Re: Re: Armour aggravating Hashi's????

[Guest guest]

wouldn’t it be better then

to just get the thyroid removed instead of

going up and down? this has crossed my mind to ask my

endocrinologist.

Any feedback

Deana

I would say not, in case

once you have gone down that line there is no improvement & no return. You

never know, your thyroid might recover as things do sometimes...

As they say, when it’s gone,

it’s gone..

I am no expert however, this

is just my hunch

xx

Dianne

[Guest guest]

wouldn’t it be better then

to just get the thyroid removed instead of

going up and down? this has crossed my mind to ask my

endocrinologist.

Any feedback

Deana

I would say not, in case

once you have gone down that line there is no improvement & no return. You

never know, your thyroid might recover as things do sometimes...

As they say, when it’s gone,

it’s gone..

I am no expert however, this

is just my hunch

xx

Dianne

[Guest guest]

wouldn’t it be better then

to just get the thyroid removed instead of

going up and down? this has crossed my mind to ask my

endocrinologist.

Any feedback

Deana

I would say not, in case

once you have gone down that line there is no improvement & no return. You

never know, your thyroid might recover as things do sometimes...

As they say, when it’s gone,

it’s gone..

I am no expert however, this

is just my hunch

xx

Dianne

[Guest guest]

This is something that I've definitely been contemplating. I have Hashi's,

and anyone that doesn't have unstable Hashi's doesn't realize why we would

have such a radical viewpoint about this. With the ongoing feelings I've

been getting in my throat (shrinking and swelling, shrinking and swelling,

one day nothing, the next week painful), I can say right now that I would

LOVE to have mine taken out. One thing is staring us in the face here. The

Hashi's gland is always going to swing, so the meds are not likely to

" always " be right, no matter what we're taking, and that's just a fact.

It's making me weary these days to have to constantly wonder if I'm taking

the right amt, no matter what I'm taking. I'm so tired of antibodies

" tricking " my blood tests. Aaaaaaaaaaaa!!!!!!!!

Re: Re: Armour aggravating Hashi's????

> wouldnt it be better then to just get the thyroid removed instead of

> going up and down? this has crossed my mind to ask my endocrinologist.

> Any feedback

>

> Deana

>

>

> gossimerwingz wrote:

>

> > Hi.

> > uhmmm, I'm not sure, however, from my studies and past 20+ years

> > living with Hashimoto's Disease there is no end unless the Thyroid

> > gland quits working all together...dies off in otherwords...which

> > hasn't happened yet for me.

> > Although the swings are slower and easier to adjust to, I still have

> > hyper and hypo episodes.

[Guest guest]

This is something that I've definitely been contemplating. I have Hashi's,

and anyone that doesn't have unstable Hashi's doesn't realize why we would

have such a radical viewpoint about this. With the ongoing feelings I've

been getting in my throat (shrinking and swelling, shrinking and swelling,

one day nothing, the next week painful), I can say right now that I would

LOVE to have mine taken out. One thing is staring us in the face here. The

Hashi's gland is always going to swing, so the meds are not likely to

" always " be right, no matter what we're taking, and that's just a fact.

It's making me weary these days to have to constantly wonder if I'm taking

the right amt, no matter what I'm taking. I'm so tired of antibodies

" tricking " my blood tests. Aaaaaaaaaaaa!!!!!!!!

Re: Re: Armour aggravating Hashi's????

> wouldnt it be better then to just get the thyroid removed instead of

> going up and down? this has crossed my mind to ask my endocrinologist.

> Any feedback

>

> Deana

>

>

> gossimerwingz wrote:

>

> > Hi.

> > uhmmm, I'm not sure, however, from my studies and past 20+ years

> > living with Hashimoto's Disease there is no end unless the Thyroid

> > gland quits working all together...dies off in otherwords...which

> > hasn't happened yet for me.

> > Although the swings are slower and easier to adjust to, I still have

> > hyper and hypo episodes.

[Guest guest]

My understanding, from various reading over the yrs, is that T4 is actually

needed for the heart. I haven't been able to find anywhere where they can

locate other places that direct T4 is needed. I'm not saying that the heart

doesn't also need it converted to T3 also, but that it does use some direct

T4. It all makes me wonder why our gland produces so much more T4 than T3.

I know that it slowly converts, so it wouldn't be such a " shock " to the

system, but I wonder if there are other reasons than this.

Re: Armour aggravating Hashi's????

> Hi.

> uhmmm, I'm not sure, however, from my studies and past 20+ years

> living with Hashimoto's Disease there is no end unless the Thyroid

> gland quits working all together...dies off in otherwords...which

> hasn't happened yet for me.

> Although the swings are slower and easier to adjust to, I still have

> hyper and hypo episodes.

>

> Hashimoto's disease is an autoimmune disease...Your own body has

> decided to kill off the Thyroid gland, the Master Gland of all

> Glands, and once the damage is done the Thyroid does not heal itself

> because all attempts to heal itself are killed off by the antibodies

> that attacked the gland the first time around.

>

> I'd be curious to learn of what and on what this doctor bases her

> treatment of Hashimoto's AutoImmune Disease. If it works, I'd be one

> of the first to sign up for the treatment as I am so tired of being

> tired.......... If this treatment works, and has a history behind

> it, I want to learn more about it!!!

>

> Gossimer

[Guest guest]

My understanding, from various reading over the yrs, is that T4 is actually

needed for the heart. I haven't been able to find anywhere where they can

locate other places that direct T4 is needed. I'm not saying that the heart

doesn't also need it converted to T3 also, but that it does use some direct

T4. It all makes me wonder why our gland produces so much more T4 than T3.

I know that it slowly converts, so it wouldn't be such a " shock " to the

system, but I wonder if there are other reasons than this.

Re: Armour aggravating Hashi's????

> Hi.

> uhmmm, I'm not sure, however, from my studies and past 20+ years

> living with Hashimoto's Disease there is no end unless the Thyroid

> gland quits working all together...dies off in otherwords...which

> hasn't happened yet for me.

> Although the swings are slower and easier to adjust to, I still have

> hyper and hypo episodes.

>

> Hashimoto's disease is an autoimmune disease...Your own body has

> decided to kill off the Thyroid gland, the Master Gland of all

> Glands, and once the damage is done the Thyroid does not heal itself

> because all attempts to heal itself are killed off by the antibodies

> that attacked the gland the first time around.

>

> I'd be curious to learn of what and on what this doctor bases her

> treatment of Hashimoto's AutoImmune Disease. If it works, I'd be one

> of the first to sign up for the treatment as I am so tired of being

> tired.......... If this treatment works, and has a history behind

> it, I want to learn more about it!!!

>

> Gossimer

[Guest guest]

My understanding, from various reading over the yrs, is that T4 is actually

needed for the heart. I haven't been able to find anywhere where they can

locate other places that direct T4 is needed. I'm not saying that the heart

doesn't also need it converted to T3 also, but that it does use some direct

T4. It all makes me wonder why our gland produces so much more T4 than T3.

I know that it slowly converts, so it wouldn't be such a " shock " to the

system, but I wonder if there are other reasons than this.

Re: Armour aggravating Hashi's????

> Hi.

> uhmmm, I'm not sure, however, from my studies and past 20+ years

> living with Hashimoto's Disease there is no end unless the Thyroid

> gland quits working all together...dies off in otherwords...which

> hasn't happened yet for me.

> Although the swings are slower and easier to adjust to, I still have

> hyper and hypo episodes.

>

> Hashimoto's disease is an autoimmune disease...Your own body has

> decided to kill off the Thyroid gland, the Master Gland of all

> Glands, and once the damage is done the Thyroid does not heal itself

> because all attempts to heal itself are killed off by the antibodies

> that attacked the gland the first time around.

>

> I'd be curious to learn of what and on what this doctor bases her

> treatment of Hashimoto's AutoImmune Disease. If it works, I'd be one

> of the first to sign up for the treatment as I am so tired of being

> tired.......... If this treatment works, and has a history behind

> it, I want to learn more about it!!!

>

> Gossimer

[Guest guest]

anyone that doesn't have

unstable Hashi's doesn't realize why we would

have such a radical viewpoint about this.

OK.. I see it must be a

nightmare, & can understand now why you would like to go under the knife..!

Dianne

[Guest guest]

anyone that doesn't have

unstable Hashi's doesn't realize why we would

have such a radical viewpoint about this.

OK.. I see it must be a

nightmare, & can understand now why you would like to go under the knife..!

Dianne

[Guest guest]

anyone that doesn't have

unstable Hashi's doesn't realize why we would

have such a radical viewpoint about this.

OK.. I see it must be a

nightmare, & can understand now why you would like to go under the knife..!

Dianne

[Guest guest]

Some docs are adamant about yanking the thyroid to make things easier... but when you consider the potential risks of all surgery plus what can POSSIBLY happen with thyroidectomy that can be anywhere from a change in the voice to loss of the ability to taste .... it's a big risk to take just to make it 'easy'.

I wish I still had mine.... see... when you don't have one... and run out of meds.. there is nothing... absolutely nothing, to fall back on... unless, of course, you start hitting pig farms and giving deep vacuum hickeys in the middle of the night!!! hehehehehehe

Topper () *here piggy piggy piggy!*

On Wed, 05 Oct 2005 08:51:36 -0500 Deana Brown writes:

wouldnt it be better then to just get the thyroid removed instead of going up and down? this has crossed my mind to ask my endocrinologist. Any feedbackDeana

[Guest guest]

Some docs are adamant about yanking the thyroid to make things easier... but when you consider the potential risks of all surgery plus what can POSSIBLY happen with thyroidectomy that can be anywhere from a change in the voice to loss of the ability to taste .... it's a big risk to take just to make it 'easy'.

I wish I still had mine.... see... when you don't have one... and run out of meds.. there is nothing... absolutely nothing, to fall back on... unless, of course, you start hitting pig farms and giving deep vacuum hickeys in the middle of the night!!! hehehehehehe

Topper () *here piggy piggy piggy!*

On Wed, 05 Oct 2005 08:51:36 -0500 Deana Brown writes:

wouldnt it be better then to just get the thyroid removed instead of going up and down? this has crossed my mind to ask my endocrinologist. Any feedbackDeana

[Guest guest]

Some docs are adamant about yanking the thyroid to make things easier... but when you consider the potential risks of all surgery plus what can POSSIBLY happen with thyroidectomy that can be anywhere from a change in the voice to loss of the ability to taste .... it's a big risk to take just to make it 'easy'.

I wish I still had mine.... see... when you don't have one... and run out of meds.. there is nothing... absolutely nothing, to fall back on... unless, of course, you start hitting pig farms and giving deep vacuum hickeys in the middle of the night!!! hehehehehehe

Topper () *here piggy piggy piggy!*

On Wed, 05 Oct 2005 08:51:36 -0500 Deana Brown writes:

wouldnt it be better then to just get the thyroid removed instead of going up and down? this has crossed my mind to ask my endocrinologist. Any feedbackDeana

[Guest guest]

See? How do you know what the other guy feels like? I just commented on how it sucks to not have a gland at all... always wondering if what I'm taking is gonna make up for all the things that my body can no longer do on it's own...

I wonder if my constantly having to multi-dose has to do with there being no natural production at all..... How will we EVER find out this stuff... no one seems to care enough to research it.....

All we can do is share our experiences and hopefully, over time, we'll be able to pull it all together to where it's gonna start making sense.

sigh

Topper ()

On Wed, 5 Oct 2005 12:32:46 -0500 " " writes:

This is something that I've definitely been contemplating. I have Hashi's,and anyone that doesn't have unstable Hashi's doesn't realize why we wouldhave such a radical viewpoint about this. With the ongoing feelings I'vebeen getting in my throat (shrinking and swelling, shrinking and swelling,one day nothing, the next week painful), I can say right now that I wouldLOVE to have mine taken out. One thing is staring us in the face here. TheHashi's gland is always going to swing, so the meds are not likely to"always" be right, no matter what we're taking, and that's just a fact.It's making me weary these days to have to constantly wonder if I'm takingthe right amt, no matter what I'm taking. I'm so tired of antibodies"tricking" my blood tests. Aaaaaaaaaaaa!!!!!!!!

[Guest guest]

See? How do you know what the other guy feels like? I just commented on how it sucks to not have a gland at all... always wondering if what I'm taking is gonna make up for all the things that my body can no longer do on it's own...

I wonder if my constantly having to multi-dose has to do with there being no natural production at all..... How will we EVER find out this stuff... no one seems to care enough to research it.....

All we can do is share our experiences and hopefully, over time, we'll be able to pull it all together to where it's gonna start making sense.

sigh

Topper ()

On Wed, 5 Oct 2005 12:32:46 -0500 " " writes:

This is something that I've definitely been contemplating. I have Hashi's,and anyone that doesn't have unstable Hashi's doesn't realize why we wouldhave such a radical viewpoint about this. With the ongoing feelings I'vebeen getting in my throat (shrinking and swelling, shrinking and swelling,one day nothing, the next week painful), I can say right now that I wouldLOVE to have mine taken out. One thing is staring us in the face here. TheHashi's gland is always going to swing, so the meds are not likely to"always" be right, no matter what we're taking, and that's just a fact.It's making me weary these days to have to constantly wonder if I'm takingthe right amt, no matter what I'm taking. I'm so tired of antibodies"tricking" my blood tests. Aaaaaaaaaaaa!!!!!!!!

[Guest guest]

See? How do you know what the other guy feels like? I just commented on how it sucks to not have a gland at all... always wondering if what I'm taking is gonna make up for all the things that my body can no longer do on it's own...

I wonder if my constantly having to multi-dose has to do with there being no natural production at all..... How will we EVER find out this stuff... no one seems to care enough to research it.....

All we can do is share our experiences and hopefully, over time, we'll be able to pull it all together to where it's gonna start making sense.

sigh

Topper ()

On Wed, 5 Oct 2005 12:32:46 -0500 " " writes:

This is something that I've definitely been contemplating. I have Hashi's,and anyone that doesn't have unstable Hashi's doesn't realize why we wouldhave such a radical viewpoint about this. With the ongoing feelings I'vebeen getting in my throat (shrinking and swelling, shrinking and swelling,one day nothing, the next week painful), I can say right now that I wouldLOVE to have mine taken out. One thing is staring us in the face here. TheHashi's gland is always going to swing, so the meds are not likely to"always" be right, no matter what we're taking, and that's just a fact.It's making me weary these days to have to constantly wonder if I'm takingthe right amt, no matter what I'm taking. I'm so tired of antibodies"tricking" my blood tests. Aaaaaaaaaaaa!!!!!!!!

[Guest guest]

I've wondered about that myself.... like the comments about ferritn levels needing to be correct to feel well even if the iron levels are still sufficient.. there is a check and balance thing going on here.. the that various parts of the body need to know that the T4 levels are sufficient for future needs or they back off in there functions or something.... Our bodies do that with metabolism.. if insufficient food is not coming in metabolism is slowed down to conserve energy and the body fights to maintain current fat stores at the cost of available energy.... the body needs to keep it's backups stocked and in place to be able to go on with life, it seems.

Topper ()

On Wed, 5 Oct 2005 12:41:58 -0500 " " writes:

My understanding, from various reading over the yrs, is that T4 is actuallyneeded for the heart. I haven't been able to find anywhere where they canlocate other places that direct T4 is needed. I'm not saying that the heartdoesn't also need it converted to T3 also, but that it does use some directT4. It all makes me wonder why our gland produces so much more T4 than T3.I know that it slowly converts, so it wouldn't be such a "shock" to thesystem, but I wonder if there are other reasons than this.

[Guest guest]

I've wondered about that myself.... like the comments about ferritn levels needing to be correct to feel well even if the iron levels are still sufficient.. there is a check and balance thing going on here.. the that various parts of the body need to know that the T4 levels are sufficient for future needs or they back off in there functions or something.... Our bodies do that with metabolism.. if insufficient food is not coming in metabolism is slowed down to conserve energy and the body fights to maintain current fat stores at the cost of available energy.... the body needs to keep it's backups stocked and in place to be able to go on with life, it seems.

Topper ()

On Wed, 5 Oct 2005 12:41:58 -0500 " " writes:

My understanding, from various reading over the yrs, is that T4 is actuallyneeded for the heart. I haven't been able to find anywhere where they canlocate other places that direct T4 is needed. I'm not saying that the heartdoesn't also need it converted to T3 also, but that it does use some directT4. It all makes me wonder why our gland produces so much more T4 than T3.I know that it slowly converts, so it wouldn't be such a "shock" to thesystem, but I wonder if there are other reasons than this.

[Guest guest]

I've wondered about that myself.... like the comments about ferritn levels needing to be correct to feel well even if the iron levels are still sufficient.. there is a check and balance thing going on here.. the that various parts of the body need to know that the T4 levels are sufficient for future needs or they back off in there functions or something.... Our bodies do that with metabolism.. if insufficient food is not coming in metabolism is slowed down to conserve energy and the body fights to maintain current fat stores at the cost of available energy.... the body needs to keep it's backups stocked and in place to be able to go on with life, it seems.

Topper ()

On Wed, 5 Oct 2005 12:41:58 -0500 " " writes:

My understanding, from various reading over the yrs, is that T4 is actuallyneeded for the heart. I haven't been able to find anywhere where they canlocate other places that direct T4 is needed. I'm not saying that the heartdoesn't also need it converted to T3 also, but that it does use some directT4. It all makes me wonder why our gland produces so much more T4 than T3.I know that it slowly converts, so it wouldn't be such a "shock" to thesystem, but I wonder if there are other reasons than this.

[Guest guest]

a change in

the voice to loss of the ability to taste .... it's a big risk to take just to

make it 'easy'.

I wish I still

had mine.... see... when you don't have one... and run out of meds.. there is

nothing... absolutely nothing, to fall back on...

, I did think this might be the case.. you don’t know what you’ve

got.. till it’s gone..( as well as

‘ something is better than nothing!’

Dianne

[Guest guest]

a change in

the voice to loss of the ability to taste .... it's a big risk to take just to

make it 'easy'.

I wish I still

had mine.... see... when you don't have one... and run out of meds.. there is

nothing... absolutely nothing, to fall back on...

, I did think this might be the case.. you don’t know what you’ve

got.. till it’s gone..( as well as

‘ something is better than nothing!’

Dianne

[Guest guest]

That's exactly it... In my case I wasn't dealing with disease or cancer... my gland could have been medicated to readjust it and then monitored... but because the doc that I saw didn't know squat all he could say was that I was 'too fat to be sick' and tell me to go home.

From all that I've learned it wouldn't have been that difficult to get mine under control. My gland was healthy with no problems, it was my TSH receptors that where at fault.... so as the years passed and I went through issues and stresses my gland just started to produce more and more hormone, it had no signals to slow down..... I'd have had to monitor... and maybe medicate to lower production if it started creeping up again... but I'd have still had my gland.... but by the time the symptoms got bad enough to affect my job and make me go back in to see a doc they had to kill it, or it would kill me..

That is soo sad. I was so messed up that I stopped sleeping so that I could stay up to eat, and I was barely able to maintain my weight. I was running the air conditioner in my truck because I was too warm, in Minnesota, with snow on the ground and everyone else wearing heavy coats and gloves.. I'm in a short sleeved shirt running the AC. All these things getting worse and worse for me and I'm afraid to go back to a doc cuz the last one said that I was 'too fat to be sick'. I'd gone in for excessive unexplained weight loss and extreme thirst. I lost 40 pounds in 30 days and all this jerk doc could say is that I was 'too fat to be sick'. He wrote that on my chart. He didnt' test me, didn't care about my symptoms...

So by the time it's affecting my job, I can't lift my arms above my waist... and go back in to see a doc my thyroid is so hyper that they tell me if they don't kill it today it will kill me. So that's what they did. They killed it...

That's soo wrong... I went another decade thinking that I was the only one that stuff like this happened to. Then I met you guys and hundreds others like you.... blown off by docs, ignored, abused, put down, insulted or treated like morons....

It's the whole thing that is wrong.. We're people, human beings, that happen to have a body part that doesn't work quite like it should. Diabetics are cared for, Epileptics are cared for, Paraplegics are cared for... then there is us.

You know what my personal opinion is? Why they heck can't they develop a daily test for us, so that we can see how we are converting and adjust for our circumstance? This has really hit home for me again in the last couple of weeks. I'm downsliding.. haven't figured out why... but it SUCKS. I don't know if it's the change in the season, the change in my supplements, stress, or that walk I took a 2 1/2 weeks ago. Something has thrown my system off and I can't figure out what.

You can order a TSH kit to test TSH at home, did you know that? It's around $75 at some places... around $45 at others... Way too high a price for something that doesn't tell you anything. TSH doesn't change immediately according to the body's needs. It's changes happen weeks or more after the cause.. that's why our bodies store T4, so that we have a reserve of hormone to draw from to make the hormones that our bodies use for daily function. Otherwise our poor thyroid glands would have to shoot production up to cover us in high need times and then back off for mellow times.. that's hard on glands... look what happens to our adrenals when they get over stressed for too long.. they start to sputter and spurt, not giving us the hormones that we need when we need them... they, too, have a hormone reserve system, but it can be abused for only so long before it affects the glands themselves.... Why can't we be offered the tools that we need to monitor this stuff better and help our bodies?

I know... because what we have probably won't kill us.... Just make us miserable for years and years and years and keep the pockets of the pharmaceutical companies well lined with our money.

I'm having a bad morning me thinks... Maybe I shouldn't be here today......

Topper ()

On Thu, 6 Oct 2005 10:27:32 +0100 "Dianne Lam" writes:

a change in the voice to loss of the ability to taste .... it's a big risk to take just to make it 'easy'.

I wish I still had mine.... see... when you don't have one... and run out of meds.. there is nothing... absolutely nothing, to fall back on...

, I did think this might be the case.. you don’t know what you’ve got.. till it’s gone..( as well as ‘ something is better than nothing!’

Dianne

[Guest guest]

Hey , keep your chin up. You know we're here for you in the ups and downs, just like you are for us. You've brought up an interesting point that I wanted to ask you about - if you have a particularly stressful or tiring few days, is that likely to affect how hypo you are? And will it all even out within a week or so, of it's own accord?

Love Chris

That's exactly it... In my case I wasn't dealing with disease or cancer... my gland could have been medicated to readjust it and then monitored... but because the doc that I saw didn't know squat all he could say was that I was 'too fat to be sick' and tell me to go home.

From all that I've learned it wouldn't have been that difficult to get mine under control. My gland was healthy with no problems, it was my TSH receptors that where at fault.... so as the years passed and I went through issues and stresses my gland just started to produce more and more hormone, it had no signals to slow down..... I'd have had to monitor... and maybe medicate to lower production if it started creeping up again... but I'd have still had my gland.... but by the time the symptoms got bad enough to affect my job and make me go back in to see a doc they had to kill it, or it would kill me..

That is soo sad. I was so messed up that I stopped sleeping so that I could stay up to eat, and I was barely able to maintain my weight. I was running the air conditioner in my truck because I was too warm, in Minnesota, with snow on the ground and everyone else wearing heavy coats and gloves.. I'm in a short sleeved shirt running the AC. All these things getting worse and worse for me and I'm afraid to go back to a doc cuz the last one said that I was 'too fat to be sick'. I'd gone in for excessive unexplained weight loss and extreme thirst. I lost 40 pounds in 30 days and all this jerk doc could say is that I was 'too fat to be sick'. He wrote that on my chart. He didnt' test me, didn't care about my symptoms...

So by the time it's affecting my job, I can't lift my arms above my waist... and go back in to see a doc my thyroid is so hyper that they tell me if they don't kill it today it will kill me. So that's what they did. They killed it...

That's soo wrong... I went another decade thinking that I was the only one that stuff like this happened to. Then I met you guys and hundreds others like you.... blown off by docs, ignored, abused, put down, insulted or treated like morons....

It's the whole thing that is wrong.. We're people, human beings, that happen to have a body part that doesn't work quite like it should. Diabetics are cared for, Epileptics are cared for, Paraplegics are cared for... then there is us.

You know what my personal opinion is? Why they heck can't they develop a daily test for us, so that we can see how we are converting and adjust for our circumstance? This has really hit home for me again in the last couple of weeks. I'm downsliding.. haven't figured out why... but it SUCKS. I don't know if it's the change in the season, the change in my supplements, stress, or that walk I took a 2 1/2 weeks ago. Something has thrown my system off and I can't figure out what.

You can order a TSH kit to test TSH at home, did you know that? It's around $75 at some places... around $45 at others... Way too high a price for something that doesn't tell you anything. TSH doesn't change immediately according to the body's needs. It's changes happen weeks or more after the cause.. that's why our bodies store T4, so that we have a reserve of hormone to draw from to make the hormones that our bodies use for daily function. Otherwise our poor thyroid glands would have to shoot production up to cover us in high need times and then back off for mellow times.. that's hard on glands... look what happens to our adrenals when they get over stressed for too long.. they start to sputter and spurt, not giving us the hormones that we need when we need them... they, too, have a hormone reserve system, but it can be abused for only so long before it affects the glands themselves.... Why can't we be offered the tools that we need to monitor this stuff better and help our bodies?

I know... because what we have probably won't kill us.... Just make us miserable for years and years and years and keep the pockets of the pharmaceutical companies well lined with our money.

I'm having a bad morning me thinks... Maybe I shouldn't be here today......

Topper ()

[Guest guest]

Hey , keep your chin up. You know we're here for you in the ups and downs, just like you are for us. You've brought up an interesting point that I wanted to ask you about - if you have a particularly stressful or tiring few days, is that likely to affect how hypo you are? And will it all even out within a week or so, of it's own accord?

Love Chris

That's exactly it... In my case I wasn't dealing with disease or cancer... my gland could have been medicated to readjust it and then monitored... but because the doc that I saw didn't know squat all he could say was that I was 'too fat to be sick' and tell me to go home.

From all that I've learned it wouldn't have been that difficult to get mine under control. My gland was healthy with no problems, it was my TSH receptors that where at fault.... so as the years passed and I went through issues and stresses my gland just started to produce more and more hormone, it had no signals to slow down..... I'd have had to monitor... and maybe medicate to lower production if it started creeping up again... but I'd have still had my gland.... but by the time the symptoms got bad enough to affect my job and make me go back in to see a doc they had to kill it, or it would kill me..

That is soo sad. I was so messed up that I stopped sleeping so that I could stay up to eat, and I was barely able to maintain my weight. I was running the air conditioner in my truck because I was too warm, in Minnesota, with snow on the ground and everyone else wearing heavy coats and gloves.. I'm in a short sleeved shirt running the AC. All these things getting worse and worse for me and I'm afraid to go back to a doc cuz the last one said that I was 'too fat to be sick'. I'd gone in for excessive unexplained weight loss and extreme thirst. I lost 40 pounds in 30 days and all this jerk doc could say is that I was 'too fat to be sick'. He wrote that on my chart. He didnt' test me, didn't care about my symptoms...

So by the time it's affecting my job, I can't lift my arms above my waist... and go back in to see a doc my thyroid is so hyper that they tell me if they don't kill it today it will kill me. So that's what they did. They killed it...

That's soo wrong... I went another decade thinking that I was the only one that stuff like this happened to. Then I met you guys and hundreds others like you.... blown off by docs, ignored, abused, put down, insulted or treated like morons....

It's the whole thing that is wrong.. We're people, human beings, that happen to have a body part that doesn't work quite like it should. Diabetics are cared for, Epileptics are cared for, Paraplegics are cared for... then there is us.

You know what my personal opinion is? Why they heck can't they develop a daily test for us, so that we can see how we are converting and adjust for our circumstance? This has really hit home for me again in the last couple of weeks. I'm downsliding.. haven't figured out why... but it SUCKS. I don't know if it's the change in the season, the change in my supplements, stress, or that walk I took a 2 1/2 weeks ago. Something has thrown my system off and I can't figure out what.

You can order a TSH kit to test TSH at home, did you know that? It's around $75 at some places... around $45 at others... Way too high a price for something that doesn't tell you anything. TSH doesn't change immediately according to the body's needs. It's changes happen weeks or more after the cause.. that's why our bodies store T4, so that we have a reserve of hormone to draw from to make the hormones that our bodies use for daily function. Otherwise our poor thyroid glands would have to shoot production up to cover us in high need times and then back off for mellow times.. that's hard on glands... look what happens to our adrenals when they get over stressed for too long.. they start to sputter and spurt, not giving us the hormones that we need when we need them... they, too, have a hormone reserve system, but it can be abused for only so long before it affects the glands themselves.... Why can't we be offered the tools that we need to monitor this stuff better and help our bodies?

I know... because what we have probably won't kill us.... Just make us miserable for years and years and years and keep the pockets of the pharmaceutical companies well lined with our money.

I'm having a bad morning me thinks... Maybe I shouldn't be here today......

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