Guest guest Posted November 23, 2003 Report Share Posted November 23, 2003 In a message dated 11/23/2003 4:22:16 PM Eastern Standard Time, jca@... writes: > appt for colon. that is one of the other things that > bothered > me, i haven't even taken the test, and she is assuming the > problem comes from there. Hi , I know the colonscopy seems like a lot, but they need to make sure you are not bleeding internally...I have many relatives who have fought horrible battles with colon cancer, so they always try to rule that out first. Just a hint to make it not so miserable...you can get orange flavored jello mix to mix in with the stuff they give you to drink the day before. It makes it easier to drink the stuff. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 >>> have you found that it helps to use a certain color of paper other then white? We are visual/color sensitive in my family so often go for muted colors. My favorite is light gray. Worse color paper is yellow like a legal pad. >>> Have any of you used narrative stories with you children in order to help them transition and have you found them to work or not work. I usually explain what will happen or what we will be doing in detail. But it isn't in 'social story' format. >>>Do most of you agree that PECS is a good system to implement for a student who is non-verbal? We never needed to use PECS but it appears to be a good system for those that do need it. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 I recommend narrative stories or " social stories " for any child having problems transitioning. I recommended it to one mom who only explained verbally for a week the child's activity and he went to the class with no problem (the weeks before he screamed and did whatever he could to get out of it, even though he liked it-he just didn't have a good understanding of what was happening). You can put them in book format, use real pictures or draw or whatever to help your child understand and take out the fear or lack of knowing that's causing the transition problem. Always keep them positive stating what you want the child to do and what will happen. My daughter's transition problems ended up to be that she couldn't see-the transition problems ended within 6 months of getting glasses. PECS is a great system. For a non-verbal if they can sign you may want to go that route instead. We couldn't use sign because my daughter didn't have the fine motor skills and then when she got glasses I realized she couldn't see previously to have imitated the signs. We use PECS (or PCS which is Boardmaker) for schedules all the time even though my daughter is now completely verbal. She just can't get things out of her head so the pictures help her know what she's supposed to do. Best Wishes! Becky > Dear group, > Thank you so much for helping me out. After reading through some of the > messages you all have written I have found a few more questions to ask. First, > have you found that it helps to use a certain color of paper other then white? > Have any of you used narrative stories with you children in order to help them > transition and have you found them to work or not work. Last, Do most of you > agree that PECS is a good system to implement for a student who is non-verbal? > > Thank you, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 I think colored paper is an excellent idea. I think the " right " color is dependent upon the child. For my son, green paper for the IQ testes administered, versus the white had him with an IQ of 98 versus the black ink on white paper, which of course he saw little and had him with an IQ of 64. Green, blue, pink, I'd trial each kid and transpose the work to each sheet and see who scored better with which paper. One of the tests, was ph had to replicate designs he saw on a page. 8 boxes, he had to copy the design to the best of his ability in the same box next to the original design. On green paper he was able to get 7 of them dead on, really rather surprised at the neatness and surety of his strokes. Thanks for Advice > Dear group, > Thank you so much for helping me out. After reading through some of the > messages you all have written I have found a few more questions to ask. First, > have you found that it helps to use a certain color of paper other then white? > Have any of you used narrative stories with you children in order to help them > transition and have you found them to work or not work. Last, Do most of you > agree that PECS is a good system to implement for a student who is non-verbal? > > Thank you, > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 >>Last, Do most of you > agree that PECS is a good system to implement for a student who is non-verbal? When I started biomedical, my son was a severely-low-functioning Kanner's autism child. I tried PECS but he had no clue. I never could get it to work. Not sign either. I tried on and off, and eventually after about a year to 18 months, he started understanding the PECS concept [that a picture could be a representation of an object or idea], but by that time he was starting to talk, so I dropped the PECS and just focused on the talking. PECS [and/or sign] is usually a good choice, but just be aware that it might not do anything for certain children. Good luck. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 Is there a cobook with social sotries already or does one hs to make one.Our tow special needs kids are so bad with transition! Did you buy the PEC CD rom? Can one borrow it and make the schedulue. I want to borrow one so I cna burn it on my computer. Thanks Migdalia(DEE) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2004 Report Share Posted June 30, 2004 > Is there a cobook with social sotries already or does one hs to make one. You can do either. Here is my site section http://www.danasview.net/parent2.htm#therapies2 Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2004 Report Share Posted June 30, 2004 What you need to look into getting is boardmaker. That is the program that has the actually pictures and lets you lay them out. I do not have boardmaker as of yet, our school system does but I can't sent that one. The program its self is kind of expensive a couple hundred dollars. Hope this helps... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2004 Report Share Posted June 30, 2004 Looks like this link will take you down to social stories information and if you go up from it you'll find all the picture information-PECS and PCS. I used the PECS info for the training on how to use the picture symbols and I use PCS for the pictures as they have many more to choose from. Check with your school or other special services places for finding access to the pictures. I looked at buying them and to get the basic set and addendums it was $400. www.Mayer- .com is the site for the PCS. Best Wishes! Becky ps-Dana, I haven't had a lot of time to look at your site but I've got to get to it as I see you've got vision therapy info! Is there also info on retained reflexes and NDD? Thanks! Becky > > Is there a cobook with social sotries already or does one hs to make > one. > > > You can do either. Here is my site section > > http://www.danasview.net/parent2.htm#therapies2 > > Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2004 Report Share Posted July 2, 2004 > Looks like this link will take you down to social stories information > and if you go up from it you'll find all the picture information-PECS > and PCS. For a list of everything on that page, just go to the top http://www.danasview.net/parent2.htm > ps-Dana, I haven't had a lot of time to look at your site but I've > got to get to it as I see you've got vision therapy info! Is there > also info on retained reflexes and NDD? I am not familiar with those, so probably not. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2004 Report Share Posted July 31, 2004 Hi Bee. Thanks for the advice you gave '. I'm suffering some of the same things as she is, and also still trying to figure out how to cope with candida, so I was glad to see the advice. Sometimes I just can't keep up with all of this new information and strategies I'm trying to discover, absorb and then figure out what my body will tolerate. Having a cranky digestive tract on top of the candida isn't making things any easier, that's for sure. So, thanks a million. Kim M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2005 Report Share Posted August 29, 2005 Hi Suzy, Some quick thoughts on this (so don't hold me to them, LOL!) Re the calling home - I can see them placing limits on this, sort of as a goal to work towards - like no more than 3x a day; then when she's got that, 2x, etc. But still in really panicky situations, tears, etc., let her call (who cares if it's the 4th call if she's really upset, about to have a meltdown). The could try talking to her first to calm down before she calls you, but NEVER make her feel bad for having to call you. AND/OR if right now she needs more than 3x a day, work towards only 3x during the year, then lower, etc.; heck, the year just began didn't it?? As to recess - I would think the school could encourage her but offer her another place (library?) to go to. Depending on grade, stay in classroom?? I get what you/she say about them treating her different when you're not there. People can sure imply a LOT by attitude, words, etc. And say things when mom/dad aren't around. One of my older son's teachers in elem school was really nice. But when I mentioned anything to her about math at home, for example, and problems, she would about jump on him later, and he wanted me to promise NOT to say anything to her anymore about his difficulties. Request a meeting is my thought, to go over the 504 Plan again, show you want her to work towards lowering her anxiety but that perhaps right now (beginning of year, anxiety higher after summer off...) she will need to be accommodated more towards her needs BUT that your dd will know she has something to work towards LATER (not calling so much, going out to recess by end of year if she is feeling more comfortable...), etc. And let teachers/personnel know that your dd is NOT to be made to feel bad (by any type implication) if she doesn't have a good day (rah, rah, go on out to recess will not work!). The thing with a lot of kids is that once out to recess, for example, they turn out to be fine. Sort of like leaving your toddler screaming at childcare when you leave, then they play happily the rest of the day, while we moms go all day remembering how they were screaming at us not to leave! So I'm sure the school personnel sometimes figure " forcing " can be the answer, but they should not apply that " one rule to all " students sort of thing. Like one kid with OCD is NOT the same as another who also has OCD so far as how OCD affects them, their anxiety in certain situations, etc. Maybe at the meeting go over that YOU feel the best thing now is for her not to be anxious/sick about coming to school, to feel OK/safe at this time and then later after the year has passed a bit and she's into routine/comfortable, anxiety less, work towards her " goals " . A quick, though long reply. YOU know your daughter best, and though we don't want to 100% accommodate OCD all the time, sometimes OCD and/or anxiety needs a bit of accommodation thru a certain time period (my opinion) like at the beginning of a school year when there's more anxiety. I can see the anxiousness right now in my OCD son and am awaiting any spiking of his OCD! > Thanks to everyone who replied to my post....... > So many of your words were helpful, and sure has made me feel better, > and more " normal " ... > I also wonder what any of you do about school refusal?? > My daughter is 8yrs old, afraid of weather now, and if its breezy > out, > is in a panic...She won't leave the house either, even to go > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2005 Report Share Posted August 29, 2005 Thanks... That made me feel able to " sort it out " in my own weary head....Sometimes it gets sooooo overwhelming....Right now, my 14 year old son is afraid to sit in a chair, cause a bug might get on him...?/... And he's pacing the floor saying I hate OCD....(their switching his meds right now) Sigh... My daughter didn't go to school today, we made an agreement that we would go in tomorrow, together, and talk to the psychologist, and social worker, and see if they can't set up a better plan for her.. Not only is this the new school year, but we moved over the summer, so it's a new school too... I don't want to " feed into " her ocd, but I also don't want to push her too far...when I pushed her over the weekend, she just stopped going outside entirely... I haven't found a CBT therapist yet, there is only ONE in Phx, but he doesn't take our insurance.... Do others just FORCE their child to go to school?, or do some option for Charter schools??? Are there any other choices?... She's a very petite 8 yr old, with lots of allergies, and asthma, OCD, and anxiety disorder (MAJOR) she worries about EVERYTHING, but she is so bright, and smart above her years, but she can't stop worrying, then kids make fun of her (she'll see a cloud in the sky, or it gets windy) and then tease her, and then she's full blown panic where she has thrown up at her desk..... I will mention that my now, 16 yr old daughter, went through this exact same fear, at almost the same age..(weather) and literally was agoraphobic for like a year....she saw that therapist I mentioned earlier (I was married then and had better insurance) and she slowly came out of it, by using CBT... So I feel my 8 yr old isn't getting the same benefit as my older daughter, but everyones telling me to push her...... AHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHH >>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>> -- In , " " <@h...> wrote: > Hi Suzy, > Some quick thoughts on this (so don't hold me to them, LOL!) > > Re the calling home - I can see them placing limits on this, sort of > as a goal to work towards - like no more than 3x a day; then when > she's got that, 2x, etc. But still in really panicky situations, > tears, etc., let her call (who cares if it's the 4th call if she's > really upset, about to have a meltdown). The could try talking to > her first to calm down before she calls you, but NEVER make her feel > bad for having to call you. AND/OR if right now she needs more than > 3x a day, work towards only 3x during the year, then lower, etc.; > heck, the year just began didn't it?? > > As to recess - I would think the school could encourage her but > offer her another place (library?) to go to. Depending on grade, > stay in classroom?? > > I get what you/she say about them treating her different when you're > not there. People can sure imply a LOT by attitude, words, etc. > And say things when mom/dad aren't around. One of my older son's > teachers in elem school was really nice. But when I mentioned > anything to her about math at home, for example, and problems, she > would about jump on him later, and he wanted me to promise NOT to > say anything to her anymore about his difficulties. > > Request a meeting is my thought, to go over the 504 Plan again, show > you want her to work towards lowering her anxiety but that perhaps > right now (beginning of year, anxiety higher after summer off...) > she will need to be accommodated more towards her needs BUT that > your dd will know she has something to work towards LATER (not > calling so much, going out to recess by end of year if she is > feeling more comfortable...), etc. And let teachers/personnel know > that your dd is NOT to be made to feel bad (by any type implication) > if she doesn't have a good day (rah, rah, go on out to recess will > not work!). > > The thing with a lot of kids is that once out to recess, for > example, they turn out to be fine. Sort of like leaving your > toddler screaming at childcare when you leave, then they play > happily the rest of the day, while we moms go all day remembering > how they were screaming at us not to leave! So I'm sure the > school personnel sometimes figure " forcing " can be the answer, but > they should not apply that " one rule to all " students sort of thing. > > Like one kid with OCD is NOT the same as another who also has OCD so > far as how OCD affects them, their anxiety in certain situations, > etc. > > Maybe at the meeting go over that YOU feel the best thing now is for > her not to be anxious/sick about coming to school, to feel OK/safe > at this time and then later after the year has passed a bit and > she's into routine/comfortable, anxiety less, work towards > her " goals " . > > A quick, though long reply. YOU know your daughter best, and though > we don't want to 100% accommodate OCD all the time, sometimes OCD > and/or anxiety needs a bit of accommodation thru a certain time > period (my opinion) like at the beginning of a school year when > there's more anxiety. I can see the anxiousness right now in my OCD > son and am awaiting any spiking of his OCD! > > > > > > > Thanks to everyone who replied to my post....... > > So many of your words were helpful, and sure has made me feel > better, > > and more " normal " ... > > I also wonder what any of you do about school refusal?? > > My daughter is 8yrs old, afraid of weather now, and if its breezy > > out, > > is in a panic...She won't leave the house either, even to go > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2005 Report Share Posted August 29, 2005 Hi Suzy, some of the problem with the school personnel may be that school refusal (for all sorts of reasons) is something most schools are familiar with and experienced in handling. They may be shoehorning your anxious OCD daughter into their usual approach that may not be appropriate for your child. Thus the encouragement, the forcing, attempts at fixing her, and etc. Does your daughter have a 504 or IEP? She would I believe qualify for either due to OCD and anxiety that is interfering with her ability to access her education (school refusal). Your child should have accommodations such as no recess or recess at her discretion, and etc. to address each problem she has at school. My child has a " do not get in her face " accommodation, and one that protects her from being forced to do anything that is causing her anxiety. As your dd's OCD is brought under better control, accommodations can be modified or dropped to reflect that. OCD problems at school can be worked on in therapy, and her teachers can then function as supportive " cheerleaders " when she *is* eventually able, for example, to go outside for recess. I took my dd's school fears very seriously and my main goal was to keep her going--what she learned there for a couple of years was secondary. She experienced her OCD onset during preschool years, and so OCD has been a factor throughout her elementary and now middle school years. I constantly emphasized to personnel this main goal of keeping her comfortable enough to continue to attend school. Well-meant people giving advice is a hazard that unfortunately we all seem to have to deal with. People patiently explaining to my child that she need not fear such and such a thing have been a dime a dozen over the years--as though I would never have thought of such a thing LOL. As we know however, OCD is irrational and is not reassured away by explanations. I've also heard force her, spank her, and so on from well meaning family, friends and even school personnel. These things however increase anxiety and are the last thing a child with a diagnosed anxiety disorder needs, especially before effective treatment (CBT/ERP and perhaps, medication) is in place. Take care, Kathy R. in Indiana p.s. re " dragging her in " --that *can* work, it's called flooding and is a therapy technique that is sometimes used, usually with adults. It can also backfire, increasing her anxiety and the desperation with which she resists school. If she's resisting school due to the recess/clouds etc. issue, then ERP for that will solve several problems at once. ----- Original Message ----- From: " suzyqsoblue " <SuzyQsoblue@...> > Thanks to everyone who replied to my post....... > So many of your words were helpful, and sure has made me feel better, > and more " normal " ... > I also wonder what any of you do about school refusal?? > My daughter is 8yrs old, afraid of weather now, and if its breezy > out, > is in a panic...She won't leave the house either, even to go > somewhere > she loves.... > She doesn't know why she's afraid.... > She won't go out at lunchtime (because of recess) so I told her to go > to the Social workers office (she had said my daughter could come by > anytime if she was getting nervous or panicky) > Well, all she did was give her a " Rah Rah you can do it " attitude, > and > made a pact with her not to call me so many times a day (3..which is > on her 504 plan, being able to call home for reassurance) > Now she knows she can't call home, and they will force her outside at > recess, so she is shaking, and sick to her stomach, and cries that > she > won't go to school because she's too afraid... > How in the world do you know what is best for each situation?? > Tomorrows Monday, and I'm dreading it too.. > Do I drag her in???? > Now she's at the point where she says even if I go to the Social > workers office with her and we talk to her together..she knows they > will 'act differently " when I'm gone...(she's right to a point, I'm > sure they will try and " fix her " ..) > Help...... > Thanks, > Suzy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2005 Report Share Posted August 29, 2005 > > My daughter didn't go to school today, we made an agreement that we ..... > Do others just FORCE their child to go to school?, or do some option > for Charter schools??? Are there any other choices?... Here's just one person's experience: We tried forcing my daughter to go to school. Her 504 plan was crafted to have her in her desk for at least the first 20 minutes of every class because that was when she'd get all the info she needed. It never did/could address her problem with not being able to get into the building! And none of us could come up with any ideas until the very end of the school year when the psychologist suggested special ed testing when school started this year. (she is a gifted student, but they have " a lot of bright kids with emotional problems. " ) I called PACER and was hooked up with someone who had tons of great ideas to get her educated where more responsibility was put on the school. We never got that far because she was accepted at . She did get fairly agorophobic this summer; never made it to summer school. PACER is a natl. org. based in MN. Here is a link they provide for your region. They might be a tool for you. http://www.taalliance.org/centers/index.htm PACER's homepage is http://www.pacer.org/ Good luck - I hope you get some good, helpful ideas. I know it can be tough. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2005 Report Share Posted August 29, 2005 (my OCD, Aspergers son) used to do what I called " shut down " when he was overwhelmed during his bad OCD times. So I was like " no stress allowed! " a lot of times and didn't want any pressure on him at school or home (the latter frustrating his brothers). By " shut down " is was like...well, forget attempting homework or anything. He could only sit there. Hard to describe, not necessarily any tears (but those could come with stress/frustration, etc.). How do older daughter and younger get along? Wondering if older can help with younger (sort of a sister-to-sister thing) with what she learned in therapy. If your daughter can get thru the school day with accommodations and understanding teachers & school personnel, there hopefully won't be a reason to even need to push her to go to school. If the school personnel don't understand her anxiety and/or OCD, then they will just have to take your word for what *she* needs, not what another kid w/anxiety & OCD needs, etc. 's teachers weren't 100% cheerfully supportive, but things worked out overall. Look through this group's FILES and LINKS section, there are some school related things there. (one good one put in this past week or so if you didn't get it from an earlier post) I was very lucky in that still liked to go to school rather than stay home, he said his OCD bothered him less there. Gotta see about supper, but please keep us all updated on things! > Thanks... That made me feel able to " sort it out " in my own weary > head....Sometimes it gets sooooo overwhelming....Right now, my 14 > year old son is afraid to sit in a chair, cause a bug might get on > him...?/... > And he's pacing the floor saying I hate OCD....(their switching his Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2005 Report Share Posted August 29, 2005 Dear Suzy, You could call your insurance company and tell them that they need to pay for this CBT/ERP therapist unless they can find you another CPT/ERP therapist on their list within a reasonable distance. CBT/ERP is required for OCD (it is listed on the standard protocols). You may need to file a formal appeal but it is worth the effort. You can also call your state insurance commissioner or check the state website to find more assistance on how to deal with the insurance company. > > From: " suzyqsoblue " <SuzyQsoblue@...> > Date: 2005/08/29 Mon PM 02:44:57 EDT > > Subject: Re: Thanks for " advice " > > Thanks... That made me feel able to " sort it out " in my own weary > head....Sometimes it gets sooooo overwhelming....Right now, my 14 > year old son is afraid to sit in a chair, cause a bug might get on > him...?/... > And he's pacing the floor saying I hate OCD....(their switching his > meds right now) Sigh... > My daughter didn't go to school today, we made an agreement that we > would go in tomorrow, together, and talk to the psychologist, and > social worker, and see if they can't set up a better plan for her.. > Not only is this the new school year, but we moved over the summer, > so it's a new school too... > I don't want to " feed into " her ocd, but I also don't want to push > her too far...when I pushed her over the weekend, she just stopped > going outside entirely... > I haven't found a CBT therapist yet, there is only ONE in Phx, but he > doesn't take our insurance.... > Do others just FORCE their child to go to school?, or do some option > for Charter schools??? Are there any other choices?... > She's a very petite 8 yr old, with lots of allergies, and asthma, > OCD, and anxiety disorder (MAJOR) she worries about EVERYTHING, but > she is so bright, and smart above her years, but she can't stop > worrying, then kids make fun of her (she'll see a cloud in the sky, > or it gets windy) and then tease her, and then she's full blown panic > where she has thrown up at her desk..... > I will mention that my now, 16 yr old daughter, went through this > exact same fear, at almost the same age..(weather) and literally was > agoraphobic for like a year....she saw that therapist I mentioned > earlier (I was married then and had better insurance) and she slowly > came out of it, by using CBT... > So I feel my 8 yr old isn't getting the same benefit as my older > daughter, but everyones telling me to push her...... > AHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHH > > >>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>> > -- In , " " > <@h...> wrote: > > Hi Suzy, > > Some quick thoughts on this (so don't hold me to them, LOL!) > > > > Re the calling home - I can see them placing limits on this, sort > of > > as a goal to work towards - like no more than 3x a day; then when > > she's got that, 2x, etc. But still in really panicky situations, > > tears, etc., let her call (who cares if it's the 4th call if she's > > really upset, about to have a meltdown). The could try talking to > > her first to calm down before she calls you, but NEVER make her > feel > > bad for having to call you. AND/OR if right now she needs more > than > > 3x a day, work towards only 3x during the year, then lower, etc.; > > heck, the year just began didn't it?? > > > > As to recess - I would think the school could encourage her but > > offer her another place (library?) to go to. Depending on grade, > > stay in classroom?? > > > > I get what you/she say about them treating her different when > you're > > not there. People can sure imply a LOT by attitude, words, etc. > > And say things when mom/dad aren't around. One of my older son's > > teachers in elem school was really nice. But when I mentioned > > anything to her about math at home, for example, and problems, she > > would about jump on him later, and he wanted me to promise NOT to > > say anything to her anymore about his difficulties. > > > > Request a meeting is my thought, to go over the 504 Plan again, > show > > you want her to work towards lowering her anxiety but that perhaps > > right now (beginning of year, anxiety higher after summer off...) > > she will need to be accommodated more towards her needs BUT that > > your dd will know she has something to work towards LATER (not > > calling so much, going out to recess by end of year if she is > > feeling more comfortable...), etc. And let teachers/personnel know > > that your dd is NOT to be made to feel bad (by any type > implication) > > if she doesn't have a good day (rah, rah, go on out to recess will > > not work!). > > > > The thing with a lot of kids is that once out to recess, for > > example, they turn out to be fine. Sort of like leaving your > > toddler screaming at childcare when you leave, then they play > > happily the rest of the day, while we moms go all day remembering > > how they were screaming at us not to leave! So I'm sure the > > school personnel sometimes figure " forcing " can be the answer, but > > they should not apply that " one rule to all " students sort of thing. > > > > Like one kid with OCD is NOT the same as another who also has OCD > so > > far as how OCD affects them, their anxiety in certain situations, > > etc. > > > > Maybe at the meeting go over that YOU feel the best thing now is > for > > her not to be anxious/sick about coming to school, to feel OK/safe > > at this time and then later after the year has passed a bit and > > she's into routine/comfortable, anxiety less, work towards > > her " goals " . > > > > A quick, though long reply. YOU know your daughter best, and > though > > we don't want to 100% accommodate OCD all the time, sometimes OCD > > and/or anxiety needs a bit of accommodation thru a certain time > > period (my opinion) like at the beginning of a school year when > > there's more anxiety. I can see the anxiousness right now in my > OCD > > son and am awaiting any spiking of his OCD! > > > > > > > > > > > > > Thanks to everyone who replied to my post....... > > > So many of your words were helpful, and sure has made me feel > > better, > > > and more " normal " ... > > > I also wonder what any of you do about school refusal?? > > > My daughter is 8yrs old, afraid of weather now, and if its breezy > > > out, > > > is in a panic...She won't leave the house either, even to go > > > > > > > > > Our list archives, bookmarks, files, and chat feature may be accessed at: / . > Our list advisors are Gail B. , Ed.D., Tamar Chansky, Ph.D.( http://www.worrywisekids.org ), Dan Geller, M.D.,Aureen Pinto Wagner, Ph.D., ( http://www.lighthouse-press.com ). Our list moderators are Birkhan, Castle, Fowler, Kathy Hammes, Joye, Kathy Mac, Gail Pesses, and Kathy . Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at louisharkins@... , louisharkins@... , louisharkins@... . > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2005 Report Share Posted August 30, 2005 It sounds as though they don't understand her condition. Perhaps that pamphlet that was discussed a couple of days ago would help? I think that it is good to encourage a child (push if that's what they want to call it). However, not to the point of causing symptoms or a meltdown. That is too much. It would be a goal to work toward, but not to be thrown into. Good luck, Bonnie > Thanks to everyone who replied to my post....... > So many of your words were helpful, and sure has made me feel better, > and more " normal " ... > I also wonder what any of you do about school refusal?? > My daughter is 8yrs old, afraid of weather now, and if its breezy > out, > is in a panic...She won't leave the house either, even to go > somewhere > she loves.... > She doesn't know why she's afraid.... > She won't go out at lunchtime (because of recess) so I told her to go > to the Social workers office (she had said my daughter could come by > anytime if she was getting nervous or panicky) > Well, all she did was give her a " Rah Rah you can do it " attitude, > and > made a pact with her not to call me so many times a day (3..which is > on her 504 plan, being able to call home for reassurance) > Now she knows she can't call home, and they will force her outside at > recess, so she is shaking, and sick to her stomach, and cries that > she > won't go to school because she's too afraid... > How in the world do you know what is best for each situation?? > Tomorrows Monday, and I'm dreading it too.. > Do I drag her in???? > Now she's at the point where she says even if I go to the Social > workers office with her and we talk to her together..she knows they > will 'act differently " when I'm gone...(she's right to a point, I'm > sure they will try and " fix her " ..) > Help...... > Thanks, > Suzy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2005 Report Share Posted August 30, 2005 It sounds as though they don't understand her condition. Perhaps that pamphlet that was discussed a couple of days ago would help? I think that it is good to encourage a child (push if that's what they want to call it). However, not to the point of causing symptoms or a meltdown. That is too much. It would be a goal to work toward, but not to be thrown into. Good luck, Bonnie > Thanks to everyone who replied to my post....... > So many of your words were helpful, and sure has made me feel better, > and more " normal " ... > I also wonder what any of you do about school refusal?? > My daughter is 8yrs old, afraid of weather now, and if its breezy > out, > is in a panic...She won't leave the house either, even to go > somewhere > she loves.... > She doesn't know why she's afraid.... > She won't go out at lunchtime (because of recess) so I told her to go > to the Social workers office (she had said my daughter could come by > anytime if she was getting nervous or panicky) > Well, all she did was give her a " Rah Rah you can do it " attitude, > and > made a pact with her not to call me so many times a day (3..which is > on her 504 plan, being able to call home for reassurance) > Now she knows she can't call home, and they will force her outside at > recess, so she is shaking, and sick to her stomach, and cries that > she > won't go to school because she's too afraid... > How in the world do you know what is best for each situation?? > Tomorrows Monday, and I'm dreading it too.. > Do I drag her in???? > Now she's at the point where she says even if I go to the Social > workers office with her and we talk to her together..she knows they > will 'act differently " when I'm gone...(she's right to a point, I'm > sure they will try and " fix her " ..) > Help...... > Thanks, > Suzy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2006 Report Share Posted February 11, 2006 Thanks for the advice about the red marks. Someone earlier told me to put it back on when I thought they had faded enough so that was what I had been doing today and this last time we took it off it looked like the mark on her forehead was getting worse, so I do believe that it is best kept off. I just feel guilty because on Thursday evening I took it off to put her pajamas on and noticed a small red mark and I kept it off to see how long it took to fade and it had faded mostly but not completely in the hour so I put it back on. Then yesterday for bath time same thing and now today she has the 2 red marks. I should have known to keep it off Thursday and call her ortho on Friday but I didn't and now it's the weekend. Anyway or one of the other mods could you please delete the pictures of Isabelle's helmet so I don't have more than 5 pictures in the i photo album. Thanks! Isabelle 6 mos STARband 1/31/06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2006 Report Share Posted February 11, 2006 Thanks for the advice about the red marks. Someone earlier told me to put it back on when I thought they had faded enough so that was what I had been doing today and this last time we took it off it looked like the mark on her forehead was getting worse, so I do believe that it is best kept off. I just feel guilty because on Thursday evening I took it off to put her pajamas on and noticed a small red mark and I kept it off to see how long it took to fade and it had faded mostly but not completely in the hour so I put it back on. Then yesterday for bath time same thing and now today she has the 2 red marks. I should have known to keep it off Thursday and call her ortho on Friday but I didn't and now it's the weekend. Anyway or one of the other mods could you please delete the pictures of Isabelle's helmet so I don't have more than 5 pictures in the i photo album. Thanks! Isabelle 6 mos STARband 1/31/06 Quote Link to comment Share on other sites More sharing options...
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