Guest guest Posted October 26, 2006 Report Share Posted October 26, 2006 You are in my prayers barb. Dave From: [mailto: ] On Behalf Of Barb Henshaw Sent: Thursday, October 26, 2006 9:29 AM To: Subject: Update from JQ October 25, 2006 As many of you may know, I was hospitalized several weeks ago due to some severe liver pain accompanied by fever. When Luke and I arrived at the ER, I was informed that my blood counts and hydration counts were dangerously low. I was immediately admitted to the transplant floor () at Baylor where they began one emergency test after another trying to discover the source of the apparent bleed. As some of you (unfortunately) know first hand, tests such as colonoscopies, EGDs, CTs, repeated blood work, placement of central lines, blood and hydration infusions, etc. can be no fun....especially after having gone so long being a " normal Mommy " taking care of my sweet family at home. After 10 days of admission, I had had enough and begged my doctors to let me go home. With much trepidation he did, only to have me and Luke come back to his office ASAP, the following Monday to discuss biopsy reports. The news was not the worst ever, but it wasn't the greatest either. So...back to the doctor's appointment. Dr. Hamilton told us that my colon biopsies came back with severe and chronic Ulcerative Colitis in the right side of my colon. He said that this is what's causing the pain over there, probably the cause of the blood loss ( when it was last checked, the platelet count was 85,000 and it should be 440,000) and the reason why my temp jumped up to 104 following my colonoscopy. He was also very worried because my blood pressure was extremely high all throughout my hospitalization and even while we were in his office. SO.. here's the game plan...I have been placed on 9 (yes, count them) NINE sulfa drugs per day in addition to all of the rest of my meds. We're also going to be trying a blood pressure medication because he said that chronic high blood pressure, 2 liver transplants and the medication that I must take daily to save my life is a recipe for kidney failure, eventually leading to kidney transplant. If the 9 sulfa drugs a day do not help, then we will go to steroids, but that can damage the kidneys much faster than anything else. In other words, this is a very serious situation because Ulcerative Colitis goes hand in hand with PSC and shows that the PSC is moving aggressively. Since my latest diagnoses have caused increased chronic pain (that is still being managed by my great doctors) and a new " reality " of the presence of my illness. I cannot tell you enough how much it means to me to know that all I have to do is to sit down and write a letter and within moments prayers are being sent up for our sweet family and for whatever might be the issue at the time. Each of you are angels to our family and we love you with every bit of our hearts!!! Barb in Texas This email is intended only for the person or entity to which it is addressed and may contain confidential, proprietary and/or privileged material. Any review, distribution, reliance on, or other use of this information by persons or entities other than the intended recipient is prohibited. If you receive this message in error, please immediately notify the sender and delete it and all copies of it from your system. Thank You Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2006 Report Share Posted October 26, 2006 You are in my prayers barb. Dave From: [mailto: ] On Behalf Of Barb Henshaw Sent: Thursday, October 26, 2006 9:29 AM To: Subject: Update from JQ October 25, 2006 As many of you may know, I was hospitalized several weeks ago due to some severe liver pain accompanied by fever. When Luke and I arrived at the ER, I was informed that my blood counts and hydration counts were dangerously low. I was immediately admitted to the transplant floor () at Baylor where they began one emergency test after another trying to discover the source of the apparent bleed. As some of you (unfortunately) know first hand, tests such as colonoscopies, EGDs, CTs, repeated blood work, placement of central lines, blood and hydration infusions, etc. can be no fun....especially after having gone so long being a " normal Mommy " taking care of my sweet family at home. After 10 days of admission, I had had enough and begged my doctors to let me go home. With much trepidation he did, only to have me and Luke come back to his office ASAP, the following Monday to discuss biopsy reports. The news was not the worst ever, but it wasn't the greatest either. So...back to the doctor's appointment. Dr. Hamilton told us that my colon biopsies came back with severe and chronic Ulcerative Colitis in the right side of my colon. He said that this is what's causing the pain over there, probably the cause of the blood loss ( when it was last checked, the platelet count was 85,000 and it should be 440,000) and the reason why my temp jumped up to 104 following my colonoscopy. He was also very worried because my blood pressure was extremely high all throughout my hospitalization and even while we were in his office. SO.. here's the game plan...I have been placed on 9 (yes, count them) NINE sulfa drugs per day in addition to all of the rest of my meds. We're also going to be trying a blood pressure medication because he said that chronic high blood pressure, 2 liver transplants and the medication that I must take daily to save my life is a recipe for kidney failure, eventually leading to kidney transplant. If the 9 sulfa drugs a day do not help, then we will go to steroids, but that can damage the kidneys much faster than anything else. In other words, this is a very serious situation because Ulcerative Colitis goes hand in hand with PSC and shows that the PSC is moving aggressively. Since my latest diagnoses have caused increased chronic pain (that is still being managed by my great doctors) and a new " reality " of the presence of my illness. I cannot tell you enough how much it means to me to know that all I have to do is to sit down and write a letter and within moments prayers are being sent up for our sweet family and for whatever might be the issue at the time. Each of you are angels to our family and we love you with every bit of our hearts!!! Barb in Texas This email is intended only for the person or entity to which it is addressed and may contain confidential, proprietary and/or privileged material. Any review, distribution, reliance on, or other use of this information by persons or entities other than the intended recipient is prohibited. If you receive this message in error, please immediately notify the sender and delete it and all copies of it from your system. Thank You Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2006 Report Share Posted October 26, 2006 You are in my prayers barb. Dave From: [mailto: ] On Behalf Of Barb Henshaw Sent: Thursday, October 26, 2006 9:29 AM To: Subject: Update from JQ October 25, 2006 As many of you may know, I was hospitalized several weeks ago due to some severe liver pain accompanied by fever. When Luke and I arrived at the ER, I was informed that my blood counts and hydration counts were dangerously low. I was immediately admitted to the transplant floor () at Baylor where they began one emergency test after another trying to discover the source of the apparent bleed. As some of you (unfortunately) know first hand, tests such as colonoscopies, EGDs, CTs, repeated blood work, placement of central lines, blood and hydration infusions, etc. can be no fun....especially after having gone so long being a " normal Mommy " taking care of my sweet family at home. After 10 days of admission, I had had enough and begged my doctors to let me go home. With much trepidation he did, only to have me and Luke come back to his office ASAP, the following Monday to discuss biopsy reports. The news was not the worst ever, but it wasn't the greatest either. So...back to the doctor's appointment. Dr. Hamilton told us that my colon biopsies came back with severe and chronic Ulcerative Colitis in the right side of my colon. He said that this is what's causing the pain over there, probably the cause of the blood loss ( when it was last checked, the platelet count was 85,000 and it should be 440,000) and the reason why my temp jumped up to 104 following my colonoscopy. He was also very worried because my blood pressure was extremely high all throughout my hospitalization and even while we were in his office. SO.. here's the game plan...I have been placed on 9 (yes, count them) NINE sulfa drugs per day in addition to all of the rest of my meds. We're also going to be trying a blood pressure medication because he said that chronic high blood pressure, 2 liver transplants and the medication that I must take daily to save my life is a recipe for kidney failure, eventually leading to kidney transplant. If the 9 sulfa drugs a day do not help, then we will go to steroids, but that can damage the kidneys much faster than anything else. In other words, this is a very serious situation because Ulcerative Colitis goes hand in hand with PSC and shows that the PSC is moving aggressively. Since my latest diagnoses have caused increased chronic pain (that is still being managed by my great doctors) and a new " reality " of the presence of my illness. I cannot tell you enough how much it means to me to know that all I have to do is to sit down and write a letter and within moments prayers are being sent up for our sweet family and for whatever might be the issue at the time. Each of you are angels to our family and we love you with every bit of our hearts!!! Barb in Texas This email is intended only for the person or entity to which it is addressed and may contain confidential, proprietary and/or privileged material. Any review, distribution, reliance on, or other use of this information by persons or entities other than the intended recipient is prohibited. If you receive this message in error, please immediately notify the sender and delete it and all copies of it from your system. Thank You Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2006 Report Share Posted October 26, 2006 Barb, Thanks for updating us on JQ's condition. I'm glad that she is out of the hospital and back with her family. My prayers go out to keep watch over her. Even though she has not been an active member for several years, she was one of the original members and I believe the first to receive a transplant while active in this group. As a pioneer she truely deserves our support. Tim R > > October 25, 2006 > > As many of you may know, I was hospitalized several weeks ago due to > some severe liver pain accompanied by fever. When Luke and I arrived at > the ER, ... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2006 Report Share Posted October 26, 2006 Barb, Thanks for updating us on JQ's condition. I'm glad that she is out of the hospital and back with her family. My prayers go out to keep watch over her. Even though she has not been an active member for several years, she was one of the original members and I believe the first to receive a transplant while active in this group. As a pioneer she truely deserves our support. Tim R > > October 25, 2006 > > As many of you may know, I was hospitalized several weeks ago due to > some severe liver pain accompanied by fever. When Luke and I arrived at > the ER, ... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2006 Report Share Posted October 26, 2006 Barb, Thanks for updating us on JQ's condition. I'm glad that she is out of the hospital and back with her family. My prayers go out to keep watch over her. Even though she has not been an active member for several years, she was one of the original members and I believe the first to receive a transplant while active in this group. As a pioneer she truely deserves our support. Tim R > > October 25, 2006 > > As many of you may know, I was hospitalized several weeks ago due to > some severe liver pain accompanied by fever. When Luke and I arrived at > the ER, ... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2006 Report Share Posted October 26, 2006 You are in my prayers..... > > October 25, 2006 > > As many of you may know, I was hospitalized several weeks ago due to > some severe liver pain accompanied by fever. When Luke and I arrived at > the ER, I was informed that my blood counts and hydration counts were > dangerously low. I was immediately admitted to the transplant floor > () at Baylor where they began one emergency test after another > trying to discover the source of the apparent bleed. As some of you > (unfortunately) know first hand, tests such as colonoscopies, EGDs, CTs, > repeated blood work, placement of central lines, blood and hydration > infusions, etc. can be no fun....especially after having gone so long > being a " normal Mommy " taking care of my sweet family at home. After 10 > days of admission, I had had enough and begged my doctors to let me go > home. With much trepidation he did, only to have me and Luke come back > to his office ASAP, the following Monday to discuss biopsy reports. > > The news was not the worst ever, but it wasn't the greatest either. > > So...back to the doctor's appointment. Dr. Hamilton told us that my > colon biopsies came back with severe and chronic Ulcerative Colitis in > the right side of my colon. He said that this is what's causing the > pain over there, probably the cause of the blood loss ( when it was last > checked, the platelet count was 85,000 and it should be 440,000) and the > reason why my temp jumped up to 104 following my colonoscopy. He was > also very worried because my blood pressure was extremely high all > throughout my hospitalization and even while we were in his office. > SO.. here's the game plan...I have been placed on 9 (yes, count them) > NINE sulfa drugs per day in addition to all of the rest of my meds. > We're also going to be trying a blood pressure medication because he > said that chronic high blood pressure, 2 liver transplants and the > medication that I must take daily to save my life is a recipe for kidney > failure, eventually leading to kidney transplant. If the 9 sulfa drugs > a day do not help, then we will go to steroids, but that can damage the > kidneys much faster than anything else. In other words, this is a very > serious situation because Ulcerative Colitis goes hand in hand with PSC > and shows that the PSC is moving aggressively. > > Since my latest diagnoses have caused increased chronic pain (that is > still being managed by my great doctors) and a new " reality " of the > presence of my illness. I cannot tell you enough how much it means to me > to know that all I have to do is to sit down and write a letter and > within moments prayers are being sent up for our sweet family and for > whatever might be the issue at the time. Each of you are angels to our > family and we love you with every bit of our hearts!!! > > Barb in Texas > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2006 Report Share Posted October 26, 2006 You are in my prayers..... > > October 25, 2006 > > As many of you may know, I was hospitalized several weeks ago due to > some severe liver pain accompanied by fever. When Luke and I arrived at > the ER, I was informed that my blood counts and hydration counts were > dangerously low. I was immediately admitted to the transplant floor > () at Baylor where they began one emergency test after another > trying to discover the source of the apparent bleed. As some of you > (unfortunately) know first hand, tests such as colonoscopies, EGDs, CTs, > repeated blood work, placement of central lines, blood and hydration > infusions, etc. can be no fun....especially after having gone so long > being a " normal Mommy " taking care of my sweet family at home. After 10 > days of admission, I had had enough and begged my doctors to let me go > home. With much trepidation he did, only to have me and Luke come back > to his office ASAP, the following Monday to discuss biopsy reports. > > The news was not the worst ever, but it wasn't the greatest either. > > So...back to the doctor's appointment. Dr. Hamilton told us that my > colon biopsies came back with severe and chronic Ulcerative Colitis in > the right side of my colon. He said that this is what's causing the > pain over there, probably the cause of the blood loss ( when it was last > checked, the platelet count was 85,000 and it should be 440,000) and the > reason why my temp jumped up to 104 following my colonoscopy. He was > also very worried because my blood pressure was extremely high all > throughout my hospitalization and even while we were in his office. > SO.. here's the game plan...I have been placed on 9 (yes, count them) > NINE sulfa drugs per day in addition to all of the rest of my meds. > We're also going to be trying a blood pressure medication because he > said that chronic high blood pressure, 2 liver transplants and the > medication that I must take daily to save my life is a recipe for kidney > failure, eventually leading to kidney transplant. If the 9 sulfa drugs > a day do not help, then we will go to steroids, but that can damage the > kidneys much faster than anything else. In other words, this is a very > serious situation because Ulcerative Colitis goes hand in hand with PSC > and shows that the PSC is moving aggressively. > > Since my latest diagnoses have caused increased chronic pain (that is > still being managed by my great doctors) and a new " reality " of the > presence of my illness. I cannot tell you enough how much it means to me > to know that all I have to do is to sit down and write a letter and > within moments prayers are being sent up for our sweet family and for > whatever might be the issue at the time. Each of you are angels to our > family and we love you with every bit of our hearts!!! > > Barb in Texas > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2006 Report Share Posted October 26, 2006 You are in my prayers..... > > October 25, 2006 > > As many of you may know, I was hospitalized several weeks ago due to > some severe liver pain accompanied by fever. When Luke and I arrived at > the ER, I was informed that my blood counts and hydration counts were > dangerously low. I was immediately admitted to the transplant floor > () at Baylor where they began one emergency test after another > trying to discover the source of the apparent bleed. As some of you > (unfortunately) know first hand, tests such as colonoscopies, EGDs, CTs, > repeated blood work, placement of central lines, blood and hydration > infusions, etc. can be no fun....especially after having gone so long > being a " normal Mommy " taking care of my sweet family at home. After 10 > days of admission, I had had enough and begged my doctors to let me go > home. With much trepidation he did, only to have me and Luke come back > to his office ASAP, the following Monday to discuss biopsy reports. > > The news was not the worst ever, but it wasn't the greatest either. > > So...back to the doctor's appointment. Dr. Hamilton told us that my > colon biopsies came back with severe and chronic Ulcerative Colitis in > the right side of my colon. He said that this is what's causing the > pain over there, probably the cause of the blood loss ( when it was last > checked, the platelet count was 85,000 and it should be 440,000) and the > reason why my temp jumped up to 104 following my colonoscopy. He was > also very worried because my blood pressure was extremely high all > throughout my hospitalization and even while we were in his office. > SO.. here's the game plan...I have been placed on 9 (yes, count them) > NINE sulfa drugs per day in addition to all of the rest of my meds. > We're also going to be trying a blood pressure medication because he > said that chronic high blood pressure, 2 liver transplants and the > medication that I must take daily to save my life is a recipe for kidney > failure, eventually leading to kidney transplant. If the 9 sulfa drugs > a day do not help, then we will go to steroids, but that can damage the > kidneys much faster than anything else. In other words, this is a very > serious situation because Ulcerative Colitis goes hand in hand with PSC > and shows that the PSC is moving aggressively. > > Since my latest diagnoses have caused increased chronic pain (that is > still being managed by my great doctors) and a new " reality " of the > presence of my illness. I cannot tell you enough how much it means to me > to know that all I have to do is to sit down and write a letter and > within moments prayers are being sent up for our sweet family and for > whatever might be the issue at the time. Each of you are angels to our > family and we love you with every bit of our hearts!!! > > Barb in Texas > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2006 Report Share Posted October 26, 2006 -Barb, Sorry. Keep your chin up. we'll keep you in prayers Rita (Florida) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2006 Report Share Posted October 26, 2006 -Barb, I'm sorry. I went back to your message again and saw that you it was an update from JQ (not sure yet who it is but I only joined about a year ago). We'll keep her in prayers. Thanks for all the updates. rita (florida) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 Barb, please let her know that prayers are, in fact, going up for all of them, again! Send a hug, too, will you? Quote Link to comment Share on other sites More sharing options...
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