College Student studying Plagiocephaly

December 1, 2005

Hi le,

My name is Carol and I have a 7 1/2 mo old son Dylan who started with

getting flat across the back of his head around 2 mos of age ( my mom

noticed first!, she has a 9 yr old nephew who had flatness with the left

side of his head and nothing was done about it). My son slept 10 hrs a night

since he was 8 wks old and he was on his back the whole time, plus being in

the different chairs, and he had some torticollis on the right side. So it

became progressively worse. At around 17 wks of age, I went to a specialist

who wanted to wait another 6 wks to see if it would get better....needless

to say...it didnt...so I got the OK at the next visit and went from there to

Cranial Technologies to get the whole process going. He was fitted for a DOC

band and he is going for his exit cast on 12/16/05 so he would have been in

it for 11 wks with good correction....You can see him on the photos under

plagio kids..name is Dylan ...the DOC band in Connecticut costs

$3000...my insurance did pay $1250 of it....My son had no problems with the

band...slept well...hardly any skin problems....I wish his head was better

than it is....but we opted not to get a 2nd one...my husband and I want this

behind us...Thank you for your interest in this topic!! More people need to

get educated on it........Sincerely, Carol

[spam] College Student studying Plagiocephaly

> Hi, all! My name is le and I am a college student at York College

> of

> Pennsylvania. I am a special education major and through my Psychology of

> the Exceptional Child course I have become extremely interested in

> Plagiocephaly and would like to learn more about it. I realize that this

> is a

> support group and I think it's absolutely wonderful! I would just like

> to ask if a

> few people wouldn't mind sharing a few experiences and enlightening me...I

> would be grateful.

> I have been wondering if there are any other symptoms or conditions that

> your children have experienced that are comorbid, or coexisting, with the

> malformation of the skull? Also, after reading a number of the posted

> messages, it seems that almost all of your children have been advised to

> wear a correction helmet. Is this expensive? Would anyone be willing to

> share the different monetary costs associated with meeting the physical,

> emotional, and maybe even the academic needs of your children with this

> condition?

> Again, I would love to know all I can about Plagiocephaly so any input you

> have is phenomenal:-) Thanks so much everyone!

>

> Good luck and BEST wishes for you and your famlilies,

> le

>

> For more plagio info

December 1, 2005