Guest guest Posted July 23, 2004 Report Share Posted July 23, 2004 Hi , Prior to his diagnosis, too had awful headaches - stuff that would last several days. Since I suffer from migraine, it was written off as migraine. has not had a single headache since he started taking BP meds two years ago. I really believe there was a connection. What does bet's blood pressure look like? Any nose bleeds? Those can also be a sign of high BP. Cy Do headaches go with IgAN? > bet, my daughter diagnosed in Dec. 2002, has debilitating > headaches. Her neph., while very concerned about her kidneys, doesn't > seem concerned about her headaches at all, so our family doc has > treated her. She has taken migraine medicine with limited success, > but still has chronic daily headaches and tires easily. Is this all > part of IgAN? Her hemoglobin was low last winter, but has come up to > the low end of normal right now. > > B., for bet > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2004 Report Share Posted July 23, 2004 , I too had persistent and daily headaches which worsened right before I was diagnosed. They were just watching everything (protein and blood in urine) for a good year or so, until my #;s deteriorated. Then when I was diagnosed per biopsy, the ACE drugs were increased, and increased and increased, mostly to try to control my B/P, but also to try and get the protein down. Once my B/P approached more normal limits (down 50 - 60 points systolic) the headaches went away. I also have migraines and passed it off to that also, but I've never had migraines last for weeks on end, and these hummers would wake me up every night at 2:00 am. I totally agree with Cy, I think its a great idea to check her B/P out consistently over the next few weeks. P. S. Some migraine medicines are also contraindicated if the B/P is too high, such as the triptan class of drugs (Maxalt, Imitrex, Frova, Relpax to name a few) I can thankfully say I haven't had a " migraine " for a couple of months since my B/P has been controlled. Bonnie Cy Webb wrote: Hi , Prior to his diagnosis, too had awful headaches - stuff that would last several days. Since I suffer from migraine, it was written off as migraine. has not had a single headache since he started taking BP meds two years ago. I really believe there was a connection. What does bet's blood pressure look like? Any nose bleeds? Those can also be a sign of high BP. Cy Do headaches go with IgAN? > bet, my daughter diagnosed in Dec. 2002, has debilitating > headaches. Her neph., while very concerned about her kidneys, doesn't > seem concerned about her headaches at all, so our family doc has > treated her. She has taken migraine medicine with limited success, > but still has chronic daily headaches and tires easily. Is this all > part of IgAN? Her hemoglobin was low last winter, but has come up to > the low end of normal right now. > > B., for bet > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2004 Report Share Posted July 24, 2004 I have read several articles relating headaches and HSP. It doesn't give a reason for the headaches though. Just something to think about. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2004 Report Share Posted July 24, 2004 Bonnie, I so appreciate your reply to my " headache " question. Her b/p isn't high at the neph.'s (we've never measured it at home). She's taking the b/p meds to reduce her protein. She's been taking the b/p meds instead of prednisone. We were really reluctant to start her on prednisone and her neph. told us we could try the ACE and ARB route first. Her protein, 18 months later, is much lower than it was at diagnosis. Her neph. know she takes Maxalt and hasn't objected. Can low b/p make your head hurt? I'm so glad to hear that your migraines are better. :-) B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2004 Report Share Posted July 24, 2004 Bonnie, I so appreciate your reply to my " headache " question. Her b/p isn't high at the neph.'s (we've never measured it at home). She's taking the b/p meds to reduce her protein. She's been taking the b/p meds instead of prednisone. We were really reluctant to start her on prednisone and her neph. told us we could try the ACE and ARB route first. Her protein, 18 months later, is much lower than it was at diagnosis. Her neph. know she takes Maxalt and hasn't objected. Can low b/p make your head hurt? I'm so glad to hear that your migraines are better. :-) B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2004 Report Share Posted July 24, 2004 Bonnie, I so appreciate your reply to my " headache " question. Her b/p isn't high at the neph.'s (we've never measured it at home). She's taking the b/p meds to reduce her protein. She's been taking the b/p meds instead of prednisone. We were really reluctant to start her on prednisone and her neph. told us we could try the ACE and ARB route first. Her protein, 18 months later, is much lower than it was at diagnosis. Her neph. know she takes Maxalt and hasn't objected. Can low b/p make your head hurt? I'm so glad to hear that your migraines are better. :-) B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2004 Report Share Posted July 24, 2004 Hi B, I hope you have a terrific time on vacation. Please try to put IgAN out of your minds and just enjoy the time with your family. In a message dated 7/24/2004 12:57:55 PM Pacific Daylight Time, laura@... writes: > We're headed > off for 2 weeks of vacation, so you won't hear from us for awhile. > Thanks again, > > B. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2004 Report Share Posted July 25, 2004 Have her try Feverfew you can get it in any whole food store in pill form. However it must be taken daily for it to work but I will prevent migraine in most people and is safe for people with iga. I had to stop the script for migraine it interfer with another med i was takeing aat the time. I have use feverfew and it works. martha > bet, my daughter diagnosed in Dec. 2002, has debilitating > headaches. Her neph., while very concerned about her kidneys, doesn't > seem concerned about her headaches at all, so our family doc has > treated her. She has taken migraine medicine with limited success, > but still has chronic daily headaches and tires easily. Is this all > part of IgAN? Her hemoglobin was low last winter, but has come up to > the low end of normal right now. > > B., for bet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2004 Report Share Posted July 25, 2004 Have her try Feverfew you can get it in any whole food store in pill form. However it must be taken daily for it to work but I will prevent migraine in most people and is safe for people with iga. I had to stop the script for migraine it interfer with another med i was takeing aat the time. I have use feverfew and it works. martha > bet, my daughter diagnosed in Dec. 2002, has debilitating > headaches. Her neph., while very concerned about her kidneys, doesn't > seem concerned about her headaches at all, so our family doc has > treated her. She has taken migraine medicine with limited success, > but still has chronic daily headaches and tires easily. Is this all > part of IgAN? Her hemoglobin was low last winter, but has come up to > the low end of normal right now. > > B., for bet Quote Link to comment Share on other sites More sharing options...
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