Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 Hi Dianne, I was thinking while I was in the shower just now. What you said about having low temp, low pulse, except sometimes palpitations and racing and missed beats - this was all stuff I was getting, and it did start a while after I went on thyroxene, but I assumed recently it was because the thyroxene dose had been too low or I couldn't use it without the T3. I'm hoping to come off the heart stuff after I see the consultant next week, so it will be interesting to see what it's like with being on the Armour now. I wonder what some of the experienced people on this group reckon about the heartbeat thing - is it hypo, hyper, a 'speciality of thyroxene' or what???? Any ideas will be gratefully accepted:-)))) Love Chris Celia it is mysterious isn’t it.. I had low temp, low pulse, except sometimes I had palpitations & racing pulse, then what appeared to be missed beats. ( A normal abnormality I am told.. ) then started thyroxine.. I didn’t loose a lot of weight, just a bit…but my heart rate seemed normal. However I had awful joint and muscle pains. When I came on this list and found a lot of people with the same, I just stopped taking it ! My GP is sending me for blood tests in November.. we shall see what we see Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 I wonder what some of the experienced people on this group reckon about the heartbeat thing – It is terrifying isn’t it when you think your heart has stopped, & you are lying there, thinking.. ‘ what next !’ Mine has stopped that since I came of the thyroxine,,but I am just waiting to see if it will begin again.. I am having fewer cold flushes too ! Dianne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 I wonder what some of the experienced people on this group reckon about the heartbeat thing – It is terrifying isn’t it when you think your heart has stopped, & you are lying there, thinking.. ‘ what next !’ Mine has stopped that since I came of the thyroxine,,but I am just waiting to see if it will begin again.. I am having fewer cold flushes too ! Dianne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 Mine just tries to beat right out of my body!!:-)) I can hear the blood rushing through my ears, and I get sooo cold on a night, not every night but it is an awful feeling, I go from freezing and shivering to too hot, can't win... Does anyone else have a rapid heartbeat? Celia I wonder what some of the experienced people on this group reckon about the heartbeat thing – It is terrifying isn’t it when you think your heart has stopped, & you are lying there, thinking.. ‘ what next !’ Mine has stopped that since I came of the thyroxine,,but I am just waiting to see if it will begin again.. I am having fewer cold flushes too ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 Mine just tries to beat right out of my body!!:-)) I can hear the blood rushing through my ears, and I get sooo cold on a night, not every night but it is an awful feeling, I go from freezing and shivering to too hot, can't win... Does anyone else have a rapid heartbeat? Celia I wonder what some of the experienced people on this group reckon about the heartbeat thing – It is terrifying isn’t it when you think your heart has stopped, & you are lying there, thinking.. ‘ what next !’ Mine has stopped that since I came of the thyroxine,,but I am just waiting to see if it will begin again.. I am having fewer cold flushes too ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 Mine just tries to beat right out of my body!!:-)) I can hear the blood rushing through my ears, and I get sooo cold on a night, not every night but it is an awful feeling, I go from freezing and shivering to too hot.. That’s me too !! Dianne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 Mine just tries to beat right out of my body!!:-)) I can hear the blood rushing through my ears, and I get sooo cold on a night, not every night but it is an awful feeling, I go from freezing and shivering to too hot.. That’s me too !! Dianne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 Mine just tries to beat right out of my body!!:-)) I can hear the blood rushing through my ears, and I get sooo cold on a night, not every night but it is an awful feeling, I go from freezing and shivering to too hot.. That’s me too !! Dianne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 Tell me more Dianne? Celia Mine just tries to beat right out of my body!!:-)) I can hear the blood rushing through my ears, and I get sooo cold on a night, not every night but it is an awful feeling, I go from freezing and shivering to too hot.. That’s me too !! Dianne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 Tell me more Dianne? Celia Mine just tries to beat right out of my body!!:-)) I can hear the blood rushing through my ears, and I get sooo cold on a night, not every night but it is an awful feeling, I go from freezing and shivering to too hot.. That’s me too !! Dianne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 Tell me more Dianne? Celia Celia, it is weird, as I have had a lot of tired episodes, and palpitations all my life, and my mother did have a goitre as a young woman.. however , apparently her father painted her neck with iodine 7 she was OK after that.. and of course iodised salt.. which I also have. However, I was diagnosed with Coeliac disease and we thought that was the answer to my feeling ill… but when I had a strange skin condition , blisters & itching on my elbows & scalp, my Dr sent me for blood tests & my results showed hyperthyroidism.. I had about a year of Lev Thy.. and ended up hardly able to move. After joining this group ( thanks J ) I realised the pains might be from the meds.. so I then STOPPED at once & told my GP . She wants me to be tested again in November. I feel lots better now.. just the cold flushes occasionally. Dianne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 Tell me more Dianne? Celia Celia, it is weird, as I have had a lot of tired episodes, and palpitations all my life, and my mother did have a goitre as a young woman.. however , apparently her father painted her neck with iodine 7 she was OK after that.. and of course iodised salt.. which I also have. However, I was diagnosed with Coeliac disease and we thought that was the answer to my feeling ill… but when I had a strange skin condition , blisters & itching on my elbows & scalp, my Dr sent me for blood tests & my results showed hyperthyroidism.. I had about a year of Lev Thy.. and ended up hardly able to move. After joining this group ( thanks J ) I realised the pains might be from the meds.. so I then STOPPED at once & told my GP . She wants me to be tested again in November. I feel lots better now.. just the cold flushes occasionally. Dianne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 Tell me more Dianne? Celia Celia, it is weird, as I have had a lot of tired episodes, and palpitations all my life, and my mother did have a goitre as a young woman.. however , apparently her father painted her neck with iodine 7 she was OK after that.. and of course iodised salt.. which I also have. However, I was diagnosed with Coeliac disease and we thought that was the answer to my feeling ill… but when I had a strange skin condition , blisters & itching on my elbows & scalp, my Dr sent me for blood tests & my results showed hyperthyroidism.. I had about a year of Lev Thy.. and ended up hardly able to move. After joining this group ( thanks J ) I realised the pains might be from the meds.. so I then STOPPED at once & told my GP . She wants me to be tested again in November. I feel lots better now.. just the cold flushes occasionally. Dianne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2005 Report Share Posted October 6, 2005 I ended up in hospital one bank holiday Sunday afternoon, wired up all over the place and with a resuscitation trolley left next to me because the heartbeats were so all over the place. Then someone told my doctor it was an MI (heart attack) but very much later I found out it wasn't, and they did the radioactive isotope tests and told me I was at low risk of a heart attack. But it was very worrying being stuck in hospital - I can still remember the pattern on the curtains LOL! I can also remember that we needed to get a girl to stud, so I was arranging for my son to take her over because I was 'indisposed'. So yours has stopped since coming off the thyroxene - that's very interesting! I'd love to know more about this aspect. I'm so hoping that the heart consultant will tell me I'm safe to come off the heart medication when I go next week, and then I can see if I get these symptoms on Armour. It all comes down to the same thing again, doesn't it - you get various symptoms over the years and the doctors treat all the symptoms as though they are something separate, so you end up thinking you've got dozens of things wrong with you and that it's 'normal' to be like that! Let me know if you find out about the heartbeat, will you? Love Chris I wonder what some of the experienced people on this group reckon about the heartbeat thing – It is terrifying isn’t it when you think your heart has stopped, & you are lying there, thinking.. ‘ what next !’ Mine has stopped that since I came of the thyroxine,,but I am just waiting to see if it will begin again.. I am having fewer cold flushes too ! Dianne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2005 Report Share Posted October 6, 2005 the doctors treat all the symptoms as though they are something separate, so you end up thinking you've got dozens of things wrong with you and that it's 'normal' to be like that! Chris Thanks, Chris… I also found one GP tell me… if you have 3 or more things wrong, they treat it as depression !!!!! Blimey… if you have 3 thing or more wrong you WILL be depressed.. are rehy mad ? xxxx Dianne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2005 Report Share Posted October 6, 2005 Funny that - having been on anti-depressants since I was about 20, for most of the time! I've stopped taking them now and am waiting to notice the difference LOL! Love Thanks, Chris… I also found one GP tell me… if you have 3 or more things wrong, they treat it as depression !!!!! Blimey… if you have 3 thing or more wrong you WILL be depressed.. are rehy mad ? xxxx Dianne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2005 Report Share Posted October 6, 2005 Funny that - having been on anti-depressants since I was about 20, for most of the time! I've stopped taking them now and am waiting to notice the difference LOL! Love Thanks, Chris… I also found one GP tell me… if you have 3 or more things wrong, they treat it as depression !!!!! Blimey… if you have 3 thing or more wrong you WILL be depressed.. are rehy mad ? xxxx Dianne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2005 Report Share Posted October 6, 2005 Funny that - having been on anti-depressants since I was about 20, for most of the time! I've stopped taking them now and am waiting to notice the difference LOL! Love Thanks, Chris… I also found one GP tell me… if you have 3 or more things wrong, they treat it as depression !!!!! Blimey… if you have 3 thing or more wrong you WILL be depressed.. are rehy mad ? xxxx Dianne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2005 Report Share Posted October 6, 2005 I've stopped taking them now and am waiting to notice the difference LOL! Love Me too.. I do actually think I feel better without them.. at least I know my emotions are MINE no matter how screwed up ! Dianne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2005 Report Share Posted October 6, 2005 I've stopped taking them now and am waiting to notice the difference LOL! Love Me too.. I do actually think I feel better without them.. at least I know my emotions are MINE no matter how screwed up ! Dianne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2005 Report Share Posted October 6, 2005 I've stopped taking them now and am waiting to notice the difference LOL! Love Me too.. I do actually think I feel better without them.. at least I know my emotions are MINE no matter how screwed up ! Dianne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2005 Report Share Posted October 6, 2005 So, Dianne, coming off anti-depressants, would you say you can notice some sort of difference? How long have you been off them and what were you on (sorry, I can't remember). I can't notice any difference at all, but don't know if it's early days, although I normally react to medication quickly, so I'd have thought I'd have noticed by now.... Love Chris Me too.. I do actually think I feel better without them.. at least I know my emotions are MINE no matter how screwed up ! Dianne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2005 Report Share Posted October 6, 2005 So, Dianne, coming off anti-depressants, would you say you can notice some sort of difference? How long have you been off them and what were you on (sorry, I can't remember). I can't notice any difference at all, but don't know if it's early days, although I normally react to medication quickly, so I'd have thought I'd have noticed by now.... Love Chris Me too.. I do actually think I feel better without them.. at least I know my emotions are MINE no matter how screwed up ! Dianne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2005 Report Share Posted October 6, 2005 So, Dianne, coming off anti-depressants, would you say you can notice some sort of difference? How long have you been off them and what were you on (sorry, I can't remember). I can't notice any difference at all, but don't know if it's early days, although I normally react to medication quickly, so I'd have thought I'd have noticed by now.... Love Chris Me too.. I do actually think I feel better without them.. at least I know my emotions are MINE no matter how screwed up ! Dianne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2005 Report Share Posted October 6, 2005 Ah yes - Anafranil - I was on that for donkey's years. So it sounds as though for you, coming off anti depressants didn't leave you depressed either! That has got to be saying something, hasn't it. At least it's all encouraging that we're discovering where the source of our symptoms came from! Love Chris:-) So, Dianne, coming off anti-depressants, would you say you can notice some sort of difference? How long have you been off them and what were you on (sorry, I can't remember). I can't notice any difference at all, but don't know if it's early days, although I normally react to medication quickly, so I'd have thought I'd have noticed by now.... Love Chris Hi, Chris.. I was on Anafranil ( Clomipramine ) for abut 7 yrs.. have been off it for 5, though for a few months towards the end I had Amytryptaline, which actually made me feel ill.. giddy , queasy , etc. I have now been off, cold turkey, for about 5yrs as I say.. and felt fine.. except for the palpitations which I ( thanks to GP) thought were panic attacks.. and the cold flushes, then the aches which were all recent and to do with the thyroxine.. L ( AFAIK ) Hugs, Dianne Quote Link to comment Share on other sites More sharing options...
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