Guest guest Posted October 24, 2006 Report Share Posted October 24, 2006 - just another one of the mysteries of PSC. I don't believe it is effective for PBC, either, but DOES help with AIH. Go figger. Arne 55 - UC 1977, PSC 2000 Alive and (mostly) well in Minnesota ________________________________ From: [mailto: ] On Behalf Of prichsy If PSC is auto-immune, why would steroids not control/help in cure ? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2006 Report Share Posted October 24, 2006 - just another one of the mysteries of PSC. I don't believe it is effective for PBC, either, but DOES help with AIH. Go figger. Arne 55 - UC 1977, PSC 2000 Alive and (mostly) well in Minnesota ________________________________ From: [mailto: ] On Behalf Of prichsy If PSC is auto-immune, why would steroids not control/help in cure ? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2006 Report Share Posted October 24, 2006 Thats the 64,000 dollar question. It seems to be auto-immune in some ways - perhaps that triggers it off and then some other process continues it eg infection or something. I've had 2 courses of setroids without any effect on the psc but nasty side effect. Barbara (UK) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 That is interesting. Robbie had a bike accident when he was about 20 and had to have screws in his leg.... sen wrote: .. When I was 20 I had surgery on my > hip because of a car accident where I broke my hip and had nine > titanium screw inserted. I always thought it was interesting that my > liver enzymes were elevated around the screws being inserted. I always > wonder could my body be having a autoimmune response to the titanium in > my hip which effected my Ig4 levels, which caused PSC. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 That is interesting. Robbie had a bike accident when he was about 20 and had to have screws in his leg.... sen wrote: .. When I was 20 I had surgery on my > hip because of a car accident where I broke my hip and had nine > titanium screw inserted. I always thought it was interesting that my > liver enzymes were elevated around the screws being inserted. I always > wonder could my body be having a autoimmune response to the titanium in > my hip which effected my Ig4 levels, which caused PSC. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2006 Report Share Posted October 26, 2006 I have screws in my knee to hold my ligaments together from playing sports when I was in my early 20’s….. Dave From: [mailto: ] On Behalf Of prichsy Sent: Wednesday, October 25, 2006 10:21 PM To: Subject: Re: steroid That is interesting. Robbie had a bike accident when he was about 20 and had to have screws in his leg.... sen wrote: .. When I was 20 I had surgery on my > hip because of a car accident where I broke my hip and had nine > titanium screw inserted. I always thought it was interesting that my > liver enzymes were elevated around the screws being inserted. I always > wonder could my body be having a autoimmune response to the titanium in > my hip which effected my Ig4 levels, which caused PSC. This email is intended only for the person or entity to which it is addressed and may contain confidential, proprietary and/or privileged material. Any review, distribution, reliance on, or other use of this information by persons or entities other than the intended recipient is prohibited. If you receive this message in error, please immediately notify the sender and delete it and all copies of it from your system. Thank You Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2006 Report Share Posted October 26, 2006 I have screws in my knee to hold my ligaments together from playing sports when I was in my early 20’s….. Dave From: [mailto: ] On Behalf Of prichsy Sent: Wednesday, October 25, 2006 10:21 PM To: Subject: Re: steroid That is interesting. Robbie had a bike accident when he was about 20 and had to have screws in his leg.... sen wrote: .. When I was 20 I had surgery on my > hip because of a car accident where I broke my hip and had nine > titanium screw inserted. I always thought it was interesting that my > liver enzymes were elevated around the screws being inserted. I always > wonder could my body be having a autoimmune response to the titanium in > my hip which effected my Ig4 levels, which caused PSC. This email is intended only for the person or entity to which it is addressed and may contain confidential, proprietary and/or privileged material. Any review, distribution, reliance on, or other use of this information by persons or entities other than the intended recipient is prohibited. If you receive this message in error, please immediately notify the sender and delete it and all copies of it from your system. Thank You Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2006 Report Share Posted October 26, 2006 I was diagnosed with PSC about a year and a half after breaking my hip and having 3 screws put in.......Ah the mystery. Omaha/Tarheel Tim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2006 Report Share Posted October 26, 2006 what kind of side effects did you have from the steroids? /New York > > Thats the 64,000 dollar question. It seems to be auto-immune in some ways - > perhaps that triggers it off and then some other process continues it eg > infection or something. I've had 2 courses of setroids without any effect on the > psc but nasty side effect. > Barbara (UK) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2006 Report Share Posted October 27, 2006 i never had this procedure done yet.... dave ________________________________ From: on behalf of kmart11561 Sent: Thu 10/26/2006 8:18 PM To: Subject: Re: steroid Dave do you know if you have a high IgG4 level? > . When I was 20 I had surgery on my > > hip because of a car accident where I broke my hip and had nine > > titanium screw inserted. I always thought it was interesting that my > > liver enzymes were elevated around the screws being inserted. I > always > > wonder could my body be having a autoimmune response to the titanium > in > > my hip which effected my Ig4 levels, which caused PSC. > > > > > This email is intended only for the person or entity to which it is addressed and may contain confidential, proprietary and/or privileged material. Any review, distribution, reliance on, or other use of this information by persons or entities other than the intended recipient is prohibited. If you receive this message in error, please immediately notify the sender and delete it and all copies of it from your system. > > Thank You. > This email is intended only for the person or entity to which it is addressed and may contain confidential, proprietary and/or privileged material. Any review, distribution, reliance on, or other use of this information by persons or entities other than the intended recipient is prohibited. If you receive this message in error, please immediately notify the sender and delete it and all copies of it from your system. Thank You. Quote Link to comment Share on other sites More sharing options...
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