Re: Success !!!!!!!!!!!!!!!!!!!!

[Guest guest]

>

>

> You think your TSH is high? .45 seems pretty low me, but it all depends on

> you.

... oops...... I meant LOW

> Do you have a reference for your TSH when you were " normal " and felt

> good?

I have no clue...... So you can see my concern...

>

>

> I'm curious about when yours was also .90 - what was it before that? Was it

> still undetectable?

For three years on ATDs my TSH was .02 or .002, depending on which lab I used.

> Did you feel hypo when it was rising to .90?

YES ! Makes sense to me, that in 7 weeks to see that change, it sure could take

your body

time to figure it all out.

> Maybe

> that's what I've been experiencing - that big change causing you to " feel "

> hypo even though you're not.

At that time my FT4 was a bit low also....within the normal range, BUT low for

me. Since

then I have not had TSH done, until today. For me, any FT4 under say 1.03 is too

hypo.

Causes brain fog and serious arthritis. From 1.05 on up, the pain goes away,

progressively.

>

>

> >

>

This is the very FIRST FT3 test I have ever had !

And it was quite the battle. At one point I was surrounded by three women that

work there.

They ALL insisted that I could not get this test. They then continued explaining

that

there is NO difference between FT3 and plainT3...over and over !

Then it turns out this test has to be sent out...so ???

Do you know it might cost $70....so???

But they will have to bill you seperatly...so???

It is not on our computer.....so???

Well, we can have them do it........but it is exactly the same thing as T3 they

kept

repeating !

Thank goodness for all the repetition on this list. I was able to stand in the

middle of

the chaos, remain calm, and explain the difference between T3 and FT3 to the

best of my

ability..no it was not perfect, but they were not going to believe me anyway. I

didn't see

anyone taking notes, or asking for references to my outrageous statements. Like

" there is

a difference in the two tests ! "

A lesser woman would have folded under the pressure. Or as in the past, when I

was kept

hypo, I would not have had the willpower to stay calm and discuss the matter

until I was

happy with the conclusion. They kept me hypo, and submissive way to long ! It

dulls your

brain, and makes you doubt yourself.

*************************************

Oops, got off the subject of cookies and frolicking ......

Sue... I'll try to keep it down, you must need your rest. LOL

Shanie, You have missed all the bad parts. I was at least as ill as Jeff..if not

worse,

and it took a long time to get here... but boy is it worth the work and time. I

now have a

future with no worries about any permanent damage I could have done to myself.

If I had to

do it over, knowing what the struggle would entail, and the results now, I would

still do

the same thing over, as far as choice of treatment. I would just get labs more

often, and

I would learn about diet and lifestyle sooner. This could possibly taken a

couple of years

off my time.

Worst case now, would be if I , at some time, have to go back on a very low

dose...so..???

-Pam-

[Guest guest]

>

>

> You think your TSH is high? .45 seems pretty low me, but it all depends on

> you.

... oops...... I meant LOW

> Do you have a reference for your TSH when you were " normal " and felt

> good?

I have no clue...... So you can see my concern...

>

>

> I'm curious about when yours was also .90 - what was it before that? Was it

> still undetectable?

For three years on ATDs my TSH was .02 or .002, depending on which lab I used.

> Did you feel hypo when it was rising to .90?

YES ! Makes sense to me, that in 7 weeks to see that change, it sure could take

your body

time to figure it all out.

> Maybe

> that's what I've been experiencing - that big change causing you to " feel "

> hypo even though you're not.

At that time my FT4 was a bit low also....within the normal range, BUT low for

me. Since

then I have not had TSH done, until today. For me, any FT4 under say 1.03 is too

hypo.

Causes brain fog and serious arthritis. From 1.05 on up, the pain goes away,

progressively.

>

>

> >

>

This is the very FIRST FT3 test I have ever had !

And it was quite the battle. At one point I was surrounded by three women that

work there.

They ALL insisted that I could not get this test. They then continued explaining

that

there is NO difference between FT3 and plainT3...over and over !

Then it turns out this test has to be sent out...so ???

Do you know it might cost $70....so???

But they will have to bill you seperatly...so???

It is not on our computer.....so???

Well, we can have them do it........but it is exactly the same thing as T3 they

kept

repeating !

Thank goodness for all the repetition on this list. I was able to stand in the

middle of

the chaos, remain calm, and explain the difference between T3 and FT3 to the

best of my

ability..no it was not perfect, but they were not going to believe me anyway. I

didn't see

anyone taking notes, or asking for references to my outrageous statements. Like

" there is

a difference in the two tests ! "

A lesser woman would have folded under the pressure. Or as in the past, when I

was kept

hypo, I would not have had the willpower to stay calm and discuss the matter

until I was

happy with the conclusion. They kept me hypo, and submissive way to long ! It

dulls your

brain, and makes you doubt yourself.

*************************************

Oops, got off the subject of cookies and frolicking ......

Sue... I'll try to keep it down, you must need your rest. LOL

Shanie, You have missed all the bad parts. I was at least as ill as Jeff..if not

worse,

and it took a long time to get here... but boy is it worth the work and time. I

now have a

future with no worries about any permanent damage I could have done to myself.

If I had to

do it over, knowing what the struggle would entail, and the results now, I would

still do

the same thing over, as far as choice of treatment. I would just get labs more

often, and

I would learn about diet and lifestyle sooner. This could possibly taken a

couple of years

off my time.

Worst case now, would be if I , at some time, have to go back on a very low

dose...so..???

-Pam-

[Guest guest]

Hi Pam,

Congratulations!!!!

Remember that TSH lags at least 6 week behind and often much longer so it can

be reflecting a time when you felt hypo. With your FT4 not rising, I wonder

if you also have blocking TSH receptor antibodies. Keep well, Elaine

[Guest guest]

Hi Pam,

I am so happy and excited for you!!! You have worked so hard at getting

here. I remember when you first joined this group and how you were doing

then, and how you jumped right in and decided to take control over your

treatment and to see the results as they are today is a true inspiration for

every single one of us!

For the new to Graves and ATD's folks, I really recommend doing a search on

Pam in the search engine and read all of Pam's posts. To see where she was

when she first started in this group, (not that long ago...sometime last

year, but can't remember the month) to where she is today is a true

testimony to patience, endurance, power of knowledge and being proactive in

your own treatments. Her journey can give you all hope in *getting there*,

just as she has done. Be gentle to yourselfs and keep on doing whatever you

need to to get where Pam is today.

Pam, I am really really happy for you.. BIG *HUGZ* for you my friend!

Jody

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[Guest guest]

Hi Jody,

Wish I could take total responsibility for being a pro active patient. But I

must share my

victory with all of you that have taken the time out of you days, to help me get

here.

I am afraid I was one that had to hit the bottom of the barrel before I really

DID

something instead of thinking about it. After all, my Top Doc told me diet would

have no

effect at all. And when I was way too hypo for me... he said I was fine.

Thoughts of suicide because of the mental fog and the terrible pain is not FINE

in my

book. Lab numbers are good to use, but we must find our own set- point. I

personally can

not function at a FT4 of .78, my personal thing I guess.

All goes back to treating my high blood pressure with more ATDs. <sigh> I shall

continue

to try to get him to understand, when I have the time, as he has so many other

patients on

ATDs.

Once I finally REALLY took charge of everything...and insisted politely every

time he said

I was fine, that this was wrong... we had agreed on a FT4 for me...he would then

back off

and say, " oh, that's right " ......THAT is when I was able to regain my brain, and

move

forward.

Now I need a new word or phrase... I keep saying 'my possible remission'. That

is a lot to

type. I have now found the true definition of remission. It is euthyroid for one

year with

no medication.( and I will include my bugleweed in the 'medication' category.)

Same as

menopause not being what you have finally achieved until one year with no

periods.

-Pam-

[Guest guest]

Hi Jody,

Wish I could take total responsibility for being a pro active patient. But I

must share my

victory with all of you that have taken the time out of you days, to help me get

here.

I am afraid I was one that had to hit the bottom of the barrel before I really

DID

something instead of thinking about it. After all, my Top Doc told me diet would

have no

effect at all. And when I was way too hypo for me... he said I was fine.

Thoughts of suicide because of the mental fog and the terrible pain is not FINE

in my

book. Lab numbers are good to use, but we must find our own set- point. I

personally can

not function at a FT4 of .78, my personal thing I guess.

All goes back to treating my high blood pressure with more ATDs. <sigh> I shall

continue

to try to get him to understand, when I have the time, as he has so many other

patients on

ATDs.

Once I finally REALLY took charge of everything...and insisted politely every

time he said

I was fine, that this was wrong... we had agreed on a FT4 for me...he would then

back off

and say, " oh, that's right " ......THAT is when I was able to regain my brain, and

move

forward.

Now I need a new word or phrase... I keep saying 'my possible remission'. That

is a lot to

type. I have now found the true definition of remission. It is euthyroid for one

year with

no medication.( and I will include my bugleweed in the 'medication' category.)

Same as

menopause not being what you have finally achieved until one year with no

periods.

-Pam-

[Guest guest]

Hi Jody,

Wish I could take total responsibility for being a pro active patient. But I

must share my

victory with all of you that have taken the time out of you days, to help me get

here.

I am afraid I was one that had to hit the bottom of the barrel before I really

DID

something instead of thinking about it. After all, my Top Doc told me diet would

have no

effect at all. And when I was way too hypo for me... he said I was fine.

Thoughts of suicide because of the mental fog and the terrible pain is not FINE

in my

book. Lab numbers are good to use, but we must find our own set- point. I

personally can

not function at a FT4 of .78, my personal thing I guess.

All goes back to treating my high blood pressure with more ATDs. <sigh> I shall

continue

to try to get him to understand, when I have the time, as he has so many other

patients on

ATDs.

Once I finally REALLY took charge of everything...and insisted politely every

time he said

I was fine, that this was wrong... we had agreed on a FT4 for me...he would then

back off

and say, " oh, that's right " ......THAT is when I was able to regain my brain, and

move

forward.

Now I need a new word or phrase... I keep saying 'my possible remission'. That

is a lot to

type. I have now found the true definition of remission. It is euthyroid for one

year with

no medication.( and I will include my bugleweed in the 'medication' category.)

Same as

menopause not being what you have finally achieved until one year with no

periods.

-Pam-

[Guest guest]

I think it feels like the worst PMS that anybody could ever have... !!!

- ----Original Message-----

From: Laurel Cossitt

Sent: Thursday, March 21, 2002 3:48 PM

To: graves_support

Subject: Re: Success !!!!!!!!!!!!!!!!!!!!

Jody,

Just speculation here but it would make sense that brain chemistry, effected

by hypo, would assume a metabolism not unlike the slowed down version that

people with clinical depression experience. Might be different molecules

having similar results?

Laurel

Re: Success !!!!!!!!!!!!!!!!!!!!

Hi Laurel,

The only time I have experienced this feeling was when I was in a depression

caused my hypO thyroid and left there for over 4 years. I never felt this

way when hyper. It is something that does get brought up from time to time.

I don't think I have heard of any hypers say this, but I could be wrong.

Jody

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[Guest guest]

Pam,

wanted to let you know I am celebrating with you.

Debbie R.

[Guest guest]

Pam,

wanted to let you know I am celebrating with you.

Debbie R.