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My 8-month old daughter is on her 13th day with the helmet. As we

progress in having her wear it longer every day the redness across her

entire forehead and the upper part of her cheeks has gone from

disappearing to lasting the entire time the helmet is off. We've gone

in at least twice a week to have it adjusted as well as left it off

until the skin heals and nothing seems to be helping. I know some

websites have stated that skin irritation and breakdown occurs in

about 5% of helmet wearers. They also say that there are treatment

protocals for this. Does anyone know what they are? My sweetie is

wearing a helmet versus a band. The helmet only has a 2 and 1/2 in.

hole at the top versus the band which appears more open in pictures.

Has anyone heard of better luck with the band versus a helmet? I know

that doing this is what's best for her but I haven't wanted to from

the start and this isn't making it any easier. It's so hard to look

at her soft skin all flaming red and sore. Any suggestions? Thanks.

Angie

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My 8-month old daughter is on her 13th day with the helmet. As we

progress in having her wear it longer every day the redness across her

entire forehead and the upper part of her cheeks has gone from

disappearing to lasting the entire time the helmet is off. We've gone

in at least twice a week to have it adjusted as well as left it off

until the skin heals and nothing seems to be helping. I know some

websites have stated that skin irritation and breakdown occurs in

about 5% of helmet wearers. They also say that there are treatment

protocals for this. Does anyone know what they are? My sweetie is

wearing a helmet versus a band. The helmet only has a 2 and 1/2 in.

hole at the top versus the band which appears more open in pictures.

Has anyone heard of better luck with the band versus a helmet? I know

that doing this is what's best for her but I haven't wanted to from

the start and this isn't making it any easier. It's so hard to look

at her soft skin all flaming red and sore. Any suggestions? Thanks.

Angie

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Angie,

I am so sorry to hear that you are having such troubles. Words like

flaming red and sore, really get me nervous. There should be no

flaming red or sore spots. Red marks should dissappear within an hour

of removing the helmet or there is a problem, be it heat rash or a

needed adjustment. A sore spot from the helmet needing an adjsutment

will look like the back of your heel in bad shoes, while heat rash

will appear raised slightly with tons of tiny bumps like prickly

heat. Have you had any other fit issues with this helmet? What did

the OT tell you? Do they think it is a rash or that the helmet needed

to be adjusted? Have you tried cortisone cream twice a day on it and

leaving the helmet off 24 hours to see what happens? Some babies are

more sensitive than others to the alcohol used to clean the helmets,

be sure to dry it thoroughly after cleaning and maybe put it in front

of a fan to be really sure. Use the 91% alcohol it evaporates

quicker, you can get it at the pharmacy or Walmart. Where are you

being treated? Maybe someone else has had experience with this OT and

can share some info with you. Keep me posted on what happens.

CAROLG

--- In Plagiocephaly , " amc112401 " <amc112401@y...>

wrote:

> My 8-month old daughter is on her 13th day with the helmet. As we

> progress in having her wear it longer every day the redness across

her

> entire forehead and the upper part of her cheeks has gone from

> disappearing to lasting the entire time the helmet is off. We've

gone

> in at least twice a week to have it adjusted as well as left it off

> until the skin heals and nothing seems to be helping. I know some

> websites have stated that skin irritation and breakdown occurs in

> about 5% of helmet wearers. They also say that there are treatment

> protocals for this. Does anyone know what they are? My sweetie is

> wearing a helmet versus a band. The helmet only has a 2 and 1/2

in.

> hole at the top versus the band which appears more open in

pictures.

> Has anyone heard of better luck with the band versus a helmet? I

know

> that doing this is what's best for her but I haven't wanted to from

> the start and this isn't making it any easier. It's so hard to

look

> at her soft skin all flaming red and sore. Any suggestions?

Thanks.

> Angie

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Angie,

I am so sorry to hear that you are having such troubles. Words like

flaming red and sore, really get me nervous. There should be no

flaming red or sore spots. Red marks should dissappear within an hour

of removing the helmet or there is a problem, be it heat rash or a

needed adjustment. A sore spot from the helmet needing an adjsutment

will look like the back of your heel in bad shoes, while heat rash

will appear raised slightly with tons of tiny bumps like prickly

heat. Have you had any other fit issues with this helmet? What did

the OT tell you? Do they think it is a rash or that the helmet needed

to be adjusted? Have you tried cortisone cream twice a day on it and

leaving the helmet off 24 hours to see what happens? Some babies are

more sensitive than others to the alcohol used to clean the helmets,

be sure to dry it thoroughly after cleaning and maybe put it in front

of a fan to be really sure. Use the 91% alcohol it evaporates

quicker, you can get it at the pharmacy or Walmart. Where are you

being treated? Maybe someone else has had experience with this OT and

can share some info with you. Keep me posted on what happens.

CAROLG

--- In Plagiocephaly , " amc112401 " <amc112401@y...>

wrote:

> My 8-month old daughter is on her 13th day with the helmet. As we

> progress in having her wear it longer every day the redness across

her

> entire forehead and the upper part of her cheeks has gone from

> disappearing to lasting the entire time the helmet is off. We've

gone

> in at least twice a week to have it adjusted as well as left it off

> until the skin heals and nothing seems to be helping. I know some

> websites have stated that skin irritation and breakdown occurs in

> about 5% of helmet wearers. They also say that there are treatment

> protocals for this. Does anyone know what they are? My sweetie is

> wearing a helmet versus a band. The helmet only has a 2 and 1/2

in.

> hole at the top versus the band which appears more open in

pictures.

> Has anyone heard of better luck with the band versus a helmet? I

know

> that doing this is what's best for her but I haven't wanted to from

> the start and this isn't making it any easier. It's so hard to

look

> at her soft skin all flaming red and sore. Any suggestions?

Thanks.

> Angie

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Angie,

I just want to second everything Carol has already told you. I'm

sorry you're going through this. Please keep us posted.

-- In Plagiocephaly , " amc112401 " <amc112401@y...>

wrote:

> My 8-month old daughter is on her 13th day with the helmet. As we

> progress in having her wear it longer every day the redness across

her

> entire forehead and the upper part of her cheeks has gone from

> disappearing to lasting the entire time the helmet is off. We've

gone

> in at least twice a week to have it adjusted as well as left it off

> until the skin heals and nothing seems to be helping. I know some

> websites have stated that skin irritation and breakdown occurs in

> about 5% of helmet wearers. They also say that there are treatment

> protocals for this. Does anyone know what they are? My sweetie is

> wearing a helmet versus a band. The helmet only has a 2 and 1/2

in.

> hole at the top versus the band which appears more open in

pictures.

> Has anyone heard of better luck with the band versus a helmet? I

know

> that doing this is what's best for her but I haven't wanted to from

> the start and this isn't making it any easier. It's so hard to

look

> at her soft skin all flaming red and sore. Any suggestions?

Thanks.

> Angie

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Share on other sites

Angie,

I just want to second everything Carol has already told you. I'm

sorry you're going through this. Please keep us posted.

-- In Plagiocephaly , " amc112401 " <amc112401@y...>

wrote:

> My 8-month old daughter is on her 13th day with the helmet. As we

> progress in having her wear it longer every day the redness across

her

> entire forehead and the upper part of her cheeks has gone from

> disappearing to lasting the entire time the helmet is off. We've

gone

> in at least twice a week to have it adjusted as well as left it off

> until the skin heals and nothing seems to be helping. I know some

> websites have stated that skin irritation and breakdown occurs in

> about 5% of helmet wearers. They also say that there are treatment

> protocals for this. Does anyone know what they are? My sweetie is

> wearing a helmet versus a band. The helmet only has a 2 and 1/2

in.

> hole at the top versus the band which appears more open in

pictures.

> Has anyone heard of better luck with the band versus a helmet? I

know

> that doing this is what's best for her but I haven't wanted to from

> the start and this isn't making it any easier. It's so hard to

look

> at her soft skin all flaming red and sore. Any suggestions?

Thanks.

> Angie

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I'm sorry to hear all this is happening. You should definitely have

it looked at as soon as possible. My son has only had his band for

2 weeks, and in the beginnning it's so hard to distinguish between a

rash/irritation and pressure sores. Do you live close enough to

your OT to drop in for a quick checkup?

Edina (mom to Ethan - 5 mo, tort, plagio, DOCband)

--- In Plagiocephaly , " amc112401 " <amc112401@y...>

wrote:

> My 8-month old daughter is on her 13th day with the helmet. As we

> progress in having her wear it longer every day the redness across

her

> entire forehead and the upper part of her cheeks has gone from

> disappearing to lasting the entire time the helmet is off. We've

gone

> in at least twice a week to have it adjusted as well as left it

off

> until the skin heals and nothing seems to be helping. I know some

> websites have stated that skin irritation and breakdown occurs in

> about 5% of helmet wearers. They also say that there are

treatment

> protocals for this. Does anyone know what they are? My sweetie

is

> wearing a helmet versus a band. The helmet only has a 2 and 1/2

in.

> hole at the top versus the band which appears more open in

pictures.

> Has anyone heard of better luck with the band versus a helmet? I

know

> that doing this is what's best for her but I haven't wanted to

from

> the start and this isn't making it any easier. It's so hard to

look

> at her soft skin all flaming red and sore. Any suggestions?

Thanks.

> Angie

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Share on other sites

I'm sorry to hear all this is happening. You should definitely have

it looked at as soon as possible. My son has only had his band for

2 weeks, and in the beginnning it's so hard to distinguish between a

rash/irritation and pressure sores. Do you live close enough to

your OT to drop in for a quick checkup?

Edina (mom to Ethan - 5 mo, tort, plagio, DOCband)

--- In Plagiocephaly , " amc112401 " <amc112401@y...>

wrote:

> My 8-month old daughter is on her 13th day with the helmet. As we

> progress in having her wear it longer every day the redness across

her

> entire forehead and the upper part of her cheeks has gone from

> disappearing to lasting the entire time the helmet is off. We've

gone

> in at least twice a week to have it adjusted as well as left it

off

> until the skin heals and nothing seems to be helping. I know some

> websites have stated that skin irritation and breakdown occurs in

> about 5% of helmet wearers. They also say that there are

treatment

> protocals for this. Does anyone know what they are? My sweetie

is

> wearing a helmet versus a band. The helmet only has a 2 and 1/2

in.

> hole at the top versus the band which appears more open in

pictures.

> Has anyone heard of better luck with the band versus a helmet? I

know

> that doing this is what's best for her but I haven't wanted to

from

> the start and this isn't making it any easier. It's so hard to

look

> at her soft skin all flaming red and sore. Any suggestions?

Thanks.

> Angie

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