Re: Anyone here using a craniocap?/2nd Craniocap

February 13, 2006

Hi ,

CranioCap is only available in Minnesota, as part of the Gillette

Children's network. It may be that plagio babies dianosed at these

medical facilites are just automatically sent to their own CranioCap.

The CranioCap is a passive helmet, and works best on younger babies

who have lots of growth spurts ahead of them. Per your timeline you

mentioned, it seems as though your daughter did start her passive band

at a young age, but is fast approaching an older age that the

CranioCap website admits is too old an age to use the CranioCap (12 to

13 months of age.) I'm sure there are currently active members that

are using the CranioCap, too, that can give you a personal

perspective. In addition, we have a helmet/band database in the

database section of the group, which also has a field for parents to

add their own email if they are open to being contacted by other

parents. Here are the two emails that were listed, if you'd like to

email them:

Amy (son Jaden 5 mo's mild tort/plagio) johnson.amy @ mchsi.com

hvetsch @ gmail.com

Here is Jaxson's website, who also used a CranioCap:

http://www.geocities.com/jaxplagio/

Gillette Children's also has a couple website pages devoted to the

CranioCap, it's protocols and facts, if you haven't already visited them:

http://www.gillettechildrens.org/default.cfm?pid=1.3.6.4#CranioCap

http://www.gillettechildrens.org/default.cfm/pid=1.3.6.4.1

I, too, am quite surprised to hear that your daughter has had 2

craniocaps! The CranioCap is a passive helmet, and protocol for

passive helmets of any brand is one passive helmet, and then whatever

correction you get, that is what you end up with. Would you mind

telling me the circumstances of your getting a second CranioCap? Did

your baby outgrow the first one eventually, but still needed more

correction, so she got a subsequent one? Or perhaps was there a fit

issue, and a replacement band was issued? Thanks for any

clarification. As you can see, parents are, many times, left to

educate ourselves, and it would be a big help to have updated

information to share to future members considering the CranioCap.

I know a couple of group members who had a craniocap for their baby,

and still wanted more correction after graduation from the CranioCap,

so they went on to a different brand of band, an active band, for

further treatment. Since your daughter is is nearing end of treatment

with the CranioCap, and is still only a year old, are you open to

considering another type of band? Many group members have had success

getting correction for their older babies with active bands, such as

the DOCband, Starband, or Hanger band.

Please let us know if we can help with any questions or concerns?

Take care,

Christie (Mom to Repo'd Remy)

>

> Hi we are on our second craniocap with my daughter. She has been

wearing it

> since July and will soon be turning 1 year old. She has very severe

plagio

> with assymetrical facial features mostly cheek and eye issues. I

was interested

> in reading the response from we are using the same Dr. and

as we draw

> closer to the end of my daughter's wearing of this cap I am

frustrated with

> myself that I did not become more educated on what was going on -or

not going

> on... I guess until finding this group did I even know there

were other

> kinds of options for my daughters problem. Looking back on all of

the things

> happening to her when she was so small I was overwhelmed and

assumed I was

> being directed to the best place that would help us. It has helped

my daughter a

> lot but I now am left wondering ~have I done enough to help her!

>

> Good luck with your experience with the cap. Do you live in

Minnesota? ~ I

> hardly ever hear of anyone on this group in a craniocap and am

wondering if it

> is only a minnesota thing?

>

February 13, 2006