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In a message dated 5/16/01 9:36:48 AM Eastern Daylight Time,

destocks@... writes:

> Should I just give in and put in my two week notice and the heck with

> everything, we'll work it out as Dane says, or should I try my best to make

> it through? Please give me your thoughts! I can feel my blood pressure is

> rising right now as I type this.

> D

>

>

You know that stress is horrible for fibro. I say give your notice. Things

do work out for themselves. You have to take care of yourself. I miss

nursing a lot, but just couldn't do it anymore. We missed the pay for about

6 weeks then out of the blu my husband who is a computer got offered a

different position with a 40 thousand dollar raise. You never know what's

around the corner.

Please take care of YOU! Nurses orders.

Kathy D.

Diagnosed in 98

Live in Western Massachusetts

Married for almost 19yrs, to a sweetheart

Mother to 16 and 14

My Rottie dog Shelby

Spooky the cat

Hobbies: Boating, Learning this computer

Arts & Crafts, and a passionate reader

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In a message dated 5/16/01 9:36:48 AM Eastern Daylight Time,

destocks@... writes:

> Should I just give in and put in my two week notice and the heck with

> everything, we'll work it out as Dane says, or should I try my best to make

> it through? Please give me your thoughts! I can feel my blood pressure is

> rising right now as I type this.

> D

>

>

You know that stress is horrible for fibro. I say give your notice. Things

do work out for themselves. You have to take care of yourself. I miss

nursing a lot, but just couldn't do it anymore. We missed the pay for about

6 weeks then out of the blu my husband who is a computer got offered a

different position with a 40 thousand dollar raise. You never know what's

around the corner.

Please take care of YOU! Nurses orders.

Kathy D.

Diagnosed in 98

Live in Western Massachusetts

Married for almost 19yrs, to a sweetheart

Mother to 16 and 14

My Rottie dog Shelby

Spooky the cat

Hobbies: Boating, Learning this computer

Arts & Crafts, and a passionate reader

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Share on other sites

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OMG Darcy, I totally know how you feel!!!

I just had a long conversation with last night about how I can't do

my work anymore. I don't think he understands though :( I don't think he

(or I for that matter) want to admit and realize that I might be disabled.

Gawd I just don't want to be disabled, I want to be normal! but I haven't

made it into work earlier than 10 am in 3 weeks!!!! Then if I stay late to

make up time I am so exhausted that I just can't do a thing when I get home.

I'm crabby and miserable because I hurt so bad when I walk in the door at

home. With 's Navy salary, I actually make a bit more than he does.

He made a comment that after we get married we will have a little more BAH

(that's housing money) but not enough to make up for my income if I have to

quit. I have no idea if I could ever get disability.

I keep thinking back to the last really bad flare I had...It was in 1997

right after my Xhusband walked out on me and he filed for divorce. I got so

sick, I had bronchitis and near pneumonia, my body hurt, I could not sleep.

When the bronchitis cleared up I still could not move or think, the pain was

so bad. I never saw a doctor for it, or I should say, I never asked for

help for it. I just thought it was in my mind because I just wanted to die.

I didn't know how I was going to survive, I made 1/3 of our joint income.

It was a terrible time, stressful and miserable. I had to quit my job

because I couldn't make it into work, not to mention the 1 hour drive there

and back everyday. I had no support from my family, my parents kicked me

out of their home that we were renting because I couldn't afford the rent.

I ended up living with a friend of a friend and she let me live there for

two months without paying rent. I didn't work for 3 months and I just let

my body do what it wanted to do. I slept in till noon if I needed to, went

to bed at dawn if I could not fall asleep. I did my gardening when I could,

went out and sang Karaoke when I felt good enough. I eventually got better.

I can't help but think that maybe if I took a break this time that I might

get better, but this " flare " is worse than I've ever had. I'm thinking

about maybe asking my boss if I can go part time for a few months. The last

few weekends I've been sleeping all day, I go to bed at 10 pm friday, wake

up at 9am to go to the bathroom and drink a glass of water, then I sleep

until 1-3 pm. I do the same Saturday and Sunday. By Sunday afternoon I

start to feel almost normal, like I could do some yard work, or clean the

house but I don't because I'll be too exhausted to wake up for work the next

day if I do. I'm thinking maybe if I take a friday or monday off every week

that the extra day would let me rest more, and finally get some things done

at home. Gosh when I can't do ANYTHING at home, I can't clean, cook,

unpack! (we moved 3 months ago, still living in boxes) I just feel like

such a loser, I feel like a lazy waste of human life!

I really don't know what the answer is. I just want you to know that I

understand, and I'm going through something similar. We also might transfer

to WA next year. I sorta hope that maybe I could take 3-6 months off after

the move and not work. Then I look at finances and my bills and realize

that there is NO WAY we could afford to have me not working. :(

If your husband thinks you can get by financially, I'd say do what you need

to do for your health. And most importantly, don't feel guilty afterwards!

I don't know if my continuing to work is making me worse or not. All I know

is I'm capable of doing only 50% of the work in the amount of time I used

to. No one has noticed yet, it's only a matter of time. I can't think

straight, I can't make sense of words and sentences sometimes. I'm upset

about these medications that seem to be making me feel worse, and making me

unable to work.

Here I just took your problem and turned it into my own soap box! I'm sorry!

I just hope the best for you and I really know how you feel. I find myself

wishing everyday that I could stop working and just rest.

Joy

nickname: Fawn

28 yrs. old

dx 1/01, FMS symptoms for 19 yrs.

live with Navy SO

Baby cat 10 yrs old

Hobbies: Cars, Gardening, Tropical Fish, Karaoke

San Diego, CA

ICQ: 19951984

AOL IM: Fawndles

YAHOO: Fawnz73rs

quitting work

Well, after I called Dane in tears this morning because of how hard it was

to drag myself into work today, he told me I can put in my notice anytime I

want to, that we'll work things out somehow. I've had a bad last couple of

nights, I wake up in the middle of the night with my allergies flaring, and

then have to go sleep on the couch for what little sleep I get. Last night

when I woke up, my nose was so stuffed shut, I had been breathing through my

mouth to the point where my entire throat had dried out. We have been

trying to get me to stay working until after the neurologist's follow up

visit since she isn't on Dane's insurance which would mean I'd have to pay

for her out of pocket. The initial visit was $300 +. And there isn't any

guarantee that she wouldn't schedule more tests and then another follow up

visit another month and a half away. There is no way I'm going to make

another three months of working. I'm not even sure I can make six weeks of

working. I told him I am going to try to wait until we talk to the

financial planner on Monday and see what he says, but he may not have stuff

to tell us on Monday. He may have to do some kind of figuring and get back

to us. Hopefully he could get us at least started with some rough figures

so we could go looking for insurance and a mortgage company. I've just been

going downhill a little more each week. I'm now at missing a day a week on

most weeks, and last week with everything going on, I wasn't there almost

the entire week. I have less than two sick days, and 8 vacation days left.

Am I making myself worse by trying to struggle on for another six weeks?

Should I just give in and put in my two week notice and the heck with

everything, we'll work it out as Dane says, or should I try my best to make

it through? Please give me your thoughts! I can feel my blood pressure is

rising right now as I type this.

D

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OMG Darcy, I totally know how you feel!!!

I just had a long conversation with last night about how I can't do

my work anymore. I don't think he understands though :( I don't think he

(or I for that matter) want to admit and realize that I might be disabled.

Gawd I just don't want to be disabled, I want to be normal! but I haven't

made it into work earlier than 10 am in 3 weeks!!!! Then if I stay late to

make up time I am so exhausted that I just can't do a thing when I get home.

I'm crabby and miserable because I hurt so bad when I walk in the door at

home. With 's Navy salary, I actually make a bit more than he does.

He made a comment that after we get married we will have a little more BAH

(that's housing money) but not enough to make up for my income if I have to

quit. I have no idea if I could ever get disability.

I keep thinking back to the last really bad flare I had...It was in 1997

right after my Xhusband walked out on me and he filed for divorce. I got so

sick, I had bronchitis and near pneumonia, my body hurt, I could not sleep.

When the bronchitis cleared up I still could not move or think, the pain was

so bad. I never saw a doctor for it, or I should say, I never asked for

help for it. I just thought it was in my mind because I just wanted to die.

I didn't know how I was going to survive, I made 1/3 of our joint income.

It was a terrible time, stressful and miserable. I had to quit my job

because I couldn't make it into work, not to mention the 1 hour drive there

and back everyday. I had no support from my family, my parents kicked me

out of their home that we were renting because I couldn't afford the rent.

I ended up living with a friend of a friend and she let me live there for

two months without paying rent. I didn't work for 3 months and I just let

my body do what it wanted to do. I slept in till noon if I needed to, went

to bed at dawn if I could not fall asleep. I did my gardening when I could,

went out and sang Karaoke when I felt good enough. I eventually got better.

I can't help but think that maybe if I took a break this time that I might

get better, but this " flare " is worse than I've ever had. I'm thinking

about maybe asking my boss if I can go part time for a few months. The last

few weekends I've been sleeping all day, I go to bed at 10 pm friday, wake

up at 9am to go to the bathroom and drink a glass of water, then I sleep

until 1-3 pm. I do the same Saturday and Sunday. By Sunday afternoon I

start to feel almost normal, like I could do some yard work, or clean the

house but I don't because I'll be too exhausted to wake up for work the next

day if I do. I'm thinking maybe if I take a friday or monday off every week

that the extra day would let me rest more, and finally get some things done

at home. Gosh when I can't do ANYTHING at home, I can't clean, cook,

unpack! (we moved 3 months ago, still living in boxes) I just feel like

such a loser, I feel like a lazy waste of human life!

I really don't know what the answer is. I just want you to know that I

understand, and I'm going through something similar. We also might transfer

to WA next year. I sorta hope that maybe I could take 3-6 months off after

the move and not work. Then I look at finances and my bills and realize

that there is NO WAY we could afford to have me not working. :(

If your husband thinks you can get by financially, I'd say do what you need

to do for your health. And most importantly, don't feel guilty afterwards!

I don't know if my continuing to work is making me worse or not. All I know

is I'm capable of doing only 50% of the work in the amount of time I used

to. No one has noticed yet, it's only a matter of time. I can't think

straight, I can't make sense of words and sentences sometimes. I'm upset

about these medications that seem to be making me feel worse, and making me

unable to work.

Here I just took your problem and turned it into my own soap box! I'm sorry!

I just hope the best for you and I really know how you feel. I find myself

wishing everyday that I could stop working and just rest.

Joy

nickname: Fawn

28 yrs. old

dx 1/01, FMS symptoms for 19 yrs.

live with Navy SO

Baby cat 10 yrs old

Hobbies: Cars, Gardening, Tropical Fish, Karaoke

San Diego, CA

ICQ: 19951984

AOL IM: Fawndles

YAHOO: Fawnz73rs

quitting work

Well, after I called Dane in tears this morning because of how hard it was

to drag myself into work today, he told me I can put in my notice anytime I

want to, that we'll work things out somehow. I've had a bad last couple of

nights, I wake up in the middle of the night with my allergies flaring, and

then have to go sleep on the couch for what little sleep I get. Last night

when I woke up, my nose was so stuffed shut, I had been breathing through my

mouth to the point where my entire throat had dried out. We have been

trying to get me to stay working until after the neurologist's follow up

visit since she isn't on Dane's insurance which would mean I'd have to pay

for her out of pocket. The initial visit was $300 +. And there isn't any

guarantee that she wouldn't schedule more tests and then another follow up

visit another month and a half away. There is no way I'm going to make

another three months of working. I'm not even sure I can make six weeks of

working. I told him I am going to try to wait until we talk to the

financial planner on Monday and see what he says, but he may not have stuff

to tell us on Monday. He may have to do some kind of figuring and get back

to us. Hopefully he could get us at least started with some rough figures

so we could go looking for insurance and a mortgage company. I've just been

going downhill a little more each week. I'm now at missing a day a week on

most weeks, and last week with everything going on, I wasn't there almost

the entire week. I have less than two sick days, and 8 vacation days left.

Am I making myself worse by trying to struggle on for another six weeks?

Should I just give in and put in my two week notice and the heck with

everything, we'll work it out as Dane says, or should I try my best to make

it through? Please give me your thoughts! I can feel my blood pressure is

rising right now as I type this.

D

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OMG Darcy, I totally know how you feel!!!

I just had a long conversation with last night about how I can't do

my work anymore. I don't think he understands though :( I don't think he

(or I for that matter) want to admit and realize that I might be disabled.

Gawd I just don't want to be disabled, I want to be normal! but I haven't

made it into work earlier than 10 am in 3 weeks!!!! Then if I stay late to

make up time I am so exhausted that I just can't do a thing when I get home.

I'm crabby and miserable because I hurt so bad when I walk in the door at

home. With 's Navy salary, I actually make a bit more than he does.

He made a comment that after we get married we will have a little more BAH

(that's housing money) but not enough to make up for my income if I have to

quit. I have no idea if I could ever get disability.

I keep thinking back to the last really bad flare I had...It was in 1997

right after my Xhusband walked out on me and he filed for divorce. I got so

sick, I had bronchitis and near pneumonia, my body hurt, I could not sleep.

When the bronchitis cleared up I still could not move or think, the pain was

so bad. I never saw a doctor for it, or I should say, I never asked for

help for it. I just thought it was in my mind because I just wanted to die.

I didn't know how I was going to survive, I made 1/3 of our joint income.

It was a terrible time, stressful and miserable. I had to quit my job

because I couldn't make it into work, not to mention the 1 hour drive there

and back everyday. I had no support from my family, my parents kicked me

out of their home that we were renting because I couldn't afford the rent.

I ended up living with a friend of a friend and she let me live there for

two months without paying rent. I didn't work for 3 months and I just let

my body do what it wanted to do. I slept in till noon if I needed to, went

to bed at dawn if I could not fall asleep. I did my gardening when I could,

went out and sang Karaoke when I felt good enough. I eventually got better.

I can't help but think that maybe if I took a break this time that I might

get better, but this " flare " is worse than I've ever had. I'm thinking

about maybe asking my boss if I can go part time for a few months. The last

few weekends I've been sleeping all day, I go to bed at 10 pm friday, wake

up at 9am to go to the bathroom and drink a glass of water, then I sleep

until 1-3 pm. I do the same Saturday and Sunday. By Sunday afternoon I

start to feel almost normal, like I could do some yard work, or clean the

house but I don't because I'll be too exhausted to wake up for work the next

day if I do. I'm thinking maybe if I take a friday or monday off every week

that the extra day would let me rest more, and finally get some things done

at home. Gosh when I can't do ANYTHING at home, I can't clean, cook,

unpack! (we moved 3 months ago, still living in boxes) I just feel like

such a loser, I feel like a lazy waste of human life!

I really don't know what the answer is. I just want you to know that I

understand, and I'm going through something similar. We also might transfer

to WA next year. I sorta hope that maybe I could take 3-6 months off after

the move and not work. Then I look at finances and my bills and realize

that there is NO WAY we could afford to have me not working. :(

If your husband thinks you can get by financially, I'd say do what you need

to do for your health. And most importantly, don't feel guilty afterwards!

I don't know if my continuing to work is making me worse or not. All I know

is I'm capable of doing only 50% of the work in the amount of time I used

to. No one has noticed yet, it's only a matter of time. I can't think

straight, I can't make sense of words and sentences sometimes. I'm upset

about these medications that seem to be making me feel worse, and making me

unable to work.

Here I just took your problem and turned it into my own soap box! I'm sorry!

I just hope the best for you and I really know how you feel. I find myself

wishing everyday that I could stop working and just rest.

Joy

nickname: Fawn

28 yrs. old

dx 1/01, FMS symptoms for 19 yrs.

live with Navy SO

Baby cat 10 yrs old

Hobbies: Cars, Gardening, Tropical Fish, Karaoke

San Diego, CA

ICQ: 19951984

AOL IM: Fawndles

YAHOO: Fawnz73rs

quitting work

Well, after I called Dane in tears this morning because of how hard it was

to drag myself into work today, he told me I can put in my notice anytime I

want to, that we'll work things out somehow. I've had a bad last couple of

nights, I wake up in the middle of the night with my allergies flaring, and

then have to go sleep on the couch for what little sleep I get. Last night

when I woke up, my nose was so stuffed shut, I had been breathing through my

mouth to the point where my entire throat had dried out. We have been

trying to get me to stay working until after the neurologist's follow up

visit since she isn't on Dane's insurance which would mean I'd have to pay

for her out of pocket. The initial visit was $300 +. And there isn't any

guarantee that she wouldn't schedule more tests and then another follow up

visit another month and a half away. There is no way I'm going to make

another three months of working. I'm not even sure I can make six weeks of

working. I told him I am going to try to wait until we talk to the

financial planner on Monday and see what he says, but he may not have stuff

to tell us on Monday. He may have to do some kind of figuring and get back

to us. Hopefully he could get us at least started with some rough figures

so we could go looking for insurance and a mortgage company. I've just been

going downhill a little more each week. I'm now at missing a day a week on

most weeks, and last week with everything going on, I wasn't there almost

the entire week. I have less than two sick days, and 8 vacation days left.

Am I making myself worse by trying to struggle on for another six weeks?

Should I just give in and put in my two week notice and the heck with

everything, we'll work it out as Dane says, or should I try my best to make

it through? Please give me your thoughts! I can feel my blood pressure is

rising right now as I type this.

D

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If it were me I would put in my notice. You sound like you are in a lot of

pain. Your are probably making it worse by all the stress you are having.

If, as Dane said, the Y'all will be able to work it out I feel that you

should try.

From your email it does not sound like you could make it for 3 months. You

need to get a lot of rest. We care for you and would like to see you being

happier than you are now and I would guess that Dane would too.

Please take care of yourself and keep me posted on how things are going. You

are in my prayers.

Take care,

Irene

> Should I just give in and put in my two week notice and the heck with

> everything, we'll work it out as Dane says, or should I try my best to make

> it through?

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If it were me I would put in my notice. You sound like you are in a lot of

pain. Your are probably making it worse by all the stress you are having.

If, as Dane said, the Y'all will be able to work it out I feel that you

should try.

From your email it does not sound like you could make it for 3 months. You

need to get a lot of rest. We care for you and would like to see you being

happier than you are now and I would guess that Dane would too.

Please take care of yourself and keep me posted on how things are going. You

are in my prayers.

Take care,

Irene

> Should I just give in and put in my two week notice and the heck with

> everything, we'll work it out as Dane says, or should I try my best to make

> it through?

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If it were me I would put in my notice. You sound like you are in a lot of

pain. Your are probably making it worse by all the stress you are having.

If, as Dane said, the Y'all will be able to work it out I feel that you

should try.

From your email it does not sound like you could make it for 3 months. You

need to get a lot of rest. We care for you and would like to see you being

happier than you are now and I would guess that Dane would too.

Please take care of yourself and keep me posted on how things are going. You

are in my prayers.

Take care,

Irene

> Should I just give in and put in my two week notice and the heck with

> everything, we'll work it out as Dane says, or should I try my best to make

> it through?

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Tell them that you would like to go on a medical leave of absence. You don't

get paid, but it gives you more freedom to choose your options! Plus, maybe

your body just needs a week to drag! Good luck!

Missy

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I just had a long conversation with last night about how I can't do

my work anymore. I don't think he understands though :(

Dane understands, but I still think he is disappointed that we are going

backwards with regards to our financial situation. He is very supportive,

but there is an undercurrent there that he isn't saying much about. I feel

guilty even though there is not reason I should feel guilty, I didn't pick

this disease, I'm not saying " I can't do " when I really can, but still, I

feel like I'm letting both of us down.

Then if I stay late to

make up time I am so exhausted that I just can't do a thing when I get home.

I'm crabby and miserable because I hurt so bad when I walk in the door at

home.

Oh yeah, the couple of times that I've had to stay late, I'm so miserable

and cranky when I hit the door, it isn't even funny.

With 's Navy salary, I actually make a bit more than he does.

Same here, but he gets much better raises than I do, so he'll pass me soon.

I have no idea if I could ever get disability.

I don't either, but seeing that someone said that their lawyer suggested

listing *all* of their illnesses, I certainly ought to get a lot of help

there!

I had no support from my family, my parents kicked me

out of their home that we were renting because I couldn't afford the rent.

I ended up living with a friend of a friend and she let me live there for

two months without paying rent.

Wow, that is so incredible that your parents wouldn't give you any support,

but a friend of a friend would. I'm sorry to hear this.

I'm thinking

about maybe asking my boss if I can go part time for a few months.

My boss suggested it to me, so I'm going to try it.

I do the same Saturday and Sunday. By Sunday afternoon I

start to feel almost normal, like I could do some yard work, or clean the

house but I don't because I'll be too exhausted to wake up for work the next

day if I do.

Boy, does this sound familiar!! If I have a day off, then I feel a tad bit

better and I think " oh, I must be getting better " , but I'm not, I'm only

doing so " well " because I did absolutely nothing the day before. I can do

maybe one errand on Saturday, and Sunday I do nothing, either because I'm

already so tired or if I do, I'll never make it through the work week.

I'm thinking maybe if I take a friday or monday off every week

that the extra day would let me rest more, and finally get some things done

at home. Gosh when I can't do ANYTHING at home, I can't clean, cook,

unpack! (we moved 3 months ago, still living in boxes) I just feel like

such a loser, I feel like a lazy waste of human life!

I hear you, I'm so use to running around doing lots of stuff, it kills me to

sit and stare at the television. I hate stuff sitting around the house for

months, and I hate to ask Dane to do even more since he does everything

anyhow. I'm down to missing one day a week, and I'm still not better.

Then I look at finances and my bills and realize

that there is NO WAY we could afford to have me not working. :(

I'm sorry to hear this. I know what it feels like to drag yourself into

work every day.

I don't know if my continuing to work is making me worse or not. All I know

is I'm capable of doing only 50% of the work in the amount of time I used

to. No one has noticed yet, it's only a matter of time.

The people at my work have finally noticed. Even the people not working in

my building are starting to go " oh, I haven't seen you for a while, Darcy.

Where have you been? " If it isn't making you worse, it certainly isn't

helping either.

I can't think

straight, I can't make sense of words and sentences sometimes. I'm upset

about these medications that seem to be making me feel worse, and making me

unable to work.

Yup, my word problem is starting to get worse too.

Here I just took your problem and turned it into my own soap box! I'm sorry!

No problem at all, Joy, it helps to know that there is someone out there

like me. I hope you can work something out for your finances.

Darcy

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I just had a long conversation with last night about how I can't do

my work anymore. I don't think he understands though :(

Dane understands, but I still think he is disappointed that we are going

backwards with regards to our financial situation. He is very supportive,

but there is an undercurrent there that he isn't saying much about. I feel

guilty even though there is not reason I should feel guilty, I didn't pick

this disease, I'm not saying " I can't do " when I really can, but still, I

feel like I'm letting both of us down.

Then if I stay late to

make up time I am so exhausted that I just can't do a thing when I get home.

I'm crabby and miserable because I hurt so bad when I walk in the door at

home.

Oh yeah, the couple of times that I've had to stay late, I'm so miserable

and cranky when I hit the door, it isn't even funny.

With 's Navy salary, I actually make a bit more than he does.

Same here, but he gets much better raises than I do, so he'll pass me soon.

I have no idea if I could ever get disability.

I don't either, but seeing that someone said that their lawyer suggested

listing *all* of their illnesses, I certainly ought to get a lot of help

there!

I had no support from my family, my parents kicked me

out of their home that we were renting because I couldn't afford the rent.

I ended up living with a friend of a friend and she let me live there for

two months without paying rent.

Wow, that is so incredible that your parents wouldn't give you any support,

but a friend of a friend would. I'm sorry to hear this.

I'm thinking

about maybe asking my boss if I can go part time for a few months.

My boss suggested it to me, so I'm going to try it.

I do the same Saturday and Sunday. By Sunday afternoon I

start to feel almost normal, like I could do some yard work, or clean the

house but I don't because I'll be too exhausted to wake up for work the next

day if I do.

Boy, does this sound familiar!! If I have a day off, then I feel a tad bit

better and I think " oh, I must be getting better " , but I'm not, I'm only

doing so " well " because I did absolutely nothing the day before. I can do

maybe one errand on Saturday, and Sunday I do nothing, either because I'm

already so tired or if I do, I'll never make it through the work week.

I'm thinking maybe if I take a friday or monday off every week

that the extra day would let me rest more, and finally get some things done

at home. Gosh when I can't do ANYTHING at home, I can't clean, cook,

unpack! (we moved 3 months ago, still living in boxes) I just feel like

such a loser, I feel like a lazy waste of human life!

I hear you, I'm so use to running around doing lots of stuff, it kills me to

sit and stare at the television. I hate stuff sitting around the house for

months, and I hate to ask Dane to do even more since he does everything

anyhow. I'm down to missing one day a week, and I'm still not better.

Then I look at finances and my bills and realize

that there is NO WAY we could afford to have me not working. :(

I'm sorry to hear this. I know what it feels like to drag yourself into

work every day.

I don't know if my continuing to work is making me worse or not. All I know

is I'm capable of doing only 50% of the work in the amount of time I used

to. No one has noticed yet, it's only a matter of time.

The people at my work have finally noticed. Even the people not working in

my building are starting to go " oh, I haven't seen you for a while, Darcy.

Where have you been? " If it isn't making you worse, it certainly isn't

helping either.

I can't think

straight, I can't make sense of words and sentences sometimes. I'm upset

about these medications that seem to be making me feel worse, and making me

unable to work.

Yup, my word problem is starting to get worse too.

Here I just took your problem and turned it into my own soap box! I'm sorry!

No problem at all, Joy, it helps to know that there is someone out there

like me. I hope you can work something out for your finances.

Darcy

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I just had a long conversation with last night about how I can't do

my work anymore. I don't think he understands though :(

Dane understands, but I still think he is disappointed that we are going

backwards with regards to our financial situation. He is very supportive,

but there is an undercurrent there that he isn't saying much about. I feel

guilty even though there is not reason I should feel guilty, I didn't pick

this disease, I'm not saying " I can't do " when I really can, but still, I

feel like I'm letting both of us down.

Then if I stay late to

make up time I am so exhausted that I just can't do a thing when I get home.

I'm crabby and miserable because I hurt so bad when I walk in the door at

home.

Oh yeah, the couple of times that I've had to stay late, I'm so miserable

and cranky when I hit the door, it isn't even funny.

With 's Navy salary, I actually make a bit more than he does.

Same here, but he gets much better raises than I do, so he'll pass me soon.

I have no idea if I could ever get disability.

I don't either, but seeing that someone said that their lawyer suggested

listing *all* of their illnesses, I certainly ought to get a lot of help

there!

I had no support from my family, my parents kicked me

out of their home that we were renting because I couldn't afford the rent.

I ended up living with a friend of a friend and she let me live there for

two months without paying rent.

Wow, that is so incredible that your parents wouldn't give you any support,

but a friend of a friend would. I'm sorry to hear this.

I'm thinking

about maybe asking my boss if I can go part time for a few months.

My boss suggested it to me, so I'm going to try it.

I do the same Saturday and Sunday. By Sunday afternoon I

start to feel almost normal, like I could do some yard work, or clean the

house but I don't because I'll be too exhausted to wake up for work the next

day if I do.

Boy, does this sound familiar!! If I have a day off, then I feel a tad bit

better and I think " oh, I must be getting better " , but I'm not, I'm only

doing so " well " because I did absolutely nothing the day before. I can do

maybe one errand on Saturday, and Sunday I do nothing, either because I'm

already so tired or if I do, I'll never make it through the work week.

I'm thinking maybe if I take a friday or monday off every week

that the extra day would let me rest more, and finally get some things done

at home. Gosh when I can't do ANYTHING at home, I can't clean, cook,

unpack! (we moved 3 months ago, still living in boxes) I just feel like

such a loser, I feel like a lazy waste of human life!

I hear you, I'm so use to running around doing lots of stuff, it kills me to

sit and stare at the television. I hate stuff sitting around the house for

months, and I hate to ask Dane to do even more since he does everything

anyhow. I'm down to missing one day a week, and I'm still not better.

Then I look at finances and my bills and realize

that there is NO WAY we could afford to have me not working. :(

I'm sorry to hear this. I know what it feels like to drag yourself into

work every day.

I don't know if my continuing to work is making me worse or not. All I know

is I'm capable of doing only 50% of the work in the amount of time I used

to. No one has noticed yet, it's only a matter of time.

The people at my work have finally noticed. Even the people not working in

my building are starting to go " oh, I haven't seen you for a while, Darcy.

Where have you been? " If it isn't making you worse, it certainly isn't

helping either.

I can't think

straight, I can't make sense of words and sentences sometimes. I'm upset

about these medications that seem to be making me feel worse, and making me

unable to work.

Yup, my word problem is starting to get worse too.

Here I just took your problem and turned it into my own soap box! I'm sorry!

No problem at all, Joy, it helps to know that there is someone out there

like me. I hope you can work something out for your finances.

Darcy

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