Guest guest Posted December 15, 2001 Report Share Posted December 15, 2001 Hi - There are several articles that indicate that Lemon Balm () can be beneficial for GD symptoms. If you check in the archives for this group for articles from " galdalf " (also known as ) he's been using the lemon balm as a tea, which to me sounded like a nicer way to do it. I don't think I'd like all that alcohol, and did it say how much lemon balm was in it? That would be something I'd like to know. buys the dried herb itself (from internet sources like Mountain Rose Herbs) and brews it as a tea. This way, you know what you're getting. I know I had a discussion with him about it at the time, so there should be several messages about it back in October. Maybe he'll pop in and give us an update on how it's been working for him. I'd be curious to know, too. I managed to find some lemon balm in a tea blend here, so I'm trying that. Here are a couple sites with more info and an article - take a look. http://www.healthandage.com/html/res/com/ConsConditions/Hyperthyroidismcc.ht ml Here is a link with much Lemon Balm info: http://www.healthandage.com/html/res/com/ConsHerbs/LemonBalmch.html http://www.naturalhealthnotebook.com/Herbs/Latin_Herbs/Genu s-M/_officinalis.htm Thyroid gland hormonal effects Lemon balm extract interferes with thyroid stimulating hormone binding with Graves' immunoglobulin (Graves'-specific IgE) and consequent thyroid activation. That is, it mildly reduces thyroid activity and is thus helpful for hyperthyroid conditions such as Grave's disease. The rosmarinic and lithospermic acids in freeze dried lemon balm extract were found to bind with thyrotropin to prevent it and the thyroid-stimulating immunoglobulin (TSI) from stimulating receptor sites in the thyroid. Auf'mkolk M et al, Inhibition by certain plant extracts of the binding and adenylate cyclas stimulatory effect of bovine thyrotropin in human thyroid membranes. Endocrinology 1984;115(2):527. Auf'mkolk M et al, The active principles of plant extract with antithyroitropic activity. Endocrinology 1985 116(5):1677 & 1687. Auf'mkolk M et al, The active principles of plant extracts with antithyrotropic activity: Oxidation products of derivatives of 3,4-dihydroxycinnamic acid. Endocrinology 1985;116(5):1677. The hormonal effect of lemon balm is less than Lithospermum officinales, Lycopus virginicus or Lycopus europaeus). It is not potent enough to adversely affect people with normal thyroid function. The activity was traced to caffeic acid oligomers such as rosmarinic acid and lithospermic acid. Auto-oxidation of the caffeic acid deribatives to ortho-quinones may contribute to the biological activity. Sourgens H et al, Antihormonal effects of plant extracts, TSH- and prolactin-suppressing properties of Lithospermum officinale and other plants. 1982 Planta Medica 45:78, Lemon balm is contraindicated if hypothyroid condition because of its antithyrotropic properties. /Lycopus Compound effective for Graves? >I had been curious about this herbal/vitamin shop and today I finally >stopped in. I gave him a laundary list of what's been going on. For >Graves disease, he suggested this: > >/Lycopus Compound >By Herbalist Alchemist >2 Oz 60ml $18.55 > >Normalizes hyperthyroid conditions with a wide array of symptoms >including nervousness, tachycardia, racing pulse, agitation & >anxiety. > >The contents are vague but include: > >Propietary blend of Motherart aerial parts >Lemon Balm aerial parts >Bugleweed aerial parts >Average alcohol content 45% > >I'm supposed to take two full droppers, three times a day and see my >thyroid normal after TWO weeks. This sounds a tad agressive but I'm >game. > >Has anyone tried this? Or is it a waste of time? I know very little >about these herbs and how they interact with the body. I was also >curious about the alcohol content. That seems a bit high - 45%? > >All opinions are encouraged and don't hold back. If it's a come on, >tell me. > > >Best Regards, > > >nancy > > > > >------------------------------------- >The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. >Please consult your doctor before changing or trying new treatments. >---------------------------------------- > DISCLAIMER > >Advertisments placed on this yahoo groups list does not have the endorsement of >the listowner. I have no input as to what ads are attached to emails. >--------------------------------------------------------------------------- ----------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2001 Report Share Posted December 15, 2001 Thanks . No, it doesn't state the lemon balm percentage. The only percentage it states is the alcohol percentage. WOW! Lots of links to read and I'll look up what galdalf says. I kind of prefer the more natrual approach but not sure of what I am doing. Thank you again. I didn't want to run off with an obvious quack type solution. Best Regards, > Hi - > > There are several articles that indicate that Lemon Balm () can be > beneficial for GD symptoms. If you check in the archives for this group for > articles from " galdalf " (also known as ) he's been using the lemon > balm as a tea, which to me sounded like a nicer way to do it. I don't think > I'd like all that alcohol, and did it say how much lemon balm was in it? > That would be something I'd like to know. buys the dried herb itself > (from internet sources like Mountain Rose Herbs) and brews it as a tea. This > way, you know what you're getting. I know I had a discussion with him about > it at the time, so there should be several messages about it back in > October. Maybe he'll pop in and give us an update on how it's been working > for him. I'd be curious to know, too. I managed to find some lemon balm in a > tea blend here, so I'm trying that. > > Here are a couple sites with more info and an article - take a look. > > > > http://www.healthandage.com/html/res/com/ConsConditions/Hyperthyroidis mcc.ht > ml > > Here is a link with much Lemon Balm info: > http://www.healthandage.com/html/res/com/ConsHerbs/LemonBalmch.html > > > http://www.naturalhealthnotebook.com/Herbs/Latin_Herbs/Genu > s-M/_officinalis.htm > > > Thyroid gland hormonal effects > > > Lemon balm extract interferes with thyroid stimulating hormone > binding with Graves' immunoglobulin (Graves'-specific IgE) and > consequent thyroid activation. That is, it mildly reduces thyroid > activity and is thus helpful for hyperthyroid conditions such as > Grave's disease. > > The rosmarinic and lithospermic acids in freeze dried lemon > balm extract were found to bind with thyrotropin to prevent it and > the thyroid-stimulating immunoglobulin (TSI) from stimulating > receptor sites in the thyroid. > Auf'mkolk M et al, Inhibition by certain plant extracts of the binding > and adenylate cyclas stimulatory effect of bovine thyrotropin in > human thyroid membranes. Endocrinology 1984;115(2):527. > Auf'mkolk M et al, The active principles of plant extract with > antithyroitropic activity. Endocrinology 1985 116(5):1677 & 1687. > Auf'mkolk M et al, The active principles of plant extracts with > antithyrotropic activity: Oxidation products of derivatives of > > 3,4-dihydroxycinnamic acid. Endocrinology 1985;116(5):1677. > > The hormonal effect of lemon balm is less than Lithospermum > officinales, Lycopus virginicus or Lycopus europaeus). It is not > potent enough to adversely affect people with normal thyroid > function. The activity was traced to caffeic acid oligomers such > as rosmarinic acid and lithospermic acid. > > Auto-oxidation of the caffeic acid deribatives to ortho-quinones > may contribute to the biological activity. > Sourgens H et al, Antihormonal effects of plant extracts, TSH- > and prolactin-suppressing properties of Lithospermum officinale > and other plants. 1982 Planta Medica 45:78, > > Lemon balm is contraindicated if hypothyroid condition because > of its antithyrotropic properties. > /Lycopus Compound effective for Graves? > > > >I had been curious about this herbal/vitamin shop and today I finally > >stopped in. I gave him a laundary list of what's been going on. For > >Graves disease, he suggested this: > > > >/Lycopus Compound > >By Herbalist Alchemist > >2 Oz 60ml $18.55 > > > >Normalizes hyperthyroid conditions with a wide array of symptoms > >including nervousness, tachycardia, racing pulse, agitation & > >anxiety. > > > >The contents are vague but include: > > > >Propietary blend of Motherart aerial parts > >Lemon Balm aerial parts > >Bugleweed aerial parts > >Average alcohol content 45% > > > >I'm supposed to take two full droppers, three times a day and see my > >thyroid normal after TWO weeks. This sounds a tad agressive but I'm > >game. > > > >Has anyone tried this? Or is it a waste of time? I know very little > >about these herbs and how they interact with the body. I was also > >curious about the alcohol content. That seems a bit high - 45%? > > > >All opinions are encouraged and don't hold back. If it's a come on, > >tell me. > > > > > >Best Regards, > > > > > >nancy > > > > > > > > > >------------------------------------- > >The Graves' list is intended for informational purposes only and is not > intended to replace expert medical care. > >Please consult your doctor before changing or trying new treatments. > >---------------------------------------- > > DISCLAIMER > > > >Advertisments placed on this yahoo groups list does not have the > endorsement of > >the listowner. I have no input as to what ads are attached to emails. > >------------------------------------------------------------------- -------- > ----------- > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2001 Report Share Posted December 15, 2001 Thanks . No, it doesn't state the lemon balm percentage. The only percentage it states is the alcohol percentage. WOW! Lots of links to read and I'll look up what galdalf says. I kind of prefer the more natrual approach but not sure of what I am doing. Thank you again. I didn't want to run off with an obvious quack type solution. Best Regards, > Hi - > > There are several articles that indicate that Lemon Balm () can be > beneficial for GD symptoms. If you check in the archives for this group for > articles from " galdalf " (also known as ) he's been using the lemon > balm as a tea, which to me sounded like a nicer way to do it. I don't think > I'd like all that alcohol, and did it say how much lemon balm was in it? > That would be something I'd like to know. buys the dried herb itself > (from internet sources like Mountain Rose Herbs) and brews it as a tea. This > way, you know what you're getting. I know I had a discussion with him about > it at the time, so there should be several messages about it back in > October. Maybe he'll pop in and give us an update on how it's been working > for him. I'd be curious to know, too. I managed to find some lemon balm in a > tea blend here, so I'm trying that. > > Here are a couple sites with more info and an article - take a look. > > > > http://www.healthandage.com/html/res/com/ConsConditions/Hyperthyroidis mcc.ht > ml > > Here is a link with much Lemon Balm info: > http://www.healthandage.com/html/res/com/ConsHerbs/LemonBalmch.html > > > http://www.naturalhealthnotebook.com/Herbs/Latin_Herbs/Genu > s-M/_officinalis.htm > > > Thyroid gland hormonal effects > > > Lemon balm extract interferes with thyroid stimulating hormone > binding with Graves' immunoglobulin (Graves'-specific IgE) and > consequent thyroid activation. That is, it mildly reduces thyroid > activity and is thus helpful for hyperthyroid conditions such as > Grave's disease. > > The rosmarinic and lithospermic acids in freeze dried lemon > balm extract were found to bind with thyrotropin to prevent it and > the thyroid-stimulating immunoglobulin (TSI) from stimulating > receptor sites in the thyroid. > Auf'mkolk M et al, Inhibition by certain plant extracts of the binding > and adenylate cyclas stimulatory effect of bovine thyrotropin in > human thyroid membranes. Endocrinology 1984;115(2):527. > Auf'mkolk M et al, The active principles of plant extract with > antithyroitropic activity. Endocrinology 1985 116(5):1677 & 1687. > Auf'mkolk M et al, The active principles of plant extracts with > antithyrotropic activity: Oxidation products of derivatives of > > 3,4-dihydroxycinnamic acid. Endocrinology 1985;116(5):1677. > > The hormonal effect of lemon balm is less than Lithospermum > officinales, Lycopus virginicus or Lycopus europaeus). It is not > potent enough to adversely affect people with normal thyroid > function. The activity was traced to caffeic acid oligomers such > as rosmarinic acid and lithospermic acid. > > Auto-oxidation of the caffeic acid deribatives to ortho-quinones > may contribute to the biological activity. > Sourgens H et al, Antihormonal effects of plant extracts, TSH- > and prolactin-suppressing properties of Lithospermum officinale > and other plants. 1982 Planta Medica 45:78, > > Lemon balm is contraindicated if hypothyroid condition because > of its antithyrotropic properties. > /Lycopus Compound effective for Graves? > > > >I had been curious about this herbal/vitamin shop and today I finally > >stopped in. I gave him a laundary list of what's been going on. For > >Graves disease, he suggested this: > > > >/Lycopus Compound > >By Herbalist Alchemist > >2 Oz 60ml $18.55 > > > >Normalizes hyperthyroid conditions with a wide array of symptoms > >including nervousness, tachycardia, racing pulse, agitation & > >anxiety. > > > >The contents are vague but include: > > > >Propietary blend of Motherart aerial parts > >Lemon Balm aerial parts > >Bugleweed aerial parts > >Average alcohol content 45% > > > >I'm supposed to take two full droppers, three times a day and see my > >thyroid normal after TWO weeks. This sounds a tad agressive but I'm > >game. > > > >Has anyone tried this? Or is it a waste of time? I know very little > >about these herbs and how they interact with the body. I was also > >curious about the alcohol content. That seems a bit high - 45%? > > > >All opinions are encouraged and don't hold back. If it's a come on, > >tell me. > > > > > >Best Regards, > > > > > >nancy > > > > > > > > > >------------------------------------- > >The Graves' list is intended for informational purposes only and is not > intended to replace expert medical care. > >Please consult your doctor before changing or trying new treatments. > >---------------------------------------- > > DISCLAIMER > > > >Advertisments placed on this yahoo groups list does not have the > endorsement of > >the listowner. I have no input as to what ads are attached to emails. > >------------------------------------------------------------------- -------- > ----------- > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2001 Report Share Posted December 15, 2001 Oh,oh. I started using it WITH my PTU. It seems that you have to chose between the two: " Although it has not yet been demonstrated in scientific studies in humans, lemon balm may interfere with thyroid medications. If you are taking medications to regulate your thyroid, you should not use lemon balm. " That's from the second link. I'll have to think about that. Best Regards, > Hi - > > There are several articles that indicate that Lemon Balm () can be > beneficial for GD symptoms. If you check in the archives for this group for > articles from " galdalf " (also known as ) he's been using the lemon > balm as a tea, which to me sounded like a nicer way to do it. I don't think > I'd like all that alcohol, and did it say how much lemon balm was in it? > That would be something I'd like to know. buys the dried herb itself > (from internet sources like Mountain Rose Herbs) and brews it as a tea. This > way, you know what you're getting. I know I had a discussion with him about > it at the time, so there should be several messages about it back in > October. Maybe he'll pop in and give us an update on how it's been working > for him. I'd be curious to know, too. I managed to find some lemon balm in a > tea blend here, so I'm trying that. > > Here are a couple sites with more info and an article - take a look. > > > > http://www.healthandage.com/html/res/com/ConsConditions/Hyperthyroidis mcc.ht > ml > > Here is a link with much Lemon Balm info: > http://www.healthandage.com/html/res/com/ConsHerbs/LemonBalmch.html > > > http://www.naturalhealthnotebook.com/Herbs/Latin_Herbs/Genu > s-M/_officinalis.htm > > > Thyroid gland hormonal effects > > > Lemon balm extract interferes with thyroid stimulating hormone > binding with Graves' immunoglobulin (Graves'-specific IgE) and > consequent thyroid activation. That is, it mildly reduces thyroid > activity and is thus helpful for hyperthyroid conditions such as > Grave's disease. > > The rosmarinic and lithospermic acids in freeze dried lemon > balm extract were found to bind with thyrotropin to prevent it and > the thyroid-stimulating immunoglobulin (TSI) from stimulating > receptor sites in the thyroid. > Auf'mkolk M et al, Inhibition by certain plant extracts of the binding > and adenylate cyclas stimulatory effect of bovine thyrotropin in > human thyroid membranes. Endocrinology 1984;115(2):527. > Auf'mkolk M et al, The active principles of plant extract with > antithyroitropic activity. Endocrinology 1985 116(5):1677 & 1687. > Auf'mkolk M et al, The active principles of plant extracts with > antithyrotropic activity: Oxidation products of derivatives of > > 3,4-dihydroxycinnamic acid. Endocrinology 1985;116(5):1677. > > The hormonal effect of lemon balm is less than Lithospermum > officinales, Lycopus virginicus or Lycopus europaeus). It is not > potent enough to adversely affect people with normal thyroid > function. The activity was traced to caffeic acid oligomers such > as rosmarinic acid and lithospermic acid. > > Auto-oxidation of the caffeic acid deribatives to ortho-quinones > may contribute to the biological activity. > Sourgens H et al, Antihormonal effects of plant extracts, TSH- > and prolactin-suppressing properties of Lithospermum officinale > and other plants. 1982 Planta Medica 45:78, > > Lemon balm is contraindicated if hypothyroid condition because > of its antithyrotropic properties. > /Lycopus Compound effective for Graves? > > > >I had been curious about this herbal/vitamin shop and today I finally > >stopped in. I gave him a laundary list of what's been going on. For > >Graves disease, he suggested this: > > > >/Lycopus Compound > >By Herbalist Alchemist > >2 Oz 60ml $18.55 > > > >Normalizes hyperthyroid conditions with a wide array of symptoms > >including nervousness, tachycardia, racing pulse, agitation & > >anxiety. > > > >The contents are vague but include: > > > >Propietary blend of Motherart aerial parts > >Lemon Balm aerial parts > >Bugleweed aerial parts > >Average alcohol content 45% > > > >I'm supposed to take two full droppers, three times a day and see my > >thyroid normal after TWO weeks. This sounds a tad agressive but I'm > >game. > > > >Has anyone tried this? Or is it a waste of time? I know very little > >about these herbs and how they interact with the body. I was also > >curious about the alcohol content. That seems a bit high - 45%? > > > >All opinions are encouraged and don't hold back. If it's a come on, > >tell me. > > > > > >Best Regards, > > > > > >nancy > > > > > > > > > >------------------------------------- > >The Graves' list is intended for informational purposes only and is not > intended to replace expert medical care. > >Please consult your doctor before changing or trying new treatments. > >---------------------------------------- > > DISCLAIMER > > > >Advertisments placed on this yahoo groups list does not have the > endorsement of > >the listowner. I have no input as to what ads are attached to emails. > >------------------------------------------------------------------- -------- > ----------- > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2001 Report Share Posted December 15, 2001 Hi , Good to see you again. Thanks for your take on my friends 'issue'. I am still waiting, and thinking on this reply to her. You say... " Although it has not yet been demonstrated in scientific studies in humans, lemon balm may interfere with thyroid medications. If you are taking medications to regulate your thyroid, you should not use lemon balm. " It sounds like it is written for hypo folks on Synthroid or such, ( like most everything), but is a valid point. Seems to me, if this worked you would need less PTU. So watching symptoms and getting labs, and really keeping track of all your doses of both, would be the way to go. My thinking on this is based on my new vitamin routine, that is making my need for PTU less each month. Right now, it is all moving too fast for me LOL ! I keep lowering my PTU dose, and keep being slightly hypo. So something is working . Kinda like sliding downhill, and having fun ! Maybe there is light at the end of the tunnel. Wow, 45%....that would give me a little buzz, even in that small of an amount. No hot buttered rum for you. -Pam- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2001 Report Share Posted December 15, 2001 Hi , Good to see you again. Thanks for your take on my friends 'issue'. I am still waiting, and thinking on this reply to her. You say... " Although it has not yet been demonstrated in scientific studies in humans, lemon balm may interfere with thyroid medications. If you are taking medications to regulate your thyroid, you should not use lemon balm. " It sounds like it is written for hypo folks on Synthroid or such, ( like most everything), but is a valid point. Seems to me, if this worked you would need less PTU. So watching symptoms and getting labs, and really keeping track of all your doses of both, would be the way to go. My thinking on this is based on my new vitamin routine, that is making my need for PTU less each month. Right now, it is all moving too fast for me LOL ! I keep lowering my PTU dose, and keep being slightly hypo. So something is working . Kinda like sliding downhill, and having fun ! Maybe there is light at the end of the tunnel. Wow, 45%....that would give me a little buzz, even in that small of an amount. No hot buttered rum for you. -Pam- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2001 Report Share Posted December 15, 2001 Hehehe, you say...I'm not going to mention the supplement. Don't......I didn't. It is not why I am paying him. I want to know where my levels are, and have him look at me, and notice if anything is more odd than normal. LOL , but true. Some kind soul here told me not to mention a couple of things, ( thanks again) but some how, I let it slip that I was taking 1/4 pill less, and I felt better but was worried because my BP is going back up. Well, this resulted in a lost , but traumatic 15 min, with us debating PTU, and his concern about the drug induced lupus, that Elaine has explained. Then my labs disappeared in the mail, so I have been worried sick for two weeks over nothing. Guess what...I went down a bit hypo......so that 1'4 pill less was a darn good idea on my part. I told him, I had labs before I did that.....what is so complicated here? And you know what, I am today reducing one more 1/4 pill. I have my new labs to confirm it is the right thing to do. Will I argue about it next time????? Time will tell. But I will be sure to change the subject. It's my money, I worked hard for it, and we will discuss what I want. I know alcohol goes straight to my head now, but I have been thinking about my once a year hot buttered rum. Should I have it xmas eve or new years eve. LOL If my old friends could hear me now. I also know it will take a whole day to get over it now, so I shall plan ahead. -Pam- finally learning to trust myself Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2001 Report Share Posted December 15, 2001 Hehehe, you say...I'm not going to mention the supplement. Don't......I didn't. It is not why I am paying him. I want to know where my levels are, and have him look at me, and notice if anything is more odd than normal. LOL , but true. Some kind soul here told me not to mention a couple of things, ( thanks again) but some how, I let it slip that I was taking 1/4 pill less, and I felt better but was worried because my BP is going back up. Well, this resulted in a lost , but traumatic 15 min, with us debating PTU, and his concern about the drug induced lupus, that Elaine has explained. Then my labs disappeared in the mail, so I have been worried sick for two weeks over nothing. Guess what...I went down a bit hypo......so that 1'4 pill less was a darn good idea on my part. I told him, I had labs before I did that.....what is so complicated here? And you know what, I am today reducing one more 1/4 pill. I have my new labs to confirm it is the right thing to do. Will I argue about it next time????? Time will tell. But I will be sure to change the subject. It's my money, I worked hard for it, and we will discuss what I want. I know alcohol goes straight to my head now, but I have been thinking about my once a year hot buttered rum. Should I have it xmas eve or new years eve. LOL If my old friends could hear me now. I also know it will take a whole day to get over it now, so I shall plan ahead. -Pam- finally learning to trust myself Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2001 Report Share Posted December 15, 2001 Hehehe, you say...I'm not going to mention the supplement. Don't......I didn't. It is not why I am paying him. I want to know where my levels are, and have him look at me, and notice if anything is more odd than normal. LOL , but true. Some kind soul here told me not to mention a couple of things, ( thanks again) but some how, I let it slip that I was taking 1/4 pill less, and I felt better but was worried because my BP is going back up. Well, this resulted in a lost , but traumatic 15 min, with us debating PTU, and his concern about the drug induced lupus, that Elaine has explained. Then my labs disappeared in the mail, so I have been worried sick for two weeks over nothing. Guess what...I went down a bit hypo......so that 1'4 pill less was a darn good idea on my part. I told him, I had labs before I did that.....what is so complicated here? And you know what, I am today reducing one more 1/4 pill. I have my new labs to confirm it is the right thing to do. Will I argue about it next time????? Time will tell. But I will be sure to change the subject. It's my money, I worked hard for it, and we will discuss what I want. I know alcohol goes straight to my head now, but I have been thinking about my once a year hot buttered rum. Should I have it xmas eve or new years eve. LOL If my old friends could hear me now. I also know it will take a whole day to get over it now, so I shall plan ahead. -Pam- finally learning to trust myself Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2001 Report Share Posted December 15, 2001 Pam, As one who has reduced dosage multiple times without " permission " from my endo, I KNOW that trusting ourselves to know when to shave that 1/4 pill away based on how we feel, is right. I can't wait until I get blood work done (Monday) and see him (Xmas eve). Last visit he wanted me on 10, but I'd dropped to 7.5 mg., and since then I've dropped to 5, 3.75, 2.5 and now 1.25...and I'm pretty sure I'm OFF after this bloodwork comes back. The thing that did it (that is, gave me confidence) was forcing him to order TSI in August--he didn't want to, I documented the whole thing here--and he didn't trust the results, which showed my antibodies were way, way down-- but I knew that I was heading for remission even if he didn't. And I am so excited to see what my labs are, cause they I have no doubt whatsoever that they will validate what I've been doing. Terry > > Reply-To: graves_support > Date: Sat, 15 Dec 2001 21:28:22 -0800 > To: graves_support > Subject: Re: Re: /Lycopus Compound effective for > Graves? > > Hehehe, > you say...I'm not > going to mention the supplement. > > Don't......I didn't. It is not why I am paying him. I want to know where my > levels are, > and have him look at me, and notice if anything is more odd than normal. LOL , > but true. > > Some kind soul here told me not to mention a couple of things, ( thanks again) > but some > how, I let it slip that I was taking 1/4 pill less, and I felt better but was > worried > because my BP is going back up. > Well, this resulted in a lost , but traumatic 15 min, with us debating PTU, > and his > concern about the drug induced lupus, that Elaine has explained. Then my labs > disappeared > in the mail, so I have been worried sick for two weeks over nothing. Guess > what...I went > down a bit hypo......so that 1'4 pill less was a darn good idea on my part. I > told him, I > had labs before I did that.....what is so complicated here? > > And you know what, I am today reducing one more 1/4 pill. I have my new labs > to confirm it > is the right thing to do. Will I argue about it next time????? Time will tell. > But I will > be sure to change the subject. It's my money, I worked hard for it, and we > will discuss > what I want. > > I know alcohol goes straight to my head now, but I have been thinking about my > once a year > hot buttered rum. Should I have it xmas eve or new years eve. LOL If my old > friends could > hear me now. I also know it will take a whole day to get over it now, so I > shall plan > ahead. > > -Pam- finally learning to trust myself > > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not > intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list does not have the endorsement > of > the listowner. I have no input as to what ads are attached to emails. > ------------------------------------------------------------------------------ > -------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2001 Report Share Posted December 15, 2001 Pam, As one who has reduced dosage multiple times without " permission " from my endo, I KNOW that trusting ourselves to know when to shave that 1/4 pill away based on how we feel, is right. I can't wait until I get blood work done (Monday) and see him (Xmas eve). Last visit he wanted me on 10, but I'd dropped to 7.5 mg., and since then I've dropped to 5, 3.75, 2.5 and now 1.25...and I'm pretty sure I'm OFF after this bloodwork comes back. The thing that did it (that is, gave me confidence) was forcing him to order TSI in August--he didn't want to, I documented the whole thing here--and he didn't trust the results, which showed my antibodies were way, way down-- but I knew that I was heading for remission even if he didn't. And I am so excited to see what my labs are, cause they I have no doubt whatsoever that they will validate what I've been doing. Terry > > Reply-To: graves_support > Date: Sat, 15 Dec 2001 21:28:22 -0800 > To: graves_support > Subject: Re: Re: /Lycopus Compound effective for > Graves? > > Hehehe, > you say...I'm not > going to mention the supplement. > > Don't......I didn't. It is not why I am paying him. I want to know where my > levels are, > and have him look at me, and notice if anything is more odd than normal. LOL , > but true. > > Some kind soul here told me not to mention a couple of things, ( thanks again) > but some > how, I let it slip that I was taking 1/4 pill less, and I felt better but was > worried > because my BP is going back up. > Well, this resulted in a lost , but traumatic 15 min, with us debating PTU, > and his > concern about the drug induced lupus, that Elaine has explained. Then my labs > disappeared > in the mail, so I have been worried sick for two weeks over nothing. Guess > what...I went > down a bit hypo......so that 1'4 pill less was a darn good idea on my part. I > told him, I > had labs before I did that.....what is so complicated here? > > And you know what, I am today reducing one more 1/4 pill. I have my new labs > to confirm it > is the right thing to do. Will I argue about it next time????? Time will tell. > But I will > be sure to change the subject. It's my money, I worked hard for it, and we > will discuss > what I want. > > I know alcohol goes straight to my head now, but I have been thinking about my > once a year > hot buttered rum. Should I have it xmas eve or new years eve. LOL If my old > friends could > hear me now. I also know it will take a whole day to get over it now, so I > shall plan > ahead. > > -Pam- finally learning to trust myself > > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not > intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list does not have the endorsement > of > the listowner. I have no input as to what ads are attached to emails. > ------------------------------------------------------------------------------ > -------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2001 Report Share Posted December 16, 2001 Pam, Thanks for providing a little validation example on not mentioning some things! I decided not to mention to my doc that I'm trying some supplements first before going to a more " conventional " method, if necessary. Maybe I'll tell him in the future, we'll see how it goes. But I certainly don't want to have an argument with my doc just because he doesn't believe in trying something different. Right now he's content with me coming in every 3 months for blood work and monitoring. I really liked your explanation that this isn't something you're paying him for. I think that sums up what I was feeling, but couldn't express. Re: Re: /Lycopus Compound effective for Graves? >Hehehe, > you say...I'm not >going to mention the supplement. > >Don't......I didn't. It is not why I am paying him. I want to know where my levels are, >and have him look at me, and notice if anything is more odd than normal. LOL , but true. > >Some kind soul here told me not to mention a couple of things, ( thanks again) but some >how, I let it slip that I was taking 1/4 pill less, and I felt better but was worried >because my BP is going back up. >Well, this resulted in a lost , but traumatic 15 min, with us debating PTU, and his >concern about the drug induced lupus, that Elaine has explained. Then my labs disappeared >in the mail, so I have been worried sick for two weeks over nothing. Guess what...I went >down a bit hypo......so that 1'4 pill less was a darn good idea on my part. I told him, I >had labs before I did that.....what is so complicated here? > >And you know what, I am today reducing one more 1/4 pill. I have my new labs to confirm it >is the right thing to do. Will I argue about it next time????? Time will tell. But I will >be sure to change the subject. It's my money, I worked hard for it, and we will discuss >what I want. > >I know alcohol goes straight to my head now, but I have been thinking about my once a year >hot buttered rum. Should I have it xmas eve or new years eve. LOL If my old friends could >hear me now. I also know it will take a whole day to get over it now, so I shall plan >ahead. > >-Pam- finally learning to trust myself > > > >------------------------------------- >The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. >Please consult your doctor before changing or trying new treatments. >---------------------------------------- > DISCLAIMER > >Advertisments placed on this yahoo groups list does not have the endorsement of >the listowner. I have no input as to what ads are attached to emails. >--------------------------------------------------------------------------- ----------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2001 Report Share Posted December 16, 2001 Hi It doesn't seem fair that you have to decide not to tell your Dr about something that will (or may) impact your treatment to avoid an argument. I get so angry with these so called Drs and their 'greater than thou' attitudes. As a patient you have the right to be able to discuss your care in a therapeutic way. This includes all aspects of the your health and treatment. But unfortunately too many Drs don't want to discuss they want to dictate. When I was first diagnosed I also went to a naturopath. I debated with myself the issue of telling the endo that I planned to take homeopathic meds as well as traditional. I felt anxious about it (even though I've worked in the health industry for 20yrs and certainly don't see Drs as 'gods' or anything), but it was hard. I think when we are sick it so hard to knowingly put ourselves in a position where we have to be assertive. I did tell my endo (with my pulse racing, my palms sweaty, my mind racing and tripping over words) he sat back and scowled at me. He thought I was saying I didn't want the traditional meds at all and he told me to go ahead and try the other 'stuff' but I'd be back because I would fail and get sicker. It was very upsetting I actually cried and I had to be quite clear with him I wanted to try both and hopefully they would compliment one another (which they did). He was very closed to other methods or even to the 'whole picture' of my health. It really isn't fair that we are forced (because of our illness and the Dr's attitude) to have to make decisions such as you have. It just more anxiety into our lives. I wish you all the best and hope that you don't have the argument with your Dr if you start to get better and decide to tell him what you're doing. Keep us posted - at least there is loads of support here and a way to discuss the ups and downs without the argument....: )... Cheers Caroline " L. Buck " wrote: > Pam, > > Thanks for providing a little validation example on not mentioning some > things! I decided not to mention to my doc that I'm trying some supplements > first before going to a more " conventional " method, if necessary. Maybe I'll > tell him in the future, we'll see how it goes. But I certainly don't want to > have an argument with my doc just because he doesn't believe in trying > something different. Right now he's content with me coming in every 3 months > for blood work and monitoring. I really liked your explanation that this > isn't something you're paying him for. I think that sums up what I was > feeling, but couldn't express. > > > > Re: Re: /Lycopus Compound effective for > Graves? > > >Hehehe, > > you say...I'm not > >going to mention the supplement. > > > >Don't......I didn't. It is not why I am paying him. I want to know where my > levels are, > >and have him look at me, and notice if anything is more odd than normal. > LOL , but true. > > > >Some kind soul here told me not to mention a couple of things, ( thanks > again) but some > >how, I let it slip that I was taking 1/4 pill less, and I felt better but > was worried > >because my BP is going back up. > >Well, this resulted in a lost , but traumatic 15 min, with us debating PTU, > and his > >concern about the drug induced lupus, that Elaine has explained. Then my > labs disappeared > >in the mail, so I have been worried sick for two weeks over nothing. Guess > what...I went > >down a bit hypo......so that 1'4 pill less was a darn good idea on my part. > I told him, I > >had labs before I did that.....what is so complicated here? > > > >And you know what, I am today reducing one more 1/4 pill. I have my new > labs to confirm it > >is the right thing to do. Will I argue about it next time????? Time will > tell. But I will > >be sure to change the subject. It's my money, I worked hard for it, and > we will discuss > >what I want. > > > >I know alcohol goes straight to my head now, but I have been thinking about > my once a year > >hot buttered rum. Should I have it xmas eve or new years eve. LOL If my old > friends could > >hear me now. I also know it will take a whole day to get over it now, so I > shall plan > >ahead. > > > >-Pam- finally learning to trust myself > > > > > > > >------------------------------------- > >The Graves' list is intended for informational purposes only and is not > intended to replace expert medical care. > >Please consult your doctor before changing or trying new treatments. > >---------------------------------------- > > DISCLAIMER > > > >Advertisments placed on this yahoo groups list does not have the > endorsement of > >the listowner. I have no input as to what ads are attached to emails. > >--------------------------------------------------------------------------- > ----------- > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2001 Report Share Posted December 16, 2001 Hi It doesn't seem fair that you have to decide not to tell your Dr about something that will (or may) impact your treatment to avoid an argument. I get so angry with these so called Drs and their 'greater than thou' attitudes. As a patient you have the right to be able to discuss your care in a therapeutic way. This includes all aspects of the your health and treatment. But unfortunately too many Drs don't want to discuss they want to dictate. When I was first diagnosed I also went to a naturopath. I debated with myself the issue of telling the endo that I planned to take homeopathic meds as well as traditional. I felt anxious about it (even though I've worked in the health industry for 20yrs and certainly don't see Drs as 'gods' or anything), but it was hard. I think when we are sick it so hard to knowingly put ourselves in a position where we have to be assertive. I did tell my endo (with my pulse racing, my palms sweaty, my mind racing and tripping over words) he sat back and scowled at me. He thought I was saying I didn't want the traditional meds at all and he told me to go ahead and try the other 'stuff' but I'd be back because I would fail and get sicker. It was very upsetting I actually cried and I had to be quite clear with him I wanted to try both and hopefully they would compliment one another (which they did). He was very closed to other methods or even to the 'whole picture' of my health. It really isn't fair that we are forced (because of our illness and the Dr's attitude) to have to make decisions such as you have. It just more anxiety into our lives. I wish you all the best and hope that you don't have the argument with your Dr if you start to get better and decide to tell him what you're doing. Keep us posted - at least there is loads of support here and a way to discuss the ups and downs without the argument....: )... Cheers Caroline " L. Buck " wrote: > Pam, > > Thanks for providing a little validation example on not mentioning some > things! I decided not to mention to my doc that I'm trying some supplements > first before going to a more " conventional " method, if necessary. Maybe I'll > tell him in the future, we'll see how it goes. But I certainly don't want to > have an argument with my doc just because he doesn't believe in trying > something different. Right now he's content with me coming in every 3 months > for blood work and monitoring. I really liked your explanation that this > isn't something you're paying him for. I think that sums up what I was > feeling, but couldn't express. > > > > Re: Re: /Lycopus Compound effective for > Graves? > > >Hehehe, > > you say...I'm not > >going to mention the supplement. > > > >Don't......I didn't. It is not why I am paying him. I want to know where my > levels are, > >and have him look at me, and notice if anything is more odd than normal. > LOL , but true. > > > >Some kind soul here told me not to mention a couple of things, ( thanks > again) but some > >how, I let it slip that I was taking 1/4 pill less, and I felt better but > was worried > >because my BP is going back up. > >Well, this resulted in a lost , but traumatic 15 min, with us debating PTU, > and his > >concern about the drug induced lupus, that Elaine has explained. Then my > labs disappeared > >in the mail, so I have been worried sick for two weeks over nothing. Guess > what...I went > >down a bit hypo......so that 1'4 pill less was a darn good idea on my part. > I told him, I > >had labs before I did that.....what is so complicated here? > > > >And you know what, I am today reducing one more 1/4 pill. I have my new > labs to confirm it > >is the right thing to do. Will I argue about it next time????? Time will > tell. But I will > >be sure to change the subject. It's my money, I worked hard for it, and > we will discuss > >what I want. > > > >I know alcohol goes straight to my head now, but I have been thinking about > my once a year > >hot buttered rum. Should I have it xmas eve or new years eve. LOL If my old > friends could > >hear me now. I also know it will take a whole day to get over it now, so I > shall plan > >ahead. > > > >-Pam- finally learning to trust myself > > > > > > > >------------------------------------- > >The Graves' list is intended for informational purposes only and is not > intended to replace expert medical care. > >Please consult your doctor before changing or trying new treatments. > >---------------------------------------- > > DISCLAIMER > > > >Advertisments placed on this yahoo groups list does not have the > endorsement of > >the listowner. I have no input as to what ads are attached to emails. > >--------------------------------------------------------------------------- > ----------- > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2001 Report Share Posted December 16, 2001 Caroline - Everything you say rings so true! It would be so nice to discuss all therapeutic avenues toward getting well, but so many doctors are so closed minded about other treatments. After reading and doing my own research, I often feel like I know more than my doctor does about GD, mainly because GD is not a disease doctors often see. So the last thing I want is to be scolded like a naughty child for not wanting to do the " conventional " treatment. I have enough problems with medications as it is, and ATDs sound powerful enough that I don't really want to find out what nasty side effects I'll get from those. It seems like a lot of doctors (especially older ones) expect the patient to do what he/she says unquestioningly because " the doctor said so " . It would be nice if more doctors could be " partners " in treating patients. I think of this because all the diabetic literature my hubby has talks about getting the right " team " in charge of your care and that your doctor is a " partner " in your diabetic treatment. Would be nice if it worked that way for everything. I'd really like to talk to a doctor about this alternative care. I'd like to be aware if I can possibly take too much of something and do harm to myself. I know that for some vitamins it's bad to have to much, but where to find this out? All I have to rely on for that is my own research into it. Unfortunately here there aren't many " alternative " practitioners. I went to one naturopath, but he didn't know of anything he could do for me. It seems from other people's descriptions of how they came to be diagnosed and their subsequent treatment, that there is a lot of truth to the " whole picture " of health. A lot of those here have said that GD was kind of a wake up call to change their lives a bit. So it doesn't seem realistic for a doctor to think that just having a pill or RAI is going to solve the whole problem. I'd be curious to see more detail on how GD is treated in other countries, particularly in Europe, Japan, and China. Sometimes I think our " modern " medicine can be a little too " modern " . It isn't fair to have to hold back info like this or feel like you're doing something " bad " by wanting to explore other methods. You're right, it does add more anxiety that we don't need - try getting a doctor to understand that! Thanks to everyone here for being one source of non-judgmental support! Re: Re: /Lycopus Compound effective for >> Graves? >> >> >Hehehe, >> > you say...I'm not >> >going to mention the supplement. >> > >> >Don't......I didn't. It is not why I am paying him. I want to know where my >> levels are, >> >and have him look at me, and notice if anything is more odd than normal. >> LOL , but true. >> > >> >Some kind soul here told me not to mention a couple of things, ( thanks >> again) but some >> >how, I let it slip that I was taking 1/4 pill less, and I felt better but >> was worried >> >because my BP is going back up. >> >Well, this resulted in a lost , but traumatic 15 min, with us debating PTU, >> and his >> >concern about the drug induced lupus, that Elaine has explained. Then my >> labs disappeared >> >in the mail, so I have been worried sick for two weeks over nothing. Guess >> what...I went >> >down a bit hypo......so that 1'4 pill less was a darn good idea on my part. >> I told him, I >> >had labs before I did that.....what is so complicated here? >> > >> >And you know what, I am today reducing one more 1/4 pill. I have my new >> labs to confirm it >> >is the right thing to do. Will I argue about it next time????? Time will >> tell. But I will >> >be sure to change the subject. It's my money, I worked hard for it, and >> we will discuss >> >what I want. >> > >> >I know alcohol goes straight to my head now, but I have been thinking about >> my once a year >> >hot buttered rum. Should I have it xmas eve or new years eve. LOL If my old >> friends could >> >hear me now. I also know it will take a whole day to get over it now, so I >> shall plan >> >ahead. >> > >> >-Pam- finally learning to trust myself >> > >> > >> > >> >------------------------------------- >> >The Graves' list is intended for informational purposes only and is not >> intended to replace expert medical care. >> >Please consult your doctor before changing or trying new treatments. >> >---------------------------------------- >> > DISCLAIMER >> > >> >Advertisments placed on this yahoo groups list does not have the >> endorsement of >> >the listowner. I have no input as to what ads are attached to emails. >> >--------------------------------------------------------------------------- >> ----------- >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2001 Report Share Posted December 16, 2001 Caroline - Everything you say rings so true! It would be so nice to discuss all therapeutic avenues toward getting well, but so many doctors are so closed minded about other treatments. After reading and doing my own research, I often feel like I know more than my doctor does about GD, mainly because GD is not a disease doctors often see. So the last thing I want is to be scolded like a naughty child for not wanting to do the " conventional " treatment. I have enough problems with medications as it is, and ATDs sound powerful enough that I don't really want to find out what nasty side effects I'll get from those. It seems like a lot of doctors (especially older ones) expect the patient to do what he/she says unquestioningly because " the doctor said so " . It would be nice if more doctors could be " partners " in treating patients. I think of this because all the diabetic literature my hubby has talks about getting the right " team " in charge of your care and that your doctor is a " partner " in your diabetic treatment. Would be nice if it worked that way for everything. I'd really like to talk to a doctor about this alternative care. I'd like to be aware if I can possibly take too much of something and do harm to myself. I know that for some vitamins it's bad to have to much, but where to find this out? All I have to rely on for that is my own research into it. Unfortunately here there aren't many " alternative " practitioners. I went to one naturopath, but he didn't know of anything he could do for me. It seems from other people's descriptions of how they came to be diagnosed and their subsequent treatment, that there is a lot of truth to the " whole picture " of health. A lot of those here have said that GD was kind of a wake up call to change their lives a bit. So it doesn't seem realistic for a doctor to think that just having a pill or RAI is going to solve the whole problem. I'd be curious to see more detail on how GD is treated in other countries, particularly in Europe, Japan, and China. Sometimes I think our " modern " medicine can be a little too " modern " . It isn't fair to have to hold back info like this or feel like you're doing something " bad " by wanting to explore other methods. You're right, it does add more anxiety that we don't need - try getting a doctor to understand that! Thanks to everyone here for being one source of non-judgmental support! Re: Re: /Lycopus Compound effective for >> Graves? >> >> >Hehehe, >> > you say...I'm not >> >going to mention the supplement. >> > >> >Don't......I didn't. It is not why I am paying him. I want to know where my >> levels are, >> >and have him look at me, and notice if anything is more odd than normal. >> LOL , but true. >> > >> >Some kind soul here told me not to mention a couple of things, ( thanks >> again) but some >> >how, I let it slip that I was taking 1/4 pill less, and I felt better but >> was worried >> >because my BP is going back up. >> >Well, this resulted in a lost , but traumatic 15 min, with us debating PTU, >> and his >> >concern about the drug induced lupus, that Elaine has explained. Then my >> labs disappeared >> >in the mail, so I have been worried sick for two weeks over nothing. Guess >> what...I went >> >down a bit hypo......so that 1'4 pill less was a darn good idea on my part. >> I told him, I >> >had labs before I did that.....what is so complicated here? >> > >> >And you know what, I am today reducing one more 1/4 pill. I have my new >> labs to confirm it >> >is the right thing to do. Will I argue about it next time????? Time will >> tell. But I will >> >be sure to change the subject. It's my money, I worked hard for it, and >> we will discuss >> >what I want. >> > >> >I know alcohol goes straight to my head now, but I have been thinking about >> my once a year >> >hot buttered rum. Should I have it xmas eve or new years eve. LOL If my old >> friends could >> >hear me now. I also know it will take a whole day to get over it now, so I >> shall plan >> >ahead. >> > >> >-Pam- finally learning to trust myself >> > >> > >> > >> >------------------------------------- >> >The Graves' list is intended for informational purposes only and is not >> intended to replace expert medical care. >> >Please consult your doctor before changing or trying new treatments. >> >---------------------------------------- >> > DISCLAIMER >> > >> >Advertisments placed on this yahoo groups list does not have the >> endorsement of >> >the listowner. I have no input as to what ads are attached to emails. >> >--------------------------------------------------------------------------- >> ----------- >> > >> > Quote Link to comment Share on other sites More sharing options...
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