Re: Costs associated with Plagiocephaly

[Guest guest]

This isn't a cost of money but the cost of having people stare and

talk is a pretty big cost. Plus if you want to decorateit that's

another cost.

--- In Plagiocephaly , " spartangrl12 " <dmeraner@y...>

wrote:

>

> Hey everybody,

>

> Just to re-introduce myself my name is le and I am a special

education

> major at York College. I have been extensively researching

Plagiocephaly for

> the past few months and have one last question for anyone who has

the time

> to answer!

>

> Between pediatric appointments, nerosurgical appointments, plastic

surgery

> appointments, optalmologist appointments, STARbands, DOCbands,

doctor

> appointment co-pays, physical therapy, gas to drive to

appointments, plane

> tickets, ear infection meds....having a child with Plagiocephaly

seems that it

> would be extremely costly. What other monetary costs are

associated with

> meeting the physical and emotional needs of having a child with

Plagio?

>

> Thanks so much,

> le

>

[Guest guest]

This isn't a cost of money but the cost of having people stare and

talk is a pretty big cost. Plus if you want to decorateit that's

another cost.

--- In Plagiocephaly , " spartangrl12 " <dmeraner@y...>

wrote:

>

> Hey everybody,

>

> Just to re-introduce myself my name is le and I am a special

education

> major at York College. I have been extensively researching

Plagiocephaly for

> the past few months and have one last question for anyone who has

the time

> to answer!

>

> Between pediatric appointments, nerosurgical appointments, plastic

surgery

> appointments, optalmologist appointments, STARbands, DOCbands,

doctor

> appointment co-pays, physical therapy, gas to drive to

appointments, plane

> tickets, ear infection meds....having a child with Plagiocephaly

seems that it

> would be extremely costly. What other monetary costs are

associated with

> meeting the physical and emotional needs of having a child with

Plagio?

>

> Thanks so much,

> le

>

[Guest guest]

Babysitter for other children and Missing work. I actually decided

not to return to work after my maternity leave because of the

plagio. I could not have missed every second day for physio and

adjustments that we were doing because the helmet didn't fit

properly. I wouldn't have been able to miss work once every second

week either for that matter i'd have been fired. Every time my

son's father misses work in order to be present for an appointment

it costs us money. Which is even more important since his is the

only income now. He works weekends, overtime and 24 hour on call to

make up for it which takes him away from us making it even harder on

the family.

Haylee

--- In Plagiocephaly , " spartangrl12 " <dmeraner@y...>

wrote:

>

> Hey everybody,

>

> Just to re-introduce myself my name is le and I am a special

education

> major at York College. I have been extensively researching

Plagiocephaly for

> the past few months and have one last question for anyone who has

the time

> to answer!

>

> Between pediatric appointments, nerosurgical appointments, plastic

surgery

> appointments, optalmologist appointments, STARbands, DOCbands,

doctor

> appointment co-pays, physical therapy, gas to drive to

appointments, plane

> tickets, ear infection meds....having a child with Plagiocephaly

seems that it

> would be extremely costly. What other monetary costs are

associated with

> meeting the physical and emotional needs of having a child with

Plagio?

>

> Thanks so much,

> le

>

[Guest guest]

Babysitter for other children and Missing work. I actually decided

not to return to work after my maternity leave because of the

plagio. I could not have missed every second day for physio and

adjustments that we were doing because the helmet didn't fit

properly. I wouldn't have been able to miss work once every second

week either for that matter i'd have been fired. Every time my

son's father misses work in order to be present for an appointment

it costs us money. Which is even more important since his is the

only income now. He works weekends, overtime and 24 hour on call to

make up for it which takes him away from us making it even harder on

the family.

Haylee

--- In Plagiocephaly , " spartangrl12 " <dmeraner@y...>

wrote:

>

> Hey everybody,

>

> Just to re-introduce myself my name is le and I am a special

education

> major at York College. I have been extensively researching

Plagiocephaly for

> the past few months and have one last question for anyone who has

the time

> to answer!

>

> Between pediatric appointments, nerosurgical appointments, plastic

surgery

> appointments, optalmologist appointments, STARbands, DOCbands,

doctor

> appointment co-pays, physical therapy, gas to drive to

appointments, plane

> tickets, ear infection meds....having a child with Plagiocephaly

seems that it

> would be extremely costly. What other monetary costs are

associated with

> meeting the physical and emotional needs of having a child with

Plagio?

>

> Thanks so much,

> le

>

[Guest guest]

other costs in my opinion are:

Alcohol, decorating items, special shampoos to get rid of the stinky head, bigger hats, the time involved and the stress of it all. It becomes a full time job with the exercises and worrying about it all.

We get 's DocBand tomorrow and I already have put time and money into this.

With that said... I am not complaining just answering your question.

Lynn in land

5.5 mos

DocBand 12/7/05

In a message dated 12/6/2005 12:38:50 A.M. Eastern Standard Time, rascle204@... writes:

>> Hey everybody,> > Just to re-introduce myself my name is le and I am a special education > major at York College. I have been extensively researching Plagiocephaly for > the past few months and have one last question for anyone who has the time > to answer!> > Between pediatric appointments, nerosurgical appointments, plastic surgery > appointments, optalmologist appointments, STARbands, DOCbands, doctor > appointment co-pays, physical therapy, gas to drive to appointments, plane > tickets, ear infection meds....having a child with Plagiocephaly seems that it > would be extremely costly. What other monetary costs are associated with > meeting the physical and emotional needs of having a child with Plagio?> > Thanks so much,> le>

Lynn, Ben and

[Guest guest]

other costs in my opinion are:

Alcohol, decorating items, special shampoos to get rid of the stinky head, bigger hats, the time involved and the stress of it all. It becomes a full time job with the exercises and worrying about it all.

We get 's DocBand tomorrow and I already have put time and money into this.

With that said... I am not complaining just answering your question.

Lynn in land

5.5 mos

DocBand 12/7/05

In a message dated 12/6/2005 12:38:50 A.M. Eastern Standard Time, rascle204@... writes:

>> Hey everybody,> > Just to re-introduce myself my name is le and I am a special education > major at York College. I have been extensively researching Plagiocephaly for > the past few months and have one last question for anyone who has the time > to answer!> > Between pediatric appointments, nerosurgical appointments, plastic surgery > appointments, optalmologist appointments, STARbands, DOCbands, doctor > appointment co-pays, physical therapy, gas to drive to appointments, plane > tickets, ear infection meds....having a child with Plagiocephaly seems that it > would be extremely costly. What other monetary costs are associated with > meeting the physical and emotional needs of having a child with Plagio?> > Thanks so much,> le>

Lynn, Ben and

[Guest guest]

le -

That's a great question! Costs certainly include time off from work.

I miss a half day each week with a physical therapy appt. A full

day every 10 days travelling from Denver to Phoenix for a band

adjustment. (We make the round trip in one day so I don't have to

miss any more work.)

Add that to the usual list of doctor appts.: Last month alone 1

trip for croup, another for a flu shot, my 3-year old recently

diagnosed with asthma had 3 doctor appts. Each visit is a half day

off by the time I get to the appt., drop off at daycare, get back to

work.

Our travel costs alone could top $3,000 by the time we're done.

Luckily, I work for an outstanding company that is extremely

accommodating. Wouldn't be able to do it otherwise. Lately, most

weeks I'm gone more than I'm there!

Tammy

--- In Plagiocephaly , " spartangrl12 " <dmeraner@y...>

wrote:

>

> Hey everybody,

>

> Just to re-introduce myself my name is le and I am a special

education

> major at York College. I have been extensively researching

Plagiocephaly for

> the past few months and have one last question for anyone who has

the time

> to answer!

>

> Between pediatric appointments, nerosurgical appointments, plastic

surgery

> appointments, optalmologist appointments, STARbands, DOCbands,

doctor

> appointment co-pays, physical therapy, gas to drive to

appointments, plane

> tickets, ear infection meds....having a child with Plagiocephaly

seems that it

> would be extremely costly. What other monetary costs are

associated with

> meeting the physical and emotional needs of having a child with

Plagio?

>

> Thanks so much,

> le

>

[Guest guest]

le -

That's a great question! Costs certainly include time off from work.

I miss a half day each week with a physical therapy appt. A full

day every 10 days travelling from Denver to Phoenix for a band

adjustment. (We make the round trip in one day so I don't have to

miss any more work.)

Add that to the usual list of doctor appts.: Last month alone 1

trip for croup, another for a flu shot, my 3-year old recently

diagnosed with asthma had 3 doctor appts. Each visit is a half day

off by the time I get to the appt., drop off at daycare, get back to

work.

Our travel costs alone could top $3,000 by the time we're done.

Luckily, I work for an outstanding company that is extremely

accommodating. Wouldn't be able to do it otherwise. Lately, most

weeks I'm gone more than I'm there!

Tammy

--- In Plagiocephaly , " spartangrl12 " <dmeraner@y...>

wrote:

>

> Hey everybody,

>

> Just to re-introduce myself my name is le and I am a special

education

> major at York College. I have been extensively researching

Plagiocephaly for

> the past few months and have one last question for anyone who has

the time

> to answer!

>

> Between pediatric appointments, nerosurgical appointments, plastic

surgery

> appointments, optalmologist appointments, STARbands, DOCbands,

doctor

> appointment co-pays, physical therapy, gas to drive to

appointments, plane

> tickets, ear infection meds....having a child with Plagiocephaly

seems that it

> would be extremely costly. What other monetary costs are

associated with

> meeting the physical and emotional needs of having a child with

Plagio?

>

> Thanks so much,

> le

>

[Guest guest]

I wanted to reply too with another " emotional cost " ... not being able

to kiss and snuggle your baby's head for the months it is in the

band. Depending on plagio severity, child's age, # of bands needed

etc... this can range from several weeks to 8-10 months!

Jen

(16 mo), tort resolved, Hanger Band Grad

(3.5 years)

> >

> > Hey everybody,

> >

> > Just to re-introduce myself my name is le and I am a

special

> education

> > major at York College. I have been extensively researching

> Plagiocephaly for

> > the past few months and have one last question for anyone who has

> the time

> > to answer!

> >

> > Between pediatric appointments, nerosurgical appointments,

plastic

> surgery

> > appointments, optalmologist appointments, STARbands, DOCbands,

> doctor

> > appointment co-pays, physical therapy, gas to drive to

> appointments, plane

> > tickets, ear infection meds....having a child with Plagiocephaly

> seems that it

> > would be extremely costly. What other monetary costs are

> associated with

> > meeting the physical and emotional needs of having a child with

> Plagio?

> >

> > Thanks so much,

> > le

> >

>

[Guest guest]

I wanted to reply too with another " emotional cost " ... not being able

to kiss and snuggle your baby's head for the months it is in the

band. Depending on plagio severity, child's age, # of bands needed

etc... this can range from several weeks to 8-10 months!

Jen

(16 mo), tort resolved, Hanger Band Grad

(3.5 years)

> >

> > Hey everybody,

> >

> > Just to re-introduce myself my name is le and I am a

special

> education

> > major at York College. I have been extensively researching

> Plagiocephaly for

> > the past few months and have one last question for anyone who has

> the time

> > to answer!

> >

> > Between pediatric appointments, nerosurgical appointments,

plastic

> surgery

> > appointments, optalmologist appointments, STARbands, DOCbands,

> doctor

> > appointment co-pays, physical therapy, gas to drive to

> appointments, plane

> > tickets, ear infection meds....having a child with Plagiocephaly

> seems that it

> > would be extremely costly. What other monetary costs are

> associated with

> > meeting the physical and emotional needs of having a child with

> Plagio?

> >

> > Thanks so much,

> > le

> >

>