Re: regressing?

November 21, 2005

Hi Amy. A big yes to having a flare up of symptoms when Bre was 12,

due to onset of puberty. She had bad thoughts and didn't want to be

left alone. Would cry at the drop of a hat and it seemed like it

lasted forever. I became a good listener, because she was so

melodramatic too! I understand what you are going through. Maybe you

could be on the cancelation list for the p-doc? Has she ever tried

an anxiety medication like buspar? I know that helps Bre alot. It is

a rough road, but I know you both will get through it! If she gets

to the point of hospitalization, remember it can be a positive

thing. Others here have good stories about it helping their child.

We understand your pain and I pray for relief soon.

Sandy

-- In , " Amy Kosinski "

<akosinski1@t...> wrote:

>

> Hi all,

>

> Every year my daughter seems to start to have more symptoms and

struggles as

> the Holiday's approach. This year things seem to be regressing

quite

> rapidly. She needs someone with her when she uses the bathroom

and to

> shower. She is struggling with being in school. Becomes very

snippy and

> sharp with everyone around her. She has had some soiling

accidents and has

> expressed some delusional types of thinking. We are very

concerned and

> worried that her condition is turning for the worse. The earliest

her

> psychiatrist can get her in is the beginning of January. As a mom

I have

> some fears as to her illness getting to a point that a

hospitalization may

> be necessary. She was doing so well for such a long time and the

regression

> is happening so quickly. She is 11 and we have been told the

onset of

> puberty could cause changes in her illness. Has anyone had

similar problems

> around the onset of development? Her diagnosis is GAD w/panic

attacks, OCD

> and depression. She is on low doses of Prozac and Seroquel. Any

> information would help. Thanks for listening!

>

> Amy

>

November 21, 2005

Amy,

Does the doctor know you see a crisis coming on?

I'd leave a message with the doctor saying what you're seeing and ask

if he'd call you to talk to you about it. Even a phone conversation

could be pretty useful.

If you are interested in the idea of something like the buspar then

you could even start asking him about it and show an interest in

it...maybe you could work something out over the phone.

Or, maybe he'd see that squeezing you into an appointment this week

is needed. I'd flat out tell him that you think she needs to be seen

right now - that an emergency room visit at children's hospital is

not a good alternative.

>

> Hi all,

>

> Every year my daughter seems to start to have more symptoms and

struggles as

> the Holiday's approach. This year things seem to be regressing

quite

> rapidly. She needs someone with her when she uses the bathroom and

to

> shower. She is struggling with being in school. Becomes very

snippy and

> sharp with everyone around her. She has had some soiling accidents

and has

> expressed some delusional types of thinking. We are very concerned

and

> worried that her condition is turning for the worse. The earliest

her

> psychiatrist can get her in is the beginning of January. As a mom

I have

> some fears as to her illness getting to a point that a

hospitalization may

> be necessary. She was doing so well for such a long time and the

regression

> is happening so quickly. She is 11 and we have been told the onset

of

> puberty could cause changes in her illness. Has anyone had similar

problems

> around the onset of development? Her diagnosis is GAD w/panic

attacks, OCD

> and depression. She is on low doses of Prozac and Seroquel. Any

> information would help. Thanks for listening!

>

> Amy

>

November 21, 2005

Amy,

I understand, my son regresses around the holidays to. It started early this

year because his cousin is leaving on the 24th for Iraqi for another tour. What

his Dr. and I have set up is; I e-mail him weekly or bi-weekly with updates if

there is something major I e-mail him right away. He will either e-mail back or

call me at the office. This has worked very well and I don't forget or get so

stressed myself that thing worsen. Talk to your Dr. and ask about e-mailing

him. This also works well because the Dr. already knows everything before he

sees my son. Good luck.

Peggy

Amy Kosinski <akosinski1@...> wrote:

Hi all,

Every year my daughter seems to start to have more symptoms and struggles as

the Holiday's approach. This year things seem to be regressing quite

rapidly. She needs someone with her when she uses the bathroom and to

shower. She is struggling with being in school. Becomes very snippy and

sharp with everyone around her. She has had some soiling accidents and has

expressed some delusional types of thinking. We are very concerned and

worried that her condition is turning for the worse. The earliest her

psychiatrist can get her in is the beginning of January. As a mom I have

some fears as to her illness getting to a point that a hospitalization may

be necessary. She was doing so well for such a long time and the regression

is happening so quickly. She is 11 and we have been told the onset of

puberty could cause changes in her illness. Has anyone had similar problems

around the onset of development? Her diagnosis is GAD w/panic attacks, OCD

and depression. She is on low doses of Prozac and Seroquel. Any

information would help. Thanks for listening!

Amy

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November 22, 2005

Dear Amy,

I do think puberty can cause regressions and bring

on a lot of both bad and good in our children. Also,

I've suspected puberty may be affecting my son's OCD

as

well. In addition, I too worry about possible

hospitalization.

See if you can get on a cancelation list for your

doctor and

even call every few days to check if any openings have

come up. If you're super nice about it and explain

your

fears they won't mind and the office personel may try

to squeeze you in sooner.

Good luck!

Tess

__________________________________

- PC Magazine Editors' Choice 2005

http://mail.

February 24, 2006

Hi ,

Luckily regression is very uncommon. Less than 1% of DOCbabies is

that Cranial Tech told us. Unfortunately we were in that tiny

percentage though and my daughter was rebanded for regression at

15.5mos old, about 4 mos after she had graduated. My daughter was

11mos old, walking, and never had tort, so I didn't think we had

anything to worry about, but in reality they don't know for sure

what causes regression in some cases. If it's bothering you enough,

which I'm assuming it probably is since you're posting about it, I'd

make an appt at Cranial Tech for a followup appt. Did you do an exit

cast? If so, they'll be able to compare it to his current shape and

tell you what they think. If you didn't do the exit cast (we

hadn't) they can take pictures again and compare them to his exit

pics and just give you a general opinion on his head. If he truly

did regress he's not too old to be rebanded at all. If you want to

read more about our situation and see the pictures that show

Hannah's regression, they're on her website below. Good luck to you.

, mom to Hannah, DOCgrad

http://hannahsnoggin.typepad.com

Cape Cod, Ma

--- In Plagiocephaly , " jennifer " <garjentissue@...>

wrote:

>

> Hi everyone. I haven't posted in a while, but needed a little

> encouragement I guess. My 14 month old son, Grant, graduated from

his

> DOC band in November. We are thrilled! Anyway, now I am noticing

that

> his head still looks misshapen. I know it won't be perfect, but I

> think it might have regressed. Maybe it is just my worrying. We

can't

> afford another Doc band and at this point he is almost too old

anyway,

> but I was just wondering if any other graduates had this issue.

Thanks.

>

February 24, 2006