Okay, I knew families could be nasty...

[Guest guest]

BTW- can someone explain ds2,and dh to me?

DS2? I think she's a droid from Star Wars.

And dh must be her droid husband

[Guest guest]

BTW- can someone explain ds2,and dh to me?

DS2? I think she's a droid from Star Wars.

And dh must be her droid husband

[Guest guest]

BTW- can someone explain ds2,and dh to me?

DS2? I think she's a droid from Star Wars.

And dh must be her droid husband

[Guest guest]

In the begining I went through a similar thing. So I completely

understand. Right from Day 1 when my daughter was diagnosed my MIL

was saying well it didn't come from us, even though they are the

ones with all the symptoms. When we had the gene tests my husband

had both the DQ2 and DQ8 genes and also tested positive for celiac.

The night we told my MIL she lost it and started saying things

like, " so now all your problems are my fault " She called my husband

bawling and apologized for ruining his life. It was very

overdramatic.

Anyway, things have gotten much better and she herself has since

been diagnosed. It just took time and patience. Good luck with

your family. Just know you are only trying to help

>

> We found out that our ds2 got the gene from his daddy. I'm in

shock

> b/c I thought for sure it would be me.

> I did the responsible thing and notified my SIL and MIL that my dh

was

> the gene carrier. I did this while still in a state of shock. The

> intent was to let them know they were at risk.

> SIL got defensive, accused me of looking to lay blame and didn't

see

> what the big deal was -- " We are all adults and if by some dumb

luck

> we have this gene or disease I think we have been handling our

lives

> pretty well. We should already know what may cause us gas, to

puke,

> have diarrhea or some other symptom that is unpleasant. But I

don't

> need to know where it came from unless it is cancer, heart disease,

> lukemia, kidney disease, or some other disease that might require a

> blood transfusion or transplant. " She also felt I was

intorrogating

> her mother by asking my MIL to find out if she was tested for CD

when

> she was so sick in the ER with bloody stool we thought she was

going

> to die.

> I got little sleep last night. I am still ill to my stomach. I

was

> fore warned that family might not take it well, but I never

expected

> this kind of reaction from dh's family. My father was willing to

go

> get tested, but now unfortunately he does not have a reason. And I

> think my father might have CD, even though he didn't pass the gene

to me.

> I wrote SIL a very long reply with more detail than her little

brain

> could possibly ever comprehend. She was so nasty toward me, I

> couldn't help myself but reply. The most unnerving thing was her

lack

> of understanding that it took us 3 1/2 yrs to get a diagnosis, not

3

> 1/2 yrs to know something was wrong with him - the ignorance. And

she

> went on to tell me I needed to learn about it and teach him!!!

Like

> she is all authoritative and I've sat here looking to lay blame

> instead of learning about CD...

> I don't know why I even bothered -- oh, yeah, I didn't want them to

> suffer from undiagnosed CD and get cancer and die.

> Rejoyce

> Winchester, VA

>

[Guest guest]

In the begining I went through a similar thing. So I completely

understand. Right from Day 1 when my daughter was diagnosed my MIL

was saying well it didn't come from us, even though they are the

ones with all the symptoms. When we had the gene tests my husband

had both the DQ2 and DQ8 genes and also tested positive for celiac.

The night we told my MIL she lost it and started saying things

like, " so now all your problems are my fault " She called my husband

bawling and apologized for ruining his life. It was very

overdramatic.

Anyway, things have gotten much better and she herself has since

been diagnosed. It just took time and patience. Good luck with

your family. Just know you are only trying to help

>

> We found out that our ds2 got the gene from his daddy. I'm in

shock

> b/c I thought for sure it would be me.

> I did the responsible thing and notified my SIL and MIL that my dh

was

> the gene carrier. I did this while still in a state of shock. The

> intent was to let them know they were at risk.

> SIL got defensive, accused me of looking to lay blame and didn't

see

> what the big deal was -- " We are all adults and if by some dumb

luck

> we have this gene or disease I think we have been handling our

lives

> pretty well. We should already know what may cause us gas, to

puke,

> have diarrhea or some other symptom that is unpleasant. But I

don't

> need to know where it came from unless it is cancer, heart disease,

> lukemia, kidney disease, or some other disease that might require a

> blood transfusion or transplant. " She also felt I was

intorrogating

> her mother by asking my MIL to find out if she was tested for CD

when

> she was so sick in the ER with bloody stool we thought she was

going

> to die.

> I got little sleep last night. I am still ill to my stomach. I

was

> fore warned that family might not take it well, but I never

expected

> this kind of reaction from dh's family. My father was willing to

go

> get tested, but now unfortunately he does not have a reason. And I

> think my father might have CD, even though he didn't pass the gene

to me.

> I wrote SIL a very long reply with more detail than her little

brain

> could possibly ever comprehend. She was so nasty toward me, I

> couldn't help myself but reply. The most unnerving thing was her

lack

> of understanding that it took us 3 1/2 yrs to get a diagnosis, not

3

> 1/2 yrs to know something was wrong with him - the ignorance. And

she

> went on to tell me I needed to learn about it and teach him!!!

Like

> she is all authoritative and I've sat here looking to lay blame

> instead of learning about CD...

> I don't know why I even bothered -- oh, yeah, I didn't want them to

> suffer from undiagnosed CD and get cancer and die.

> Rejoyce

> Winchester, VA

>

[Guest guest]

I don't know why I even bothered -- oh, yeah, I didn't want them to suffer from undiagnosed CD and get cancer and die.

Rejoyce,

You forgot to mention malnutrition as a short term complication and various nuerological complications long term!

I really feel for you and what you are going through. These situations really test our virtues, don't they! It's hard to practice things like detachment, forgiveness and mercy when people behave so horribly. All I can really say is try to remember who you are, inside, the real you. Don't let other people take that away from you. You are obviously considerate and full of dignity. Don't let them tempt you to respond to them horribly.

My only piece of advice, besides my abundant sympathy, is to suggest your husband handle his own family. Other things will come up [diet and family meals for example] in the future. You handle your kin and let him handle his. That is what I think I would do in your shoes.

Hang in there,

dawne