() RE: Who's minding the store? re: UNOS-article LA Times

[Guest guest]

I want to thank , veryVERY much, for

posting this article of great topical concern to the group “for” me

(to do so, she had to purchase “access” to the article in order to be

able to post it to the group! Hopefully everyone will take an interest to

read it… I, for one, am very glad I did. Anyhoo, was kind

enough to take time from her busy schedule to help me out with this post, as Jim

& I were experiencing computer issues (rendering me powerless to attend to

the matter myself). unfroze my outbox last night, but latest word

from Arne is that my postings STILL don’t come through as a “member’s.”

(*sob!*) Arrgghh!!! Yahooligans, sheesh!!! Does anyone know how to

fix Yahooligans?!?

It was my sister (a Long

Beach, CA area resident) who saw

& snipped this article out of the Sunday LA Times & snail-mailed it to

me while we were away in Ireland.

She correctly figured that my continuous “research” for Jim et al

came to a halt during our vacation, and she was right. I finally got a

chance to read the article (it’s a long read, but I believe e-x-t-r-e-m-e-l-y

worthwhile… for reasons MO points out, & more) while at Jury

Duty, and boyohboy, I was concerned for several reasons.

This One’s For You, ( & for

anyone else who might care to read it). Enjoy!

My blasted Outbox was frozen, our computer

throwing hissy-fits,

& I was approaching a point where I fantasized

I might smash the darned box to bits!

Sure, it’s convenient to have a genius

son who’s a computer-programmer whiz,

But, unfortunately, everybody else “needs”

him, too (‘cause his career’s quite a “technical” biz).

So, to bide my time, I open my mail, &

lo & behold! A news clipping!

(Seems my sis sent an LA Times UNOS investigation

which, as a read, seems quite gripping.

But shoot-howdy, with no computer, how best

to alert PSC Support?

Hmm, here’s an idea… how ‘bout

I ask , & she if she’ll be a good sport?

So without further ado, three cheers for

! Hippity-hip, hooray!

(Oh –side note FYI, – yes,

the article certainly posted okay!)

You’re a “Together in the

fight, whatever it takes” motto turned to action.

I’m grateful to you, & hope this

poem relays my profound satisfaction.

* * * * * * *

* * * * * * * * * *

* * * * * * * * *

To quote Sir Francis Bacon, “Knowledge

is power.”

Helping medical advocates be even BETTER medical advocates, for themselves

& /or for their precious loved ones,

Love,

Maureen, woman of the

way-too-long tag line & wife to Jim, age 52, UC '84, PSC '96, LRLTx # 36 @

USC in Los Angeles, CA, 12/7/01, eternal thanks to our selfless son; donor

doing great; Jim’s tapering off prednisone (the hepatologist down

here must have spoken to the hepatologist up at the tx center, because now he

says Jim can taper off the dreaded pred completely… & resume it again

with the next colitis flare, I s’pose?); probable colectomy 2007, so we’re

in a ginormous learning curve & seeking medical opinions on all that nasty business;

delighted empty-nester grandparents to 21-month-old Stryder *AND* 5-month-old

Indiana , who we get to cuddle with this weekend out in AZ. All in

all, life’s STILL great, & if you’re fence-sitting about

whether or not to transplant – including living donor – there’s

no better reason than the bliss of grandbabies!

From:

[mailto: ] On Behalf Of

Sent: Wednesday, November 08, 2006

4:45 PM; To:

Subject: " Who's

minding the store? " re: UNOS-article LA Times

Let me know if this does not come through…I had

trouble cutting and pasting with margin issues. Interesting read

though. I think it just proves how important it is that we be involved

and be major advocates for our loved ones.