CHARALET:Re: Older plagio getting assessed at CT - help needed...

[Guest guest]

Charalet,

Wow, you have all great questions so far. I would ask if there are

any studies currently being done and if there are any you could

participate in. I don't know , but can't hurt. Talk to them about

what they know about untreated plagio and dev. delays, even if they

are unconfirmed, at least if one comes up you'll know why. This will

be a great source of info. for parents like you so definitely share

everything you feel comfortable sharing with us. In the meantime,

keep helping our little babies, you do a great job.

CAROLG

> Hey Carol, I don't mind posting...

>

> My son will be 3 in July, he's never been " officially " diagnosed by

anyone other than myself. He's had 4 peds in his short little life

and none of them think he's very bad off - But I know alot of Docs

simply don't know about plagio yet... So, since it's a free consult,

since I will be in Chicago anyway, I asked if they'd take a look,

make an assessment and let me know what they think from there.

>

> I am hoping that they say I am over reacting and his case is indeed

mild. But if they say he's moderate to severe and would be eligible

for surgery, then maybe we'll consider that. (doubt it, but maybe)

If nothing else - I am doing it for my own peace of mind.

>

> The gal that made the appointment stated very clearly that this is

unusual and that they don't band at his age. I'm fine with that. I

just want the assessment so I know what we have to deal with.

>

> And MAYBE - it will be interesting to them for future reference.

Face it, the medical field is a BUSINESS. I expect if enough parents

demand helmeting for 18m - 4yo, some company somewhere will research

it and provide it... May not be helpful, but who knows... it's all

still to new for anyone to say one way or the other.

>

> I guess I'd like to know: How bad off is it, what are the

measurements and what " should " they be, how much can I expect it to

round out yet, why don't they band after 18mo? What do they think of

CO? What do they think caused it? Are they finding that babies with

bigger heads are more susceptible to plagio? etc...

>

> What else should I ask them?

> CHARALET:Re: Older plagio getting assessed at

CT - help needed...

>

>

> Charalet,

> How exciting! If you don't mind me asking, what did CT tell you.

I

> know he is three and they usually don't band over 20 months, so I

am

> curious if they are bringing him in to help you know what you can

do

> at this point or what. I can help you with questions better if I

know

> what the consult is for. Can you share the details with me? You

can e-

> mail me if you want too.

> CAROLG

>

>

>

>

>

>

>

>

>

>

>

> --- In Plagiocephaly , " xzvhfh2 " <cjd10@c...>

wrote:

> > Hey All,

> > Well, I am finally taking the plunge.

> >

> > Back ground: I first noticed the plagio at 6 weeks, but the

peds

> > fluffed us off. Last Fall, my nephew was diagnosed with Torti

&

> > Plagio - that's the first I knew the " flat spot " had a medical

> > name... As I researched further I learned that I missed out on

a

> lot

> > of options and am still working through the whole thing.

> >

> > I have given myself until 9/1/05 to dig into it and kinda

> > be " consumed " by it. So I finally was able to schedule an

> > appointment with Cranial Technologies in Chicago. I'll be

meeting

> > with Kay McGuire about my 3yo's head shape.

> >

> > So, between now and then - I need to get prepared...

> > Anyone else take an older child with plagio to CT to get

assessed?

> > Tell me about it.

> >

> > What questions should I ask?

> > What can I expect?

> > Anything anyone hear wants to know that I can post after our

> > appointment?

> >

> > I am scheduled for 7/21/05 - yes, it's months away, but I

scheduled

> > it to fit with my trip back to the grandparents home since

there

> > isn't a CT near us in Oregon. I did post this in the olderplag

> group.

> >

> > Look forward to your reply. Thanks.

> > Charalet

> > Mom to athan, almost 3yo - unresolved Plagio

> > Mom to , 5mo

> > Auntie to Eli, 9mo - Torti, plagio, Starband 3/05

>

>

>

>

> For more plagio info

[Guest guest]

Charalet,

Wow, you have all great questions so far. I would ask if there are

any studies currently being done and if there are any you could

participate in. I don't know , but can't hurt. Talk to them about

what they know about untreated plagio and dev. delays, even if they

are unconfirmed, at least if one comes up you'll know why. This will

be a great source of info. for parents like you so definitely share

everything you feel comfortable sharing with us. In the meantime,

keep helping our little babies, you do a great job.

CAROLG

> Hey Carol, I don't mind posting...

>

> My son will be 3 in July, he's never been " officially " diagnosed by

anyone other than myself. He's had 4 peds in his short little life

and none of them think he's very bad off - But I know alot of Docs

simply don't know about plagio yet... So, since it's a free consult,

since I will be in Chicago anyway, I asked if they'd take a look,

make an assessment and let me know what they think from there.

>

> I am hoping that they say I am over reacting and his case is indeed

mild. But if they say he's moderate to severe and would be eligible

for surgery, then maybe we'll consider that. (doubt it, but maybe)

If nothing else - I am doing it for my own peace of mind.

>

> The gal that made the appointment stated very clearly that this is

unusual and that they don't band at his age. I'm fine with that. I

just want the assessment so I know what we have to deal with.

>

> And MAYBE - it will be interesting to them for future reference.

Face it, the medical field is a BUSINESS. I expect if enough parents

demand helmeting for 18m - 4yo, some company somewhere will research

it and provide it... May not be helpful, but who knows... it's all

still to new for anyone to say one way or the other.

>

> I guess I'd like to know: How bad off is it, what are the

measurements and what " should " they be, how much can I expect it to

round out yet, why don't they band after 18mo? What do they think of

CO? What do they think caused it? Are they finding that babies with

bigger heads are more susceptible to plagio? etc...

>

> What else should I ask them?

> CHARALET:Re: Older plagio getting assessed at

CT - help needed...

>

>

> Charalet,

> How exciting! If you don't mind me asking, what did CT tell you.

I

> know he is three and they usually don't band over 20 months, so I

am

> curious if they are bringing him in to help you know what you can

do

> at this point or what. I can help you with questions better if I

know

> what the consult is for. Can you share the details with me? You

can e-

> mail me if you want too.

> CAROLG

>

>

>

>

>

>

>

>

>

>

>

> --- In Plagiocephaly , " xzvhfh2 " <cjd10@c...>

wrote:

> > Hey All,

> > Well, I am finally taking the plunge.

> >

> > Back ground: I first noticed the plagio at 6 weeks, but the

peds

> > fluffed us off. Last Fall, my nephew was diagnosed with Torti

&

> > Plagio - that's the first I knew the " flat spot " had a medical

> > name... As I researched further I learned that I missed out on

a

> lot

> > of options and am still working through the whole thing.

> >

> > I have given myself until 9/1/05 to dig into it and kinda

> > be " consumed " by it. So I finally was able to schedule an

> > appointment with Cranial Technologies in Chicago. I'll be

meeting

> > with Kay McGuire about my 3yo's head shape.

> >

> > So, between now and then - I need to get prepared...

> > Anyone else take an older child with plagio to CT to get

assessed?

> > Tell me about it.

> >

> > What questions should I ask?

> > What can I expect?

> > Anything anyone hear wants to know that I can post after our

> > appointment?

> >

> > I am scheduled for 7/21/05 - yes, it's months away, but I

scheduled

> > it to fit with my trip back to the grandparents home since

there

> > isn't a CT near us in Oregon. I did post this in the olderplag

> group.

> >

> > Look forward to your reply. Thanks.

> > Charalet

> > Mom to athan, almost 3yo - unresolved Plagio

> > Mom to , 5mo

> > Auntie to Eli, 9mo - Torti, plagio, Starband 3/05

>

>

>

>

> For more plagio info