Guest guest Posted January 18, 2003 Report Share Posted January 18, 2003 Hello I am sorry that you had to find your way to our group because that means you have as. But I am glad you found us. Your story is similar to many of the women here. Congads on your baby son and I am glad that he is doing so well. The women in this group can provide you with a wealth of information. First it is very important to find a doctor that have lots of experience in dealing with as. On our database there is a list of A doctors that have successful treated some of our members. It is important that your first surgery be performed by a doctor that is experienced with as because more damage can be caused by an inexperienced doctor. Where do you live perhaps there is an A list doctor near you. In the files section there is a list of questions that you can ask your doctor. You can also ready some of the success stories. There is hope of being repaired. There are several members that have had post as babies and several that are currently pregnant. If you have any questions just ask, infact ask lots of questions this group is great at answering. Finding this group is a step in the right direction on you as journey. Good luck, Audrey > Hi, > My name is and I've just been diagnosed with Asherman's. I have one > child who was born in early 2002. I'm 29 years old. I want more child(ren). > After his birth, my placenta came out in two pieces. I lost a lot of blood > and my husband recalls the doctor needing to stitch me up as soon as > possible. Later, I still had a lot of bleeding but was told it was normal. > The day after I gave birth my doctor came in and pushed on my stomach like > she suspected something was up there. Everyone was always feeling around at > my uterus and now I know why. Unfortunately, there was no follow up. > Two days after he was born, my son turned blue and had to go to the neonatal > intense of care. I was very busy going back and forth to the hospital and > didn't look into the problem I was having with excess bleeding. I recall > small clots coming out but was told only to worry about something the size of > a plum. Eight days after his birth I was passing a huge piece of placenta. > It was stuck and wouldn't come out. I went to the emergency room. > The on call doctor wanted me to have a D & C right away. Nothing was ever said > to me about the possible risks. My son and I stayed on the same floor in > that hospital that night. > I always had trouble with my milk production. After the D & C I read that > retained placenta can cause this. Then I wasn't getting a period. Some > people thought it was because I breastfed for 9 weeks (I had to supplement > with formula). I only wish I knew then what I know now. > So, now I've been through three rounds of various hormones that should have > brought on my period and didn't. I had an ultrasound. I was diagnosed with > Asherman's this past Friday. My next step is a hyteroscopy. > I always wondered if what happened with my son was somehow related to the > labor/placenta. After six long weeks he was diagnosed with a seizure > disorder and sent home on an apnea monitor and medication. I am pleased to > say the doctors believe he's outgrown this and is almost weaned off the meds. > I look forward to being a part of this group. I think I will need the > support. It sounds like I'm in for another long journey. > > > > TTLISATT > TTTTTTTT > TTTTTT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2003 Report Share Posted January 18, 2003 Hello I am sorry that you had to find your way to our group because that means you have as. But I am glad you found us. Your story is similar to many of the women here. Congads on your baby son and I am glad that he is doing so well. The women in this group can provide you with a wealth of information. First it is very important to find a doctor that have lots of experience in dealing with as. On our database there is a list of A doctors that have successful treated some of our members. It is important that your first surgery be performed by a doctor that is experienced with as because more damage can be caused by an inexperienced doctor. Where do you live perhaps there is an A list doctor near you. In the files section there is a list of questions that you can ask your doctor. You can also ready some of the success stories. There is hope of being repaired. There are several members that have had post as babies and several that are currently pregnant. If you have any questions just ask, infact ask lots of questions this group is great at answering. Finding this group is a step in the right direction on you as journey. Good luck, Audrey > Hi, > My name is and I've just been diagnosed with Asherman's. I have one > child who was born in early 2002. I'm 29 years old. I want more child(ren). > After his birth, my placenta came out in two pieces. I lost a lot of blood > and my husband recalls the doctor needing to stitch me up as soon as > possible. Later, I still had a lot of bleeding but was told it was normal. > The day after I gave birth my doctor came in and pushed on my stomach like > she suspected something was up there. Everyone was always feeling around at > my uterus and now I know why. Unfortunately, there was no follow up. > Two days after he was born, my son turned blue and had to go to the neonatal > intense of care. I was very busy going back and forth to the hospital and > didn't look into the problem I was having with excess bleeding. I recall > small clots coming out but was told only to worry about something the size of > a plum. Eight days after his birth I was passing a huge piece of placenta. > It was stuck and wouldn't come out. I went to the emergency room. > The on call doctor wanted me to have a D & C right away. Nothing was ever said > to me about the possible risks. My son and I stayed on the same floor in > that hospital that night. > I always had trouble with my milk production. After the D & C I read that > retained placenta can cause this. Then I wasn't getting a period. Some > people thought it was because I breastfed for 9 weeks (I had to supplement > with formula). I only wish I knew then what I know now. > So, now I've been through three rounds of various hormones that should have > brought on my period and didn't. I had an ultrasound. I was diagnosed with > Asherman's this past Friday. My next step is a hyteroscopy. > I always wondered if what happened with my son was somehow related to the > labor/placenta. After six long weeks he was diagnosed with a seizure > disorder and sent home on an apnea monitor and medication. I am pleased to > say the doctors believe he's outgrown this and is almost weaned off the meds. > I look forward to being a part of this group. I think I will need the > support. It sounds like I'm in for another long journey. > > > > TTLISATT > TTTTTTTT > TTTTTT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2003 Report Share Posted January 18, 2003 Hello I am sorry that you had to find your way to our group because that means you have as. But I am glad you found us. Your story is similar to many of the women here. Congads on your baby son and I am glad that he is doing so well. The women in this group can provide you with a wealth of information. First it is very important to find a doctor that have lots of experience in dealing with as. On our database there is a list of A doctors that have successful treated some of our members. It is important that your first surgery be performed by a doctor that is experienced with as because more damage can be caused by an inexperienced doctor. Where do you live perhaps there is an A list doctor near you. In the files section there is a list of questions that you can ask your doctor. You can also ready some of the success stories. There is hope of being repaired. There are several members that have had post as babies and several that are currently pregnant. If you have any questions just ask, infact ask lots of questions this group is great at answering. Finding this group is a step in the right direction on you as journey. Good luck, Audrey > Hi, > My name is and I've just been diagnosed with Asherman's. I have one > child who was born in early 2002. I'm 29 years old. I want more child(ren). > After his birth, my placenta came out in two pieces. I lost a lot of blood > and my husband recalls the doctor needing to stitch me up as soon as > possible. Later, I still had a lot of bleeding but was told it was normal. > The day after I gave birth my doctor came in and pushed on my stomach like > she suspected something was up there. Everyone was always feeling around at > my uterus and now I know why. Unfortunately, there was no follow up. > Two days after he was born, my son turned blue and had to go to the neonatal > intense of care. I was very busy going back and forth to the hospital and > didn't look into the problem I was having with excess bleeding. I recall > small clots coming out but was told only to worry about something the size of > a plum. Eight days after his birth I was passing a huge piece of placenta. > It was stuck and wouldn't come out. I went to the emergency room. > The on call doctor wanted me to have a D & C right away. Nothing was ever said > to me about the possible risks. My son and I stayed on the same floor in > that hospital that night. > I always had trouble with my milk production. After the D & C I read that > retained placenta can cause this. Then I wasn't getting a period. Some > people thought it was because I breastfed for 9 weeks (I had to supplement > with formula). I only wish I knew then what I know now. > So, now I've been through three rounds of various hormones that should have > brought on my period and didn't. I had an ultrasound. I was diagnosed with > Asherman's this past Friday. My next step is a hyteroscopy. > I always wondered if what happened with my son was somehow related to the > labor/placenta. After six long weeks he was diagnosed with a seizure > disorder and sent home on an apnea monitor and medication. I am pleased to > say the doctors believe he's outgrown this and is almost weaned off the meds. > I look forward to being a part of this group. I think I will need the > support. It sounds like I'm in for another long journey. > > > > TTLISATT > TTTTTTTT > TTTTTT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2003 Report Share Posted January 18, 2003 Hi , Welcome to the group. I am sorry you have reason to be here, but you are among friends who know exactly what you are going through. Your story is so similar to many women on this site, including mine. My son was born after 32 hours of labor and they had difficulty removing my placenta. When the resident yanked it out, I bled severely. I continued to bleed for seven weeks after his birth and then discovered I had retained placenta. The doctor, along with the same resident, performed a d & c using a sharp curretage. I was never given any antibiotics at the time of the d & c and two weeks later, they told me I had an infection. They placed me on antibiotics and I went on my merry way. I also had difficulty breastfeeding my son. In fact, shortly after he was born, I tried breastfeeding and was told by many doctors and lactations experts that it would take time before my milk would come in...he would be ok...Well, he wasn't. Two days after he was born, he became severely dehydrated and had to be rushed to the emergency room with 105 degree fever. Once at the hospital, they stabalized and rehydrated him...Well, that didn't go as planned either. While rehydrating him, the nurse took it upon himself to ignore the procedures and rehydrated him too quickly. Approximately an hour after this procedure, my son had a seizure. While stabilizing him with anti-seizure medicine, he stopped breathing. They did a CAT scan to see if they could tell why he had the seizure and they thought he had a blood clot on his brain. After an agonizing 2 hour wait for the MRI, they determined he was ok. Needless to say....I am not a fan of the medical community. About one year after his birth, we started to try for our second child and that's when I discovered I had AS. Some words of advice.... 1. Check out our list of A-list doctors and see one ASAP. Don't wait. The sooner you have your AS treated, the better. 2. Use the " Questions to Ask Your Doctor " and grill him/her before they do anything to you. You want a doctor who has done numerous AS surgeries. You DO NOT want to be their guinea pig. 3. Read the files section of the site and get familiar with the group. You will shortly find that many of us have the same story. 4. Ask questions. You will find these women on the site to be VERY knowledgable...unbelievably knowledgeable and very supportive. Again, welcome to the group. Sara O. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2003 Report Share Posted January 18, 2003 Hi , Welcome to the group. I am sorry you have reason to be here, but you are among friends who know exactly what you are going through. Your story is so similar to many women on this site, including mine. My son was born after 32 hours of labor and they had difficulty removing my placenta. When the resident yanked it out, I bled severely. I continued to bleed for seven weeks after his birth and then discovered I had retained placenta. The doctor, along with the same resident, performed a d & c using a sharp curretage. I was never given any antibiotics at the time of the d & c and two weeks later, they told me I had an infection. They placed me on antibiotics and I went on my merry way. I also had difficulty breastfeeding my son. In fact, shortly after he was born, I tried breastfeeding and was told by many doctors and lactations experts that it would take time before my milk would come in...he would be ok...Well, he wasn't. Two days after he was born, he became severely dehydrated and had to be rushed to the emergency room with 105 degree fever. Once at the hospital, they stabalized and rehydrated him...Well, that didn't go as planned either. While rehydrating him, the nurse took it upon himself to ignore the procedures and rehydrated him too quickly. Approximately an hour after this procedure, my son had a seizure. While stabilizing him with anti-seizure medicine, he stopped breathing. They did a CAT scan to see if they could tell why he had the seizure and they thought he had a blood clot on his brain. After an agonizing 2 hour wait for the MRI, they determined he was ok. Needless to say....I am not a fan of the medical community. About one year after his birth, we started to try for our second child and that's when I discovered I had AS. Some words of advice.... 1. Check out our list of A-list doctors and see one ASAP. Don't wait. The sooner you have your AS treated, the better. 2. Use the " Questions to Ask Your Doctor " and grill him/her before they do anything to you. You want a doctor who has done numerous AS surgeries. You DO NOT want to be their guinea pig. 3. Read the files section of the site and get familiar with the group. You will shortly find that many of us have the same story. 4. Ask questions. You will find these women on the site to be VERY knowledgable...unbelievably knowledgeable and very supportive. Again, welcome to the group. Sara O. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 Hi Audrey and thanks for the welcome. I am interested in looking at the list of doctors to see if the one recommended to me could possibly be on that list. When I go to the database it doesn't let me in. Can you or someone tell me how I get access to this? How do I get a screename/passowrd, etc? thank you TTLISATT TTTTTTTT TTTTTT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 Hi Audrey and thanks for the welcome. I am interested in looking at the list of doctors to see if the one recommended to me could possibly be on that list. When I go to the database it doesn't let me in. Can you or someone tell me how I get access to this? How do I get a screename/passowrd, etc? thank you TTLISATT TTTTTTTT TTTTTT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 Hi Audrey and thanks for the welcome. I am interested in looking at the list of doctors to see if the one recommended to me could possibly be on that list. When I go to the database it doesn't let me in. Can you or someone tell me how I get access to this? How do I get a screename/passowrd, etc? thank you TTLISATT TTTTTTTT TTTTTT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 Hi Sara, Thanks for the advice! I have already read many of the stories and found it amazing how similar our situations are. I am hoping that I can find the right doctor now. I am lucky that I live in a very good area as far as having a selection of many great hospitals and doctors here in Massachusetts, USA. It seems as though our sons have been through some rough times. My son has also had a cat scan, MRI, and several other tests includiing two spinal taps. In two more weeks he will be off the monitor and medicine. I will ALWAYS wonder if my placenta problem had anything to do with that but my OB said no. Thank you for sharing your story and I look forward to getting to know everyone here better. TTLISATT TTTTTTTT TTTTTT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 Hi Sara, Thanks for the advice! I have already read many of the stories and found it amazing how similar our situations are. I am hoping that I can find the right doctor now. I am lucky that I live in a very good area as far as having a selection of many great hospitals and doctors here in Massachusetts, USA. It seems as though our sons have been through some rough times. My son has also had a cat scan, MRI, and several other tests includiing two spinal taps. In two more weeks he will be off the monitor and medicine. I will ALWAYS wonder if my placenta problem had anything to do with that but my OB said no. Thank you for sharing your story and I look forward to getting to know everyone here better. TTLISATT TTTTTTTT TTTTTT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 Hi , Welcome to the group. Dr. Isaacson is at Newton-Wellesley Hospital and is definitely the man to see. I believe he practiced at MA General with Dr. Toth, if my memory serves me correctly from my search for a Dr. that was covered by my insurance, however, Dr. Isaacson is the one who was the head of the department prior to moving to Newton-Wellesley. You have come to the right group and will find lots of information and support. There is going to be a group of us meeting in Boston who have found each other through this site and we welcome you to join us. Sonier is organizing our first meeting and can add you to our list, if she hasn’t already. Good luck in your journey … you’re on the right path Kim S. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 Hi , Welcome to the group. Dr. Isaacson is at Newton-Wellesley Hospital and is definitely the man to see. I believe he practiced at MA General with Dr. Toth, if my memory serves me correctly from my search for a Dr. that was covered by my insurance, however, Dr. Isaacson is the one who was the head of the department prior to moving to Newton-Wellesley. You have come to the right group and will find lots of information and support. There is going to be a group of us meeting in Boston who have found each other through this site and we welcome you to join us. Sonier is organizing our first meeting and can add you to our list, if she hasn’t already. Good luck in your journey … you’re on the right path Kim S. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 , Welcome to our group. As we have a few 's here, can we call you B? To access the AS site, you need to input your yahoo id which is: lisasamom2002 Try it and let me know if you still are having problems. Poly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 , Welcome to our group. As we have a few 's here, can we call you B? To access the AS site, you need to input your yahoo id which is: lisasamom2002 Try it and let me know if you still are having problems. Poly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 thank you I'm going to call my GYN and tell her I want to contact Dr. I here in MA TTLISATT TTTTTTTT TTTTTT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 thank you I'm going to call my GYN and tell her I want to contact Dr. I here in MA TTLISATT TTTTTTTT TTTTTT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 thank you I'm going to call my GYN and tell her I want to contact Dr. I here in MA TTLISATT TTTTTTTT TTTTTT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 thank you Does anyone know if I need a referal from my gyn or can I just call and make an appointment? yikes--6 week wait! TTLISATT TTTTTTTT TTTTTT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 thank you Does anyone know if I need a referal from my gyn or can I just call and make an appointment? yikes--6 week wait! TTLISATT TTTTTTTT TTTTTT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 Dr. Isaacson is at Newton-Wellesley Hospital and is definitely the man to see. I believe he practiced at MA General with Dr. Toth, Wow-really? Dr. Toth is the dotor my gyn refered me to. Do you think Dr. I is even better?????? TTLISATT TTTTTTTT TTTTTT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 Dr. Isaacson is at Newton-Wellesley Hospital and is definitely the man to see. I believe he practiced at MA General with Dr. Toth, Wow-really? Dr. Toth is the dotor my gyn refered me to. Do you think Dr. I is even better?????? TTLISATT TTTTTTTT TTTTTT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 There is going to be a group of us meeting in Boston who have found each other through this site and we welcome you to join us. Sonier is organizing our first meeting and can add you to our list, if she hasn’t already. Good luck in your journey … you’re on the right path thank you what is the meeting for? business or pleasure? TTLISATT TTTTTTTT TTTTTT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 There is going to be a group of us meeting in Boston who have found each other through this site and we welcome you to join us. Sonier is organizing our first meeting and can add you to our list, if she hasn’t already. Good luck in your journey … you’re on the right path thank you what is the meeting for? business or pleasure? TTLISATT TTTTTTTT TTTTTT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 There is going to be a group of us meeting in Boston who have found each other through this site and we welcome you to join us. Sonier is organizing our first meeting and can add you to our list, if she hasn’t already. Good luck in your journey … you’re on the right path thank you what is the meeting for? business or pleasure? TTLISATT TTTTTTTT TTTTTT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 yes, B is fine with me I noticed there were several 's---maybe we're all around the same age or something. I finally figured out how to get into the main page and retrieve info. thank you Poly! TTLISATT TTTTTTTT TTTTTT Quote Link to comment Share on other sites More sharing options...
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