Plagiocephaly Legislation 2006, State of Florida Senate Bill, S482-'s Law.

December 5, 2005

Dear Plagiocephaly Parents, Grandparents, Related Family Members and

Friends:

(Please read completely. " Your Children " are counting on you to make

a difference in their lives.)

My name is A. Schultz. My wife, Pam, and I are proud parents

of our two year old daughter, Grace Schultz, who has been

successfully treated with two (2) Cranial Technologies, Inc. DOC

(Dynamic Orthotic Cranioplasty) head bands for severe plagiocephaly

and bradycephaly along with right-sided severe torticollis from

birthing trauma. 's craniofacial physician prescribed medical

treatments with Cranial Technologies, Inc. DOC bands which began May

24, 2004 and successfully ended November 1, 2004 (Approximately 5

Months) after she was diagnosed by me, her observant father after an

emergency C-section at birth. was treated by Dr. Drew E.

Schnitt, M.D., Plastic Surgeon, Craniofacial and Pediatric

Specialist located in Hollywood, Florida.

Presently, Pam and I are leading legislation in the up-coming State

of Florida 2006 Legislative Session, proposed Florida Senate Bill

S482, by Senator Larcenia J. Bullard (D) District 39. At the same

time, I am requesting my State Senator representative, Senate

President Tom Lee ® District 10 to co-sponsor Senate Bill S482. On

behalf of my daughter, Senate Bill S482 may be named at a later

date " 's Law " to speak for all children and their parents

regarding the issue of mandating immediate insurance acceptance and

immediate expedited insurance approval by all insurance companies by

fully covering the diagnosis, treatments, and therapies related to

deformational and positional plagiocephaly and other related

pediatric cranial birth defects and cranial structural deformities.

Accordingly, we are tentatively requested to speak in front of the

Florida Senate Committees on Health Care, Ways and Means, and

Banking and Insurance in January 2006.

Our goal is to successfully pass legislation requiring all insurance

companies licensed in the State of Florida to fully cover infants,

toddlers, and children that are afflicted with deformational and

positional plagiocephaly as well as other related cranial birth

defects and deformities. Included in this legislation, we are

requesting that insurance companies fully cover all of the following

related medical treatments and therapies:

1. Physician specialist evaluations and examinations;

2. Physician prescribed treatment office visit follow-ups;

3. Any and all physician prescribed treatment and therapies

including:

A. Pediatric physical, speech, and occupational therapies.

B. Pediatric ophthalmologist (eyes) evaluation and prescribed

treatments such as glasses or future corrective surgeries.

C. Pediatric otorhinolaryngologists (ENT: ears (hearing), nose,

and

larynx) evaluation and treatment.

D. Pediatric dental examination, treatment, and therapies

regarding future dental malocclusion and TMJ disorders.

E. Dietitian consultations, services, and treatments regarding

failure to thrive (FTT) issues related to necessary

biological

processes of drinking of liquids and eating of solid

nutrients.

F. Prescribed physicians and specialized nursing treatments and

therapies for breast feeding mothers with a child or children

having difficulty in latching onto the breasts for the

specific purpose of in-taking of nutrients for the ability to

successfully thrive.

At the same time, we are requiring that all elected Florida

Legislative Representatives and Florida Executives Agencies and

Departments to formally recognize plagiocephaly, bradycephaly,

scaphocephaly (also known as dolichocephaly), and craniosynostosis

as medical structural birth defects and deformities. In children

medically diagnosed with plagiocephaly, bradycephaly, and

scaphocephaly (dolichocephaly), children will be able to receive

conservative treatment(s) with cranial orthotic bandings as

prescribed by a licensed craniofacial and pediatric specialist. In

children diagnosed with craniosynostosis, children may be prescribed

post surgical cranial orthotic banding to properly stabilize the

cranial bone structures and increase the successful desired surgical

outcomes for children.

We respectfully request that all parents, grandparents, related

family members and their friends please contact Florida State

Senators Larcenia J. Bullard and Senate President Tom Lee at their

following phone numbers, faxes, addresses, and e-mails listed below:

The Honorable Senator Larcenia J. Bullard

District Office:

8603 S. Dixie Highway,

Suite 304

Miami, FL 33143

Phone: (305) 668-7344

Fax: (305) 668-7346

Statewide: 1-866-234-3734

Legislative Assistants:

*Luke Kosar

Donna Grant

Barr

Tallahassee Office:

Room 218

Senate Office Building

404 South Monroe Street

Tallahassee, FL 32399-1100

Phone: (850) 487-5127

E-mail: bullard.larcenia.web@...

The Honorable Senate President Tom Lee

District Office:

915 Oakfield Drive,

Suite E

, FL 33511

P.O. Box 2743

, FL 33509

Phone: (813) 744-8683

Fax: (813) 7448556

Legislative Assistants:

Becky

Charlie

a Tonelli

Tallahassee Offices:

Room 312

Senate Office Building

404 South Monroe Street

Tallahassee, FL 32399-1100

Phone: (850) 487-5072

Suite 409

The Capitol

404 South Monroe Street

Tallahassee, FL 32399-1100

Phone: (850) 487-5229

E-mail: lee.tom.web@...

In addition, we suggest that you forward the information that we

have provided onto your own state and federal legislators for their

future consideration for legislation in your state. We are also

attempting to successfully obtain U.S. Federal Legislation to

address these same issues for " ALL U.S. States as well as Military

Insurance Providers " which are not currently covered as well. Pam

and I and more importantly " your children " need your help and

support by taking 5 minutes to call, email, fax, and write these

elected officials listed above today. Don't wait. We can not do this

alone. We are up against the insurance lobbies and their well

financed organizations. More importantly, I'm only asking for your

time to show your overwhelming support for our efforts for your

children and the future children that will be plague with these

structural disorders.

Our wish is yet a simple one for you and your children. That is,

that parents and their children will not have to be burden with

medical health insurance inexcusable procedural company delays,

lengthy insurance company appeals, lengthy insurance company boards

of review for approval, and insurance coverage written policy

interpretations as: " cosmetic " , " experimental " , or " not medically

necessary " when children meet the craniofacial anthropometric

guidelines for cranial orthotic treatment prescribed by a licensed

physician specializing in craniofacial and pediatric plastic surgery.

The conservative treatment and use of cranial orthotic bands is

widely accepted and approved by the medical community to include the

following organizations: the American Academy of Pediatrics (AAP),

the Academy of Orthotists and Prosthetists (AAOP), and the American

Cleft-Craniofacial Association (ACPA), American Association of

Plastic Surgeons (AAPS), and the American Society of Maxillofacial

Surgeons (ASMS). Moreover since July 30, 1998, the U.S. Food and

Drug Administration (FDA) under the U.S. Department of Health and

Human Services (HHS) has recognized, approved, and supported the

medical use of cranial orthotic bands that have been medically

licensed for use under strict FDA guidelines and treatment protocols.

Again, please support our efforts to get the medical treatment that

your children need and must have for any attempt for a normal

structurally balanced life. We appreciate your continued help in

supporting this legislation in our State of Florida which will

hopefully lead to U.S. legislation coverage for all states.

Also, Pam and I serve as parent advocates for other families that

have children with plagiocephaly. If you have question or concerns

regarding how we dealt with issues related to our daughter's Cranial

Technologies, Inc. DOC band or other cranial orthotic bands, we can

be reached at:

A. and Pam Schultz

13426 Copper Head Drive

Riverview, FL 33569

Email: superdave450@...

Again, please have your family members and at least ten (10) of your

friends contact the senators listed above. Together we can succeed

for our children and their rights to grow up health, happy, and

productive members of our country.

Sincerely,

A. and Pamela A. Schultz

Plagiocephaly Parent Advocates

December 5, 2005