Guest guest Posted March 19, 2002 Report Share Posted March 19, 2002 Hi Jeannette, Thank you for jumping in here on this! I love your remission success story...I was very curious Sometime, when/if you have time, could you share witht he new people about the other changes you made in your life and continue to do so they can have a clearer idea about how we have to change things around in our lives, as well as take our atd's or TRH's. I know it is in the archives somewhere, but I couldn't find it when I looked. Maybe looking under your old ID but I can never remember how to spell that one ;-) Thanks again! Jody _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2002 Report Share Posted March 19, 2002 Hi Jeannette, Thank you for jumping in here on this! I love your remission success story...I was very curious Sometime, when/if you have time, could you share witht he new people about the other changes you made in your life and continue to do so they can have a clearer idea about how we have to change things around in our lives, as well as take our atd's or TRH's. I know it is in the archives somewhere, but I couldn't find it when I looked. Maybe looking under your old ID but I can never remember how to spell that one ;-) Thanks again! Jody _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 Thank you Jeanette for this wonderful explanation. Yes Remission is a wonderful subject. However from reading all the posts, not a lot stay that way. I am now beginning to understand that my reduced reading on my FT4 last Friday was only drug induced. My TSH hadn't changed. So that means if I was to stop taking the Carbimazole, my FT4 would just sky rocket? Gee and the 18 months bit.........I was so hoping. Oh well, at least I have you all to share with. Thank you for your continued support. Sue Mollymook, Australia At 03:51 PM 19/03/2002 -0800, you wrote: > Hi Sue and Jody and all.. > > Remission...a LOVELY subject for a change >. > I understand that some folks have spontaneous remission, that is the > > The > point of ATD' s is to be protected from the ravages of too much >thyroid > while you wait for your body to heal. > > To answer Sue's >questions: Generally a course of at least 18 months of > I took beta >blockers for a very brief time ( weeks) > I > I went from being very > >hyper to normal ( euthyroid) under the influence of Tapazole within > The >first dose reduction happened around the same time > my blood work showed I >was no longer hyperthyroid, that is, my T-4 and > However, my TSH was still very > suppressed.... My doctor checked me often and continued to bring the > Tapazole dose down. > > Prior to any medications, my doc had done lab work for antibodies and > When he felt that both my lab thyroid levels > and symptoms were quite subsided, he checked me for anti-bodies again. > 1999 and have not > been on any meds since that time...which means I am coming up on three > It has five years since I reached > Jan 1997. > > Hope that helps.... > Jeannette > > > And PS...I confess that I am barely able to skim the volume of messages > that come through here, so if you ask me something and I don't answer, > okay? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 Hi Sue, >>>My TSH hadn't changed. So that means if I was to stop taking the >>>Carbimazole, my FT4 would just sky rocket?<<< If you stopped taking the Carbim. your FT4 would probably go higher as you have not reached remission yet. But please don't dwell on your TSH not moving. Especially when we are on atd's the TSH is useless, and in my opinion, should not even be taken, accept occasionally. The first Pam to this group never saw a rise in her TSH but she had gone hypO and was kept there for a long long time because her doctor *was* relying on her TSH which wasn't budging, he kept her atd's higher than they should have been and she was so very miserable. Maybe if you do a search on pam and tsh just like that in the archives it will bring up her story on this, and what *she* had to do to make things better for herself...or maybe she will take pity and jump in and either explain it again or let you know about where it is in the archives. Talk to you later, Jody _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 Hi Jody He actually said to me it takes time for the TSH reading to come up and that he wasn't concerned. He did reduce my ATD's so I'm happy. I will just go and have my blood tests in a months time, not 3 months time! Sue At 11:04 AM 20/03/2002 -0500, you wrote: > Hi Sue, >>>> So that means if I was to stop taking the >>>><<< > > If > youtopped taking the Carbim. your FT4 would probably go higher as you > >But please don't dwell on your TSH not > Especially when we are on atd's >the TSH is useless, and in my > opinion, should not even be taken, accept >occasionally. > > The first Pam to this group never saw a rise in her TSH >but she had gone > hypO and was kept there for a long long time because >her doctor *was* > relying on her TSH which wasn't budging, he kept her >atd's higher than they > Maybe if you do a search on > just like that >in the archives it will bring up her story on > this, and what *she* had to do to make things better for herself...or maybe > she will take pity and jump in and either explain it again or let you know > about where it is in the archives. > > Talk to you later, > Jody Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 Hi Jody He actually said to me it takes time for the TSH reading to come up and that he wasn't concerned. He did reduce my ATD's so I'm happy. I will just go and have my blood tests in a months time, not 3 months time! Sue At 11:04 AM 20/03/2002 -0500, you wrote: > Hi Sue, >>>> So that means if I was to stop taking the >>>><<< > > If > youtopped taking the Carbim. your FT4 would probably go higher as you > >But please don't dwell on your TSH not > Especially when we are on atd's >the TSH is useless, and in my > opinion, should not even be taken, accept >occasionally. > > The first Pam to this group never saw a rise in her TSH >but she had gone > hypO and was kept there for a long long time because >her doctor *was* > relying on her TSH which wasn't budging, he kept her >atd's higher than they > Maybe if you do a search on > just like that >in the archives it will bring up her story on > this, and what *she* had to do to make things better for herself...or maybe > she will take pity and jump in and either explain it again or let you know > about where it is in the archives. > > Talk to you later, > Jody Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 Hi Jody He actually said to me it takes time for the TSH reading to come up and that he wasn't concerned. He did reduce my ATD's so I'm happy. I will just go and have my blood tests in a months time, not 3 months time! Sue At 11:04 AM 20/03/2002 -0500, you wrote: > Hi Sue, >>>> So that means if I was to stop taking the >>>><<< > > If > youtopped taking the Carbim. your FT4 would probably go higher as you > >But please don't dwell on your TSH not > Especially when we are on atd's >the TSH is useless, and in my > opinion, should not even be taken, accept >occasionally. > > The first Pam to this group never saw a rise in her TSH >but she had gone > hypO and was kept there for a long long time because >her doctor *was* > relying on her TSH which wasn't budging, he kept her >atd's higher than they > Maybe if you do a search on > just like that >in the archives it will bring up her story on > this, and what *she* had to do to make things better for herself...or maybe > she will take pity and jump in and either explain it again or let you know > about where it is in the archives. > > Talk to you later, > Jody Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 Sue, I see you have the TSH thing figured out now. I have a Top Doc, and he never worried about my TSH never starting to move for the infamous three years that it stayed at.002. The problem I had was he kept upping my dose of PTU because my blood pressure was high. WRONG !!!! Being hypo causes BP to be high !!! So much for the idea that what makes a doc great, is his ability to treat on symptoms not just labs ! If he ever learns his 'symptoms list' he will be a top doc. -Pam- who also spent way too much time in hypo hell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 Hey Pam, if I end up Hypo, I will blame myself. With all this information I'm sure I must reconise the symptoms. I will stay focused. Love Sue At 01:41 PM 20/03/2002 -0800, you wrote: > Sue, > > I see you have the TSH thing figured out now. > I have a Top D >oc, d he never worried about my TSH never starting to move >for the > >infamous three years that it stayed at.002. > of PTU because my blood >pressure was high. > WRONG !!!! > > Being hypo causes BP to be high !!! So >much for the idea that what makes a >doc great, is > his ability to treat >on symptoms not just labs ! If he ever learns his >'symptoms list' he > >will be a top doc. > > -Pam- who also spent way too much time in hypo >hell Quote Link to comment Share on other sites More sharing options...
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