Guest guest Posted October 22, 2006 Report Share Posted October 22, 2006 > > what is actually killing these 1 in 4 people post tx after say the > > first year? > > C Liver Transpl. 2001 Sep;7(9):811-5. Analysis of causes of death in liver transplant recipients who survived more than 3 years. Pruthi J, Medkiff KA, Esrason KT, Donovan JA, Yoshida EM, Erb SR, Steinbrecher UP, Fong TL. Division of Liver Transplantation, Southern California Permanente Medical Group, Los Angeles, CA, USA. Few studies have examined causes of death in long-term survivors of orthotopic liver transplantation (OLT). We reviewed causes of death among 299 adult liver transplant recipients who survived more than 3 years after OLT at 2 centers. Thirty-eight of the 299 patients subsequently died. Nonhepatic causes accounted for 22 of 38 late deaths (58%). Death caused by malignancies occurred in 9 patients between 3.3 and 8.0 years after OLT. Eight patients died of cardiovascular complications. The 6 patients who died of myocardial infarction had risk factors for coronary artery disease. Hepatic failure caused by recurrent liver disease or chronic rejection accounted for 16 of 38 late deaths (42%). These 16 patients were younger than patients who died of nonhepatic complications (mean ages, 50.7 v 62.1 years; P =.001). However, the mean interval between OLT and death was similar among patients who died of nonhepatic versus hepatic causes. Nine patients had recurrent liver disease leading to death, and 8 of 9 patients had recurrent chronic hepatitis C virus (HCV) infection. Chronic rejection resulting in graft failure and death occurred in 7 patients. In summary, de novo malignancies and cardiovascular complications accounted for more than half the late deaths. Patients who died of nonhepatic causes were significantly older than patients who died of hepatic causes. Chronic rejection and recurrent HCV infection accounted for the majority of hepatic causes of death. With longer follow-up, graft failure resulting from recurrent HCV infection will become the major cause of death in late survivors. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2006 Report Share Posted October 22, 2006 > > what is actually killing these 1 in 4 people post tx after say the > > first year? > > C Liver Transpl. 2001 Sep;7(9):811-5. Analysis of causes of death in liver transplant recipients who survived more than 3 years. Pruthi J, Medkiff KA, Esrason KT, Donovan JA, Yoshida EM, Erb SR, Steinbrecher UP, Fong TL. Division of Liver Transplantation, Southern California Permanente Medical Group, Los Angeles, CA, USA. Few studies have examined causes of death in long-term survivors of orthotopic liver transplantation (OLT). We reviewed causes of death among 299 adult liver transplant recipients who survived more than 3 years after OLT at 2 centers. Thirty-eight of the 299 patients subsequently died. Nonhepatic causes accounted for 22 of 38 late deaths (58%). Death caused by malignancies occurred in 9 patients between 3.3 and 8.0 years after OLT. Eight patients died of cardiovascular complications. The 6 patients who died of myocardial infarction had risk factors for coronary artery disease. Hepatic failure caused by recurrent liver disease or chronic rejection accounted for 16 of 38 late deaths (42%). These 16 patients were younger than patients who died of nonhepatic complications (mean ages, 50.7 v 62.1 years; P =.001). However, the mean interval between OLT and death was similar among patients who died of nonhepatic versus hepatic causes. Nine patients had recurrent liver disease leading to death, and 8 of 9 patients had recurrent chronic hepatitis C virus (HCV) infection. Chronic rejection resulting in graft failure and death occurred in 7 patients. In summary, de novo malignancies and cardiovascular complications accounted for more than half the late deaths. Patients who died of nonhepatic causes were significantly older than patients who died of hepatic causes. Chronic rejection and recurrent HCV infection accounted for the majority of hepatic causes of death. With longer follow-up, graft failure resulting from recurrent HCV infection will become the major cause of death in late survivors. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2006 Report Share Posted October 22, 2006 > > what is actually killing these 1 in 4 people post tx after say the > > first year? > > C Liver Transpl. 2001 Sep;7(9):811-5. Analysis of causes of death in liver transplant recipients who survived more than 3 years. Pruthi J, Medkiff KA, Esrason KT, Donovan JA, Yoshida EM, Erb SR, Steinbrecher UP, Fong TL. Division of Liver Transplantation, Southern California Permanente Medical Group, Los Angeles, CA, USA. Few studies have examined causes of death in long-term survivors of orthotopic liver transplantation (OLT). We reviewed causes of death among 299 adult liver transplant recipients who survived more than 3 years after OLT at 2 centers. Thirty-eight of the 299 patients subsequently died. Nonhepatic causes accounted for 22 of 38 late deaths (58%). Death caused by malignancies occurred in 9 patients between 3.3 and 8.0 years after OLT. Eight patients died of cardiovascular complications. The 6 patients who died of myocardial infarction had risk factors for coronary artery disease. Hepatic failure caused by recurrent liver disease or chronic rejection accounted for 16 of 38 late deaths (42%). These 16 patients were younger than patients who died of nonhepatic complications (mean ages, 50.7 v 62.1 years; P =.001). However, the mean interval between OLT and death was similar among patients who died of nonhepatic versus hepatic causes. Nine patients had recurrent liver disease leading to death, and 8 of 9 patients had recurrent chronic hepatitis C virus (HCV) infection. Chronic rejection resulting in graft failure and death occurred in 7 patients. In summary, de novo malignancies and cardiovascular complications accounted for more than half the late deaths. Patients who died of nonhepatic causes were significantly older than patients who died of hepatic causes. Chronic rejection and recurrent HCV infection accounted for the majority of hepatic causes of death. With longer follow-up, graft failure resulting from recurrent HCV infection will become the major cause of death in late survivors. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2006 Report Share Posted October 23, 2006 > > Liver Transpl. 2001 Sep;7(9):811-5. > > > Analysis of causes of death in liver transplant recipients who > survived more than 3 years. > > Thanks for this. I note from this that some many deaths are none 'liver' reasons eg heart etc. Some are recurrent hep c. Does anybody know if there have been any studies on psc patients. Could it be assumed for example that PSC people post tx might have better outcomes assuming they don't have hep C etc? Or do we assume that the same 1:4 approx will die post 5 years tx. Thanks Tim (UK) psc 01 uc 03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2006 Report Share Posted October 23, 2006 > > Liver Transpl. 2001 Sep;7(9):811-5. > > > Analysis of causes of death in liver transplant recipients who > survived more than 3 years. > > Thanks for this. I note from this that some many deaths are none 'liver' reasons eg heart etc. Some are recurrent hep c. Does anybody know if there have been any studies on psc patients. Could it be assumed for example that PSC people post tx might have better outcomes assuming they don't have hep C etc? Or do we assume that the same 1:4 approx will die post 5 years tx. Thanks Tim (UK) psc 01 uc 03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2006 Report Share Posted October 23, 2006 Hi Tim; The Mayo Clinic has published this article on long-term outcomes after liver transplantation for PSC. It sounds like the major cause of death was severe infection: Hepatology. 1999 Nov;30(5):1121-7. Long-term results of patients undergoing liver transplantation for primary sclerosing cholangitis. Graziadei IW, Wiesner RH, Marotta PJ, Porayko MK, Hay JE, Charlton MR, Poterucha JJ, Rosen CB, Gores GJ, LaRusso NF, Krom RA. Liver Transplant Unit, Mayo Clinic, Rochester, MN 55905, USA. Liver transplantation is the only effective therapeutic option for patients with end-stage liver disease due to primary sclerosing cholangitis (PSC). In this study, we analyzed a single center's experience with 150 consecutive PSC patients who received 174 liver allografts. Mean follow-up was 55 months. Actuarial patient survival at 1, 2, 5, and 10 years was 93.7%, 92.2%, 86.4%, and 69.8%, respectively, whereas graft survival was 83.4%, 83.4%, 79.0%, and 60.5%, respectively. The main indication for retransplantation was hepatic artery thrombosis, and the major cause of death was severe infection. Patients with PSC had a higher incidence of acute cellular and chronic ductopenic rejection compared to a non-PSC control group. Chronic ductopenic rejection adversely affected patient and graft survival. Biliary strictures, both anastomotic and nonanastomotic, were frequent and occurred in 16.2% and 27.2% of patients, respectively. The incidence of recurrent PSC was 20%. A negative impact on patient survival was not seen in patients with either postoperative biliary strictures or recurrence of PSC. Six patients (4%) had cholangiocarcinoma and 1 patient died related to recurrence of malignant disease. Seventy-eight percent of PSC patients had associated inflammatory bowel disease, most commonly chronic ulcerative colitis, which did not adversely impact patient outcome posttransplantation. Nine patients required proctocolectomy after liver transplantation; 5 because of intractable symptoms related to inflammatory bowel disease and 4 due to the development of colorectal carcinoma/high-grade dysplasia. Our data show that liver transplantation provides excellent long-term patient and graft survival for patients with end-stage PSC. PMID: 10534330. Best regards, Dave (father of (21); PSC 07/03; UC 08/03) > Does anybody know if there have been any studies on psc patients. Could it be assumed for example that PSC people post tx might have better outcomes assuming they don't have hep C etc? Or do we assume that the same 1:4 approx will die post 5 years tx. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2006 Report Share Posted October 23, 2006 Thank you bery much that's exactly what I was looking for. U amaze me how u come up with the goods all the time! Tim > > Hi Tim; > > The Mayo Clinic has published this article on long-term outcomes > after liver transplantation for PSC. It sounds like the major cause > of death was severe infection: > > D Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2006 Report Share Posted October 23, 2006 Thank you bery much that's exactly what I was looking for. U amaze me how u come up with the goods all the time! Tim > > Hi Tim; > > The Mayo Clinic has published this article on long-term outcomes > after liver transplantation for PSC. It sounds like the major cause > of death was severe infection: > > D Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2006 Report Share Posted October 23, 2006 Thank you bery much that's exactly what I was looking for. U amaze me how u come up with the goods all the time! Tim > > Hi Tim; > > The Mayo Clinic has published this article on long-term outcomes > after liver transplantation for PSC. It sounds like the major cause > of death was severe infection: > > D Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2006 Report Share Posted October 23, 2006 Thanks Tim That is quite encouraging showing that if you have to have a liver disease this is I guess one of the better ones in terms of tx. I still wish that 20% was even less! Tim (UK) > > According to Table 9.11a, Adjusted Patient Survival, Deceased Donor > Liver Transplants, Survival at 3 Months, 1 Year, 3 Years, and 5 Years > based on Primary Diagnosis, 3 classes of diagnosis (Cholestatic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2006 Report Share Posted October 23, 2006 I donated 60% of my liver to my Husband on October 16th. He did really good for the first couple of days, but then developed a major infection. They are still trying to find out where it came from. He is having an MRI late tonight and he may need another transplant because the antibiotics are attacking the new liver. I was discharged today and am getting better physically everyday, but I am on an emotional roller coaster... I will keep eveyone posted. > >Reply-To: >To: >Subject: Re: Reasons to die post tx >Date: Mon, 23 Oct 2006 15:05:21 -0000 > >Hi Tim; > >The Mayo Clinic has published this article on long-term outcomes >after liver transplantation for PSC. It sounds like the major cause >of death was severe infection: > >Hepatology. 1999 Nov;30(5):1121-7. > >Long-term results of patients undergoing liver transplantation for >primary sclerosing cholangitis. > >Graziadei IW, Wiesner RH, Marotta PJ, Porayko MK, Hay JE, Charlton >MR, Poterucha JJ, Rosen CB, Gores GJ, LaRusso NF, Krom RA. > >Liver Transplant Unit, Mayo Clinic, Rochester, MN 55905, USA. > >Liver transplantation is the only effective therapeutic option for >patients with end-stage liver disease due to primary sclerosing >cholangitis (PSC). In this study, we analyzed a single center's >experience with 150 consecutive PSC patients who received 174 liver >allografts. Mean follow-up was 55 months. Actuarial patient survival >at 1, 2, 5, and 10 years was 93.7%, 92.2%, 86.4%, and 69.8%, >respectively, whereas graft survival was 83.4%, 83.4%, 79.0%, and >60.5%, respectively. The main indication for retransplantation was >hepatic artery thrombosis, and the major cause of death was severe >infection. Patients with PSC had a higher incidence of acute >cellular and chronic ductopenic rejection compared to a non-PSC >control group. Chronic ductopenic rejection adversely affected >patient and graft survival. Biliary strictures, both anastomotic and >nonanastomotic, were frequent and occurred in 16.2% and 27.2% of >patients, respectively. The incidence of recurrent PSC was 20%. A >negative impact on patient survival was not seen in patients with >either postoperative biliary strictures or recurrence of PSC. Six >patients (4%) had cholangiocarcinoma and 1 patient died related to >recurrence of malignant disease. Seventy-eight percent of PSC >patients had associated inflammatory bowel disease, most commonly >chronic ulcerative colitis, which did not adversely impact patient >outcome posttransplantation. Nine patients required proctocolectomy >after liver transplantation; 5 because of intractable symptoms >related to inflammatory bowel disease and 4 due to the development >of colorectal carcinoma/high-grade dysplasia. Our data show that >liver transplantation provides excellent long-term patient and graft >survival for patients with end-stage PSC. PMID: 10534330. > >Best regards, > >Dave >(father of (21); PSC 07/03; UC 08/03) > > > > > > Does anybody know if there have been any studies on psc patients. >Could it be assumed for example that PSC people post tx might have >better outcomes assuming they don't have hep C etc? Or do we assume >that the same 1:4 approx will die post 5 years tx. > > > _________________________________________________________________ Stay in touch with old friends and meet new ones with Windows Live Spaces http://clk.atdmt.com/MSN/go/msnnkwsp0070000001msn/direct/01/?href=http://spaces.\ live.com/spacesapi.aspx?wx_action=create & wx_url=/friends.aspx & mkt=en-us Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2006 Report Share Posted October 23, 2006 I donated 60% of my liver to my Husband on October 16th. He did really good for the first couple of days, but then developed a major infection. They are still trying to find out where it came from. He is having an MRI late tonight and he may need another transplant because the antibiotics are attacking the new liver. I was discharged today and am getting better physically everyday, but I am on an emotional roller coaster... I will keep eveyone posted. > >Reply-To: >To: >Subject: Re: Reasons to die post tx >Date: Mon, 23 Oct 2006 15:05:21 -0000 > >Hi Tim; > >The Mayo Clinic has published this article on long-term outcomes >after liver transplantation for PSC. It sounds like the major cause >of death was severe infection: > >Hepatology. 1999 Nov;30(5):1121-7. > >Long-term results of patients undergoing liver transplantation for >primary sclerosing cholangitis. > >Graziadei IW, Wiesner RH, Marotta PJ, Porayko MK, Hay JE, Charlton >MR, Poterucha JJ, Rosen CB, Gores GJ, LaRusso NF, Krom RA. > >Liver Transplant Unit, Mayo Clinic, Rochester, MN 55905, USA. > >Liver transplantation is the only effective therapeutic option for >patients with end-stage liver disease due to primary sclerosing >cholangitis (PSC). In this study, we analyzed a single center's >experience with 150 consecutive PSC patients who received 174 liver >allografts. Mean follow-up was 55 months. Actuarial patient survival >at 1, 2, 5, and 10 years was 93.7%, 92.2%, 86.4%, and 69.8%, >respectively, whereas graft survival was 83.4%, 83.4%, 79.0%, and >60.5%, respectively. The main indication for retransplantation was >hepatic artery thrombosis, and the major cause of death was severe >infection. Patients with PSC had a higher incidence of acute >cellular and chronic ductopenic rejection compared to a non-PSC >control group. Chronic ductopenic rejection adversely affected >patient and graft survival. Biliary strictures, both anastomotic and >nonanastomotic, were frequent and occurred in 16.2% and 27.2% of >patients, respectively. The incidence of recurrent PSC was 20%. A >negative impact on patient survival was not seen in patients with >either postoperative biliary strictures or recurrence of PSC. Six >patients (4%) had cholangiocarcinoma and 1 patient died related to >recurrence of malignant disease. Seventy-eight percent of PSC >patients had associated inflammatory bowel disease, most commonly >chronic ulcerative colitis, which did not adversely impact patient >outcome posttransplantation. Nine patients required proctocolectomy >after liver transplantation; 5 because of intractable symptoms >related to inflammatory bowel disease and 4 due to the development >of colorectal carcinoma/high-grade dysplasia. Our data show that >liver transplantation provides excellent long-term patient and graft >survival for patients with end-stage PSC. PMID: 10534330. > >Best regards, > >Dave >(father of (21); PSC 07/03; UC 08/03) > > > > > > Does anybody know if there have been any studies on psc patients. >Could it be assumed for example that PSC people post tx might have >better outcomes assuming they don't have hep C etc? Or do we assume >that the same 1:4 approx will die post 5 years tx. > > > _________________________________________________________________ Stay in touch with old friends and meet new ones with Windows Live Spaces http://clk.atdmt.com/MSN/go/msnnkwsp0070000001msn/direct/01/?href=http://spaces.\ live.com/spacesapi.aspx?wx_action=create & wx_url=/friends.aspx & mkt=en-us Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2006 Report Share Posted October 23, 2006 I donated 60% of my liver to my Husband on October 16th. He did really good for the first couple of days, but then developed a major infection. They are still trying to find out where it came from. He is having an MRI late tonight and he may need another transplant because the antibiotics are attacking the new liver. I was discharged today and am getting better physically everyday, but I am on an emotional roller coaster... I will keep eveyone posted. > >Reply-To: >To: >Subject: Re: Reasons to die post tx >Date: Mon, 23 Oct 2006 15:05:21 -0000 > >Hi Tim; > >The Mayo Clinic has published this article on long-term outcomes >after liver transplantation for PSC. It sounds like the major cause >of death was severe infection: > >Hepatology. 1999 Nov;30(5):1121-7. > >Long-term results of patients undergoing liver transplantation for >primary sclerosing cholangitis. > >Graziadei IW, Wiesner RH, Marotta PJ, Porayko MK, Hay JE, Charlton >MR, Poterucha JJ, Rosen CB, Gores GJ, LaRusso NF, Krom RA. > >Liver Transplant Unit, Mayo Clinic, Rochester, MN 55905, USA. > >Liver transplantation is the only effective therapeutic option for >patients with end-stage liver disease due to primary sclerosing >cholangitis (PSC). In this study, we analyzed a single center's >experience with 150 consecutive PSC patients who received 174 liver >allografts. Mean follow-up was 55 months. Actuarial patient survival >at 1, 2, 5, and 10 years was 93.7%, 92.2%, 86.4%, and 69.8%, >respectively, whereas graft survival was 83.4%, 83.4%, 79.0%, and >60.5%, respectively. The main indication for retransplantation was >hepatic artery thrombosis, and the major cause of death was severe >infection. Patients with PSC had a higher incidence of acute >cellular and chronic ductopenic rejection compared to a non-PSC >control group. Chronic ductopenic rejection adversely affected >patient and graft survival. Biliary strictures, both anastomotic and >nonanastomotic, were frequent and occurred in 16.2% and 27.2% of >patients, respectively. The incidence of recurrent PSC was 20%. A >negative impact on patient survival was not seen in patients with >either postoperative biliary strictures or recurrence of PSC. Six >patients (4%) had cholangiocarcinoma and 1 patient died related to >recurrence of malignant disease. Seventy-eight percent of PSC >patients had associated inflammatory bowel disease, most commonly >chronic ulcerative colitis, which did not adversely impact patient >outcome posttransplantation. Nine patients required proctocolectomy >after liver transplantation; 5 because of intractable symptoms >related to inflammatory bowel disease and 4 due to the development >of colorectal carcinoma/high-grade dysplasia. Our data show that >liver transplantation provides excellent long-term patient and graft >survival for patients with end-stage PSC. PMID: 10534330. > >Best regards, > >Dave >(father of (21); PSC 07/03; UC 08/03) > > > > > > Does anybody know if there have been any studies on psc patients. >Could it be assumed for example that PSC people post tx might have >better outcomes assuming they don't have hep C etc? Or do we assume >that the same 1:4 approx will die post 5 years tx. > > > _________________________________________________________________ Stay in touch with old friends and meet new ones with Windows Live Spaces http://clk.atdmt.com/MSN/go/msnnkwsp0070000001msn/direct/01/?href=http://spaces.\ live.com/spacesapi.aspx?wx_action=create & wx_url=/friends.aspx & mkt=en-us Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2006 Report Share Posted October 24, 2006 , You and will continue to be in my prayers!! Hugs, (MO)PSC & UC '84, chronic pancreatitis '97, listed for tx 06/05for details see www.caringbridge.org/visit/melaniejs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2006 Report Share Posted October 24, 2006 , You and will continue to be in my prayers!! Hugs, (MO)PSC & UC '84, chronic pancreatitis '97, listed for tx 06/05for details see www.caringbridge.org/visit/melaniejs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2006 Report Share Posted October 24, 2006 , You and will continue to be in my prayers!! Hugs, (MO)PSC & UC '84, chronic pancreatitis '97, listed for tx 06/05for details see www.caringbridge.org/visit/melaniejs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2006 Report Share Posted October 24, 2006 Dear ,I'm sending prayers out to your husband and well wishes for you.I haven't been on line as much as I am in the middle of moving. I'm sorry that I missed this news of your generousdonation from you to your husband. I hope that they can find the source of his infection and that another transplant won't be needed.God bless you both. LeeI donated 60% of my liver to my Husband on October 16th. He did really good for the first couple of days, but then developed a major infection. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2006 Report Share Posted October 24, 2006 Dear ,I'm sending prayers out to your husband and well wishes for you.I haven't been on line as much as I am in the middle of moving. I'm sorry that I missed this news of your generousdonation from you to your husband. I hope that they can find the source of his infection and that another transplant won't be needed.God bless you both. LeeI donated 60% of my liver to my Husband on October 16th. He did really good for the first couple of days, but then developed a major infection. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2006 Report Share Posted October 24, 2006 Dear ,I'm sending prayers out to your husband and well wishes for you.I haven't been on line as much as I am in the middle of moving. I'm sorry that I missed this news of your generousdonation from you to your husband. I hope that they can find the source of his infection and that another transplant won't be needed.God bless you both. LeeI donated 60% of my liver to my Husband on October 16th. He did really good for the first couple of days, but then developed a major infection. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2006 Report Share Posted October 24, 2006 , All my hopes are with you. My husband and I did a living donor surgery, so I know that you're dealing with a bundle of emotions. No matter what happens, know that your gift to was one of the true miracles of this life. I was surprised by how overwhelming the emotions were at the time of the surgery and just after. Add to that the pain killers, and it was hard to cope. Whenever there are complications involved, there are issues of guilt and second guessing. (My husband/donor had the complications in our case, so that was hard for me, and now I'm not " fixed " so that's hard for him.) Know that when you decided to donate, you made the best decision that you could given the information you had at the time. Be there for him as much as you can, but remember that you have to heal, too. Take good care of yourself during this crisis so that when he recovers, you're there to help. I hope you have someone close to you to talk to about all of this. I know that having really patient and good listening friends really helped me get through it. Blessings to you both! Love, Deb in VA PSC 1998, UC 1999, Listed Ltx 2001, LDLTX 5/19/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2006 Report Share Posted October 24, 2006 , All my hopes are with you. My husband and I did a living donor surgery, so I know that you're dealing with a bundle of emotions. No matter what happens, know that your gift to was one of the true miracles of this life. I was surprised by how overwhelming the emotions were at the time of the surgery and just after. Add to that the pain killers, and it was hard to cope. Whenever there are complications involved, there are issues of guilt and second guessing. (My husband/donor had the complications in our case, so that was hard for me, and now I'm not " fixed " so that's hard for him.) Know that when you decided to donate, you made the best decision that you could given the information you had at the time. Be there for him as much as you can, but remember that you have to heal, too. Take good care of yourself during this crisis so that when he recovers, you're there to help. I hope you have someone close to you to talk to about all of this. I know that having really patient and good listening friends really helped me get through it. Blessings to you both! Love, Deb in VA PSC 1998, UC 1999, Listed Ltx 2001, LDLTX 5/19/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2006 Report Share Posted October 24, 2006 , All my hopes are with you. My husband and I did a living donor surgery, so I know that you're dealing with a bundle of emotions. No matter what happens, know that your gift to was one of the true miracles of this life. I was surprised by how overwhelming the emotions were at the time of the surgery and just after. Add to that the pain killers, and it was hard to cope. Whenever there are complications involved, there are issues of guilt and second guessing. (My husband/donor had the complications in our case, so that was hard for me, and now I'm not " fixed " so that's hard for him.) Know that when you decided to donate, you made the best decision that you could given the information you had at the time. Be there for him as much as you can, but remember that you have to heal, too. Take good care of yourself during this crisis so that when he recovers, you're there to help. I hope you have someone close to you to talk to about all of this. I know that having really patient and good listening friends really helped me get through it. Blessings to you both! Love, Deb in VA PSC 1998, UC 1999, Listed Ltx 2001, LDLTX 5/19/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2006 Report Share Posted October 24, 2006 -Hi , Good that you are feeling better and have been discharged. Unfortunate that your husband developed and infection. I hope all gets sorted soon. Try and stay positive and stay healthy as you will need each other Rita (Florida) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2006 Report Share Posted October 24, 2006 -Hi , Good that you are feeling better and have been discharged. Unfortunate that your husband developed and infection. I hope all gets sorted soon. Try and stay positive and stay healthy as you will need each other Rita (Florida) Quote Link to comment Share on other sites More sharing options...
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