > > > > > it hasn't.

> > > > > > >

> > > > > > > My question is, is there any chance at all that it

will

> > > still

> > > > > correct

> > > > > > > itself? We really can't afford thousands of dollars

for

> a

> > > > > helmet. I

> > > > > > > know we're really running out of time. I really wish

we

> > > would

> > > > > have

> > > > > > > done something earlier. I feel so terrible.

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Sorry to hear about the new ped. I just read your new post and

looked at your pictures. I'm very happy for you and Ethan.

I forgot to say before, my name @ BAM is sapphires, I didn't post

that much so I don't know if you remember me, but I read a lot of

your posts. I was part of the august thread but I missed all the

action because they deleted a lot of stuff and when I asked for a

link to the other site my post got deleted too. LOL

oh well, it's good to hear from you.

Looking at the pics you posted here, it seems like Ethan may have

some tort? maybe some physical therapy could help? by all means go

to CT even if it's a drive. I have to drive 2 hours to see our OT,

so I understand that it's difficult, especially for you working full

time.

This site has a lot of good info, maybe in the files or database

sections you can find a good NS in your area. Also, look for info on

agressive positioning. It's not easy to be vigilant at all times but

I'm positive it helped baby's head a lot while we waited for his

appointments.

Good luck, remember our little miracles deserve all of our efforts.

Tulip.

> > > > > > >

> > > > > > > My son will be 8 months old on the 22nd and his head

is

> > > > > misshapen on

> > > > > > > the right side of the back (the side that he favors).

> His

> > > ears

> > > > > are not

> > > > > > > symmetrical and the other side of his head seems to

> bulge

> > > out

> > > > a

> > > > > little

> > > > > > > bit. We asked out pediatrician about this months ago

and

> > > they

> > > > > just

> > > > > > > told us to put him on the other side of his head when

he

> > > > sleeps.

> > > > > We

> > > > > > > tried and tried but when we wake up in the morning

he's

> on

> > > the

> > > > > right

> > > > > > > side again.

> > > > > > >

> > > > > > > At his 6 month appointment they measured his head but

> > didn't

> > > > say

> > > > > a

> > > > > > > word about the plagiocephaly. I completely forgot to

ask

> > > about

> > > > > it too

> > > > > > > since I had a million other questions to ask. I really

> > > thought

> > > > > that

> > > > > > > once he started sitting up all the time it would

correct

> > > > > himself, but

> > > > > > > it hasn't.

> > > > > > >

> > > > > > > My question is, is there any chance at all that it

will

> > > still

> > > > > correct

> > > > > > > itself? We really can't afford thousands of dollars

for

> a

> > > > > helmet. I

> > > > > > > know we're really running out of time. I really wish

we

> > > would

> > > > > have

> > > > > > > done something earlier. I feel so terrible.

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Okay so here is my totally unprofessional opinion...

I looked at the pictures, and it seems that his head might be longer

front to back and perhaps scaphocephalic. This, as I have read,

happens to babies who have spent time in the NICU because they have

very little muscle control and lay flat on the sides of their head

for extended periods of time. It can happen to other babies as

well, but is uncommon. (My daughter is this way, but only because

she sucks her thumb and turns her head to the side as she sleep.

She is definitely a creature of habit!!) In addition to this basic

head shape it looks to me like there is also some plagio for Ethan.

it looks like the right side of his forehead and cheek are pushed

forward and perhaps his ears are misaligned. It also looks like

there may be some asymmetry of the eyes, but it might just be the

picture.

YOU have to be the judge. This is only what I can see from the

pictures. I certainly can't see him in person. By the way, he has

the cutest chin. I love it!! And, there are some adorable pictures

on your website!!! What a cutie pie who looks like he loves life!!!

Please don't be upset if this sounds harsh. I may be totally off!!!

It just sounds and looks similar to what Sophie, my daughter, has.

Let me know what you think!

Sophie - STAR bivalve 3/15

P.S. It may take a different type of helmet to correct this if he

has scaphocephaly....

> > > > > > >

> > > > > > > My son will be 8 months old on the 22nd and his head

is

> > > > > misshapen on

> > > > > > > the right side of the back (the side that he favors).

> His

> > > ears

> > > > > are not

> > > > > > > symmetrical and the other side of his head seems to

> bulge

> > > out

> > > > a

> > > > > little

> > > > > > > bit. We asked out pediatrician about this months ago

and

> > > they

> > > > > just

> > > > > > > told us to put him on the other side of his head when

he

> > > > sleeps.

> > > > > We

> > > > > > > tried and tried but when we wake up in the morning

he's

> on

> > > the

> > > > > right

> > > > > > > side again.

> > > > > > >

> > > > > > > At his 6 month appointment they measured his head but

> > didn't

> > > > say

> > > > > a

> > > > > > > word about the plagiocephaly. I completely forgot to

ask

> > > about

> > > > > it too

> > > > > > > since I had a million other questions to ask. I really

> > > thought

> > > > > that

> > > > > > > once he started sitting up all the time it would

correct

> > > > > himself, but

> > > > > > > it hasn't.

> > > > > > >

> > > > > > > My question is, is there any chance at all that it

will

> > > still

> > > > > correct

> > > > > > > itself? We really can't afford thousands of dollars

for

> a

> > > > > helmet. I

> > > > > > > know we're really running out of time. I really wish

we

> > > would

> > > > > have

> > > > > > > done something earlier. I feel so terrible.

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>