Re: Can I still play in your back yard? Please?

[Guest guest]

I think you'll find that there are alot more people than you might

think on this list who are not officially diagnosed. There are lots

of different ways to end up in that situation. Personally, I'm a

believer in intervention before the villi are gone. We tested thru

enterolab and that was enough for me. I certainly see the value of

an official diagnosis, but since that can be elusive (as you have

experienced), I don't see the value of continuing to be sick when

being GF clearly improves your general state of being.

Sue in Denver

>

> Well, I'm back from my SBFT. No scalloping found.

>

> Health-wise, this is good news. But diagnosis-wise, I'm

> in the same limbo as before. So many signs point to celiac

> (transglutanimase, skin rash, mouth ulcers, suffering, GF

> eating works miracles), but the biopsy and sbft are negative

> for celiac.

>

> I have a friend who says " Doctors. If they can't find it,

> you ain't got it. " If they can't find celiac, I must not

> have it.

>

> On the other hand, I'm mentally in tune with Dr. Fine's

> work - " You can only use the tests to rule celiac IN, not

> rule celiac OUT. "

>

> Maybe I've just gotten really lucky and got sick before

> visible damage was done.

>

> I don't know. I'm very confused. And saddened.

>

> I'm not thrilled with GF eating, but I'm thrilled to not be

> spending 1/2 my life in the loo, and the other half looking

> for the loo. I'm glad to be in much less pain.

>

> Are " non-celiac gluten-intolerants " allowed to play in this

> back yard?

>

[Guest guest]

Do you have the gene? I have similar test results to yours and since I have the DQ2 gene and gluten-intolerance, my doctor diagnosed me with celiac.

--Trudy San , CA "People who believe in absurdities will eventually commit atrocities." ~Voltaire

-------------- Original message -------------- Well, I'm back from my SBFT. No scalloping found.Health-wise, this is good news. But diagnosis-wise, I'min the same limbo as before. So many signs point to celiac (transglutanimase, skin rash, mouth ulcers, suffering, GFeating works miracles), but the biopsy and sbft are negativefor celiac. I have a friend who says "Doctors. If they can't find it,you ain't got it." If they can't find celiac, I must nothave it.On the other hand, I'm mentally in tune with Dr. Fine'swork - "You can only use the tests to rule celiac IN, notrule celiac OUT."Maybe I've just gotten really lucky and got sick beforevisible damage was done.I don't know. I'm very confused. And saddened. I'm not thrilled with GF eating, but I'm thrilled to not bespending 1/2 my life in the loo, and the other half lookingfor the loo. I'm glad to be in much less pain. Are "non-celiac gluten-intolerants" allowed to play in this back yard?

[Guest guest]

Do you have the gene? I have similar test results to yours and since I have the DQ2 gene and gluten-intolerance, my doctor diagnosed me with celiac.

--Trudy San , CA "People who believe in absurdities will eventually commit atrocities." ~Voltaire

-------------- Original message -------------- Well, I'm back from my SBFT. No scalloping found.Health-wise, this is good news. But diagnosis-wise, I'min the same limbo as before. So many signs point to celiac (transglutanimase, skin rash, mouth ulcers, suffering, GFeating works miracles), but the biopsy and sbft are negativefor celiac. I have a friend who says "Doctors. If they can't find it,you ain't got it." If they can't find celiac, I must nothave it.On the other hand, I'm mentally in tune with Dr. Fine'swork - "You can only use the tests to rule celiac IN, notrule celiac OUT."Maybe I've just gotten really lucky and got sick beforevisible damage was done.I don't know. I'm very confused. And saddened. I'm not thrilled with GF eating, but I'm thrilled to not bespending 1/2 my life in the loo, and the other half lookingfor the loo. I'm glad to be in much less pain. Are "non-celiac gluten-intolerants" allowed to play in this back yard?

[Guest guest]

Ours is undiagnosed, so we might be in the same boat.

Since we keep a gluten free home I feel like this is my ultimate

support group for this issue.

>

> Well, I'm back from my SBFT. No scalloping found.

>

> Health-wise, this is good news. But diagnosis-wise, I'm

> in the same limbo as before. So many signs point to celiac

> (transglutanimase, skin rash, mouth ulcers, suffering, GF

> eating works miracles), but the biopsy and sbft are negative

> for celiac.

>

> I have a friend who says " Doctors. If they can't find it,

> you ain't got it. " If they can't find celiac, I must not

> have it.

>

> On the other hand, I'm mentally in tune with Dr. Fine's

> work - " You can only use the tests to rule celiac IN, not

> rule celiac OUT. "

>

> Maybe I've just gotten really lucky and got sick before

> visible damage was done.

>

> I don't know. I'm very confused. And saddened.

>

> I'm not thrilled with GF eating, but I'm thrilled to not be

> spending 1/2 my life in the loo, and the other half looking

> for the loo. I'm glad to be in much less pain.

>

> Are " non-celiac gluten-intolerants " allowed to play in this

> back yard?

>