Off all but one med YIPPEE

[Guest guest]

Well since I'm off the prednisone they also took me off of the other

BP med I was on, I'm still on the patch but no more pills till my

next round of problems. I almost feel " normal " , my BP did get a bit

high on Saturday but it was the day before my birthday and I got

WASTED. Other then that it's been about a week since I even felt I

had to check it. I am looking great and my clothes are fitting right

again, I don't have to wear my boyfiends clothes anymore.

BRANDY

[Guest guest]

Happy Bday !!

I'm quite jealous that you are off the prednisone already. I'm

going for my next lab test this week, and then I see the neph on May

31...hoping things are going well, so that I can keep taking the

prednisone for a while.

Sophia

> Well since I'm off the prednisone they also took me off of the

other

> BP med I was on, I'm still on the patch but no more pills till my

> next round of problems. I almost feel " normal " , my BP did get a

bit

> high on Saturday but it was the day before my birthday and I got

> WASTED. Other then that it's been about a week since I even felt

I

> had to check it. I am looking great and my clothes are fitting

right

> again, I don't have to wear my boyfiends clothes anymore.

>

> BRANDY

[Guest guest]

Happy Bday !!

I'm quite jealous that you are off the prednisone already. I'm

going for my next lab test this week, and then I see the neph on May

31...hoping things are going well, so that I can keep taking the

prednisone for a while.

Sophia

> Well since I'm off the prednisone they also took me off of the

other

> BP med I was on, I'm still on the patch but no more pills till my

> next round of problems. I almost feel " normal " , my BP did get a

bit

> high on Saturday but it was the day before my birthday and I got

> WASTED. Other then that it's been about a week since I even felt

I

> had to check it. I am looking great and my clothes are fitting

right

> again, I don't have to wear my boyfiends clothes anymore.

>

> BRANDY

[Guest guest]

Happy Bday !!

I'm quite jealous that you are off the prednisone already. I'm

going for my next lab test this week, and then I see the neph on May

31...hoping things are going well, so that I can keep taking the

prednisone for a while.

Sophia

> Well since I'm off the prednisone they also took me off of the

other

> BP med I was on, I'm still on the patch but no more pills till my

> next round of problems. I almost feel " normal " , my BP did get a

bit

> high on Saturday but it was the day before my birthday and I got

> WASTED. Other then that it's been about a week since I even felt

I

> had to check it. I am looking great and my clothes are fitting

right

> again, I don't have to wear my boyfiends clothes anymore.

>

> BRANDY

[Guest guest]

Congrads on the loss of meds and Happy Birthday

If you should feel left out I still have plenty of them to go around.

Just choose your drug type (lol just kidding) Great news that you are

back into your own clothes.

Martha

> Well since I'm off the prednisone they also took me off of the

other

> BP med I was on, I'm still on the patch but no more pills till my

> next round of problems. I almost feel " normal " , my BP did get a

bit

> high on Saturday but it was the day before my birthday and I got

> WASTED. Other then that it's been about a week since I even felt I

> had to check it. I am looking great and my clothes are fitting

right

> again, I don't have to wear my boyfiends clothes anymore.

>

> BRANDY

[Guest guest]

Congrads on the loss of meds and Happy Birthday

If you should feel left out I still have plenty of them to go around.

Just choose your drug type (lol just kidding) Great news that you are

back into your own clothes.

Martha

> Well since I'm off the prednisone they also took me off of the

other

> BP med I was on, I'm still on the patch but no more pills till my

> next round of problems. I almost feel " normal " , my BP did get a

bit

> high on Saturday but it was the day before my birthday and I got

> WASTED. Other then that it's been about a week since I even felt I

> had to check it. I am looking great and my clothes are fitting

right

> again, I don't have to wear my boyfiends clothes anymore.

>

> BRANDY

[Guest guest]

Hello Martha,

My name is Dave & I have IGA Neph also ..been diagnosed for about 5 yrs

now...Interested in the dissability thing & how that works...I currently own my

own construction business now but know in the future( neera or not so near)

that I'll be unable to swing a hammer & stuff. Also, Has anyone here ever had

a bout with Gout. Boy this holiday weekend my feet swelled and I had the

classis symptoms of gout in my left big toe...couldn't even walk for 2 days....

thanks

dave

Quoting Martha :

>

>

>

>

> Congrads on the loss of meds and Happy Birthday

>

> If you should feel left out I still have plenty of them to go around.

>

> Just choose your drug type (lol just kidding) Great news that you are

>

> back into your own clothes.

>

>

>

> Martha

>

>

>

>

>

> > Well since I'm off the prednisone they also took me off of the

>

> other

>

> > BP med I was on, I'm still on the patch but no more pills till my

>

> > next round of problems. I almost feel " normal " , my BP did get a

>

> bit

>

> > high on Saturday but it was the day before my birthday and I got

>

> > WASTED. Other then that it's been about a week since I even felt I

>

> > had to check it. I am looking great and my clothes are fitting

>

> right

>

> > again, I don't have to wear my boyfiends clothes anymore.

>

> >

>

> > BRANDY

>

>

>

>

>

>

>

>

>

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[Guest guest]

Hi Dave.

We have had quite a few members post about gout. You might want to

search past messages from our Yahoo home page. They should be there.

The short answer though, is that, it's really treated as a separate

issue from the IgAN. IgAN does not cause gout, and for most people,

contrary to popular belief, even advanced kidney failure does not

cause gout in most people. But, if a person is already prone to gout,

then it's possible that having some degree of chronic renal

insufficiency will trigger it if the diet had too many of the things

that favour gout in it. Most people with IgAN who have gout are

treated the same as anyone else who has gout: allupurinol.

About disability...

Not hard to get on if you have reached end-stage renal disease and

you need to go on dialysis.

Almost impossible to get before that, unless there is something more

than just the IgAN or the chronic renal insufficiency, or if the job

is so physical that it's impossible to do it (but this is unlikely

unless the kidney failure is really advanced and problematic).

Something more than IgAN might be very severe, treatment-resistant

high blood pressure, other disease that compount the problems, like

severe asthma, heart problems, etc. But for IgAN alone, not really

until you need dialysis (or a transplant).

Pierre

> Hello Martha,

> My name is Dave & I have IGA Neph also ..been diagnosed for about 5

yrs

> now...Interested in the dissability thing & how that works...I

currently own my

> own construction business now but know in the future( neera or not

so near)

> that I'll be unable to swing a hammer & stuff. Also, Has anyone

here ever had

> a bout with Gout. Boy this holiday weekend my feet swelled and I

had the

> classis symptoms of gout in my left big toe...couldn't even walk

for 2 days....

> thanks

> dave

>

> >