Guest guest Posted November 21, 2000 Report Share Posted November 21, 2000 Well then why are you in this support group if it is so bad. You seem to be posting alot of messages. My rosacea symptoms are gone and alot of that is due to the people who have helped me with information. Right now part of why I go into the group is to offer support to others as I am one of the success stories. I tell them what worked for me. Right now my eyes are white and my face is clear and when I first started this group I could hardly keep my eyes open from the pain sometimes. I don't think everyone here is thinking of themselves selfishly like you think and saying " I am a rosacea sufferer all the time " alot of the people here are here to help others. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2000 Report Share Posted November 21, 2000 SUPPORT GROUPS (Certainly there are medical conditions that are not easily reversed in the same way that TMS and its equivalents are. In this section, I'm only talking about support groups designed for the tension- induced symptoms from Step 3.) If you're reading this, you obviously know how to research information on the internet. Chances are you've visited one or more of the support newsgroups available through Usenet. Just like any other support group, these have both pros and cons. The great thing about a support group is the feeling of relief that washes over you when you first discover it. " Oh thank God! I'm not crazy! I'm not the only one who feels this way! " It gives you the chance to swap stories and exchange information without feeling like a self-conscious fruitcake. Unfortunately, a support group quickly becomes like an exclusive club. There's " us " (the folks who all have the same problems or symptoms), and " them " (everyone else). You can be in the club as long as you're suffering as badly as the other members, but if you're not, you're out. Which means there's essentially no incentive to get better. Like I said before, no one consciously wants to suffer with their symptoms, but it's important to recognize that you're fighting an uphill battle against your unconscious mind. All of the positive qualities about a support group unconsciously reinforce the idea that it's acceptable, or even normal, to have physical symptoms. And learning about another sufferer's tension-induced symptoms absolutely increases the chance of developing them yourself, because once again, it seems acceptable to do so. If your life has already begun to revolve around your particular symptoms, support groups tend to make it worse. The group gives you a label, or a new identity for yourself. " I am a back pain sufferer. " " I am a fibromyalgia sufferer. " " I am a depressed person. " " I am a chronic fatigue sufferer. " And if your particular illness is relatively new or " mysterious, " with no known origin, well now you don't just have a medical condition--now you've got yourself a cause. You've got to join the crusade to bring more public awareness to the problem! You've got to get more funding for research and testing! You've got to get Oprah to talk about it on her show! It's very easy to get self-righteous about suffering. I'm just as guilty of it as anyone. Whenever anyone told me that I was bringing my symptoms on myself or that I should just snap out of it, my answer was always the same: " F--- you. If you were suffering the way I'm suffering right now, you certainly wouldn't be telling me what to do. " So I'm not saying that support groups are bad and should be avoided. I'm saying that it's important to not wear your ailment like a badge of honor. You'll never get any better that way. Use a support group to exchange information, but always remember that it is possible to eliminate your symptoms through education and awareness, regardless of the nay sayers in the newsgroups. That being said, feel free to visit the Deja.com TMS community, which I believe is more about information and less about commiserating. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2000 Report Share Posted November 21, 2000 , I have been off antibiotics for a week and a half and so far no break outs. This may be the longest I have gone without a breakout without antibiotics in 15 years. I still, however, have very sensitive eyes. So that I do not have to go back through all the e-mails could you tell me what you think has been the most helpful with your eyes? I am off sugar, wheat and dairy. I am taking digestive enzymes and lots of vitamins and minerals. I have been eating oatmeal every morning for the last week and a half and have been adding olive oil at breakfast and dinner. I try to drink a lot of water but probably not enough and have begun to exercise. I am not doing every thing on Mark's diet yet. I still flush 4-5 times a day but it does not last long. I have the acne rosacea but not the typical redness and no sub derm. Any thing that would help the eyes would be much appreciated. The eyes are better after being on antibiotics for 3 months--less dry but very sensitive to light, blowing air, watching movies and lack of sleep. Thanks Judy M Re: read this also > > Well then why are you in this support group if it is so bad. You seem to be > posting alot of messages. My rosacea symptoms are gone and alot of that is > due to the people who have helped me with information. Right now part of why > I go into the group is to offer support to others as I am one of the success > stories. I tell them what worked for me. Right now my eyes are white and my > face is clear and when I first started this group I could hardly keep my eyes > open from the pain sometimes. I don't think everyone here is thinking of > themselves selfishly like you think and saying " I am a rosacea sufferer all > the time " alot of the people here are here to help others. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2000 Report Share Posted November 21, 2000 , I have been off antibiotics for a week and a half and so far no break outs. This may be the longest I have gone without a breakout without antibiotics in 15 years. I still, however, have very sensitive eyes. So that I do not have to go back through all the e-mails could you tell me what you think has been the most helpful with your eyes? I am off sugar, wheat and dairy. I am taking digestive enzymes and lots of vitamins and minerals. I have been eating oatmeal every morning for the last week and a half and have been adding olive oil at breakfast and dinner. I try to drink a lot of water but probably not enough and have begun to exercise. I am not doing every thing on Mark's diet yet. I still flush 4-5 times a day but it does not last long. I have the acne rosacea but not the typical redness and no sub derm. Any thing that would help the eyes would be much appreciated. The eyes are better after being on antibiotics for 3 months--less dry but very sensitive to light, blowing air, watching movies and lack of sleep. Thanks Judy M Re: read this also > > Well then why are you in this support group if it is so bad. You seem to be > posting alot of messages. My rosacea symptoms are gone and alot of that is > due to the people who have helped me with information. Right now part of why > I go into the group is to offer support to others as I am one of the success > stories. I tell them what worked for me. Right now my eyes are white and my > face is clear and when I first started this group I could hardly keep my eyes > open from the pain sometimes. I don't think everyone here is thinking of > themselves selfishly like you think and saying " I am a rosacea sufferer all > the time " alot of the people here are here to help others. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2000 Report Share Posted November 21, 2000 , I have been off antibiotics for a week and a half and so far no break outs. This may be the longest I have gone without a breakout without antibiotics in 15 years. I still, however, have very sensitive eyes. So that I do not have to go back through all the e-mails could you tell me what you think has been the most helpful with your eyes? I am off sugar, wheat and dairy. I am taking digestive enzymes and lots of vitamins and minerals. I have been eating oatmeal every morning for the last week and a half and have been adding olive oil at breakfast and dinner. I try to drink a lot of water but probably not enough and have begun to exercise. I am not doing every thing on Mark's diet yet. I still flush 4-5 times a day but it does not last long. I have the acne rosacea but not the typical redness and no sub derm. Any thing that would help the eyes would be much appreciated. The eyes are better after being on antibiotics for 3 months--less dry but very sensitive to light, blowing air, watching movies and lack of sleep. Thanks Judy M Re: read this also > > Well then why are you in this support group if it is so bad. You seem to be > posting alot of messages. My rosacea symptoms are gone and alot of that is > due to the people who have helped me with information. Right now part of why > I go into the group is to offer support to others as I am one of the success > stories. I tell them what worked for me. Right now my eyes are white and my > face is clear and when I first started this group I could hardly keep my eyes > open from the pain sometimes. I don't think everyone here is thinking of > themselves selfishly like you think and saying " I am a rosacea sufferer all > the time " alot of the people here are here to help others. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2000 Report Share Posted November 22, 2000 Judy, The antibiotics are the thing that help my eyes the most. Then I would have to say the flax oil and primrose oil capsules. I also take Esther C which is a form of vitamin C that is not acidic. I flared up once from taking regular vitamin C. After that I would say having a very healthy diet lots of vegetables. Broccoli and Spinich and salads etc. and stir fry dinners made in olive oil and sunflower seeds. I still have lots of dairy and minimal wheat wasn't much into breads in the first place. I avoid sugar. I do notice my eye feels more sore when I eat sugar. Wasn't good for me around halloween. The kids had so much candy around here and was hard to resist. They couldn't eat it all. I got rid of most of that now and have been successfully avoiding it the last couple weeks and they have been doing better. They never really flare up anymore anyways since I have been on antibiotics just sometimes feel a little more sore or the corner of the white of my eye will look a little red where it used to get very very red. To be honest with you I had a few beers on friday night and that didn't effect it at all. Those antibiotics almost make it resistant to just about anything these days. But I do have to say they have been alot better without the hot air from summer. On days when it would get really hot that's when they were the worst. People have been complaining about the cold and I love it makes my eyes feel great. My face also feels cooler and not so itchy with the cold weather. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2000 Report Share Posted November 22, 2000 Ok whoever you are, I think that it is MY right to " wear like a badge of honour " this disease if I so decide, but you know what? I don't. Instead, it wears me. It wears me into the ground. It dissolves my spirit. It isolates me from the world. It advertises that I am grossly different from others. I can spend forever looking for info, as I've been doing, but ya know what? There ain't much working. So, I think I'll commiserate with the more sensitive members of this group. > > > > I'm saying that it's important to not wear your ailment > like a badge of honor. You'll never get any better that way. Use a > support group to exchange information, but always remember that it is > possible to eliminate your symptoms through education and awareness, > regardless of the nay sayers in the newsgroups. That being said, > feel free to visit the Deja.com TMS community, which I believe is > more about information and less about commiserating. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2000 Report Share Posted November 22, 2000 Ok whoever you are, I think that it is MY right to " wear like a badge of honour " this disease if I so decide, but you know what? I don't. Instead, it wears me. It wears me into the ground. It dissolves my spirit. It isolates me from the world. It advertises that I am grossly different from others. I can spend forever looking for info, as I've been doing, but ya know what? There ain't much working. So, I think I'll commiserate with the more sensitive members of this group. > > > > I'm saying that it's important to not wear your ailment > like a badge of honor. You'll never get any better that way. Use a > support group to exchange information, but always remember that it is > possible to eliminate your symptoms through education and awareness, > regardless of the nay sayers in the newsgroups. That being said, > feel free to visit the Deja.com TMS community, which I believe is > more about information and less about commiserating. Quote Link to comment Share on other sites More sharing options...
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