Guest guest Posted September 29, 2001 Report Share Posted September 29, 2001 Hi ee, I know that you've had problems with conventional medicine, both personally and with your animals. I use a mixture of both holistic and conventional medicine on myself and my animals, and so far it's working well for all of us. It's taken me a VERY long while to find a doctor who believed what I was saying and actually took the time to try and find out what was going on, but I'm glad now that I hung in there and found him. I was actually able to feed and water some of my birds for the first time in months last night! As for the incontinence, thank you for the words of encouragement! You'd think that, in the whole scheme of things, it would be a relatively small concern, but for some reason it just devastated me. Please let me know what you find out about the possibility of reversal and if anything works for you! I'm not in a position to be able to purchase alot of the books that I need right now, but would love to hear anything that anyone learns from the ones that they've read that could help. - At 09:02 AM 9/29/01 -0400, you wrote: >Dear (and list), > >I have not really looked into the " guaif " therapy. I do not have a doctor I >trust--basically because of very bad reactions to conventional medications >in the past, and the fact that doctors have never really *listened* to me, I >had given up on conventional medicine altogether. Now I am seeking a doctor >who can help, but I still do not want to take any conventional medications. >That's my thing! > >As far as the incontinence issue is concerned, I hit that milestone 4 years >ago, and was devastated! > >But, I am encouraged by what I read in Starlanyl & Copeland's book about >this issue, that it may have to do with myofascial trigger points, and there >is the potential to reverse it. I have not yet sought treatment of this >sort, having only read the passage within the last week, but I feel better >about things now. > >ee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2001 Report Share Posted September 29, 2001 Hi ee, I know that you've had problems with conventional medicine, both personally and with your animals. I use a mixture of both holistic and conventional medicine on myself and my animals, and so far it's working well for all of us. It's taken me a VERY long while to find a doctor who believed what I was saying and actually took the time to try and find out what was going on, but I'm glad now that I hung in there and found him. I was actually able to feed and water some of my birds for the first time in months last night! As for the incontinence, thank you for the words of encouragement! You'd think that, in the whole scheme of things, it would be a relatively small concern, but for some reason it just devastated me. Please let me know what you find out about the possibility of reversal and if anything works for you! I'm not in a position to be able to purchase alot of the books that I need right now, but would love to hear anything that anyone learns from the ones that they've read that could help. - At 09:02 AM 9/29/01 -0400, you wrote: >Dear (and list), > >I have not really looked into the " guaif " therapy. I do not have a doctor I >trust--basically because of very bad reactions to conventional medications >in the past, and the fact that doctors have never really *listened* to me, I >had given up on conventional medicine altogether. Now I am seeking a doctor >who can help, but I still do not want to take any conventional medications. >That's my thing! > >As far as the incontinence issue is concerned, I hit that milestone 4 years >ago, and was devastated! > >But, I am encouraged by what I read in Starlanyl & Copeland's book about >this issue, that it may have to do with myofascial trigger points, and there >is the potential to reverse it. I have not yet sought treatment of this >sort, having only read the passage within the last week, but I feel better >about things now. > >ee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2001 Report Share Posted September 29, 2001 Hi ee, I know that you've had problems with conventional medicine, both personally and with your animals. I use a mixture of both holistic and conventional medicine on myself and my animals, and so far it's working well for all of us. It's taken me a VERY long while to find a doctor who believed what I was saying and actually took the time to try and find out what was going on, but I'm glad now that I hung in there and found him. I was actually able to feed and water some of my birds for the first time in months last night! As for the incontinence, thank you for the words of encouragement! You'd think that, in the whole scheme of things, it would be a relatively small concern, but for some reason it just devastated me. Please let me know what you find out about the possibility of reversal and if anything works for you! I'm not in a position to be able to purchase alot of the books that I need right now, but would love to hear anything that anyone learns from the ones that they've read that could help. - At 09:02 AM 9/29/01 -0400, you wrote: >Dear (and list), > >I have not really looked into the " guaif " therapy. I do not have a doctor I >trust--basically because of very bad reactions to conventional medications >in the past, and the fact that doctors have never really *listened* to me, I >had given up on conventional medicine altogether. Now I am seeking a doctor >who can help, but I still do not want to take any conventional medications. >That's my thing! > >As far as the incontinence issue is concerned, I hit that milestone 4 years >ago, and was devastated! > >But, I am encouraged by what I read in Starlanyl & Copeland's book about >this issue, that it may have to do with myofascial trigger points, and there >is the potential to reverse it. I have not yet sought treatment of this >sort, having only read the passage within the last week, but I feel better >about things now. > >ee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2001 Report Share Posted September 29, 2001 At 01:33 PM 9/29/01 -0400, you wrote: >In theory, it isn't a progressive disease, and I'm sure for some people >with fm it isn't, but for others, it is. I know my level of fatigue has >gotten steadily worse over the years. On the other hand, I know someone >with fibro who has stayed about the same for years. So officially, it >isn't, but in reality, it can be progressive depending on the person. Granted, I don't have a complete dx yet and am supposed to have my first neurology appt sometime soon, but SOMETHING has sure been progressing a lot for the last few years! >I'm sorry to hear this. Hugs for you. We aren't quite strangers >though, we all say things on this list we might not announce to the >world in general. I'll put you on my " list " of people to invite to the >used body part store, as soon as I find one! Thanks! I sure hope you find that store soon - I'm running out of usable parts at an alarming rate<g>. And thank you all for welcoming me and making me feel like a friend, rather than a stranger :-) - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2001 Report Share Posted September 29, 2001 At 01:33 PM 9/29/01 -0400, you wrote: >In theory, it isn't a progressive disease, and I'm sure for some people >with fm it isn't, but for others, it is. I know my level of fatigue has >gotten steadily worse over the years. On the other hand, I know someone >with fibro who has stayed about the same for years. So officially, it >isn't, but in reality, it can be progressive depending on the person. Granted, I don't have a complete dx yet and am supposed to have my first neurology appt sometime soon, but SOMETHING has sure been progressing a lot for the last few years! >I'm sorry to hear this. Hugs for you. We aren't quite strangers >though, we all say things on this list we might not announce to the >world in general. I'll put you on my " list " of people to invite to the >used body part store, as soon as I find one! Thanks! I sure hope you find that store soon - I'm running out of usable parts at an alarming rate<g>. And thank you all for welcoming me and making me feel like a friend, rather than a stranger :-) - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2001 Report Share Posted September 29, 2001 At 01:33 PM 9/29/01 -0400, you wrote: >In theory, it isn't a progressive disease, and I'm sure for some people >with fm it isn't, but for others, it is. I know my level of fatigue has >gotten steadily worse over the years. On the other hand, I know someone >with fibro who has stayed about the same for years. So officially, it >isn't, but in reality, it can be progressive depending on the person. Granted, I don't have a complete dx yet and am supposed to have my first neurology appt sometime soon, but SOMETHING has sure been progressing a lot for the last few years! >I'm sorry to hear this. Hugs for you. We aren't quite strangers >though, we all say things on this list we might not announce to the >world in general. I'll put you on my " list " of people to invite to the >used body part store, as soon as I find one! Thanks! I sure hope you find that store soon - I'm running out of usable parts at an alarming rate<g>. And thank you all for welcoming me and making me feel like a friend, rather than a stranger :-) - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2001 Report Share Posted September 30, 2001 For me it is progressive. The pain has gotten worse in the last year. I take strong medications for the pain. Fatigue puts me to be with a book almost every afternoon. And there I stay unless I can get up to fix dinner. Duff is very good at helping out but it will be quite a time before he can. He went into a rehabilitation hospital this afternoon. He wasn't happy there and we had quite a time getting him to decide to stay. They had promised him a private room and there was no such thing. He wanted to come home and have home health care but there is not way that I could take care of him and he knew that but I think that he just wanted to come home because he will be in there for at least a week. Take care, Irene co-moderator > In theory, it isn't a progressive disease, and I'm sure for some people > with fm it isn't, but for others, it is. I know my level of fatigue has > gotten steadily worse over the years. On the other hand, I know someone > with fibro who has stayed about the same for years. So officially, it > isn't, but in reality, it can be progressive depending on the person. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2001 Report Share Posted September 30, 2001 Thanks for the info Irene. I realize that it may not be JUST the fibro that is causing the progressive pain and weakness and that I won't know for sure until I can get in to see the neurologist (and from what some of the rest of you have said, perhaps not even then), but I do think that it must have something to do with it. I'm so glad that Duff is doing as well as he is and that he'll be home to you in a week! I know you've missed him terribly and will be relieved to have him back at home! Someone said last week that their husband surprised them by saying that he was worried that they'd have to be put in a care facility someday. This had never crossed my mind either, until my husband said something very similar the other day. I was trying to do something very simple and couldn't manage it (fumble-fingers R us<g>) and out of the blue he said, " You're going to have to go live in a home someday, aren't you? " . I just stared at him for a couple of minutes in shock, and still don't know how to answer him. I know that he didn't sign onto this marriage expecting to be with a person who has the type of problems that I do, and I feel guilty all the time about asking him to do things for me. How do the rest of you handle any guilt that you feel toward your caregivers (if you need them)? I just feel like he got a " bad deal " when he married me, but now he feels " responsible for me " :-( And I know the deal about for better or for worse, but how many people really expect to have to learn how to be full-time caregivers for the rest of their lives??? - At 12:08 AM 9/30/01 EDT, you wrote: >For me it is progressive. The pain has gotten worse in the last year. I >take strong medications for the pain. Fatigue puts me to be with a book >almost every afternoon. And there I stay unless I can get up to fix dinner. >Duff is very good at helping out but it will be quite a time before he can. > >He went into a rehabilitation hospital this afternoon. He wasn't happy there >and we had quite a time getting him to decide to stay. They had promised him >a private room and there was no such thing. He wanted to come home and have >home health care but there is not way that I could take care of him and he >knew that but I think that he just wanted to come home because he will be in >there for at least a week. > >Take care, >Irene >co-moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2001 Report Share Posted September 30, 2001 Thanks for the info Irene. I realize that it may not be JUST the fibro that is causing the progressive pain and weakness and that I won't know for sure until I can get in to see the neurologist (and from what some of the rest of you have said, perhaps not even then), but I do think that it must have something to do with it. I'm so glad that Duff is doing as well as he is and that he'll be home to you in a week! I know you've missed him terribly and will be relieved to have him back at home! Someone said last week that their husband surprised them by saying that he was worried that they'd have to be put in a care facility someday. This had never crossed my mind either, until my husband said something very similar the other day. I was trying to do something very simple and couldn't manage it (fumble-fingers R us<g>) and out of the blue he said, " You're going to have to go live in a home someday, aren't you? " . I just stared at him for a couple of minutes in shock, and still don't know how to answer him. I know that he didn't sign onto this marriage expecting to be with a person who has the type of problems that I do, and I feel guilty all the time about asking him to do things for me. How do the rest of you handle any guilt that you feel toward your caregivers (if you need them)? I just feel like he got a " bad deal " when he married me, but now he feels " responsible for me " :-( And I know the deal about for better or for worse, but how many people really expect to have to learn how to be full-time caregivers for the rest of their lives??? - At 12:08 AM 9/30/01 EDT, you wrote: >For me it is progressive. The pain has gotten worse in the last year. I >take strong medications for the pain. Fatigue puts me to be with a book >almost every afternoon. And there I stay unless I can get up to fix dinner. >Duff is very good at helping out but it will be quite a time before he can. > >He went into a rehabilitation hospital this afternoon. He wasn't happy there >and we had quite a time getting him to decide to stay. They had promised him >a private room and there was no such thing. He wanted to come home and have >home health care but there is not way that I could take care of him and he >knew that but I think that he just wanted to come home because he will be in >there for at least a week. > >Take care, >Irene >co-moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2001 Report Share Posted September 30, 2001 patidu@... wrote: > He wanted to come home and have > home health care but there is not way that I could take care of him and he > knew that but I think that he just wanted to come home because he will be in > there for at least a week. Can't say I blame him. Home is familiar, more comfortable and you know your " roommates " . I flew home the day after getting out of the hospital from major surgery. I probably should have stayed in the area hotels at least a couple more days, but I just couldn't get comfortable in the hotels and really wanted nothing more than come home to the familiar home. Hope Duffy continues to improve and you have him home with you soon! Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2001 Report Share Posted September 30, 2001 patidu@... wrote: > He wanted to come home and have > home health care but there is not way that I could take care of him and he > knew that but I think that he just wanted to come home because he will be in > there for at least a week. Can't say I blame him. Home is familiar, more comfortable and you know your " roommates " . I flew home the day after getting out of the hospital from major surgery. I probably should have stayed in the area hotels at least a couple more days, but I just couldn't get comfortable in the hotels and really wanted nothing more than come home to the familiar home. Hope Duffy continues to improve and you have him home with you soon! Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2001 Report Share Posted September 30, 2001 bluskies@... wrote: > Someone said last week that their husband surprised them by saying that he > was worried that they'd have to be put in a care facility someday. THis was me. > I know that he didn't sign onto this marriage expecting to be > with a person who has the type of problems that I do, and I feel guilty all > the time about asking him to do things for me. How do the rest of you > handle any guilt that you feel toward your caregivers (if you need them)? > I just feel like he got a " bad deal " when he married me, but now he feels > " responsible for me " :-( And I know the deal about for better or for > worse, but how many people really expect to have to learn how to be > full-time caregivers for the rest of their lives??? I do feel guilty that he does almost 100% of the laundry, almost 100% of the cooking, and almost 100% of the other chores around the house. He keeps saying that my job is to take care of myself and hopefully get a little better, but I still feel bad about it all. I know he's doing what he'd be doing for himself if he was single, plus a little bit more to help me. I mean, how much extra work is it to put two pork chops into a pan with sauce instead of one? You've still got to get the oven hot, " pam the pan " , and get the sauce out for just one person. But I still feel bad, like I need to be doing more. I know I'd be happy to do the same if the shoes were on the other foot. I guess the best I've gotten it down to is, you do it because you love them and they are family, but I still feel guilty. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2001 Report Share Posted September 30, 2001 bluskies@... wrote: > Someone said last week that their husband surprised them by saying that he > was worried that they'd have to be put in a care facility someday. THis was me. > I know that he didn't sign onto this marriage expecting to be > with a person who has the type of problems that I do, and I feel guilty all > the time about asking him to do things for me. How do the rest of you > handle any guilt that you feel toward your caregivers (if you need them)? > I just feel like he got a " bad deal " when he married me, but now he feels > " responsible for me " :-( And I know the deal about for better or for > worse, but how many people really expect to have to learn how to be > full-time caregivers for the rest of their lives??? I do feel guilty that he does almost 100% of the laundry, almost 100% of the cooking, and almost 100% of the other chores around the house. He keeps saying that my job is to take care of myself and hopefully get a little better, but I still feel bad about it all. I know he's doing what he'd be doing for himself if he was single, plus a little bit more to help me. I mean, how much extra work is it to put two pork chops into a pan with sauce instead of one? You've still got to get the oven hot, " pam the pan " , and get the sauce out for just one person. But I still feel bad, like I need to be doing more. I know I'd be happy to do the same if the shoes were on the other foot. I guess the best I've gotten it down to is, you do it because you love them and they are family, but I still feel guilty. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2001 Report Share Posted September 30, 2001 bluskies@... wrote: > Someone said last week that their husband surprised them by saying that he > was worried that they'd have to be put in a care facility someday. THis was me. > I know that he didn't sign onto this marriage expecting to be > with a person who has the type of problems that I do, and I feel guilty all > the time about asking him to do things for me. How do the rest of you > handle any guilt that you feel toward your caregivers (if you need them)? > I just feel like he got a " bad deal " when he married me, but now he feels > " responsible for me " :-( And I know the deal about for better or for > worse, but how many people really expect to have to learn how to be > full-time caregivers for the rest of their lives??? I do feel guilty that he does almost 100% of the laundry, almost 100% of the cooking, and almost 100% of the other chores around the house. He keeps saying that my job is to take care of myself and hopefully get a little better, but I still feel bad about it all. I know he's doing what he'd be doing for himself if he was single, plus a little bit more to help me. I mean, how much extra work is it to put two pork chops into a pan with sauce instead of one? You've still got to get the oven hot, " pam the pan " , and get the sauce out for just one person. But I still feel bad, like I need to be doing more. I know I'd be happy to do the same if the shoes were on the other foot. I guess the best I've gotten it down to is, you do it because you love them and they are family, but I still feel guilty. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2001 Report Share Posted September 30, 2001 Thanks for all the sites everyone, I printed some off. Wow, what a lot of symptoms. Just wanted to pop in and say HI to everyone. Have a great Mon......Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2001 Report Share Posted October 1, 2001 , I feel guilt only because I knew that my husband was in terrible pain in his knee and he had to help me. I don't know how I will feel when he comes home and his knee is not painful. Time will tell. My daughter moved next door so as to be near us when we get older and to be able to take care of us. She has help me tremendously since Duff has been in the hospital with our HMO, the hospital, taking me to the hospital, shopping and any thing else that needed done. Take care, Irene co-moderator > How do the rest of you > handle any guilt that you feel toward your caregivers (if you need them)? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2001 Report Share Posted October 1, 2001 , I feel guilt only because I knew that my husband was in terrible pain in his knee and he had to help me. I don't know how I will feel when he comes home and his knee is not painful. Time will tell. My daughter moved next door so as to be near us when we get older and to be able to take care of us. She has help me tremendously since Duff has been in the hospital with our HMO, the hospital, taking me to the hospital, shopping and any thing else that needed done. Take care, Irene co-moderator > How do the rest of you > handle any guilt that you feel toward your caregivers (if you need them)? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2005 Report Share Posted February 5, 2005 Thanks! ++++ Attachment: No Virus found ++++ Norman AntiVirus - www.norman.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2005 Report Share Posted February 5, 2005 Thanks! ++++ Attachment: No Virus found ++++ Norman AntiVirus - www.norman.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2005 Report Share Posted February 5, 2005 Thanks! ++++ Attachment: No Virus found ++++ Norman AntiVirus - www.norman.com Quote Link to comment Share on other sites More sharing options...
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