Guest guest Posted August 24, 2005 Report Share Posted August 24, 2005 Hi Angie, Welcome to the group. Wow twin 4 month olds - you have your hands full. Tort and plagio are not uncommon in at least one of twins. Quarters are a bit cramped inutero which can lead to tort and plagio. If you would like an objective evaluation your ped can send you direct to cranial tech. Since you say his ear is noticably out of align I would tend to think he might be more mild/moderate instead of mild. Ears and forehead bossing are harder to correct with repo, but not impossible. You really need to do aggressive repo 24/7 (have you checked out the files repo headquarters - tons of tips and products). Repo is also difficult when dealing with tort. The tightness in the neck just makes it so much easier for them to look one way instead of the other. They may not even have a noticable tilt and it will play a role. My dd did not have a noticable tilt when she was first diagnosed. She had a huge growth spurt at 7 months and then we saw the tilt. Tort is frustrating because just when you thought you had it under control the infant has a growth spurt, illness, new tooth or reaches a new milestone which sets back the tort progress. Most tort babies are followed closely until 18 months or walking well. The stretches are very important. We started them at home 5/day when dd was 3 months. She was monitored by Cranial Tech as she went through her doc band therapy. When she graduated from her doc band she still had tort so then we went to see a PT. We have a file in the tort folder with some good tips and pictures of the stretches. My advice, go to www.cranialtech.com and print out the severity assesment form. Take it to the 4 month visit. If you and the dr feel he is mostly 1s or higher then go for an evaluation at cranial tech (it's free and they are honest, they won't try and sell you a band). If he is 0 and 1s then monitor and do at home repo and stretches until 6 months and re-evaluate. Take some current pics of his head shape from all angles front, back, top, and sides. Repeat every 2 weeks to track progress or lack of. I would try and get a PT evalution for the tort. Even if you only go to PT 1/week it's great to have the professional help insure you are doing things correctly and then monitor him for progress. He is at a great age to attempt repo and if that doesn't work you have plenty of time to band him. It's usually best to get in a band by 6 months, but we have had kids banded past 15 months with great correction. You could always get the ball rolling with Cranial Tech (your ped can write the RX without you seeing a specialist - ours did) and then monitor until you feel it's what you need to do. Let us now how Friday goes. mom to na (DOC Grad) and Kiersten (preventative repo) www.thefilyaws.com > > > > For about a week now I have been reading posts and researching > > > > plagio trying to gather information. I am looking for a > little > > > bit > > > > of guidance and advice. Here's my story: > > > > > > > > My twin sons are 4 months old today. At our two-month check > up > > > our > > > > pedi noted that one of our sons had a tendency to turn his > head > > > one > > > > way and that his head was flattened on that side. I had > noticed > > > > this prior to our appointment, but didn't think much of it and > > > > assumed it would round out as he grew. The pedi said we should > > > be > > > > encouraging him to look the other direction and doing stretches > > > if > > > > necessary. She suggested keeping him off the flat side to > sleep. > > > > > > > She told us about using a rolled up towel to assist with > this. > > > She > > > > never mentioned tort or plagio. > > > > > > > > We tried the rolled towel for sleeping, but he just moved it. > So > > > > > > I > > > > bought a side sleep positioner and we have been using that for > > > > nighttime and naps. When he is in his swing we use the > towel. > > > This > > > > hasn't been easy. About a week ago, my husband opened up an > > > > issue of Parents magazine and began reading about plagio. He > > > passed > > > > it over to me and said it sounds exactly like Tyler. I then > > > began > > > > researching plagio and eventually found this group. > > > > > > > > We've been doing what I now know as repositioning for the past > > > > two months. Probably not as diligently as others, but for the > > > most > > > > part he is off the flat side of his head. He moves his head > in > > > all > > > > directions, but still has a tendency towards the one side. > Could > > > > > > > this be habit? His head has not gotten any flatter, but I > don't > > > > think it has rounded out any either. > > > > > > > > We have our 4-month check up this Friday. From what I've been > > > > reading on the posts, it sounds like some pedi are reluctant > to > > > > refer to a specialist. How do I know if a specialist should > > > > evaluate my child? What are some questions you think I should > > > ask > > > > my pedi? What other helpful advice do you have for mother > > > beginning > > > > on this journey? > > > > > > > > Thanks! > > > > Angie - mother of two 4 month old boys > > > > > > > > > > > > > > > > > > > ____________________________________________________ > > Start your day with - make it your home page > > http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2005 Report Share Posted August 24, 2005 Hi Angie, Welcome to the group. Wow twin 4 month olds - you have your hands full. Tort and plagio are not uncommon in at least one of twins. Quarters are a bit cramped inutero which can lead to tort and plagio. If you would like an objective evaluation your ped can send you direct to cranial tech. Since you say his ear is noticably out of align I would tend to think he might be more mild/moderate instead of mild. Ears and forehead bossing are harder to correct with repo, but not impossible. You really need to do aggressive repo 24/7 (have you checked out the files repo headquarters - tons of tips and products). Repo is also difficult when dealing with tort. The tightness in the neck just makes it so much easier for them to look one way instead of the other. They may not even have a noticable tilt and it will play a role. My dd did not have a noticable tilt when she was first diagnosed. She had a huge growth spurt at 7 months and then we saw the tilt. Tort is frustrating because just when you thought you had it under control the infant has a growth spurt, illness, new tooth or reaches a new milestone which sets back the tort progress. Most tort babies are followed closely until 18 months or walking well. The stretches are very important. We started them at home 5/day when dd was 3 months. She was monitored by Cranial Tech as she went through her doc band therapy. When she graduated from her doc band she still had tort so then we went to see a PT. We have a file in the tort folder with some good tips and pictures of the stretches. My advice, go to www.cranialtech.com and print out the severity assesment form. Take it to the 4 month visit. If you and the dr feel he is mostly 1s or higher then go for an evaluation at cranial tech (it's free and they are honest, they won't try and sell you a band). If he is 0 and 1s then monitor and do at home repo and stretches until 6 months and re-evaluate. Take some current pics of his head shape from all angles front, back, top, and sides. Repeat every 2 weeks to track progress or lack of. I would try and get a PT evalution for the tort. Even if you only go to PT 1/week it's great to have the professional help insure you are doing things correctly and then monitor him for progress. He is at a great age to attempt repo and if that doesn't work you have plenty of time to band him. It's usually best to get in a band by 6 months, but we have had kids banded past 15 months with great correction. You could always get the ball rolling with Cranial Tech (your ped can write the RX without you seeing a specialist - ours did) and then monitor until you feel it's what you need to do. Let us now how Friday goes. mom to na (DOC Grad) and Kiersten (preventative repo) www.thefilyaws.com > > > > For about a week now I have been reading posts and researching > > > > plagio trying to gather information. I am looking for a > little > > > bit > > > > of guidance and advice. Here's my story: > > > > > > > > My twin sons are 4 months old today. At our two-month check > up > > > our > > > > pedi noted that one of our sons had a tendency to turn his > head > > > one > > > > way and that his head was flattened on that side. I had > noticed > > > > this prior to our appointment, but didn't think much of it and > > > > assumed it would round out as he grew. The pedi said we should > > > be > > > > encouraging him to look the other direction and doing stretches > > > if > > > > necessary. She suggested keeping him off the flat side to > sleep. > > > > > > > She told us about using a rolled up towel to assist with > this. > > > She > > > > never mentioned tort or plagio. > > > > > > > > We tried the rolled towel for sleeping, but he just moved it. > So > > > > > > I > > > > bought a side sleep positioner and we have been using that for > > > > nighttime and naps. When he is in his swing we use the > towel. > > > This > > > > hasn't been easy. About a week ago, my husband opened up an > > > > issue of Parents magazine and began reading about plagio. He > > > passed > > > > it over to me and said it sounds exactly like Tyler. I then > > > began > > > > researching plagio and eventually found this group. > > > > > > > > We've been doing what I now know as repositioning for the past > > > > two months. Probably not as diligently as others, but for the > > > most > > > > part he is off the flat side of his head. He moves his head > in > > > all > > > > directions, but still has a tendency towards the one side. > Could > > > > > > > this be habit? His head has not gotten any flatter, but I > don't > > > > think it has rounded out any either. > > > > > > > > We have our 4-month check up this Friday. From what I've been > > > > reading on the posts, it sounds like some pedi are reluctant > to > > > > refer to a specialist. How do I know if a specialist should > > > > evaluate my child? What are some questions you think I should > > > ask > > > > my pedi? What other helpful advice do you have for mother > > > beginning > > > > on this journey? > > > > > > > > Thanks! > > > > Angie - mother of two 4 month old boys > > > > > > > > > > > > > > > > > > > ____________________________________________________ > > Start your day with - make it your home page > > http://www./r/hs Quote Link to comment Share on other sites More sharing options...
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