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Re: Re: Armour aggravating Hashi's???? for Topper from Rita in Pa

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Dear ,

Hi. I've been there with doctors that don't have a clue. My sister told me for 20 years that I had a thyroid problem. It didn't show in tests until I was 40, which was back in '96 and I had RAI in '97.

Two years ago I had a doctor leave and new doctot took me off a lot of meds- cold turkey. I lost a full week's memory. Then I had asked the new doctor for Armour-- no good-he put me on only T3(cymotel) for 6 months then added T4 when I told him I couldn't get out of bed -- he left - new doctor - doesn't under satand why I'm upset that * years after RAI, they still screw me up.

I have an appt on November 15th with Dr. Dorsey. He does Armour and is listed on About.com Top Doc list and Does at least T3 + T4 testing. I'm self-treating until then.

I hope your day gets better.

Sending Love, Rita in Pa wrote:

Hey , keep your chin up. You know we're here for you in the ups and downs, just like you are for us. You've brought up an interesting point that I wanted to ask you about - if you have a particularly stressful or tiring few days, is that likely to affect how hypo you are? And will it all even out within a week or so, of it's own accord?

Love Chris

That's exactly it... In my case I wasn't dealing with disease or cancer... my gland could have been medicated to readjust it and then monitored... but because the doc that I saw didn't know squat all he could say was that I was 'too fat to be sick' and tell me to go home.

From all that I've learned it wouldn't have been that difficult to get mine under control. My gland was healthy with no problems, it was my TSH receptors that where at fault.... so as the years passed and I went through issues and stresses my gland just started to produce more and more hormone, it had no signals to slow down..... I'd have had to monitor... and maybe medicate to lower production if it started creeping up again... but I'd have still had my gland.... but by the time the symptoms got bad enough to affect my job and make me go back in to see a doc they had to kill it, or it would kill me..

That is soo sad. I was so messed up that I stopped sleeping so that I could stay up to eat, and I was barely able to maintain my weight. I was running the air conditioner in my truck because I was too warm, in Minnesota, with snow on the ground and everyone else wearing heavy coats and gloves.. I'm in a short sleeved shirt running the AC. All these things getting worse and worse for me and I'm afraid to go back to a doc cuz the last one said that I was 'too fat to be sick'. I'd gone in for excessive unexplained weight loss and extreme thirst. I lost 40 pounds in 30 days and all this jerk doc could say is that I was 'too fat to be sick'. He wrote that on my chart. He didnt' test me, didn't care about my symptoms...

So by the time it's affecting my job, I can't lift my arms above my waist... and go back in to see a doc my thyroid is so hyper that they tell me if they don't kill it today it will kill me. So that's what they did. They killed it...

That's soo wrong... I went another decade thinking that I was the only one that stuff like this happened to. Then I met you guys and hundreds others like you.... blown off by docs, ignored, abused, put down, insulted or treated like morons....

It's the whole thing that is wrong.. We're people, human beings, that happen to have a body part that doesn't work quite like it should. Diabetics are cared for, Epileptics are cared for, Paraplegics are cared for... then there is us.

You know what my personal opinion is? Why they heck can't they develop a daily test for us, so that we can see how we are converting and adjust for our circumstance? This has really hit home for me again in the last couple of weeks. I'm downsliding.. haven't figured out why... but it SUCKS. I don't know if it's the change in the season, the change in my supplements, stress, or that walk I took a 2 1/2 weeks ago. Something has thrown my system off and I can't figure out what.

You can order a TSH kit to test TSH at home, did you know that? It's around $75 at some places... around $45 at others... Way too high a price for something that doesn't tell you anything. TSH doesn't change immediately according to the body's needs. It's changes happen weeks or more after the cause.. that's why our bodies store T4, so that we have a reserve of hormone to draw from to make the hormones that our bodies use for daily function. Otherwise our poor thyroid glands would have to shoot production up to cover us in high need times and then back off for mellow times.. that's hard on glands... look what happens to our adrenals when they get over stressed for too long.. they start to sputter and spurt, not giving us the hormones that we need when we need them... they, too, have a hormone reserve system, but it can be abused for only so long before it affects the glands themselves.... Why can't we be offered the tools that we need to monitor this stuff better and help our

bodies?

I know... because what we have probably won't kill us.... Just make us miserable for years and years and years and keep the pockets of the pharmaceutical companies well lined with our money.

I'm having a bad morning me thinks... Maybe I shouldn't be here today......

Topper ()

Yahoo! for Good Click here to donate to the Hurricane Katrina relief effort.

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Dear ,

I know you've been through a lot! I waited 2 years and went through 3 doctors before getting to a rheumatologist. I was so excited we might get to the bottom of things. I was in such pain at that point and had so many sick occurances at work. He did some tests, very quickly. Dismissed me as "you need to loose weight" I was just too fat....well, DUH!!! I had gained 100 lbs in one year. My original doctor had to be talked into testing my thyroid back then. When the results came back that I was hypothyroid, he was amazed. He just thought I was lazy and "needed a man to make my life complete." GEESH!

Please know that all things happen for a reason. Maybe you went through what you did, so you could trail blaze a solution for the rest of us. I have only been participating for a short time, and already you have given me great insight. It's a shame you had to suffer, but you are making a HUGE difference in our lives!

Love and blessings,

Re: Re: Armour aggravating Hashi's???? for Topper from Rita in Pa

Dear ,

Hi. I've been there with doctors that don't have a clue. My sister told me for 20 years that I had a thyroid problem. It didn't show in tests until I was 40, which was back in '96 and I had RAI in '97.

Two years ago I had a doctor leave and new doctot took me off a lot of meds- cold turkey. I lost a full week's memory. Then I had asked the new doctor for Armour-- no good-he put me on only T3(cymotel) for 6 months then added T4 when I told him I couldn't get out of bed -- he left - new doctor - doesn't under satand why I'm upset that * years after RAI, they still screw me up.

I have an appt on November 15th with Dr. Dorsey. He does Armour and is listed on About.com Top Doc list and Does at least T3 + T4 testing. I'm self-treating until then.

I hope your day gets better.

Sending Love, Rita in Pa wrote:

Hey , keep your chin up. You know we're here for you in the ups and downs, just like you are for us. You've brought up an interesting point that I wanted to ask you about - if you have a particularly stressful or tiring few days, is that likely to affect how hypo you are? And will it all even out within a week or so, of it's own accord?

Love Chris

That's exactly it... In my case I wasn't dealing with disease or cancer... my gland could have been medicated to readjust it and then monitored... but because the doc that I saw didn't know squat all he could say was that I was 'too fat to be sick' and tell me to go home.

From all that I've learned it wouldn't have been that difficult to get mine under control. My gland was healthy with no problems, it was my TSH receptors that where at fault.... so as the years passed and I went through issues and stresses my gland just started to produce more and more hormone, it had no signals to slow down..... I'd have had to monitor... and maybe medicate to lower production if it started creeping up again... but I'd have still had my gland.... but by the time the symptoms got bad enough to affect my job and make me go back in to see a doc they had to kill it, or it would kill me..

That is soo sad. I was so messed up that I stopped sleeping so that I could stay up to eat, and I was barely able to maintain my weight. I was running the air conditioner in my truck because I was too warm, in Minnesota, with snow on the ground and everyone else wearing heavy coats and gloves.. I'm in a short sleeved shirt running the AC. All these things getting worse and worse for me and I'm afraid to go back to a doc cuz the last one said that I was 'too fat to be sick'. I'd gone in for excessive unexplained weight loss and extreme thirst. I lost 40 pounds in 30 days and all this jerk doc could say is that I was 'too fat to be sick'. He wrote that on my chart. He didnt' test me, didn't care about my symptoms...

So by the time it's affecting my job, I can't lift my arms above my waist... and go back in to see a doc my thyroid is so hyper that they tell me if they don't kill it today it will kill me. So that's what they did. They killed it...

That's soo wrong... I went another decade thinking that I was the only one that stuff like this happened to. Then I met you guys and hundreds others like you.... blown off by docs, ignored, abused, put down, insulted or treated like morons....

It's the whole thing that is wrong.. We're people, human beings, that happen to have a body part that doesn't work quite like it should. Diabetics are cared for, Epileptics are cared for, Paraplegics are cared for... then there is us.

You know what my personal opinion is? Why they heck can't they develop a daily test for us, so that we can see how we are converting and adjust for our circumstance? This has really hit home for me again in the last couple of weeks. I'm downsliding.. haven't figured out why... but it SUCKS. I don't know if it's the change in the season, the change in my supplements, stress, or that walk I took a 2 1/2 weeks ago. Something has thrown my system off and I can't figure out what.

You can order a TSH kit to test TSH at home, did you know that? It's around $75 at some places... around $45 at others... Way too high a price for something that doesn't tell you anything. TSH doesn't change immediately according to the body's needs. It's changes happen weeks or more after the cause.. that's why our bodies store T4, so that we have a reserve of hormone to draw from to make the hormones that our bodies use for daily function. Otherwise our poor thyroid glands would have to shoot production up to cover us in high need times and then back off for mellow times.. that's hard on glands... look what happens to our adrenals when they get over stressed for too long.. they start to sputter and spurt, not giving us the hormones that we need when we need them... they, too, have a hormone reserve system, but it can be abused for only so long before it affects the glands themselves.... Why can't we be offered the tools that we need to monitor this stuff better and help our bodies?

I know... because what we have probably won't kill us.... Just make us miserable for years and years and years and keep the pockets of the pharmaceutical companies well lined with our money.

I'm having a bad morning me thinks... Maybe I shouldn't be here today......

Topper ()

Yahoo! for GoodClick here to donate to the Hurricane Katrina relief effort.

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Can I also say, lets hear it for !!

The amount of time she is devoting to helping folk on this list is just

amazing.

I hope good health will be the reward for your kindness, . We do

SO appreciate it.

Hugs,

Dianne

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Can I also say, lets hear it for !!

The amount of time she is devoting to helping folk on this list is just

amazing.

I hope good health will be the reward for your kindness, . We do

SO appreciate it.

Hugs,

Dianne

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Share on other sites

Can I also say, lets hear it for !!

The amount of time she is devoting to helping folk on this list is just

amazing.

I hope good health will be the reward for your kindness, . We do

SO appreciate it.

Hugs,

Dianne

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Yes, I will back that up with all my heart !!!!! Beautifully put! Love Chris.

Dear ,

I know you've been through a lot! I waited 2 years and went through 3 doctors before getting to a rheumatologist. I was so excited we might get to the bottom of things. I was in such pain at that point and had so many sick occurances at work. He did some tests, very quickly. Dismissed me as "you need to loose weight" I was just too fat....well, DUH!!! I had gained 100 lbs in one year. My original doctor had to be talked into testing my thyroid back then. When the results came back that I was hypothyroid, he was amazed. He just thought I was lazy and "needed a man to make my life complete." GEESH!

Please know that all things happen for a reason. Maybe you went through what you did, so you could trail blaze a solution for the rest of us. I have only been participating for a short time, and already you have given me great insight. It's a shame you had to suffer, but you are making a HUGE difference in our lives!

Love and blessings,

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Yes, I think our next theme day should be directed at :-)))))) And we won't listen to her protesting that she'll be embarrassed:-)))) Love Chris:-)

Can I also say, lets hear it for !!

The amount of time she is devoting to helping folk on this list is just amazing.

I hope good health will be the reward for your kindness, . We do SO appreciate it.

Hugs,

Dianne

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Yes, I think our next theme day should be directed at :-)))))) And we won't listen to her protesting that she'll be embarrassed:-)))) Love Chris:-)

Can I also say, lets hear it for !!

The amount of time she is devoting to helping folk on this list is just amazing.

I hope good health will be the reward for your kindness, . We do SO appreciate it.

Hugs,

Dianne

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Share on other sites

Sometimes docs are amazing.... if you sit down and do the math.. it takes nearly 1000 extra calories EVERY day to gain a 100 pounds in a year.... dont' you think that you'd notice if your food intake went up that much??

Now, much more feasible is that a body that is not working correctly... has lowered metabolic rate to burn fewer calories, has become less active due to decreased mobility and increased pain and lack of enthusiasm to participate in life is much more likely to gain that kind of weight without having a specific action to pin it to??

Back to me, again....When I went in to the first doc, lost 40 pounds in 30 days.. that's burning more than 4000 extra calories a day!! That's a lot of extra calories to burn..... just all by itself... now take into consideration my new job.... Money courier for a vending company.. that allowed us to eat and drink as much product as we wanted to... for FREE.... How do you burn over 4,000 calories a day over your body's total intake when you are scarfing down pop, chips, cookies, candy and sandwiches all day long at your new job?

.... and he didn't think that there was anything wrong?

I'm here cuz I'm selfish.... I learn from you guys all the time.... One day we'll find a way to stop this abuse and get help for all those after us....

Okay... I'm sitting here trying to find the logic in this... why does having a man in your life make your life complete? Any thing that a man has that we don't, well, we can substitute anything from garden vegies to battery operated devices to replace that??? so what else is there that they have that we don't??? If it's having kids.... we don't need them for that either... we can go down to the 'store' for samples that have been donated and again, we don't have to have a man in our life to make it complete... we just harvest what was given as an excess they many of them dispose of routinely.......

Maybe I just have a warped logic and don't see it clearly? Anybody able to help me out with this.... I mean I don't want to go through the rest of my life thinking that I would never have gotten sick if I'd stayed with any of the men in my life that were cheating on me.....

Topper ()

On Fri, 7 Oct 2005 18:47:49 -0500 " Pifer-Stone" writes:

Dear ,

I know you've been through a lot! I waited 2 years and went through 3 doctors before getting to a rheumatologist. I was so excited we might get to the bottom of things. I was in such pain at that point and had so many sick occurances at work. He did some tests, very quickly. Dismissed me as "you need to loose weight" I was just too fat....well, DUH!!! I had gained 100 lbs in one year. My original doctor had to be talked into testing my thyroid back then. When the results came back that I was hypothyroid, he was amazed. He just thought I was lazy and "needed a man to make my life complete." GEESH!

Please know that all things happen for a reason. Maybe you went through what you did, so you could trail blaze a solution for the rest of us. I have only been participating for a short time, and already you have given me great insight. It's a shame you had to suffer, but you are making a HUGE difference in our lives!

Love and blessings,

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Share on other sites

Sometimes docs are amazing.... if you sit down and do the math.. it takes nearly 1000 extra calories EVERY day to gain a 100 pounds in a year.... dont' you think that you'd notice if your food intake went up that much??

Now, much more feasible is that a body that is not working correctly... has lowered metabolic rate to burn fewer calories, has become less active due to decreased mobility and increased pain and lack of enthusiasm to participate in life is much more likely to gain that kind of weight without having a specific action to pin it to??

Back to me, again....When I went in to the first doc, lost 40 pounds in 30 days.. that's burning more than 4000 extra calories a day!! That's a lot of extra calories to burn..... just all by itself... now take into consideration my new job.... Money courier for a vending company.. that allowed us to eat and drink as much product as we wanted to... for FREE.... How do you burn over 4,000 calories a day over your body's total intake when you are scarfing down pop, chips, cookies, candy and sandwiches all day long at your new job?

.... and he didn't think that there was anything wrong?

I'm here cuz I'm selfish.... I learn from you guys all the time.... One day we'll find a way to stop this abuse and get help for all those after us....

Okay... I'm sitting here trying to find the logic in this... why does having a man in your life make your life complete? Any thing that a man has that we don't, well, we can substitute anything from garden vegies to battery operated devices to replace that??? so what else is there that they have that we don't??? If it's having kids.... we don't need them for that either... we can go down to the 'store' for samples that have been donated and again, we don't have to have a man in our life to make it complete... we just harvest what was given as an excess they many of them dispose of routinely.......

Maybe I just have a warped logic and don't see it clearly? Anybody able to help me out with this.... I mean I don't want to go through the rest of my life thinking that I would never have gotten sick if I'd stayed with any of the men in my life that were cheating on me.....

Topper ()

On Fri, 7 Oct 2005 18:47:49 -0500 " Pifer-Stone" writes:

Dear ,

I know you've been through a lot! I waited 2 years and went through 3 doctors before getting to a rheumatologist. I was so excited we might get to the bottom of things. I was in such pain at that point and had so many sick occurances at work. He did some tests, very quickly. Dismissed me as "you need to loose weight" I was just too fat....well, DUH!!! I had gained 100 lbs in one year. My original doctor had to be talked into testing my thyroid back then. When the results came back that I was hypothyroid, he was amazed. He just thought I was lazy and "needed a man to make my life complete." GEESH!

Please know that all things happen for a reason. Maybe you went through what you did, so you could trail blaze a solution for the rest of us. I have only been participating for a short time, and already you have given me great insight. It's a shame you had to suffer, but you are making a HUGE difference in our lives!

Love and blessings,

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Share on other sites

Sometimes docs are amazing.... if you sit down and do the math.. it takes nearly 1000 extra calories EVERY day to gain a 100 pounds in a year.... dont' you think that you'd notice if your food intake went up that much??

Now, much more feasible is that a body that is not working correctly... has lowered metabolic rate to burn fewer calories, has become less active due to decreased mobility and increased pain and lack of enthusiasm to participate in life is much more likely to gain that kind of weight without having a specific action to pin it to??

Back to me, again....When I went in to the first doc, lost 40 pounds in 30 days.. that's burning more than 4000 extra calories a day!! That's a lot of extra calories to burn..... just all by itself... now take into consideration my new job.... Money courier for a vending company.. that allowed us to eat and drink as much product as we wanted to... for FREE.... How do you burn over 4,000 calories a day over your body's total intake when you are scarfing down pop, chips, cookies, candy and sandwiches all day long at your new job?

.... and he didn't think that there was anything wrong?

I'm here cuz I'm selfish.... I learn from you guys all the time.... One day we'll find a way to stop this abuse and get help for all those after us....

Okay... I'm sitting here trying to find the logic in this... why does having a man in your life make your life complete? Any thing that a man has that we don't, well, we can substitute anything from garden vegies to battery operated devices to replace that??? so what else is there that they have that we don't??? If it's having kids.... we don't need them for that either... we can go down to the 'store' for samples that have been donated and again, we don't have to have a man in our life to make it complete... we just harvest what was given as an excess they many of them dispose of routinely.......

Maybe I just have a warped logic and don't see it clearly? Anybody able to help me out with this.... I mean I don't want to go through the rest of my life thinking that I would never have gotten sick if I'd stayed with any of the men in my life that were cheating on me.....

Topper ()

On Fri, 7 Oct 2005 18:47:49 -0500 " Pifer-Stone" writes:

Dear ,

I know you've been through a lot! I waited 2 years and went through 3 doctors before getting to a rheumatologist. I was so excited we might get to the bottom of things. I was in such pain at that point and had so many sick occurances at work. He did some tests, very quickly. Dismissed me as "you need to loose weight" I was just too fat....well, DUH!!! I had gained 100 lbs in one year. My original doctor had to be talked into testing my thyroid back then. When the results came back that I was hypothyroid, he was amazed. He just thought I was lazy and "needed a man to make my life complete." GEESH!

Please know that all things happen for a reason. Maybe you went through what you did, so you could trail blaze a solution for the rest of us. I have only been participating for a short time, and already you have given me great insight. It's a shame you had to suffer, but you are making a HUGE difference in our lives!

Love and blessings,

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Stomp your feet Rita, don't let them blow you off... we can't afford to just sit back and wait and see..... I did that for way too many years, cuz I didn't know better... and look what it cost me... A had a good job, a home of my own with a solar greenhouse that I designed and built all by myself. I had a life before all of this....

I look back at all those years that things were a bit different that other folks... I remember one day after having a fight with my BF, I was driving down the road so furious that I was shaking, I had to pull over to the side of the road cuz I wasn't safe to drive... every muscle in my body was firing.... I looked up at the ceiling of the car and screamed

What the H**L is wrong with me??????

then I punched the ceiling... and dented the roof, from the inside!!!!

I wasn't even 20 years old..... I'd never seen anyone react like that before, or since.... And now, having said that.... it was only months after I stopped biking that I did that.... I had been biking 100 to 150 miles a day all through high school and for a while after.... I eventually learned that it was thyroid related......It was the hyper that was making me be obsessive about being active.... didn't know that then..... I wrecked my knees biking... that's why I quit, the doc told me that I needed new knees and that if I didn't quit right away I'd not be walking.

A few years later I got into body building.... 4 hours a day, seven days a week.... and working over time at work... just had to keep muscles moving.... and none of the docs caught it.... Even when I was going in for blood draws all the time for one of my jobs (working with pesticides) no one noticed that things were different... and when I had therapy for a hand that was injured at work... even though it kept bleeding for three days after surgery and soaked the bandage, by the time the 10 days was up and I had to go in for the stitches on the outside to be pulled.. the skin had grown over the stitches, the had to cut the skin to get to the knots to pull them... and no one thought that was strange. At that time I'd not had a period in five years... and no one said anything about that either. I was 20 when they stopped.... and they came back just a few months after my RAI.....

20/20 hindsight strikes again!

hehehehehe

I'm doing really well today.... more alert and 'up' feeling than I have in a couple of weeks... I think I've hit it right.. that I'm not sleeping enough for the activity level that I have now....

Topper ()

On Fri, 7 Oct 2005 15:49:39 -0700 (PDT) Rita STAFFORD-BONES writes:

Dear ,

Hi. I've been there with doctors that don't have a clue. My sister told me for 20 years that I had a thyroid problem. It didn't show in tests until I was 40, which was back in '96 and I had RAI in '97.

Two years ago I had a doctor leave and new doctot took me off a lot of meds- cold turkey. I lost a full week's memory. Then I had asked the new doctor for Armour-- no good-he put me on only T3(cymotel) for 6 months then added T4 when I told him I couldn't get out of bed -- he left - new doctor - doesn't under satand why I'm upset that * years after RAI, they still screw me up.

I have an appt on November 15th with Dr. Dorsey. He does Armour and is listed on About.com Top Doc list and Does at least T3 + T4 testing. I'm self-treating until then.

I hope your day gets better.

Sending Love, Rita in Pa

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Stomp your feet Rita, don't let them blow you off... we can't afford to just sit back and wait and see..... I did that for way too many years, cuz I didn't know better... and look what it cost me... A had a good job, a home of my own with a solar greenhouse that I designed and built all by myself. I had a life before all of this....

I look back at all those years that things were a bit different that other folks... I remember one day after having a fight with my BF, I was driving down the road so furious that I was shaking, I had to pull over to the side of the road cuz I wasn't safe to drive... every muscle in my body was firing.... I looked up at the ceiling of the car and screamed

What the H**L is wrong with me??????

then I punched the ceiling... and dented the roof, from the inside!!!!

I wasn't even 20 years old..... I'd never seen anyone react like that before, or since.... And now, having said that.... it was only months after I stopped biking that I did that.... I had been biking 100 to 150 miles a day all through high school and for a while after.... I eventually learned that it was thyroid related......It was the hyper that was making me be obsessive about being active.... didn't know that then..... I wrecked my knees biking... that's why I quit, the doc told me that I needed new knees and that if I didn't quit right away I'd not be walking.

A few years later I got into body building.... 4 hours a day, seven days a week.... and working over time at work... just had to keep muscles moving.... and none of the docs caught it.... Even when I was going in for blood draws all the time for one of my jobs (working with pesticides) no one noticed that things were different... and when I had therapy for a hand that was injured at work... even though it kept bleeding for three days after surgery and soaked the bandage, by the time the 10 days was up and I had to go in for the stitches on the outside to be pulled.. the skin had grown over the stitches, the had to cut the skin to get to the knots to pull them... and no one thought that was strange. At that time I'd not had a period in five years... and no one said anything about that either. I was 20 when they stopped.... and they came back just a few months after my RAI.....

20/20 hindsight strikes again!

hehehehehe

I'm doing really well today.... more alert and 'up' feeling than I have in a couple of weeks... I think I've hit it right.. that I'm not sleeping enough for the activity level that I have now....

Topper ()

On Fri, 7 Oct 2005 15:49:39 -0700 (PDT) Rita STAFFORD-BONES writes:

Dear ,

Hi. I've been there with doctors that don't have a clue. My sister told me for 20 years that I had a thyroid problem. It didn't show in tests until I was 40, which was back in '96 and I had RAI in '97.

Two years ago I had a doctor leave and new doctot took me off a lot of meds- cold turkey. I lost a full week's memory. Then I had asked the new doctor for Armour-- no good-he put me on only T3(cymotel) for 6 months then added T4 when I told him I couldn't get out of bed -- he left - new doctor - doesn't under satand why I'm upset that * years after RAI, they still screw me up.

I have an appt on November 15th with Dr. Dorsey. He does Armour and is listed on About.com Top Doc list and Does at least T3 + T4 testing. I'm self-treating until then.

I hope your day gets better.

Sending Love, Rita in Pa

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Stomp your feet Rita, don't let them blow you off... we can't afford to just sit back and wait and see..... I did that for way too many years, cuz I didn't know better... and look what it cost me... A had a good job, a home of my own with a solar greenhouse that I designed and built all by myself. I had a life before all of this....

I look back at all those years that things were a bit different that other folks... I remember one day after having a fight with my BF, I was driving down the road so furious that I was shaking, I had to pull over to the side of the road cuz I wasn't safe to drive... every muscle in my body was firing.... I looked up at the ceiling of the car and screamed

What the H**L is wrong with me??????

then I punched the ceiling... and dented the roof, from the inside!!!!

I wasn't even 20 years old..... I'd never seen anyone react like that before, or since.... And now, having said that.... it was only months after I stopped biking that I did that.... I had been biking 100 to 150 miles a day all through high school and for a while after.... I eventually learned that it was thyroid related......It was the hyper that was making me be obsessive about being active.... didn't know that then..... I wrecked my knees biking... that's why I quit, the doc told me that I needed new knees and that if I didn't quit right away I'd not be walking.

A few years later I got into body building.... 4 hours a day, seven days a week.... and working over time at work... just had to keep muscles moving.... and none of the docs caught it.... Even when I was going in for blood draws all the time for one of my jobs (working with pesticides) no one noticed that things were different... and when I had therapy for a hand that was injured at work... even though it kept bleeding for three days after surgery and soaked the bandage, by the time the 10 days was up and I had to go in for the stitches on the outside to be pulled.. the skin had grown over the stitches, the had to cut the skin to get to the knots to pull them... and no one thought that was strange. At that time I'd not had a period in five years... and no one said anything about that either. I was 20 when they stopped.... and they came back just a few months after my RAI.....

20/20 hindsight strikes again!

hehehehehe

I'm doing really well today.... more alert and 'up' feeling than I have in a couple of weeks... I think I've hit it right.. that I'm not sleeping enough for the activity level that I have now....

Topper ()

On Fri, 7 Oct 2005 15:49:39 -0700 (PDT) Rita STAFFORD-BONES writes:

Dear ,

Hi. I've been there with doctors that don't have a clue. My sister told me for 20 years that I had a thyroid problem. It didn't show in tests until I was 40, which was back in '96 and I had RAI in '97.

Two years ago I had a doctor leave and new doctot took me off a lot of meds- cold turkey. I lost a full week's memory. Then I had asked the new doctor for Armour-- no good-he put me on only T3(cymotel) for 6 months then added T4 when I told him I couldn't get out of bed -- he left - new doctor - doesn't under satand why I'm upset that * years after RAI, they still screw me up.

I have an appt on November 15th with Dr. Dorsey. He does Armour and is listed on About.com Top Doc list and Does at least T3 + T4 testing. I'm self-treating until then.

I hope your day gets better.

Sending Love, Rita in Pa

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You guys are making me blush... I've not had this much color in my face for a LONG time... folks are gonna think I've got a sun burn!!!!!!

Just pass on what you learn.... teach others, share with others, encourage others....

Topper ()

On Sat, 8 Oct 2005 09:31:56 +0100 "Dianne Lam" writes:

Can I also say, lets hear it for !!

The amount of time she is devoting to helping folk on this list is just amazing.

I hope good health will be the reward for your kindness, . We do SO appreciate it.

Hugs,

Dianne

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Nope... and I have final say on Theme Days.... and I'm gonna veto!!!!

hehehehehe

Topper ()

On Sat, 8 Oct 2005 10:04:18 +0100 "" writes:

Yes, I think our next theme day should be directed at :-)))))) And we won't listen to her protesting that she'll be embarrassed:-)))) Love Chris:-)

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Nope... and I have final say on Theme Days.... and I'm gonna veto!!!!

hehehehehe

Topper ()

On Sat, 8 Oct 2005 10:04:18 +0100 "" writes:

Yes, I think our next theme day should be directed at :-)))))) And we won't listen to her protesting that she'll be embarrassed:-)))) Love Chris:-)

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Do you think that I was in the hyper phrase of my Hashimoto's when I was gambling so much, staying at the casinos for 48-72 hours with no sleep break, and just drinking usually shirley temples and grabbing a free sandwich every once in awhile...And snarling at anyone that was sitting too close to me bothering my concentration?Like a manic phase of bi-polar, which is said to be related to thyroid issues....

Feisty, not doing that anymore

Re: Re: Armour aggravating Hashi's???? for Topper from Rita in Pa

Stomp your feet Rita, don't let them blow you off... we can't afford to just sit back and wait and see..... I did that for way too many years, cuz I didn't know better... and look what it cost me... A had a good job, a home of my own with a solar greenhouse that I designed and built all by myself. I had a life before all of this....

I look back at all those years that things were a bit different that other folks... I remember one day after having a fight with my BF, I was driving down the road so furious that I was shaking, I had to pull over to the side of the road cuz I wasn't safe to drive... every muscle in my body was firing.... I looked up at the ceiling of the car and screamed

What the H**L is wrong with me??????

then I punched the ceiling... and dented the roof, from the inside!!!!

I wasn't even 20 years old..... I'd never seen anyone react like that before, or since.... And now, having said that.... it was only months after I stopped biking that I did that.... I had been biking 100 to 150 miles a day all through high school and for a while after.... I eventually learned that it was thyroid related......It was the hyper that was making me be obsessive about being active.... didn't know that then..... I wrecked my knees biking... that's why I quit, the doc told me that I needed new knees and that if I didn't quit right away I'd not be walking.

A few years later I got into body building.... 4 hours a day, seven days a week.... and working over time at work... just had to keep muscles moving.... and none of the docs caught it.... Even when I was going in for blood draws all the time for one of my jobs (working with pesticides) no one noticed that things were different... and when I had therapy for a hand that was injured at work... even though it kept bleeding for three days after surgery and soaked the bandage, by the time the 10 days was up and I had to go in for the stitches on the outside to be pulled.. the skin had grown over the stitches, the had to cut the skin to get to the knots to pull them... and no one thought that was strange. At that time I'd not had a period in five years... and no one said anything about that either. I was 20 when they stopped.... and they came back just a few months after my RAI.....

20/20 hindsight strikes again!

hehehehehe

I'm doing really well today.... more alert and 'up' feeling than I have in a couple of weeks... I think I've hit it right.. that I'm not sleeping enough for the activity level that I have now....

Topper ()

On Fri, 7 Oct 2005 15:49:39 -0700 (PDT) Rita STAFFORD-BONES writes:

Dear ,

Hi. I've been there with doctors that don't have a clue. My sister told me for 20 years that I had a thyroid problem. It didn't show in tests until I was 40, which was back in '96 and I had RAI in '97.

Two years ago I had a doctor leave and new doctot took me off a lot of meds- cold turkey. I lost a full week's memory. Then I had asked the new doctor for Armour-- no good-he put me on only T3(cymotel) for 6 months then added T4 when I told him I couldn't get out of bed -- he left - new doctor - doesn't under satand why I'm upset that * years after RAI, they still screw me up.

I have an appt on November 15th with Dr. Dorsey. He does Armour and is listed on About.com Top Doc list and Does at least T3 + T4 testing. I'm self-treating until then.

I hope your day gets better.

Sending Love, Rita in Pa

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Share on other sites

Do you think that I was in the hyper phrase of my Hashimoto's when I was gambling so much, staying at the casinos for 48-72 hours with no sleep break, and just drinking usually shirley temples and grabbing a free sandwich every once in awhile...And snarling at anyone that was sitting too close to me bothering my concentration?Like a manic phase of bi-polar, which is said to be related to thyroid issues....

Feisty, not doing that anymore

Re: Re: Armour aggravating Hashi's???? for Topper from Rita in Pa

Stomp your feet Rita, don't let them blow you off... we can't afford to just sit back and wait and see..... I did that for way too many years, cuz I didn't know better... and look what it cost me... A had a good job, a home of my own with a solar greenhouse that I designed and built all by myself. I had a life before all of this....

I look back at all those years that things were a bit different that other folks... I remember one day after having a fight with my BF, I was driving down the road so furious that I was shaking, I had to pull over to the side of the road cuz I wasn't safe to drive... every muscle in my body was firing.... I looked up at the ceiling of the car and screamed

What the H**L is wrong with me??????

then I punched the ceiling... and dented the roof, from the inside!!!!

I wasn't even 20 years old..... I'd never seen anyone react like that before, or since.... And now, having said that.... it was only months after I stopped biking that I did that.... I had been biking 100 to 150 miles a day all through high school and for a while after.... I eventually learned that it was thyroid related......It was the hyper that was making me be obsessive about being active.... didn't know that then..... I wrecked my knees biking... that's why I quit, the doc told me that I needed new knees and that if I didn't quit right away I'd not be walking.

A few years later I got into body building.... 4 hours a day, seven days a week.... and working over time at work... just had to keep muscles moving.... and none of the docs caught it.... Even when I was going in for blood draws all the time for one of my jobs (working with pesticides) no one noticed that things were different... and when I had therapy for a hand that was injured at work... even though it kept bleeding for three days after surgery and soaked the bandage, by the time the 10 days was up and I had to go in for the stitches on the outside to be pulled.. the skin had grown over the stitches, the had to cut the skin to get to the knots to pull them... and no one thought that was strange. At that time I'd not had a period in five years... and no one said anything about that either. I was 20 when they stopped.... and they came back just a few months after my RAI.....

20/20 hindsight strikes again!

hehehehehe

I'm doing really well today.... more alert and 'up' feeling than I have in a couple of weeks... I think I've hit it right.. that I'm not sleeping enough for the activity level that I have now....

Topper ()

On Fri, 7 Oct 2005 15:49:39 -0700 (PDT) Rita STAFFORD-BONES writes:

Dear ,

Hi. I've been there with doctors that don't have a clue. My sister told me for 20 years that I had a thyroid problem. It didn't show in tests until I was 40, which was back in '96 and I had RAI in '97.

Two years ago I had a doctor leave and new doctot took me off a lot of meds- cold turkey. I lost a full week's memory. Then I had asked the new doctor for Armour-- no good-he put me on only T3(cymotel) for 6 months then added T4 when I told him I couldn't get out of bed -- he left - new doctor - doesn't under satand why I'm upset that * years after RAI, they still screw me up.

I have an appt on November 15th with Dr. Dorsey. He does Armour and is listed on About.com Top Doc list and Does at least T3 + T4 testing. I'm self-treating until then.

I hope your day gets better.

Sending Love, Rita in Pa

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Hint..... Topper may be open to bribes(and I know what she likes)

Re: Re: Armour aggravating Hashi's???? for Topper from Rita in Pa

Nope... and I have final say on Theme Days.... and I'm gonna veto!!!!

hehehehehe

Topper ()

On Sat, 8 Oct 2005 10:04:18 +0100 "" writes:

Yes, I think our next theme day should be directed at :-)))))) And we won't listen to her protesting that she'll be embarrassed:-)))) Love Chris:-)

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Share on other sites

Hint..... Topper may be open to bribes(and I know what she likes)

Re: Re: Armour aggravating Hashi's???? for Topper from Rita in Pa

Nope... and I have final say on Theme Days.... and I'm gonna veto!!!!

hehehehehe

Topper ()

On Sat, 8 Oct 2005 10:04:18 +0100 "" writes:

Yes, I think our next theme day should be directed at :-)))))) And we won't listen to her protesting that she'll be embarrassed:-)))) Love Chris:-)

Link to comment
Share on other sites

Hint..... Topper may be open to bribes(and I know what she likes)

Re: Re: Armour aggravating Hashi's???? for Topper from Rita in Pa

Nope... and I have final say on Theme Days.... and I'm gonna veto!!!!

hehehehehe

Topper ()

On Sat, 8 Oct 2005 10:04:18 +0100 "" writes:

Yes, I think our next theme day should be directed at :-)))))) And we won't listen to her protesting that she'll be embarrassed:-)))) Love Chris:-)

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No fair giving away secrets pard o mine!!!

Topper ()

On Sat, 8 Oct 2005 13:26:00 -0500 "Feisty\(ThyroFeisty\)" writes:

Hint..... Topper may be open to bribes(and I know what she likes)

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