Guest guest Posted August 2, 2006 Report Share Posted August 2, 2006 An enlarged spleen can be the result of portal hypertension which can also result in varicies. Although I haven't had a variceal bleed, others in the group have. Below are excerpts from their posts. Tim R athan has written: 64680 Sep 24,2004 when I had my bleed. I got dizzy, nauseated and finally vomited. Then I stood up and passed out. I ended up in the hospital for four or five days and had to get four units of blood! 76548 Sep 12,2005 If your having black tarry stools you should go to the Emergency Room ASAP. I had this a few years ago and it turned out I was having a major GI bleed (from varices in my esophagus) which could have been fatal if I hadn't gotten to the ER in time. Others in this group have had similar experiences. 76553 Sep 12, 2005 I would add that if you start feeling dizzy when you stand up, or if you feel sick, especially when you are standing it would be a good idea to go to the ER. I was feeling sick for about 12 hours (chills, dizziness, nausea etc.) before I started vomiting blood, and actually ended up passing out once when I stood up too quickly. I believe others here have had serious bleeds without ever vomiting at all, so don't use that as your only criterion for going to the ER. Hopefully there's someone with you too... I know that I was too weak to make it to the phone for a while (about the time I passed out!). If not at least be sure you have the phone within easy reach... 78218 Wed Oct 26, 2005 someone who's been vomiting blood shouldn't try to drive themselves to the ER (or anywhere else). If there isn't someone else to drive, call an ambulance. By the time I got to the hospital I was on the verge of passing out due to blood loss (actually I did pass out just before we left the house, but I revived after falling over... luckily onto the bed). If you aren't in an ambulance, it is possible to call ahead to the ER and let them know you're coming, and what's wrong. That can help expedite things too. Anyhow, I guess that having gone through this experience, and having had my life saved by going to the ER (I probably wouldn't have made it 'till morning if I'd decided to wait and call my doctor), I tend to be very emphatic about it. There are other people here who've had even closer calls that I did.... A GI bleed isn't something to mess around with! Aubrey Goldstein has written: 11476 May 10, 2000 the last day of work I had a full backpack of binders to return and another to take home. I'm sure now that this effort caused my final variceal bleed. Luckily for me, my clotting ability was still good as I must have stopped bleeding at some point. I was more tired than usual after coming home that day. The next morning the room spun when I tried to get out of bed. Having had this happen two years earlier after a bleed from an ulcer, I knew what was going on. I slowly rolled out of bed and after staying on all fours for a bit, sat up and waited for the room to stop spinning. After sitting on the bed side for a bit I got dressed and we called a cab to go to the hospital. ( I know it sounds a bit crazy.) But I was feeling better by that point. After being examined, I went into shock or perhaps had a vasovagal episode. They had to resuscitate me and at the same time scope me and band my varices. I was aware enough to know what was going on but I couldn't respond much. Caroline, my partner, had to hold my hands to prevent me from trying to pull the scope out! 8451 Jan 31, 2000 There is nothing you can do to stop the varices from happening. However, you can do a few things to make sure the ones you have don't bleed. Chew your food a lot so that it's soft and small in size going down; no hard things that might irritate your varices. No heavy lifting of anything, including you. Less than 10 lbs, preferably less than 5 lbs. Be careful getting up. Do it slowly especially from lying position. Don't hold your breath when geting up, breath out continuously. This prevents increased pressure in your abdomen and chest, reducing the pressure in your veins. By the same token make sure you eat a lot of fiber so that your bowel movements are soft and so you don't have to bear down to pass them. Again doing a valsalva manouveur (bearing down to stimulate your bowel) greatly increases the pressure in your veins, increasing the risk of bleeding. Don't drink alcohol, take ASA, or NSAIDs, gingko biloba, vitamin E. All these things reduce your ability to clot which increases the risk of bleeding and of bleeding to death from your varices. I almost bleed to death from my varices prior to my tx. I would suggest you talk to your MD as I think you should be listed. Enzymes levels are not as important as signs of disease. And varices and variceal bleeding are very important signs. Bleeding from my varices moved me to number one on the O list. 8556 Feb 2, 2000 3. Hypertension may increase the risk of variceal bleeding. Others have mentioned that beta blockers (inderal) may lower the risk of bleeding by reducing blood pressure. Some people can take these drugs but others become even more fatigued or it drops their BP too low for them to function. 4. The only way to tell how bad your varices are or if you have them is to have an endoscopy. MRIs and CT scans can show varices but they can also miss them. Endoscopy can see them well and treat them with banding or sclerotherapy if required. 5. Taking calcium and vitamin D may help but because there is a problem with metabolism in patients with PSC and UC these supplements may not help or may just prevent further loss. The other problem is that calcium tablets are fairly large and may irritate varices causing them to bleed! 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Guest guest Posted August 2, 2006 Report Share Posted August 2, 2006 An enlarged spleen can be the result of portal hypertension which can also result in varicies. Although I haven't had a variceal bleed, others in the group have. Below are excerpts from their posts. Tim R athan has written: 64680 Sep 24,2004 when I had my bleed. I got dizzy, nauseated and finally vomited. Then I stood up and passed out. I ended up in the hospital for four or five days and had to get four units of blood! 76548 Sep 12,2005 If your having black tarry stools you should go to the Emergency Room ASAP. I had this a few years ago and it turned out I was having a major GI bleed (from varices in my esophagus) which could have been fatal if I hadn't gotten to the ER in time. Others in this group have had similar experiences. 76553 Sep 12, 2005 I would add that if you start feeling dizzy when you stand up, or if you feel sick, especially when you are standing it would be a good idea to go to the ER. I was feeling sick for about 12 hours (chills, dizziness, nausea etc.) before I started vomiting blood, and actually ended up passing out once when I stood up too quickly. I believe others here have had serious bleeds without ever vomiting at all, so don't use that as your only criterion for going to the ER. Hopefully there's someone with you too... I know that I was too weak to make it to the phone for a while (about the time I passed out!). If not at least be sure you have the phone within easy reach... 78218 Wed Oct 26, 2005 someone who's been vomiting blood shouldn't try to drive themselves to the ER (or anywhere else). If there isn't someone else to drive, call an ambulance. By the time I got to the hospital I was on the verge of passing out due to blood loss (actually I did pass out just before we left the house, but I revived after falling over... luckily onto the bed). If you aren't in an ambulance, it is possible to call ahead to the ER and let them know you're coming, and what's wrong. That can help expedite things too. Anyhow, I guess that having gone through this experience, and having had my life saved by going to the ER (I probably wouldn't have made it 'till morning if I'd decided to wait and call my doctor), I tend to be very emphatic about it. There are other people here who've had even closer calls that I did.... A GI bleed isn't something to mess around with! Aubrey Goldstein has written: 11476 May 10, 2000 the last day of work I had a full backpack of binders to return and another to take home. I'm sure now that this effort caused my final variceal bleed. Luckily for me, my clotting ability was still good as I must have stopped bleeding at some point. I was more tired than usual after coming home that day. The next morning the room spun when I tried to get out of bed. Having had this happen two years earlier after a bleed from an ulcer, I knew what was going on. I slowly rolled out of bed and after staying on all fours for a bit, sat up and waited for the room to stop spinning. After sitting on the bed side for a bit I got dressed and we called a cab to go to the hospital. ( I know it sounds a bit crazy.) But I was feeling better by that point. After being examined, I went into shock or perhaps had a vasovagal episode. They had to resuscitate me and at the same time scope me and band my varices. I was aware enough to know what was going on but I couldn't respond much. Caroline, my partner, had to hold my hands to prevent me from trying to pull the scope out! 8451 Jan 31, 2000 There is nothing you can do to stop the varices from happening. However, you can do a few things to make sure the ones you have don't bleed. Chew your food a lot so that it's soft and small in size going down; no hard things that might irritate your varices. No heavy lifting of anything, including you. Less than 10 lbs, preferably less than 5 lbs. Be careful getting up. Do it slowly especially from lying position. Don't hold your breath when geting up, breath out continuously. This prevents increased pressure in your abdomen and chest, reducing the pressure in your veins. By the same token make sure you eat a lot of fiber so that your bowel movements are soft and so you don't have to bear down to pass them. Again doing a valsalva manouveur (bearing down to stimulate your bowel) greatly increases the pressure in your veins, increasing the risk of bleeding. Don't drink alcohol, take ASA, or NSAIDs, gingko biloba, vitamin E. All these things reduce your ability to clot which increases the risk of bleeding and of bleeding to death from your varices. I almost bleed to death from my varices prior to my tx. I would suggest you talk to your MD as I think you should be listed. Enzymes levels are not as important as signs of disease. And varices and variceal bleeding are very important signs. Bleeding from my varices moved me to number one on the O list. 8556 Feb 2, 2000 3. Hypertension may increase the risk of variceal bleeding. Others have mentioned that beta blockers (inderal) may lower the risk of bleeding by reducing blood pressure. Some people can take these drugs but others become even more fatigued or it drops their BP too low for them to function. 4. The only way to tell how bad your varices are or if you have them is to have an endoscopy. MRIs and CT scans can show varices but they can also miss them. Endoscopy can see them well and treat them with banding or sclerotherapy if required. 5. Taking calcium and vitamin D may help but because there is a problem with metabolism in patients with PSC and UC these supplements may not help or may just prevent further loss. The other problem is that calcium tablets are fairly large and may irritate varices causing them to bleed! 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Guest guest Posted August 2, 2006 Report Share Posted August 2, 2006 An enlarged spleen can be the result of portal hypertension which can also result in varicies. Although I haven't had a variceal bleed, others in the group have. Below are excerpts from their posts. Tim R athan has written: 64680 Sep 24,2004 when I had my bleed. I got dizzy, nauseated and finally vomited. Then I stood up and passed out. I ended up in the hospital for four or five days and had to get four units of blood! 76548 Sep 12,2005 If your having black tarry stools you should go to the Emergency Room ASAP. I had this a few years ago and it turned out I was having a major GI bleed (from varices in my esophagus) which could have been fatal if I hadn't gotten to the ER in time. Others in this group have had similar experiences. 76553 Sep 12, 2005 I would add that if you start feeling dizzy when you stand up, or if you feel sick, especially when you are standing it would be a good idea to go to the ER. I was feeling sick for about 12 hours (chills, dizziness, nausea etc.) before I started vomiting blood, and actually ended up passing out once when I stood up too quickly. I believe others here have had serious bleeds without ever vomiting at all, so don't use that as your only criterion for going to the ER. Hopefully there's someone with you too... I know that I was too weak to make it to the phone for a while (about the time I passed out!). If not at least be sure you have the phone within easy reach... 78218 Wed Oct 26, 2005 someone who's been vomiting blood shouldn't try to drive themselves to the ER (or anywhere else). If there isn't someone else to drive, call an ambulance. By the time I got to the hospital I was on the verge of passing out due to blood loss (actually I did pass out just before we left the house, but I revived after falling over... luckily onto the bed). If you aren't in an ambulance, it is possible to call ahead to the ER and let them know you're coming, and what's wrong. That can help expedite things too. Anyhow, I guess that having gone through this experience, and having had my life saved by going to the ER (I probably wouldn't have made it 'till morning if I'd decided to wait and call my doctor), I tend to be very emphatic about it. There are other people here who've had even closer calls that I did.... A GI bleed isn't something to mess around with! Aubrey Goldstein has written: 11476 May 10, 2000 the last day of work I had a full backpack of binders to return and another to take home. I'm sure now that this effort caused my final variceal bleed. Luckily for me, my clotting ability was still good as I must have stopped bleeding at some point. I was more tired than usual after coming home that day. The next morning the room spun when I tried to get out of bed. Having had this happen two years earlier after a bleed from an ulcer, I knew what was going on. I slowly rolled out of bed and after staying on all fours for a bit, sat up and waited for the room to stop spinning. After sitting on the bed side for a bit I got dressed and we called a cab to go to the hospital. ( I know it sounds a bit crazy.) But I was feeling better by that point. After being examined, I went into shock or perhaps had a vasovagal episode. They had to resuscitate me and at the same time scope me and band my varices. I was aware enough to know what was going on but I couldn't respond much. Caroline, my partner, had to hold my hands to prevent me from trying to pull the scope out! 8451 Jan 31, 2000 There is nothing you can do to stop the varices from happening. However, you can do a few things to make sure the ones you have don't bleed. Chew your food a lot so that it's soft and small in size going down; no hard things that might irritate your varices. No heavy lifting of anything, including you. Less than 10 lbs, preferably less than 5 lbs. Be careful getting up. Do it slowly especially from lying position. Don't hold your breath when geting up, breath out continuously. This prevents increased pressure in your abdomen and chest, reducing the pressure in your veins. By the same token make sure you eat a lot of fiber so that your bowel movements are soft and so you don't have to bear down to pass them. Again doing a valsalva manouveur (bearing down to stimulate your bowel) greatly increases the pressure in your veins, increasing the risk of bleeding. Don't drink alcohol, take ASA, or NSAIDs, gingko biloba, vitamin E. All these things reduce your ability to clot which increases the risk of bleeding and of bleeding to death from your varices. I almost bleed to death from my varices prior to my tx. I would suggest you talk to your MD as I think you should be listed. Enzymes levels are not as important as signs of disease. And varices and variceal bleeding are very important signs. Bleeding from my varices moved me to number one on the O list. 8556 Feb 2, 2000 3. Hypertension may increase the risk of variceal bleeding. Others have mentioned that beta blockers (inderal) may lower the risk of bleeding by reducing blood pressure. Some people can take these drugs but others become even more fatigued or it drops their BP too low for them to function. 4. The only way to tell how bad your varices are or if you have them is to have an endoscopy. MRIs and CT scans can show varices but they can also miss them. Endoscopy can see them well and treat them with banding or sclerotherapy if required. 5. Taking calcium and vitamin D may help but because there is a problem with metabolism in patients with PSC and UC these supplements may not help or may just prevent further loss. The other problem is that calcium tablets are fairly large and may irritate varices causing them to bleed! 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Guest guest Posted August 2, 2006 Report Share Posted August 2, 2006 Tim already posted what I said a while back in response to a similar question. As regards your specific question, the only " early warning " sign I had was that I started feeling sick about twelve hours before I actually started vomiting blood etc. The only thing that made this sickness different from any other is that while I'd feel quite decent while I was lying down, if I stood up I'd feel quite sick. At the end I also started feeling lightheaded and dizzy if I stood up. If your husband hasn't had any upper endoscopies lately, it would probably be a good idea for him to get one every once in a while to determine if there are actually any varices, and to band them off if necessary. My bleed was about six years ago, and since then they've been able to manage the varices quite effectively with banding. This is a definite case where an ounce of prevention is worth a pound of cure. athan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2006 Report Share Posted August 2, 2006 Tim already posted what I said a while back in response to a similar question. As regards your specific question, the only " early warning " sign I had was that I started feeling sick about twelve hours before I actually started vomiting blood etc. The only thing that made this sickness different from any other is that while I'd feel quite decent while I was lying down, if I stood up I'd feel quite sick. At the end I also started feeling lightheaded and dizzy if I stood up. If your husband hasn't had any upper endoscopies lately, it would probably be a good idea for him to get one every once in a while to determine if there are actually any varices, and to band them off if necessary. My bleed was about six years ago, and since then they've been able to manage the varices quite effectively with banding. This is a definite case where an ounce of prevention is worth a pound of cure. athan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2006 Report Share Posted August 2, 2006 Tim already posted what I said a while back in response to a similar question. As regards your specific question, the only " early warning " sign I had was that I started feeling sick about twelve hours before I actually started vomiting blood etc. The only thing that made this sickness different from any other is that while I'd feel quite decent while I was lying down, if I stood up I'd feel quite sick. At the end I also started feeling lightheaded and dizzy if I stood up. If your husband hasn't had any upper endoscopies lately, it would probably be a good idea for him to get one every once in a while to determine if there are actually any varices, and to band them off if necessary. My bleed was about six years ago, and since then they've been able to manage the varices quite effectively with banding. This is a definite case where an ounce of prevention is worth a pound of cure. athan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2006 Report Share Posted August 2, 2006 Thanks so much, Tim - my search through past posts was a lot less fruitful than yours. Nina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2006 Report Share Posted August 2, 2006 Thanks so much, Tim - my search through past posts was a lot less fruitful than yours. Nina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2006 Report Share Posted August 2, 2006 Thanks so much, Tim - my search through past posts was a lot less fruitful than yours. Nina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2006 Report Share Posted August 2, 2006 I had a problem with my spleen way back, and it was enlarged and caused bleeding, but due to blocked portal vein or splenic vein, can't remember which one...in my case they removed the spleen - but after I did bleed - one time I threw up blood and the other times, just felt incredibly weak...each time I needed immediate attention at the hospital, for blood transfusions...however, after the spleen was removed, no more problems whatsoever...but I did need to build my strength before the surgery, which I did with alternative doctors since reg doc said they couldn't help... hope this helps, but I'm not sure it's the same situation as you're asking about barbara Quote Link to comment Share on other sites More sharing options...
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