Guest guest Posted December 3, 2005 Report Share Posted December 3, 2005 We repositioned our son from the time he was 2-2 1/2 months until he was 5 months and saw some improvement. He was already diagnosed with severe plagio when we started seeing the neurosurgeon, so the improvement we saw just took him to moderate/severe instead of severe. We opted to band him, at the advice of our ped and neurosurgeon, just before he turned 7 mos. I have several friends whose babies slept on their sides because of other issues (digestive) from a very early age, so I would be OK with it now, but at the time, I was afraid for to be any which way but on his back. Mom to , 7 mos., Starband since 11/14/05 --- Natasha Gubash <ngubash@...> wrote: > I would be ok to have my child side sleep but I > don't want to sway > you with something you are uncomfortable with. What > does your ped > think? > Natasha > > > > > > > > > Hi I'm new to the group and am desperate to > get some feedback > > from > > > > moms who are or have been in the same place as > me. My > daughter > > > was > > > > diagnosed with moderate plagio with left tort > at 2 1/2 mths. > We > > > > were sent to PT for the tort and hope to see > results soon. I > > live > > > > in Calgary, Canada and when I contacted > Cranial Tech, I was > told > > > > that she won't even be seen until she is 6 to > 61/2 mths old > > > because > > > > there is a wait-list and the older kids are > seen first. In > the > > > > meantime I am supposed to be repositioning > her. We have done > > > this > > > > for a month and have seen (we think) a slight > improvement. > She > > is > > > > now just over 3 mths old. The only other CT > location near us > is > > > in > > > > a city 3 hours away. We contacted them and > same wait-list. > > These > > > > are the only 2 locations in all of western > Canada that deal > with > > > > plagio babies and/or bands so it is > frustrating to not have a > > > > specialist see her. My question is: they > keep telling me > that > > it > > > > is best to aggressively reposition her until > about 6 mths to > see > > > if > > > > it will prevent the need for a band. At that > point she will be > > > > evaluated and considered for a band. However, > all of the info > I > > > can > > > > find says that the optimal time to band is > between 4-8 mths > and > > > that > > > > the banding time may be reduced the younger > they are. I would > > > love > > > > to band her and get it over with if that's > what will be > > required. > > > > But since I have no choice (we have public > health care in > Canada > > > and > > > > therefore no insurance co to argue with) I > have to do the > repo. > > > > Does repo really work? What's an appropriate > timeline to say, > > yes > > > > it's working or no, it's not and it's time to > think of Plan > B. > > > Any > > > > advice would be appreciated. I am sick to > death worrying that > > I'm > > > > missing the best time to put her in a band. > (I think she will > > end > > > > up in one because her forehead is bossing on > the right side, > her > > > > right ear is misaligned, her right cheek is > fuller and the > back > > of > > > > her head is flat.) > > > > > > > > Thanks, > > > > > > > > > > > > > > > > > > __________________________________ Start your day with - Make it your home page! http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2005 Report Share Posted December 3, 2005 We repositioned our son from the time he was 2-2 1/2 months until he was 5 months and saw some improvement. He was already diagnosed with severe plagio when we started seeing the neurosurgeon, so the improvement we saw just took him to moderate/severe instead of severe. We opted to band him, at the advice of our ped and neurosurgeon, just before he turned 7 mos. I have several friends whose babies slept on their sides because of other issues (digestive) from a very early age, so I would be OK with it now, but at the time, I was afraid for to be any which way but on his back. Mom to , 7 mos., Starband since 11/14/05 --- Natasha Gubash <ngubash@...> wrote: > I would be ok to have my child side sleep but I > don't want to sway > you with something you are uncomfortable with. What > does your ped > think? > Natasha > > > > > > > > > Hi I'm new to the group and am desperate to > get some feedback > > from > > > > moms who are or have been in the same place as > me. My > daughter > > > was > > > > diagnosed with moderate plagio with left tort > at 2 1/2 mths. > We > > > > were sent to PT for the tort and hope to see > results soon. I > > live > > > > in Calgary, Canada and when I contacted > Cranial Tech, I was > told > > > > that she won't even be seen until she is 6 to > 61/2 mths old > > > because > > > > there is a wait-list and the older kids are > seen first. In > the > > > > meantime I am supposed to be repositioning > her. We have done > > > this > > > > for a month and have seen (we think) a slight > improvement. > She > > is > > > > now just over 3 mths old. The only other CT > location near us > is > > > in > > > > a city 3 hours away. We contacted them and > same wait-list. > > These > > > > are the only 2 locations in all of western > Canada that deal > with > > > > plagio babies and/or bands so it is > frustrating to not have a > > > > specialist see her. My question is: they > keep telling me > that > > it > > > > is best to aggressively reposition her until > about 6 mths to > see > > > if > > > > it will prevent the need for a band. At that > point she will be > > > > evaluated and considered for a band. However, > all of the info > I > > > can > > > > find says that the optimal time to band is > between 4-8 mths > and > > > that > > > > the banding time may be reduced the younger > they are. I would > > > love > > > > to band her and get it over with if that's > what will be > > required. > > > > But since I have no choice (we have public > health care in > Canada > > > and > > > > therefore no insurance co to argue with) I > have to do the > repo. > > > > Does repo really work? What's an appropriate > timeline to say, > > yes > > > > it's working or no, it's not and it's time to > think of Plan > B. > > > Any > > > > advice would be appreciated. I am sick to > death worrying that > > I'm > > > > missing the best time to put her in a band. > (I think she will > > end > > > > up in one because her forehead is bossing on > the right side, > her > > > > right ear is misaligned, her right cheek is > fuller and the > back > > of > > > > her head is flat.) > > > > > > > > Thanks, > > > > > > > > > > > > > > > > > > __________________________________ Start your day with - Make it your home page! http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2005 Report Share Posted December 4, 2005 > > > > > > > > > > Hi I'm new to the group and am desperate to > > get some feedback > > > from > > > > > moms who are or have been in the same place as > > me. My > > daughter > > > > was > > > > > diagnosed with moderate plagio with left tort > > at 2 1/2 mths. > > We > > > > > were sent to PT for the tort and hope to see > > results soon. I > > > live > > > > > in Calgary, Canada and when I contacted > > Cranial Tech, I was > > told > > > > > that she won't even be seen until she is 6 to > > 61/2 mths old > > > > because > > > > > there is a wait-list and the older kids are > > seen first. In > > the > > > > > meantime I am supposed to be repositioning > > her. We have done > > > > this > > > > > for a month and have seen (we think) a slight > > improvement. > > She > > > is > > > > > now just over 3 mths old. The only other CT > > location near us > > is > > > > in > > > > > a city 3 hours away. We contacted them and > > same wait-list. > > > These > > > > > are the only 2 locations in all of western > > Canada that deal > > with > > > > > plagio babies and/or bands so it is > > frustrating to not have a > > > > > specialist see her. My question is: they > > keep telling me > > that > > > it > > > > > is best to aggressively reposition her until > > about 6 mths to > > see > > > > if > > > > > it will prevent the need for a band. At that > > point she will be > > > > > evaluated and considered for a band. However, > > all of the info > > I > > > > can > > > > > find says that the optimal time to band is > > between 4-8 mths > > and > > > > that > > > > > the banding time may be reduced the younger > > they are. I would > > > > love > > > > > to band her and get it over with if that's > > what will be > > > required. > > > > > But since I have no choice (we have public > > health care in > > Canada > > > > and > > > > > therefore no insurance co to argue with) I > > have to do the > > repo. > > > > > Does repo really work? What's an appropriate > > timeline to say, > > > yes > > > > > it's working or no, it's not and it's time to > > think of Plan > > B. > > > > Any > > > > > advice would be appreciated. I am sick to > > death worrying that > > > I'm > > > > > missing the best time to put her in a band. > > (I think she will > > > end > > > > > up in one because her forehead is bossing on > > the right side, > > her > > > > > right ear is misaligned, her right cheek is > > fuller and the > > back > > > of > > > > > her head is flat.) > > > > > > > > > > Thanks, > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > __________________________________ > Start your day with - Make it your home page! > http://www./r/hs > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2005 Report Share Posted December 4, 2005 > > > > > > > > > > Hi I'm new to the group and am desperate to > > get some feedback > > > from > > > > > moms who are or have been in the same place as > > me. My > > daughter > > > > was > > > > > diagnosed with moderate plagio with left tort > > at 2 1/2 mths. > > We > > > > > were sent to PT for the tort and hope to see > > results soon. I > > > live > > > > > in Calgary, Canada and when I contacted > > Cranial Tech, I was > > told > > > > > that she won't even be seen until she is 6 to > > 61/2 mths old > > > > because > > > > > there is a wait-list and the older kids are > > seen first. In > > the > > > > > meantime I am supposed to be repositioning > > her. We have done > > > > this > > > > > for a month and have seen (we think) a slight > > improvement. > > She > > > is > > > > > now just over 3 mths old. The only other CT > > location near us > > is > > > > in > > > > > a city 3 hours away. We contacted them and > > same wait-list. > > > These > > > > > are the only 2 locations in all of western > > Canada that deal > > with > > > > > plagio babies and/or bands so it is > > frustrating to not have a > > > > > specialist see her. My question is: they > > keep telling me > > that > > > it > > > > > is best to aggressively reposition her until > > about 6 mths to > > see > > > > if > > > > > it will prevent the need for a band. At that > > point she will be > > > > > evaluated and considered for a band. However, > > all of the info > > I > > > > can > > > > > find says that the optimal time to band is > > between 4-8 mths > > and > > > > that > > > > > the banding time may be reduced the younger > > they are. I would > > > > love > > > > > to band her and get it over with if that's > > what will be > > > required. > > > > > But since I have no choice (we have public > > health care in > > Canada > > > > and > > > > > therefore no insurance co to argue with) I > > have to do the > > repo. > > > > > Does repo really work? What's an appropriate > > timeline to say, > > > yes > > > > > it's working or no, it's not and it's time to > > think of Plan > > B. > > > > Any > > > > > advice would be appreciated. I am sick to > > death worrying that > > > I'm > > > > > missing the best time to put her in a band. > > (I think she will > > > end > > > > > up in one because her forehead is bossing on > > the right side, > > her > > > > > right ear is misaligned, her right cheek is > > fuller and the > > back > > > of > > > > > her head is flat.) > > > > > > > > > > Thanks, > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > __________________________________ > Start your day with - Make it your home page! > http://www./r/hs > Quote Link to comment Share on other sites More sharing options...
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