/Re: Help! My daughter is not adjusting to her DOC

[Guest guest]

,

Can you post a picture of your baby in her band? Does it say DOCband

on it?

-- In Plagiocephaly , " cindysynchron "

<cindysynchron@...> wrote:

>

> Hi ,

>

> Thanks so much for writing back - it really helps to get a kind word

> when things are going so rough.

> She did get a DOC band but she also had a Starscan. I live in

> Calgary, Canada and at the end of Jan they transferred over from

> using the DOC's to the StarBands. AFter doing some research I

> thought I wanted the DOC because that's what the OT's here are

> familiar with. I didn't want Olivia to be part of the transition.

> The OT herself said she didn't feel comfy with the new STarband and

> that they have " never put it on a live child yet " . Didn't give me

> the warm fuzzy. So I fought tooth and nail and got Olivia casted

> for a DOC right before the change. WE have public health care so

> basically the medical personnel here are doing YOU the favour by

> being willing to see you. It took me 2.5 mths to have someone just

> LOOK at her, never mind talk about banding etc.

>

> As far as the pink spot is concerned she said that, yup, she will

> get one and unless it gets to med/dark pink/red there's nothing they

> can do. It has never faded completely even when I took off the band

> for 4-5 hours. At best it stays med pink but gets slightly

> smaller. Today at the adj she did shave out some in that spot so

> maybe that will help. Here in Calgary they tend to only band kids

> around 8-9 mths old because there is such a waitlist so they seem

> quite resentful that I got my 5.5 mth old in. Their attitude (one

> nurse mentioned to me)is that I pushed some older kid whose window

> of opportunity is shutting out of order. I didn't - I just merely

> pushed for the best care and said if we were going to band at all in

> the future I wanted a DOC and (very surprisingly) when I laid out my

> reasons to the neurosurgeon he said OK. I got lucky. An

> acquaintance I have will only be able to bring her son in for his

> first ever look at 8 mths (he's 5 mths now). The squeaky wheel

> thing is true and I was very squeaky.

>

> As far as StarScan measurements...they used the scanner as a guide

> whether or not to band her but neither the OT or the neurosurgeon

> would even look at the report. " Don't care about numbers, just how

> baby looks " was what they told me. Her StarScan measurements on Jan

> 6/2006 were:

>

> Diff between two diagonals: 17.2mm

> Cephalic Ratio: 74.4%

> Anterior Symmetry Ratio: 87.7%

> Posterior " " : 83.7%

> Overall " " : 85.7%

> Upper Face Left : 84.9%

> Upper Face Right : 79.7%

> Upper Facial " " : 84%

> Ear Offset : 6.6mm

>

> These are all I have and no one has been able to really explain too

> much about them. Olivia was one of the first babies they ever used

> the scan on. The OT just said it was pretty severe and that she

> would get her band.

>

> Any advice would be greatly appreciated. I am really hoping tonight

> goes better!

> Thanks and I hope to hear back!

>

>

>

>

>

> > >

> > > Hi,

> > >

> > > My daughter received her DOCband last Wed and none of us has

> slept a

> > > wink since then. I read the tips on how to adjust to the first

> band

> > > etc but nothing seems to be working. She does have a red spot

> on

> > > the back of her head but it is only the size of a dime and

> doesn't

> > > seem to be getting any worse or better (it's also a med pink but

> she

> > > is also very fair). I have tried to dress her lightly and she

> woke

> > > up frozen (I live in Canada) and then I tried to dress her

> heavier.

> > > Nothing is working. Prior to this she had been sleeping 12

> hours

> > > straight every night. Since the band went on she sleep max 4

> hours.

> > > Last night was every 2 hours; sometimes less! I felt like I

> had a

> > > newborn. We let her cry a little to see if she was really up

> but

> > > she would end up wailing and I would have to go in. She didn't

> even

> > > really want to nurse, just cuddle and she fell back asleep. I

> know

> > > we will stick with the band but emotionally I just want to throw

> in

> > > the towel. It's not just because we are so tired (we'll get

> over

> > > that) it's her crying when previously she almost never cried for

> > > anything. We have an adjustment today so I will be mentioning

> all

> > > this to the OT but I don't expect too much advice...she doesn't

> have

> > > the best " bed-side " manner. Pretty much all business. I know

> what

> > > she'll say...just wait it out. But I am desperate. At 4:00

> this

> > > morning I sat in my daughter's room in her rocking chair,

> nursing

> > > her and I bawled my eyes out like a baby. I couldn't help it.

> We

> > > had been so looking forward to getting this band to help fix

> things

> > > and I know it will in the long run but right now I am just worn

> > > out. I have a 2 1/2 year old boy who is potty-training and

> doing

> > > pretty much everything a toddler does. I am exhausted. FAmily

> is

> > > not the biggest help because t

> > heir advice is " Just take off the

> > > helmet " . This is their advice even though my daughter was

> severe

> > > accd to the STARscanner reports. Any advice would be great. Esp

> on

> > > how to dress them at night. It does get cold here. I have put

> her

> > > in long sleeve PJ's with a sleep sack. I have tried short

> sleeved

> > > PJ's with the sleep sack. I have tried no sleep sack. Either

> she

> > > is freezing or I presume she's hot. The rest of the family is

> > > freezing so I don't know how she's hot but maybe she is. I took

> her

> > > band off at 4:00 AM but her hair wasn't wet etc. I just don't

> know

> > > what to do. Heck, maybe she's teething? She's almost 6 mths

> old.

> > > But all this only started when the band went on.

> > > This is definately a really low point for us.

> > >

> > > Thanks,

> > >

> > >

> >

>

[Guest guest]

,

Can you post a picture of your baby in her band? Does it say DOCband

on it?

-- In Plagiocephaly , " cindysynchron "

<cindysynchron@...> wrote:

>

> Hi ,

>

> Thanks so much for writing back - it really helps to get a kind word

> when things are going so rough.

> She did get a DOC band but she also had a Starscan. I live in

> Calgary, Canada and at the end of Jan they transferred over from

> using the DOC's to the StarBands. AFter doing some research I

> thought I wanted the DOC because that's what the OT's here are

> familiar with. I didn't want Olivia to be part of the transition.

> The OT herself said she didn't feel comfy with the new STarband and

> that they have " never put it on a live child yet " . Didn't give me

> the warm fuzzy. So I fought tooth and nail and got Olivia casted

> for a DOC right before the change. WE have public health care so

> basically the medical personnel here are doing YOU the favour by

> being willing to see you. It took me 2.5 mths to have someone just

> LOOK at her, never mind talk about banding etc.

>

> As far as the pink spot is concerned she said that, yup, she will

> get one and unless it gets to med/dark pink/red there's nothing they

> can do. It has never faded completely even when I took off the band

> for 4-5 hours. At best it stays med pink but gets slightly

> smaller. Today at the adj she did shave out some in that spot so

> maybe that will help. Here in Calgary they tend to only band kids

> around 8-9 mths old because there is such a waitlist so they seem

> quite resentful that I got my 5.5 mth old in. Their attitude (one

> nurse mentioned to me)is that I pushed some older kid whose window

> of opportunity is shutting out of order. I didn't - I just merely

> pushed for the best care and said if we were going to band at all in

> the future I wanted a DOC and (very surprisingly) when I laid out my

> reasons to the neurosurgeon he said OK. I got lucky. An

> acquaintance I have will only be able to bring her son in for his

> first ever look at 8 mths (he's 5 mths now). The squeaky wheel

> thing is true and I was very squeaky.

>

> As far as StarScan measurements...they used the scanner as a guide

> whether or not to band her but neither the OT or the neurosurgeon

> would even look at the report. " Don't care about numbers, just how

> baby looks " was what they told me. Her StarScan measurements on Jan

> 6/2006 were:

>

> Diff between two diagonals: 17.2mm

> Cephalic Ratio: 74.4%

> Anterior Symmetry Ratio: 87.7%

> Posterior " " : 83.7%

> Overall " " : 85.7%

> Upper Face Left : 84.9%

> Upper Face Right : 79.7%

> Upper Facial " " : 84%

> Ear Offset : 6.6mm

>

> These are all I have and no one has been able to really explain too

> much about them. Olivia was one of the first babies they ever used

> the scan on. The OT just said it was pretty severe and that she

> would get her band.

>

> Any advice would be greatly appreciated. I am really hoping tonight

> goes better!

> Thanks and I hope to hear back!

>

>

>

>

>

> > >

> > > Hi,

> > >

> > > My daughter received her DOCband last Wed and none of us has

> slept a

> > > wink since then. I read the tips on how to adjust to the first

> band

> > > etc but nothing seems to be working. She does have a red spot

> on

> > > the back of her head but it is only the size of a dime and

> doesn't

> > > seem to be getting any worse or better (it's also a med pink but

> she

> > > is also very fair). I have tried to dress her lightly and she

> woke

> > > up frozen (I live in Canada) and then I tried to dress her

> heavier.

> > > Nothing is working. Prior to this she had been sleeping 12

> hours

> > > straight every night. Since the band went on she sleep max 4

> hours.

> > > Last night was every 2 hours; sometimes less! I felt like I

> had a

> > > newborn. We let her cry a little to see if she was really up

> but

> > > she would end up wailing and I would have to go in. She didn't

> even

> > > really want to nurse, just cuddle and she fell back asleep. I

> know

> > > we will stick with the band but emotionally I just want to throw

> in

> > > the towel. It's not just because we are so tired (we'll get

> over

> > > that) it's her crying when previously she almost never cried for

> > > anything. We have an adjustment today so I will be mentioning

> all

> > > this to the OT but I don't expect too much advice...she doesn't

> have

> > > the best " bed-side " manner. Pretty much all business. I know

> what

> > > she'll say...just wait it out. But I am desperate. At 4:00

> this

> > > morning I sat in my daughter's room in her rocking chair,

> nursing

> > > her and I bawled my eyes out like a baby. I couldn't help it.

> We

> > > had been so looking forward to getting this band to help fix

> things

> > > and I know it will in the long run but right now I am just worn

> > > out. I have a 2 1/2 year old boy who is potty-training and

> doing

> > > pretty much everything a toddler does. I am exhausted. FAmily

> is

> > > not the biggest help because t

> > heir advice is " Just take off the

> > > helmet " . This is their advice even though my daughter was

> severe

> > > accd to the STARscanner reports. Any advice would be great. Esp

> on

> > > how to dress them at night. It does get cold here. I have put

> her

> > > in long sleeve PJ's with a sleep sack. I have tried short

> sleeved

> > > PJ's with the sleep sack. I have tried no sleep sack. Either

> she

> > > is freezing or I presume she's hot. The rest of the family is

> > > freezing so I don't know how she's hot but maybe she is. I took

> her

> > > band off at 4:00 AM but her hair wasn't wet etc. I just don't

> know

> > > what to do. Heck, maybe she's teething? She's almost 6 mths

> old.

> > > But all this only started when the band went on.

> > > This is definately a really low point for us.

> > >

> > > Thanks,

> > >

> > >

> >

>