Guest guest Posted October 14, 2001 Report Share Posted October 14, 2001 -I agree Lorraine ! It IS progressive ! I was quoting from myriads of doctors and websites...but they feel they have to have something to distinguish it from MS...otherwise..it's just MS that does not show up on MRI's. That would tie the two diseases together..and the government doesn't want that ! If all these disease researchers were working togther they'd find the answer just as the t-laut did when they cut their funding. Fibro and MS are the SAME disease. Krystal (I keep asking my doc, if Fibro isn't progressive , why is mine progressing ? " She just looks all nervous and changes the subject. Fortunately I see two other doc's as well. The specialist I see..a rheumatologist..says it was triggered by the vaccine..but she refuses to say any more..hmmm) Oh..one more thing..it's not progressive in everyone. Some people have moderate symptoms that never get worse..others have minor symptoms and never even know they have the disease..it basically does whatever it wants..I don't know why there are so many descrepancies..could be environmental, genetics, stress..just about anything. -- In @y..., Lorraine Bowen <nephi1uk@y...> wrote: > Hi Krystal > I was puzzled to read your Email where you say that > Fibor is not supposed to be progressive. I have had it > all my life and it has progressed year after year in > that I am more disabled than I was a year ago. Each > year something else developes and other things get > worse. So I can only say that it is progressive. I > hope this helps in your understanding of the > condition. > God bless > Lorraine UK > > --- Krystal <paradox1022@y...> wrote: > <HR> > <html><body> > <tt> > I DO have Fibro..no doubt about it..but my sysmptoms > have spread into <BR> > areas that Fibro does not go. Fibro is not supposed to > be <BR> > progressive. Mine is progresing dramatically. My skin > itches <BR> > constantly although I have no rash and it's not an > allergy. <BR> > Electrical pain and muscle spasms so bad it looks like > snakes are <BR> > crawling around under my skin. Eye jiggling..many > things...<BR> > <BR> > <BR> > <BR> > & gt; Hi! & nbsp; Welcome. & nbsp; I'm new here too. & nbsp; > What makes them think that you <BR> > have MS?<BR> > & gt; Just curious because I was told (3/99) that I > have MS. & nbsp; & nbsp; Monday <BR> > (10/8), I<BR> > & gt; was told to stop taking the MS medication. & nbsp; > The doctor that I am <BR> > seeing now<BR> > & gt; is 99.9% sure that I don't have it! & nbsp; & nbsp; > I've got the nerve damage <BR> > (which<BR> > & gt; causes numbness, which is what they thought was > an MS attack), <BR> > arthritis (in<BR> > & gt; the spine and god only knows where else), TMJ > (from an auto <BR> > accident), who<BR> > & gt; knows...maybe even fibro (if I have it, they > think it's from the <BR> > auto<BR> > & gt; accident too). & nbsp; & nbsp; What are they saying > is MS related?<BR> > & gt; <BR> > & gt; Rhonda<BR> > & gt; <BR> > & gt; <BR> > & gt; <BR> > & gt; Hi everyone !<BR> > & gt; <BR> > & gt; <BR> > & gt; & gt; I just joined the membershp of this group. I > became ill after a<BR> > & gt; & gt; Ruebella vaccination in 90' It took 9 years > to get & nbsp; diagnosed. <BR> > Severe<BR> > & gt; & gt; Fibro, nerve damage, arthritis, irritable > bowels syndome, temporal<BR> > & gt; & gt; madibualar jaw disorder, myofscial pain > syndome. I went thorugh <BR> > hell<BR> > & gt; & gt; for those 9 years...was diagnosed with > depression and Munchausen<BR> > & gt; & gt; syndome..even though the shrink I was going > to said it was <BR> > physical<BR> > & gt; & gt; and not mental. But as I had no > insurance..he checked me into the<BR> > & gt; & gt; psych ward for a week. He knew that the > hospital HAD to run <BR> > physical<BR> > & gt; & gt; tests. Through his efforts and a doctor I > finally found who had <BR> > done<BR> > & gt; & gt; her internship with a rheumatologist who's > specialty was Fibro..I<BR> > & gt; & gt; finally got diagnosed. I've had this messed > up disease for 11 <BR> > years<BR> > & gt; & gt; now. BUT..it's getting worse and affecting > me in ways they have <BR> > not<BR> > & gt; & gt; seen. So, I may be going to the Mayo clinic > here soon. I'm not in <BR> > the<BR> > & gt; & gt; mood ! LOL I don't need another battery of > painful testing. They <BR> > are<BR> > & gt; & gt; thinking now that I have MS as well as > Fibro. sigh..all from a<BR> > & gt; & gt; freaking shot ! I was breast feding when I > had that shot..they <BR> > told<BR> > & gt; & gt; me it would not go through breast milk..they > lied. My daughter <BR> > also<BR> > & gt; & gt; has this disease. (syndrome) She is now 11. > I have a lot of info<BR> > & gt; & gt; that you all might not be aware of....but > for today I must keep <BR> > this<BR> > & gt; & gt; short..am pretty sick. Peace..Krystal<BR> > & gt; & gt;<BR> > <BR> > </tt> > > <br> > > <!-- |**|begin egp html banner|**| --> > > <table border=0 cellspacing=0 cellpadding=2> > <tr bgcolor=#FFFFCC> > <td align=center><font size= " -1 " > color=#003399><b> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2001 Report Share Posted October 15, 2001 - No Rhonda, they did not inject me with anything. I suppose they will do that if I go to the Mayo. fun fun. They just stuck me in the tube and told me not to move. That was tough...was in a lot of pain that day. Krystal -- In @y..., " DigitalAngel " <digitalangel@a...> wrote: > How did the diabetes just go away? When they did your MRI, did they inject > you with anything? They would have injected it into your arm. MS can be > active and may not produce any symptoms, but there *will* be a lesion either > on your brain or spinal cord. > > Rhonda > > Re: Hi everyone !/Krystal > > > > -Yup ! I have them all ! They were chalking it up to the > > diabetes...until the diabetes went away...now MS is all they can > > think of. Krystal and thanks ! I also should mention that I have a 3 > > inch ganglean cyst on my spine that has grown around domething they > > are not sure of..they think this could be exacerbating the problems > > as well. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2001 Report Share Posted October 15, 2001 They checked me for all of those. Nada. > What about Lupus? Lymes disease? Encephalomyelitis (inflammation of the > brain and spinal cord)? These have similar neurological symptoms as MS. > > Rhonda > > > Re: Hi everyone !/Krystal > > > > Yes, they did an MRI two years ago and it came back negative. The > > other two doc's are not convinced..they say many people with MS don't > > show up positive for years. Itching with a rash is supposed to be > > Fibro or Chrone's..itching without a rash is supposed to be MS. The > > eye problems..MS. The inability to grab and or release objects > > periodically is supposed to be MS..there are several...I'M SO > > CONFUSED !!!!!!!! LOL > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2001 Report Share Posted October 15, 2001 Here's one you'll love..when I transferred clinics when I moved, the last doc I had seen had written that I was a difficult patient and thought I had munchausen's syndrome. When the new doc read that, he would order tests, draw blood..and it was only after he was replaced that I found out he never actually sent any of the tests in ! That's one of the reasons they didn't catch my blood sugar until it was 481 ! The new doc caught it and the Fibro and sent me to a specialist who verified and also cited nerve damage and irritable bowel (from another specialist) and they threw in myofascial pain syndrome to boot. Oh yes..and the blood tests showed arthritis as well. The doc that was taking my blood bogusly almost caused me to commit suicide. I was in so much pain, could hardly walk...he told me I was depressed and needed to get a job ! I actually slit my wrist that day...not deep enough to kill myself, but deep enough to leave a scar to remind me never to go to another doctor again ! I didn't for almost a year, until my family forced me to go. I was unable to eat and was in constant pain. My oldest daughter (adopted) watched a show on aids and how marijuana helps aids patients to be able to eat. She got me some. I was appalled ! Chewed her right out ! The kids were crying and thinking I was going to die so after that I made up my mind I was going to eat no matter how bad the pain was. So I ate...and had one of the worst pain episodes...turned white, beading cold sweat, praying to pass out...My oldest begged me to smoke some..at that point I had little to lose in trying it. (keep in mind I am allergic to all pain killers) I did..and within a minute my pain was gone! I ate and have been eating ever since. It's the only thing that helps manage my pain. Although it's illegal, I'd be dead without it by now. The new doc that replaced the bad one...I told her what I did..I said " it helps " ..all she said was " it will " . She was too scared to say anything more. Krystal > Rhonda, > Yes I very much agree with you...especially with Lyme disease. I had a > friend whom was diagnosed with MS and come to find out all along she had Lyme > Disease. Here are a few links for ya'll to check out and read. > I went to my Rheumy and DEMANDED!!! a Lyme test...she wouldn't give it to > me...and I told her it was my blood and I will choose what tests I will give > for it...and she finally gave it to me. I think it is kinda ironic that > doctors refuse to give certain kinds of tests....just a lil thought for an > evening.Hope ya'll are feeling decent..if not good. God Bless > <A HREF= " http://www.igenex.com/ " >IGeneX, Inc. > </A><A HREF= " http://www.immed.org/ " >The Institute for Molecular Medicine</A> > > Allicia > > > Quote Link to comment Share on other sites More sharing options...
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