Re: IGAN vs. Nephrotic Syndrome help me understand

[Guest guest]

Hi Jill,

The only way I know to tell if you are in the nephrotic range is with a urine

test, either a creatinine protein ratio on a random, or with a 24 hour urine.

There is no way visually to tell how much protein you are spilling

unfortunately.

Most people with IgAN only have visible urine (cola colored) when they are

having a flare up. I would definitely ask your Neph about that if yours is

always dark.

I don't know of anything that would make IgAN look like a bladder infection.

Sorry to not be of more help on this one.

In a message dated 3/25/2004 7:49:53 PM Pacific Standard Time,

aj72300@... writes:

> Okay, so how do you know if you have nephrotic syndrome and not just

> IGAN?

[Guest guest]

jill,,,almost every time i take mt daughter to the dr she has a bladdrr or

kidney infection too,,,,but her urine is never been that cola color or

foamy,,,,,,crystal

[Guest guest]

Hi Jill,

Re homekits for urinalysis. If they are dipsticks showing levels of

protein and blood.... this would show positive. In urinary tact

infections there also can be a blood/protein mix in the urine.

Don't know if this is the answer to your question ?

Take care, Maureen

> Okay, so how do you know if you have nephrotic syndrome and not

just

> IGAN? I constantly have coca-cola colored urine and foam. I can't

> remember a time it didn't look like that. Is that something I

> should mention to the Neph? In fact, when I do the urine tests, my

> urine is the same brown shade as the jug! When I started going to

> the urologist (before I was properly diagnosed) he told me that was

> just " normal " for me and it just meant I wasn't drinking enough.

> Trust me, I drink water non-stop all day long. Luckily I got to a

> neph and was diagnosed. But I guess I just always assumed that was

> IGAN, and that's how you know you have it. After all, that's the

> reason I started going to the urologist for all of this. One more

> thing, when I was being told these were bladder infections (10x in

> 12 months) I would buy those at home kits and they always said

> positive right away. What makes IGAN look like a bladder infection?

>

> Jill

[Guest guest]

Hi Jill,

Re homekits for urinalysis. If they are dipsticks showing levels of

protein and blood.... this would show positive. In urinary tact

infections there also can be a blood/protein mix in the urine.

Don't know if this is the answer to your question ?

Take care, Maureen

> Okay, so how do you know if you have nephrotic syndrome and not

just

> IGAN? I constantly have coca-cola colored urine and foam. I can't

> remember a time it didn't look like that. Is that something I

> should mention to the Neph? In fact, when I do the urine tests, my

> urine is the same brown shade as the jug! When I started going to

> the urologist (before I was properly diagnosed) he told me that was

> just " normal " for me and it just meant I wasn't drinking enough.

> Trust me, I drink water non-stop all day long. Luckily I got to a

> neph and was diagnosed. But I guess I just always assumed that was

> IGAN, and that's how you know you have it. After all, that's the

> reason I started going to the urologist for all of this. One more

> thing, when I was being told these were bladder infections (10x in

> 12 months) I would buy those at home kits and they always said

> positive right away. What makes IGAN look like a bladder infection?

>

> Jill

[Guest guest]

Hi Jill,

Re homekits for urinalysis. If they are dipsticks showing levels of

protein and blood.... this would show positive. In urinary tact

infections there also can be a blood/protein mix in the urine.

Don't know if this is the answer to your question ?

Take care, Maureen

> Okay, so how do you know if you have nephrotic syndrome and not

just

> IGAN? I constantly have coca-cola colored urine and foam. I can't

> remember a time it didn't look like that. Is that something I

> should mention to the Neph? In fact, when I do the urine tests, my

> urine is the same brown shade as the jug! When I started going to

> the urologist (before I was properly diagnosed) he told me that was

> just " normal " for me and it just meant I wasn't drinking enough.

> Trust me, I drink water non-stop all day long. Luckily I got to a

> neph and was diagnosed. But I guess I just always assumed that was

> IGAN, and that's how you know you have it. After all, that's the

> reason I started going to the urologist for all of this. One more

> thing, when I was being told these were bladder infections (10x in

> 12 months) I would buy those at home kits and they always said

> positive right away. What makes IGAN look like a bladder infection?

>

> Jill