had my first WBS , have questins, help....

[Guest guest]

Hi guys, i just got back from my first whole body scan. the scan

showed some parts of where the thyroid use to be lit up, and in the

salvitory glands. They say this is very normal. And to come back in

6 months and do a whole body scan again. is this normal? I mean

there were no other spots lit up, so why am i not happy? was it

wrong to assume that 4 weeks after my TT and 10 days after the RAI

that i would get a clean scan, nothing lit up? the radiolgist said

it was normal, some have more lit up some have less, and we will

know more in 6 months. I guess i was expecting a more encouraging

responce. i mean he was nice, and didn't scare me, but then why am i

so scared still. The chance of it being cancer tissue is slim cause

the cancer did not spread. But should i of expected to hear clean

scan the first time, and only 10 days after the RAI?

jodi

[Guest guest]

Jodi,

This is completely normal--the thyroid remnant (which we all have--

even after " total " thyroidectomy) has absorbed the radioactive iodine

and is showing up on the scan.

The purpose of the post-RAI scan is to identify if there is evidence of

activity in other parts of the body. The RAI will eventually destroy all

thyroid tissue--cancerous and normal.

That's why we hope for a " clean " scan at 6 months or a year post

RAI. That's the scan that counts.

Colly

To: Thyca

Date sent: Fri, 15 Nov 2002 18:59:22 -0000

Subject: had my first WBS , have questins, help....

Send reply to: Thyca

> Hi guys, i just got back from my first whole body scan. the scan

> showed some parts of where the thyroid use to be lit up, and in the

> salvitory glands. They say this is very normal. And to come back in 6

> months and do a whole body scan again. is this normal? I mean there

> were no other spots lit up, so why am i not happy? was it wrong to

> assume that 4 weeks after my TT and 10 days after the RAI that i would

> get a clean scan, nothing lit up? the radiolgist said it was normal,

> some have more lit up some have less, and we will know more in 6

> months. I guess i was expecting a more encouraging responce. i mean he

> was nice, and didn't scare me, but then why am i so scared still. The

> chance of it being cancer tissue is slim cause the cancer did not

> spread. But should i of expected to hear clean scan the first time,

> and only 10 days after the RAI? jodi

>

>

>

[Guest guest]

Jodi,

This is completely normal--the thyroid remnant (which we all have--

even after " total " thyroidectomy) has absorbed the radioactive iodine

and is showing up on the scan.

The purpose of the post-RAI scan is to identify if there is evidence of

activity in other parts of the body. The RAI will eventually destroy all

thyroid tissue--cancerous and normal.

That's why we hope for a " clean " scan at 6 months or a year post

RAI. That's the scan that counts.

Colly

To: Thyca

Date sent: Fri, 15 Nov 2002 18:59:22 -0000

Subject: had my first WBS , have questins, help....

Send reply to: Thyca

> Hi guys, i just got back from my first whole body scan. the scan

> showed some parts of where the thyroid use to be lit up, and in the

> salvitory glands. They say this is very normal. And to come back in 6

> months and do a whole body scan again. is this normal? I mean there

> were no other spots lit up, so why am i not happy? was it wrong to

> assume that 4 weeks after my TT and 10 days after the RAI that i would

> get a clean scan, nothing lit up? the radiolgist said it was normal,

> some have more lit up some have less, and we will know more in 6

> months. I guess i was expecting a more encouraging responce. i mean he

> was nice, and didn't scare me, but then why am i so scared still. The

> chance of it being cancer tissue is slim cause the cancer did not

> spread. But should i of expected to hear clean scan the first time,

> and only 10 days after the RAI? jodi

>

>

>

[Guest guest]

Jodi,

This is completely normal--the thyroid remnant (which we all have--

even after " total " thyroidectomy) has absorbed the radioactive iodine

and is showing up on the scan.

The purpose of the post-RAI scan is to identify if there is evidence of

activity in other parts of the body. The RAI will eventually destroy all

thyroid tissue--cancerous and normal.

That's why we hope for a " clean " scan at 6 months or a year post

RAI. That's the scan that counts.

Colly

To: Thyca

Date sent: Fri, 15 Nov 2002 18:59:22 -0000

Subject: had my first WBS , have questins, help....

Send reply to: Thyca

> Hi guys, i just got back from my first whole body scan. the scan

> showed some parts of where the thyroid use to be lit up, and in the

> salvitory glands. They say this is very normal. And to come back in 6

> months and do a whole body scan again. is this normal? I mean there

> were no other spots lit up, so why am i not happy? was it wrong to

> assume that 4 weeks after my TT and 10 days after the RAI that i would

> get a clean scan, nothing lit up? the radiolgist said it was normal,

> some have more lit up some have less, and we will know more in 6

> months. I guess i was expecting a more encouraging responce. i mean he

> was nice, and didn't scare me, but then why am i so scared still. The

> chance of it being cancer tissue is slim cause the cancer did not

> spread. But should i of expected to hear clean scan the first time,

> and only 10 days after the RAI? jodi

>

>

>

[Guest guest]

Jodi,

It takes from 6 to 12 months for RAI to do its job completely -- so,

yes, it's unreasonable to assume that you would have a clean scan only

10 days after RAI. Your 6 month scan might be clean; you should at

least see fewer areas lit up. I didn't have a totally clean scan

until 12 months after RAI, but I've been having them for 13 years now,

so I guess the RAI worked :-).

Your radiologist sounds as though he knows what he's talking about.

Hope this helps,

ellen

--

mailto:ellen@...

[Guest guest]

Hi Jody,

I had exactly the same results on my WBS after RAI. They told me I

had residue takeup in the Thyroid bed and a small amount to the left

of my thyroid bed. I have just had a clean scan 6 months later.

The RAI still works on the tissue even after the WBS. I was told it

would likely dissapear by my next scan and they were right.

Take care

Deborah Ford

English – living in USA

dx Papilliary ThyCa in Thyroid and 20% of Lymph Nodes on 02/22/02

TT 03/08/02

Followed LID for 8 weeks – doctor's instructions

TSH off the chart – went too Hypo

150 mci then WBS 05/01/02

WBS 11/08/02 - Clean

> Hi guys, i just got back from my first whole body scan. the scan

> showed some parts of where the thyroid use to be lit up, and in the

> salvitory glands. They say this is very normal. And to come back in

> 6 months and do a whole body scan again. is this normal? I mean

> there were no other spots lit up, so why am i not happy? was it

> wrong to assume that 4 weeks after my TT and 10 days after the RAI

> that i would get a clean scan, nothing lit up? the radiolgist said

> it was normal, some have more lit up some have less, and we will

> know more in 6 months. I guess i was expecting a more encouraging

> responce. i mean he was nice, and didn't scare me, but then why am

i

> so scared still. The chance of it being cancer tissue is slim cause

> the cancer did not spread. But should i of expected to hear clean

> scan the first time, and only 10 days after the RAI?

> jodi

[Guest guest]

Hi Jody,

I had exactly the same results on my WBS after RAI. They told me I

had residue takeup in the Thyroid bed and a small amount to the left

of my thyroid bed. I have just had a clean scan 6 months later.

The RAI still works on the tissue even after the WBS. I was told it

would likely dissapear by my next scan and they were right.

Take care

Deborah Ford

English – living in USA

dx Papilliary ThyCa in Thyroid and 20% of Lymph Nodes on 02/22/02

TT 03/08/02

Followed LID for 8 weeks – doctor's instructions

TSH off the chart – went too Hypo

150 mci then WBS 05/01/02

WBS 11/08/02 - Clean

> Hi guys, i just got back from my first whole body scan. the scan

> showed some parts of where the thyroid use to be lit up, and in the

> salvitory glands. They say this is very normal. And to come back in

> 6 months and do a whole body scan again. is this normal? I mean

> there were no other spots lit up, so why am i not happy? was it

> wrong to assume that 4 weeks after my TT and 10 days after the RAI

> that i would get a clean scan, nothing lit up? the radiolgist said

> it was normal, some have more lit up some have less, and we will

> know more in 6 months. I guess i was expecting a more encouraging

> responce. i mean he was nice, and didn't scare me, but then why am

i

> so scared still. The chance of it being cancer tissue is slim cause

> the cancer did not spread. But should i of expected to hear clean

> scan the first time, and only 10 days after the RAI?

> jodi

[Guest guest]

Hi Jody,

I had exactly the same results on my WBS after RAI. They told me I

had residue takeup in the Thyroid bed and a small amount to the left

of my thyroid bed. I have just had a clean scan 6 months later.

The RAI still works on the tissue even after the WBS. I was told it

would likely dissapear by my next scan and they were right.

Take care

Deborah Ford

English – living in USA

dx Papilliary ThyCa in Thyroid and 20% of Lymph Nodes on 02/22/02

TT 03/08/02

Followed LID for 8 weeks – doctor's instructions

TSH off the chart – went too Hypo

150 mci then WBS 05/01/02

WBS 11/08/02 - Clean

> Hi guys, i just got back from my first whole body scan. the scan

> showed some parts of where the thyroid use to be lit up, and in the

> salvitory glands. They say this is very normal. And to come back in

> 6 months and do a whole body scan again. is this normal? I mean

> there were no other spots lit up, so why am i not happy? was it

> wrong to assume that 4 weeks after my TT and 10 days after the RAI

> that i would get a clean scan, nothing lit up? the radiolgist said

> it was normal, some have more lit up some have less, and we will

> know more in 6 months. I guess i was expecting a more encouraging

> responce. i mean he was nice, and didn't scare me, but then why am

i

> so scared still. The chance of it being cancer tissue is slim cause

> the cancer did not spread. But should i of expected to hear clean

> scan the first time, and only 10 days after the RAI?

> jodi