Re: Shortness of Breath and Fatigue

[Guest guest]

Hi J,

I wish I could encourage you that your energy levels will spring right back,

but that is not normally the case. Two things you can possible do though to

possibly help. First, have your Neph heck to see if you are anemic, which is a

possibility at your level of kidney function. If you are, Epogen can

dramatically help. Second is that even though it is very hard, exercise does

help to

boost energy levels. You really should get a clearance from your doctor

before you begin a new exercise program if you have not been exercising, but it

can

help.

As to the shortness of breath, unless you are severely anemic and therefore

short on oxygen, I do not know of what that could be from. That is not a

normal symptom on IgAN, but please do consult your doctor about it.

Do you know how long you will be on Prednisone? Hopefully that will help to

get your protein levels down.

Take care,

[Guest guest]

Hi J,

I wish I could encourage you that your energy levels will spring right back,

but that is not normally the case. Two things you can possible do though to

possibly help. First, have your Neph heck to see if you are anemic, which is a

possibility at your level of kidney function. If you are, Epogen can

dramatically help. Second is that even though it is very hard, exercise does

help to

boost energy levels. You really should get a clearance from your doctor

before you begin a new exercise program if you have not been exercising, but it

can

help.

As to the shortness of breath, unless you are severely anemic and therefore

short on oxygen, I do not know of what that could be from. That is not a

normal symptom on IgAN, but please do consult your doctor about it.

Do you know how long you will be on Prednisone? Hopefully that will help to

get your protein levels down.

Take care,

[Guest guest]

Hi J,

I wish I could encourage you that your energy levels will spring right back,

but that is not normally the case. Two things you can possible do though to

possibly help. First, have your Neph heck to see if you are anemic, which is a

possibility at your level of kidney function. If you are, Epogen can

dramatically help. Second is that even though it is very hard, exercise does

help to

boost energy levels. You really should get a clearance from your doctor

before you begin a new exercise program if you have not been exercising, but it

can

help.

As to the shortness of breath, unless you are severely anemic and therefore

short on oxygen, I do not know of what that could be from. That is not a

normal symptom on IgAN, but please do consult your doctor about it.

Do you know how long you will be on Prednisone? Hopefully that will help to

get your protein levels down.

Take care,

[Guest guest]

Hi J

Do you happen to know what your hemoglobin is? It might not have dropped

enough by now to be treated (anemia), but enough for you to feel it. Search

for anemia on www.igan.ca . There's a google search box near the bottom of

the greeting page. If you check the right radio button on the right below

the box, it will search just on www.igan.ca

In my experience, some of the blood pressure meds can make you feel short of

breath sometimes. What are you taking?

Pierre

Shortness of Breath and Fatigue

> Hi all. I have been one of the " lurkers " on this board and very much

> appreciate everything I've learned about IgAN since my diagnosis in

> May 2004.

>

> One thing I keep wondering about is if and when my energy level will

> come back or if I will continue to be short of breath. I'm currently

> on 3 bp meds, but my bp still isn't the best (140/100). My neph

> doesn't want to change me to an ACE until I finish the high doses of

> prednisone (80mg/day). As for the shortness of breath, all I have to

> do is walk across a room and I'm out of breath. My numbers at my

> last neph visit had improved with creatnine at 2.6, but my protein

> had gone up (I think it was of 4). As I'm still learning about IgAN,

> I'm not sure if this cooresponds to anything or not.

>

> Any insight on what may be going on would really be appreciated.

>

> Thanks!

>

> J

>

>

[Guest guest]

Hi J

Do you happen to know what your hemoglobin is? It might not have dropped

enough by now to be treated (anemia), but enough for you to feel it. Search

for anemia on www.igan.ca . There's a google search box near the bottom of

the greeting page. If you check the right radio button on the right below

the box, it will search just on www.igan.ca

In my experience, some of the blood pressure meds can make you feel short of

breath sometimes. What are you taking?

Pierre

Shortness of Breath and Fatigue

> Hi all. I have been one of the " lurkers " on this board and very much

> appreciate everything I've learned about IgAN since my diagnosis in

> May 2004.

>

> One thing I keep wondering about is if and when my energy level will

> come back or if I will continue to be short of breath. I'm currently

> on 3 bp meds, but my bp still isn't the best (140/100). My neph

> doesn't want to change me to an ACE until I finish the high doses of

> prednisone (80mg/day). As for the shortness of breath, all I have to

> do is walk across a room and I'm out of breath. My numbers at my

> last neph visit had improved with creatnine at 2.6, but my protein

> had gone up (I think it was of 4). As I'm still learning about IgAN,

> I'm not sure if this cooresponds to anything or not.

>

> Any insight on what may be going on would really be appreciated.

>

> Thanks!

>

> J

>

>

[Guest guest]

Hi J

Do you happen to know what your hemoglobin is? It might not have dropped

enough by now to be treated (anemia), but enough for you to feel it. Search

for anemia on www.igan.ca . There's a google search box near the bottom of

the greeting page. If you check the right radio button on the right below

the box, it will search just on www.igan.ca

In my experience, some of the blood pressure meds can make you feel short of

breath sometimes. What are you taking?

Pierre

Shortness of Breath and Fatigue

> Hi all. I have been one of the " lurkers " on this board and very much

> appreciate everything I've learned about IgAN since my diagnosis in

> May 2004.

>

> One thing I keep wondering about is if and when my energy level will

> come back or if I will continue to be short of breath. I'm currently

> on 3 bp meds, but my bp still isn't the best (140/100). My neph

> doesn't want to change me to an ACE until I finish the high doses of

> prednisone (80mg/day). As for the shortness of breath, all I have to

> do is walk across a room and I'm out of breath. My numbers at my

> last neph visit had improved with creatnine at 2.6, but my protein

> had gone up (I think it was of 4). As I'm still learning about IgAN,

> I'm not sure if this cooresponds to anything or not.

>

> Any insight on what may be going on would really be appreciated.

>

> Thanks!

>

> J

>

>

[Guest guest]

I'm not sure what my hemoglobin is. The last number I remember was

11.2, but that was right after I got out of the hospital.

As for bp meds, I'm on Norvas, Topral and Lasix.

[Guest guest]

I'm not sure what my hemoglobin is. The last number I remember was

11.2, but that was right after I got out of the hospital.

As for bp meds, I'm on Norvas, Topral and Lasix.

[Guest guest]

I'm not sure what my hemoglobin is. The last number I remember was

11.2, but that was right after I got out of the hospital.

As for bp meds, I'm on Norvas, Topral and Lasix.

[Guest guest]

Hi ,

I would consult your doctor about the shortness of breath...but I can tell

you my experience when on the 80mg daily dose of prednisone. I was fatigued

quite frequently and did have problems with shortness of breath on climbing

stairs and walking in stores to shop. I found that trying to exercise 30 min a

few times a week helped though admittedly the fatigue normally would keep me

from it. As the prednisone dose dropped many of the side effects quickly went

away. I didn't realize just how horrid the stuff was making me feel until my

dose would be lowered and I would start to feel better. On the up side my neph

said in his experience many people (though not all) who have lots of side

effects normally have a good response to the pred as far as the kidneys are

concerned. Those who show minimal or no side effects normally have no response

to the pred as far as their kidneys are concerned.

If there is one thing I have taken away from these past 10 months is a deep

respect for prednisone and what it can do to the body.

Amy

Shortness of Breath and Fatigue

Hi all. I have been one of the " lurkers " on this board and very much

appreciate everything I've learned about IgAN since my diagnosis in

May 2004.

One thing I keep wondering about is if and when my energy level will

come back or if I will continue to be short of breath. I'm currently

on 3 bp meds, but my bp still isn't the best (140/100). My neph

doesn't want to change me to an ACE until I finish the high doses of

prednisone (80mg/day). As for the shortness of breath, all I have to

do is walk across a room and I'm out of breath. My numbers at my

last neph visit had improved with creatnine at 2.6, but my protein

had gone up (I think it was of 4). As I'm still learning about IgAN,

I'm not sure if this cooresponds to anything or not.

Any insight on what may be going on would really be appreciated.

Thanks!

J

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

[Guest guest]

Hi ,

I would consult your doctor about the shortness of breath...but I can tell

you my experience when on the 80mg daily dose of prednisone. I was fatigued

quite frequently and did have problems with shortness of breath on climbing

stairs and walking in stores to shop. I found that trying to exercise 30 min a

few times a week helped though admittedly the fatigue normally would keep me

from it. As the prednisone dose dropped many of the side effects quickly went

away. I didn't realize just how horrid the stuff was making me feel until my

dose would be lowered and I would start to feel better. On the up side my neph

said in his experience many people (though not all) who have lots of side

effects normally have a good response to the pred as far as the kidneys are

concerned. Those who show minimal or no side effects normally have no response

to the pred as far as their kidneys are concerned.

If there is one thing I have taken away from these past 10 months is a deep

respect for prednisone and what it can do to the body.

Amy

Shortness of Breath and Fatigue

Hi all. I have been one of the " lurkers " on this board and very much

appreciate everything I've learned about IgAN since my diagnosis in

May 2004.

One thing I keep wondering about is if and when my energy level will

come back or if I will continue to be short of breath. I'm currently

on 3 bp meds, but my bp still isn't the best (140/100). My neph

doesn't want to change me to an ACE until I finish the high doses of

prednisone (80mg/day). As for the shortness of breath, all I have to

do is walk across a room and I'm out of breath. My numbers at my

last neph visit had improved with creatnine at 2.6, but my protein

had gone up (I think it was of 4). As I'm still learning about IgAN,

I'm not sure if this cooresponds to anything or not.

Any insight on what may be going on would really be appreciated.

Thanks!

J

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

[Guest guest]

Hi ,

I would consult your doctor about the shortness of breath...but I can tell

you my experience when on the 80mg daily dose of prednisone. I was fatigued

quite frequently and did have problems with shortness of breath on climbing

stairs and walking in stores to shop. I found that trying to exercise 30 min a

few times a week helped though admittedly the fatigue normally would keep me

from it. As the prednisone dose dropped many of the side effects quickly went

away. I didn't realize just how horrid the stuff was making me feel until my

dose would be lowered and I would start to feel better. On the up side my neph

said in his experience many people (though not all) who have lots of side

effects normally have a good response to the pred as far as the kidneys are

concerned. Those who show minimal or no side effects normally have no response

to the pred as far as their kidneys are concerned.

If there is one thing I have taken away from these past 10 months is a deep

respect for prednisone and what it can do to the body.

Amy

Shortness of Breath and Fatigue

Hi all. I have been one of the " lurkers " on this board and very much

appreciate everything I've learned about IgAN since my diagnosis in

May 2004.

One thing I keep wondering about is if and when my energy level will

come back or if I will continue to be short of breath. I'm currently

on 3 bp meds, but my bp still isn't the best (140/100). My neph

doesn't want to change me to an ACE until I finish the high doses of

prednisone (80mg/day). As for the shortness of breath, all I have to

do is walk across a room and I'm out of breath. My numbers at my

last neph visit had improved with creatnine at 2.6, but my protein

had gone up (I think it was of 4). As I'm still learning about IgAN,

I'm not sure if this cooresponds to anything or not.

Any insight on what may be going on would really be appreciated.

Thanks!

J

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

[Guest guest]

Yes that fuzzy brain feeling is very much a side effect of the prednisone. It

got so bad for me that I had to stop designing new doll outfits (I design and

sew doll clothes for a living) due to becoming frustrated when I tried to sew

them together. I had no problems with outfits I have sewn for years, anything

new would take me almost a week to cut and sew...normally it takes about 4-5

hours for a new outfit. The best way I can explain it is you have all the

information in your brain to complete the task at hand but your mind can't put

all the pieces together in the correct order. You end up with the " on the tip

of your tongue " feeling quite often and it can become very frustrating. Good

news is once you come down to lower doses around 15-20mg daily your mental

abilities come back to normal...or at least as normal as you were pre-prednisone

;o)

As long as your numbers are improving then I found dealing with the side

effects is worth it. Though when your going thru it things can become

frustrating to the point of causing depression....try to keep the fact that this

WILL come to an end in your head. (after all they can't keep you on high doses

for very long due to other more severe side effects on the body) It's the one

thing that kept me going on those high doses, reminding myself that the high

dose was temporary. That and all the support from everyone here of course.

Hang in there and feel free to ask away, no question too small, no question

too silly. I kept a journal of side effects and when I noticed them begin and

end along with my b/p journal...so it's easy for me to go back and say " Yep when

I was on dose xyz things were like this... "

Amy

Shortness of Breath and Fatigue

Hi all. I have been one of the " lurkers " on this board and very much

appreciate everything I've learned about IgAN since my diagnosis in

May 2004.

One thing I keep wondering about is if and when my energy level will

come back or if I will continue to be short of breath. I'm currently

on 3 bp meds, but my bp still isn't the best (140/100). My neph

doesn't want to change me to an ACE until I finish the high doses of

prednisone (80mg/day). As for the shortness of breath, all I have to

do is walk across a room and I'm out of breath. My numbers at my

last neph visit had improved with creatnine at 2.6, but my protein

had gone up (I think it was of 4). As I'm still learning about IgAN,

I'm not sure if this cooresponds to anything or not.

Any insight on what may be going on would really be appreciated.

Thanks!

J

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely

supported by donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

[Guest guest]

--Hi,

I am less fatigued since starting on aranesp which is similar to

procrit. it is a subcutaneous injection tat keeps my hematocrit

between 32 and 34. I am still sob , especially with exertion-but I

have aortic insufficiency. my aortic valve doesn't close all the way

due to a calcium deposit on it. probably from severe high blood

pressure I had when I was diagnosed with IGAN. I don't know how much

the anemia plays a roll or the valve does. My dr said an elevated BUN

could cause fatigue also.

thanks,

chrisitine

- In iga-nephropathy , " keyofa1 " <arjessup@b...> wrote:

> Hi all. I have been one of the " lurkers " on this board and very

much

> appreciate everything I've learned about IgAN since my diagnosis in

> May 2004.

>

> One thing I keep wondering about is if and when my energy level

will

> come back or if I will continue to be short of breath. I'm

currently

> on 3 bp meds, but my bp still isn't the best (140/100). My neph

> doesn't want to change me to an ACE until I finish the high doses

of

> prednisone (80mg/day). As for the shortness of breath, all I have

to

> do is walk across a room and I'm out of breath. My numbers at my

> last neph visit had improved with creatnine at 2.6, but my protein

> had gone up (I think it was of 4). As I'm still learning about

IgAN,

> I'm not sure if this cooresponds to anything or not.

>

> Any insight on what may be going on would really be appreciated.

>

> Thanks!

>

> J

[Guest guest]

--Hi,

I am less fatigued since starting on aranesp which is similar to

procrit. it is a subcutaneous injection tat keeps my hematocrit

between 32 and 34. I am still sob , especially with exertion-but I

have aortic insufficiency. my aortic valve doesn't close all the way

due to a calcium deposit on it. probably from severe high blood

pressure I had when I was diagnosed with IGAN. I don't know how much

the anemia plays a roll or the valve does. My dr said an elevated BUN

could cause fatigue also.

thanks,

chrisitine

- In iga-nephropathy , " keyofa1 " <arjessup@b...> wrote:

> Hi all. I have been one of the " lurkers " on this board and very

much

> appreciate everything I've learned about IgAN since my diagnosis in

> May 2004.

>

> One thing I keep wondering about is if and when my energy level

will

> come back or if I will continue to be short of breath. I'm

currently

> on 3 bp meds, but my bp still isn't the best (140/100). My neph

> doesn't want to change me to an ACE until I finish the high doses

of

> prednisone (80mg/day). As for the shortness of breath, all I have

to

> do is walk across a room and I'm out of breath. My numbers at my

> last neph visit had improved with creatnine at 2.6, but my protein

> had gone up (I think it was of 4). As I'm still learning about

IgAN,

> I'm not sure if this cooresponds to anything or not.

>

> Any insight on what may be going on would really be appreciated.

>

> Thanks!

>

> J

[Guest guest]

--Hi,

I am less fatigued since starting on aranesp which is similar to

procrit. it is a subcutaneous injection tat keeps my hematocrit

between 32 and 34. I am still sob , especially with exertion-but I

have aortic insufficiency. my aortic valve doesn't close all the way

due to a calcium deposit on it. probably from severe high blood

pressure I had when I was diagnosed with IGAN. I don't know how much

the anemia plays a roll or the valve does. My dr said an elevated BUN

could cause fatigue also.

thanks,

chrisitine

- In iga-nephropathy , " keyofa1 " <arjessup@b...> wrote:

> Hi all. I have been one of the " lurkers " on this board and very

much

> appreciate everything I've learned about IgAN since my diagnosis in

> May 2004.

>

> One thing I keep wondering about is if and when my energy level

will

> come back or if I will continue to be short of breath. I'm

currently

> on 3 bp meds, but my bp still isn't the best (140/100). My neph

> doesn't want to change me to an ACE until I finish the high doses

of

> prednisone (80mg/day). As for the shortness of breath, all I have

to

> do is walk across a room and I'm out of breath. My numbers at my

> last neph visit had improved with creatnine at 2.6, but my protein

> had gone up (I think it was of 4). As I'm still learning about

IgAN,

> I'm not sure if this cooresponds to anything or not.

>

> Any insight on what may be going on would really be appreciated.

>

> Thanks!

>

> J