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Hi Cy,

Great news on holding mostly stable. It is a bit concerning that the C3

has declined again, but we will rest on the good news for now. Give him a big

hug and tell him how proud I am of his grades.

Congratulations on being asked to join the board too! I am sure you will be a

great asset for them. My youngest was very involved in children's theater and

absolutely loved it as much as does now. She is even taking a few drama

classes while she is at USC as electives because she still loves it so much. It

is so great has an outlet where he can really express himself, excel and

enjoy himself so much.

You are so blessed to have such a great son!

In a message dated 7/8/2004 11:36:12 PM Eastern Daylight Time, " Cy Webb "

writes:

>I've been meaning to check in for the longest time, but finally have a few

>minutes to do so!  's got a performance/cast party, so I've got a bit

>of time.  For the new people, does not have IgAN, but MPGN, which is

>a generally a far more aggressive disease than IgAN.  It is very rare, so we

>hang here with you guys!  What follows, is a rather long post - which will

>hopefully be helpful to the new parents.

>

>School year ended with a bang with two A+s, 4 A's and 1 A-.  One of them was

>supposed to be a B+, but -the-negotiator managed to get the teacher to

>upgrade it to an A- (where he gets those skills, I don't know - however

>I've begun to take lessons from him.  He tells me (and he's probably right)

>that I escalate into nastyness too fast).  ly, I don't give too many

>hoots about grades.  It's like once his kidney problems were diagnosed, he

>turned into this straight A student...  I'm sure there's a connection there.

>

>Right now he is spending 12 hours/day at the theater.  The summer began with

>a bang when at the veritable age of 13, they let him stage manage a

>production of 1001 Dalmatians (I HATE DISNEY!  However, that's another

>story).  This was the first time Disney granted rights to an amateur

>theater.  From there, he was cast as the Grand Duke in a production of

>Cinderella (closes tomorrow) - in which he really helped carry the show.

>He's currently in rehearsal as Razool (sp?) in Aladdin - (opens next week)

>and is auditioning for a tiny part in Macbeth later in the summer.  Very

>unexpectedly,  I was invited to join the board of the theater.   's

>been involved with this place for 5 years.  Other than helping in the

>costume shop periodically,  I've been very much a drop-and-run parent so it

>rather surprised me.  I'm feeling plunged into the miasma of local city

>politics - which is perversely fascinating.

>

>In the very few minutes that he's not at the theater, 's working on

>learning some geography with an eye to participating in the National

>Geographic Geography Bee next year.   What is the capital of Lichtenstien?

>Where is San Marino?  What mountains run down the Italian peninsula?  What

>mountains are in northern Italy?  He may not win (possibly too Eurocentric),

>but we're having a blast with this.

>

>Kidney numbers are holding more or less stable.  Got labs today.  C3 (an

>MPGN thing, not an IgAN thing)  went down (this is the 3rd month of

>decline), which is a little worrisome, but continues to be low-normal.  We

>went through this before when his C3 values declined all fall, but bounced

>back in the winter) so it's not a super-big worry.   Protein-creatinine

>ratio is 0.2 (normal is <0.1 for kids).  Having been between 5.0 and 6.0 in

>the past, this is good.  The horrible times of two years ago seem behind us.

>I know they'll come back, but right now we're just not thinking too much

>(well, not more than several times a day) about it.

>

>In closing,  to new parents, kidney disease is NOT the end of the world.

>We've been at this two years.  Parts of our journey are  nowwheres as

>glowing as the current report (like the days when he was too anemic to make

>it through a school day).   You find out how much matters - and how much

>doesn't.  And in the end, (for us, anyway - knock wood), at two years - not

>much has changed.

>

>Cy

>

>PS - this post was interupted by a phone call.   " Mom - this is a good party.

>I want to stay. "   " Did you take your meds? "   " Yeah, mom - you were stuck in

>an extra fish oil by mistake " .   " Cool - have a good time, I'll pick you up

>at 10 " .

>

>

>

>

>

>To edit your settings for the group, go to our Yahoo Group

>home page:

>http://groups.yahoo.com/group/iga-nephropathy/

>

>To unsubcribe via email,

>iga-nephropathy-unsubscribe

>Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

>http://www.igan.ca/id62.htm

>

>Thank you

>

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Share on other sites

Guest guest

Hi Cy,

Great news on holding mostly stable. It is a bit concerning that the C3

has declined again, but we will rest on the good news for now. Give him a big

hug and tell him how proud I am of his grades.

Congratulations on being asked to join the board too! I am sure you will be a

great asset for them. My youngest was very involved in children's theater and

absolutely loved it as much as does now. She is even taking a few drama

classes while she is at USC as electives because she still loves it so much. It

is so great has an outlet where he can really express himself, excel and

enjoy himself so much.

You are so blessed to have such a great son!

In a message dated 7/8/2004 11:36:12 PM Eastern Daylight Time, " Cy Webb "

writes:

>I've been meaning to check in for the longest time, but finally have a few

>minutes to do so!  's got a performance/cast party, so I've got a bit

>of time.  For the new people, does not have IgAN, but MPGN, which is

>a generally a far more aggressive disease than IgAN.  It is very rare, so we

>hang here with you guys!  What follows, is a rather long post - which will

>hopefully be helpful to the new parents.

>

>School year ended with a bang with two A+s, 4 A's and 1 A-.  One of them was

>supposed to be a B+, but -the-negotiator managed to get the teacher to

>upgrade it to an A- (where he gets those skills, I don't know - however

>I've begun to take lessons from him.  He tells me (and he's probably right)

>that I escalate into nastyness too fast).  ly, I don't give too many

>hoots about grades.  It's like once his kidney problems were diagnosed, he

>turned into this straight A student...  I'm sure there's a connection there.

>

>Right now he is spending 12 hours/day at the theater.  The summer began with

>a bang when at the veritable age of 13, they let him stage manage a

>production of 1001 Dalmatians (I HATE DISNEY!  However, that's another

>story).  This was the first time Disney granted rights to an amateur

>theater.  From there, he was cast as the Grand Duke in a production of

>Cinderella (closes tomorrow) - in which he really helped carry the show.

>He's currently in rehearsal as Razool (sp?) in Aladdin - (opens next week)

>and is auditioning for a tiny part in Macbeth later in the summer.  Very

>unexpectedly,  I was invited to join the board of the theater.   's

>been involved with this place for 5 years.  Other than helping in the

>costume shop periodically,  I've been very much a drop-and-run parent so it

>rather surprised me.  I'm feeling plunged into the miasma of local city

>politics - which is perversely fascinating.

>

>In the very few minutes that he's not at the theater, 's working on

>learning some geography with an eye to participating in the National

>Geographic Geography Bee next year.   What is the capital of Lichtenstien?

>Where is San Marino?  What mountains run down the Italian peninsula?  What

>mountains are in northern Italy?  He may not win (possibly too Eurocentric),

>but we're having a blast with this.

>

>Kidney numbers are holding more or less stable.  Got labs today.  C3 (an

>MPGN thing, not an IgAN thing)  went down (this is the 3rd month of

>decline), which is a little worrisome, but continues to be low-normal.  We

>went through this before when his C3 values declined all fall, but bounced

>back in the winter) so it's not a super-big worry.   Protein-creatinine

>ratio is 0.2 (normal is <0.1 for kids).  Having been between 5.0 and 6.0 in

>the past, this is good.  The horrible times of two years ago seem behind us.

>I know they'll come back, but right now we're just not thinking too much

>(well, not more than several times a day) about it.

>

>In closing,  to new parents, kidney disease is NOT the end of the world.

>We've been at this two years.  Parts of our journey are  nowwheres as

>glowing as the current report (like the days when he was too anemic to make

>it through a school day).   You find out how much matters - and how much

>doesn't.  And in the end, (for us, anyway - knock wood), at two years - not

>much has changed.

>

>Cy

>

>PS - this post was interupted by a phone call.   " Mom - this is a good party.

>I want to stay. "   " Did you take your meds? "   " Yeah, mom - you were stuck in

>an extra fish oil by mistake " .   " Cool - have a good time, I'll pick you up

>at 10 " .

>

>

>

>

>

>To edit your settings for the group, go to our Yahoo Group

>home page:

>http://groups.yahoo.com/group/iga-nephropathy/

>

>To unsubcribe via email,

>iga-nephropathy-unsubscribe

>Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

>http://www.igan.ca/id62.htm

>

>Thank you

>

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Share on other sites

Guest guest

Hi Cy,

Great news on holding mostly stable. It is a bit concerning that the C3

has declined again, but we will rest on the good news for now. Give him a big

hug and tell him how proud I am of his grades.

Congratulations on being asked to join the board too! I am sure you will be a

great asset for them. My youngest was very involved in children's theater and

absolutely loved it as much as does now. She is even taking a few drama

classes while she is at USC as electives because she still loves it so much. It

is so great has an outlet where he can really express himself, excel and

enjoy himself so much.

You are so blessed to have such a great son!

In a message dated 7/8/2004 11:36:12 PM Eastern Daylight Time, " Cy Webb "

writes:

>I've been meaning to check in for the longest time, but finally have a few

>minutes to do so!  's got a performance/cast party, so I've got a bit

>of time.  For the new people, does not have IgAN, but MPGN, which is

>a generally a far more aggressive disease than IgAN.  It is very rare, so we

>hang here with you guys!  What follows, is a rather long post - which will

>hopefully be helpful to the new parents.

>

>School year ended with a bang with two A+s, 4 A's and 1 A-.  One of them was

>supposed to be a B+, but -the-negotiator managed to get the teacher to

>upgrade it to an A- (where he gets those skills, I don't know - however

>I've begun to take lessons from him.  He tells me (and he's probably right)

>that I escalate into nastyness too fast).  ly, I don't give too many

>hoots about grades.  It's like once his kidney problems were diagnosed, he

>turned into this straight A student...  I'm sure there's a connection there.

>

>Right now he is spending 12 hours/day at the theater.  The summer began with

>a bang when at the veritable age of 13, they let him stage manage a

>production of 1001 Dalmatians (I HATE DISNEY!  However, that's another

>story).  This was the first time Disney granted rights to an amateur

>theater.  From there, he was cast as the Grand Duke in a production of

>Cinderella (closes tomorrow) - in which he really helped carry the show.

>He's currently in rehearsal as Razool (sp?) in Aladdin - (opens next week)

>and is auditioning for a tiny part in Macbeth later in the summer.  Very

>unexpectedly,  I was invited to join the board of the theater.   's

>been involved with this place for 5 years.  Other than helping in the

>costume shop periodically,  I've been very much a drop-and-run parent so it

>rather surprised me.  I'm feeling plunged into the miasma of local city

>politics - which is perversely fascinating.

>

>In the very few minutes that he's not at the theater, 's working on

>learning some geography with an eye to participating in the National

>Geographic Geography Bee next year.   What is the capital of Lichtenstien?

>Where is San Marino?  What mountains run down the Italian peninsula?  What

>mountains are in northern Italy?  He may not win (possibly too Eurocentric),

>but we're having a blast with this.

>

>Kidney numbers are holding more or less stable.  Got labs today.  C3 (an

>MPGN thing, not an IgAN thing)  went down (this is the 3rd month of

>decline), which is a little worrisome, but continues to be low-normal.  We

>went through this before when his C3 values declined all fall, but bounced

>back in the winter) so it's not a super-big worry.   Protein-creatinine

>ratio is 0.2 (normal is <0.1 for kids).  Having been between 5.0 and 6.0 in

>the past, this is good.  The horrible times of two years ago seem behind us.

>I know they'll come back, but right now we're just not thinking too much

>(well, not more than several times a day) about it.

>

>In closing,  to new parents, kidney disease is NOT the end of the world.

>We've been at this two years.  Parts of our journey are  nowwheres as

>glowing as the current report (like the days when he was too anemic to make

>it through a school day).   You find out how much matters - and how much

>doesn't.  And in the end, (for us, anyway - knock wood), at two years - not

>much has changed.

>

>Cy

>

>PS - this post was interupted by a phone call.   " Mom - this is a good party.

>I want to stay. "   " Did you take your meds? "   " Yeah, mom - you were stuck in

>an extra fish oil by mistake " .   " Cool - have a good time, I'll pick you up

>at 10 " .

>

>

>

>

>

>To edit your settings for the group, go to our Yahoo Group

>home page:

>http://groups.yahoo.com/group/iga-nephropathy/

>

>To unsubcribe via email,

>iga-nephropathy-unsubscribe

>Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

>http://www.igan.ca/id62.htm

>

>Thank you

>

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Share on other sites

Guest guest

Cy:

You should be (and I'm sure you are) very proud of that young man.

Cy Webb wrote:

I've been meaning to check in for the longest time, but finally have a few

minutes to do so! 's got a performance/cast party, so I've got a bit

of time. For the new people, does not have IgAN, but MPGN, which is

a generally a far more aggressive disease than IgAN. It is very rare, so we

hang here with you guys! What follows, is a rather long post - which will

hopefully be helpful to the new parents.

School year ended with a bang with two A+s, 4 A's and 1 A-. One of them was

supposed to be a B+, but -the-negotiator managed to get the teacher to

upgrade it to an A- (where he gets those skills, I don't know - however

I've begun to take lessons from him. He tells me (and he's probably right)

that I escalate into nastyness too fast). ly, I don't give too many

hoots about grades. It's like once his kidney problems were diagnosed, he

turned into this straight A student... I'm sure there's a connection there.

Right now he is spending 12 hours/day at the theater. The summer began with

a bang when at the veritable age of 13, they let him stage manage a

production of 1001 Dalmatians (I HATE DISNEY! However, that's another

story). This was the first time Disney granted rights to an amateur

theater. From there, he was cast as the Grand Duke in a production of

Cinderella (closes tomorrow) - in which he really helped carry the show.

He's currently in rehearsal as Razool (sp?) in Aladdin - (opens next week)

and is auditioning for a tiny part in Macbeth later in the summer. Very

unexpectedly, I was invited to join the board of the theater. 's

been involved with this place for 5 years. Other than helping in the

costume shop periodically, I've been very much a drop-and-run parent so it

rather surprised me. I'm feeling plunged into the miasma of local city

politics - which is perversely fascinating.

In the very few minutes that he's not at the theater, 's working on

learning some geography with an eye to participating in the National

Geographic Geography Bee next year. What is the capital of Lichtenstien?

Where is San Marino? What mountains run down the Italian peninsula? What

mountains are in northern Italy? He may not win (possibly too Eurocentric),

but we're having a blast with this.

Kidney numbers are holding more or less stable. Got labs today. C3 (an

MPGN thing, not an IgAN thing) went down (this is the 3rd month of

decline), which is a little worrisome, but continues to be low-normal. We

went through this before when his C3 values declined all fall, but bounced

back in the winter) so it's not a super-big worry. Protein-creatinine

ratio is 0.2 (normal is <0.1 for kids). Having been between 5.0 and 6.0 in

the past, this is good. The horrible times of two years ago seem behind us.

I know they'll come back, but right now we're just not thinking too much

(well, not more than several times a day) about it.

In closing, to new parents, kidney disease is NOT the end of the world.

We've been at this two years. Parts of our journey are nowwheres as

glowing as the current report (like the days when he was too anemic to make

it through a school day). You find out how much matters - and how much

doesn't. And in the end, (for us, anyway - knock wood), at two years - not

much has changed.

Cy

PS - this post was interupted by a phone call. " Mom - this is a good party.

I want to stay. " " Did you take your meds? " " Yeah, mom - you were stuck in

an extra fish oil by mistake " . " Cool - have a good time, I'll pick you up

at 10 " .

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

Link to comment
Share on other sites

Guest guest

Cy:

You should be (and I'm sure you are) very proud of that young man.

Cy Webb wrote:

I've been meaning to check in for the longest time, but finally have a few

minutes to do so! 's got a performance/cast party, so I've got a bit

of time. For the new people, does not have IgAN, but MPGN, which is

a generally a far more aggressive disease than IgAN. It is very rare, so we

hang here with you guys! What follows, is a rather long post - which will

hopefully be helpful to the new parents.

School year ended with a bang with two A+s, 4 A's and 1 A-. One of them was

supposed to be a B+, but -the-negotiator managed to get the teacher to

upgrade it to an A- (where he gets those skills, I don't know - however

I've begun to take lessons from him. He tells me (and he's probably right)

that I escalate into nastyness too fast). ly, I don't give too many

hoots about grades. It's like once his kidney problems were diagnosed, he

turned into this straight A student... I'm sure there's a connection there.

Right now he is spending 12 hours/day at the theater. The summer began with

a bang when at the veritable age of 13, they let him stage manage a

production of 1001 Dalmatians (I HATE DISNEY! However, that's another

story). This was the first time Disney granted rights to an amateur

theater. From there, he was cast as the Grand Duke in a production of

Cinderella (closes tomorrow) - in which he really helped carry the show.

He's currently in rehearsal as Razool (sp?) in Aladdin - (opens next week)

and is auditioning for a tiny part in Macbeth later in the summer. Very

unexpectedly, I was invited to join the board of the theater. 's

been involved with this place for 5 years. Other than helping in the

costume shop periodically, I've been very much a drop-and-run parent so it

rather surprised me. I'm feeling plunged into the miasma of local city

politics - which is perversely fascinating.

In the very few minutes that he's not at the theater, 's working on

learning some geography with an eye to participating in the National

Geographic Geography Bee next year. What is the capital of Lichtenstien?

Where is San Marino? What mountains run down the Italian peninsula? What

mountains are in northern Italy? He may not win (possibly too Eurocentric),

but we're having a blast with this.

Kidney numbers are holding more or less stable. Got labs today. C3 (an

MPGN thing, not an IgAN thing) went down (this is the 3rd month of

decline), which is a little worrisome, but continues to be low-normal. We

went through this before when his C3 values declined all fall, but bounced

back in the winter) so it's not a super-big worry. Protein-creatinine

ratio is 0.2 (normal is <0.1 for kids). Having been between 5.0 and 6.0 in

the past, this is good. The horrible times of two years ago seem behind us.

I know they'll come back, but right now we're just not thinking too much

(well, not more than several times a day) about it.

In closing, to new parents, kidney disease is NOT the end of the world.

We've been at this two years. Parts of our journey are nowwheres as

glowing as the current report (like the days when he was too anemic to make

it through a school day). You find out how much matters - and how much

doesn't. And in the end, (for us, anyway - knock wood), at two years - not

much has changed.

Cy

PS - this post was interupted by a phone call. " Mom - this is a good party.

I want to stay. " " Did you take your meds? " " Yeah, mom - you were stuck in

an extra fish oil by mistake " . " Cool - have a good time, I'll pick you up

at 10 " .

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

Link to comment
Share on other sites

Guest guest

Cy that boy of yours wants to make it into college with a scholarship ay?

Sorry to hear about the C3 numbers...I hope they do their same little dance

like last year and come back to better normal ranges again.

keep up the great work and don't knock those negotiating skills those

will get you further in life than anything you will learn in class. :o)

Congratulations on the theater group stuff too. I think it's great that you

have come away with so many parts and working as stage manager too, that is

truly awesome!

Keep on keepin' on.

Amy

update/some renal, some not/warning - LONG

> I've been meaning to check in for the longest time, but finally have a few

> minutes to do so! 's got a performance/cast party, so I've got a

bit

> of time. For the new people, does not have IgAN, but MPGN, which

is

> a generally a far more aggressive disease than IgAN. It is very rare, so

we

> hang here with you guys! What follows, is a rather long post - which will

> hopefully be helpful to the new parents.

>

> School year ended with a bang with two A+s, 4 A's and 1 A-. One of them

was

> supposed to be a B+, but -the-negotiator managed to get the teacher

to

> upgrade it to an A- (where he gets those skills, I don't know - however

> I've begun to take lessons from him. He tells me (and he's probably

right)

> that I escalate into nastyness too fast). ly, I don't give too many

> hoots about grades. It's like once his kidney problems were diagnosed, he

> turned into this straight A student... I'm sure there's a connection

there.

>

> Right now he is spending 12 hours/day at the theater. The summer began

with

> a bang when at the veritable age of 13, they let him stage manage a

> production of 1001 Dalmatians (I HATE DISNEY! However, that's another

> story). This was the first time Disney granted rights to an amateur

> theater. From there, he was cast as the Grand Duke in a production of

> Cinderella (closes tomorrow) - in which he really helped carry the show.

> He's currently in rehearsal as Razool (sp?) in Aladdin - (opens next week)

> and is auditioning for a tiny part in Macbeth later in the summer. Very

> unexpectedly, I was invited to join the board of the theater. 's

> been involved with this place for 5 years. Other than helping in the

> costume shop periodically, I've been very much a drop-and-run parent so

it

> rather surprised me. I'm feeling plunged into the miasma of local city

> politics - which is perversely fascinating.

>

> In the very few minutes that he's not at the theater, 's working on

> learning some geography with an eye to participating in the National

> Geographic Geography Bee next year. What is the capital of Lichtenstien?

> Where is San Marino? What mountains run down the Italian peninsula? What

> mountains are in northern Italy? He may not win (possibly too

Eurocentric),

> but we're having a blast with this.

>

> Kidney numbers are holding more or less stable. Got labs today. C3 (an

> MPGN thing, not an IgAN thing) went down (this is the 3rd month of

> decline), which is a little worrisome, but continues to be low-normal. We

> went through this before when his C3 values declined all fall, but bounced

> back in the winter) so it's not a super-big worry. Protein-creatinine

> ratio is 0.2 (normal is <0.1 for kids). Having been between 5.0 and 6.0

in

> the past, this is good. The horrible times of two years ago seem behind

us.

> I know they'll come back, but right now we're just not thinking too much

> (well, not more than several times a day) about it.

>

> In closing, to new parents, kidney disease is NOT the end of the world.

> We've been at this two years. Parts of our journey are nowwheres as

> glowing as the current report (like the days when he was too anemic to

make

> it through a school day). You find out how much matters - and how much

> doesn't. And in the end, (for us, anyway - knock wood), at two years -

not

> much has changed.

>

> Cy

>

> PS - this post was interupted by a phone call. " Mom - this is a good

party.

> I want to stay. " " Did you take your meds? " " Yeah, mom - you were stuck

in

> an extra fish oil by mistake " . " Cool - have a good time, I'll pick you up

> at 10 " .

>

>

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

Link to comment
Share on other sites

Guest guest

Cy that boy of yours wants to make it into college with a scholarship ay?

Sorry to hear about the C3 numbers...I hope they do their same little dance

like last year and come back to better normal ranges again.

keep up the great work and don't knock those negotiating skills those

will get you further in life than anything you will learn in class. :o)

Congratulations on the theater group stuff too. I think it's great that you

have come away with so many parts and working as stage manager too, that is

truly awesome!

Keep on keepin' on.

Amy

update/some renal, some not/warning - LONG

> I've been meaning to check in for the longest time, but finally have a few

> minutes to do so! 's got a performance/cast party, so I've got a

bit

> of time. For the new people, does not have IgAN, but MPGN, which

is

> a generally a far more aggressive disease than IgAN. It is very rare, so

we

> hang here with you guys! What follows, is a rather long post - which will

> hopefully be helpful to the new parents.

>

> School year ended with a bang with two A+s, 4 A's and 1 A-. One of them

was

> supposed to be a B+, but -the-negotiator managed to get the teacher

to

> upgrade it to an A- (where he gets those skills, I don't know - however

> I've begun to take lessons from him. He tells me (and he's probably

right)

> that I escalate into nastyness too fast). ly, I don't give too many

> hoots about grades. It's like once his kidney problems were diagnosed, he

> turned into this straight A student... I'm sure there's a connection

there.

>

> Right now he is spending 12 hours/day at the theater. The summer began

with

> a bang when at the veritable age of 13, they let him stage manage a

> production of 1001 Dalmatians (I HATE DISNEY! However, that's another

> story). This was the first time Disney granted rights to an amateur

> theater. From there, he was cast as the Grand Duke in a production of

> Cinderella (closes tomorrow) - in which he really helped carry the show.

> He's currently in rehearsal as Razool (sp?) in Aladdin - (opens next week)

> and is auditioning for a tiny part in Macbeth later in the summer. Very

> unexpectedly, I was invited to join the board of the theater. 's

> been involved with this place for 5 years. Other than helping in the

> costume shop periodically, I've been very much a drop-and-run parent so

it

> rather surprised me. I'm feeling plunged into the miasma of local city

> politics - which is perversely fascinating.

>

> In the very few minutes that he's not at the theater, 's working on

> learning some geography with an eye to participating in the National

> Geographic Geography Bee next year. What is the capital of Lichtenstien?

> Where is San Marino? What mountains run down the Italian peninsula? What

> mountains are in northern Italy? He may not win (possibly too

Eurocentric),

> but we're having a blast with this.

>

> Kidney numbers are holding more or less stable. Got labs today. C3 (an

> MPGN thing, not an IgAN thing) went down (this is the 3rd month of

> decline), which is a little worrisome, but continues to be low-normal. We

> went through this before when his C3 values declined all fall, but bounced

> back in the winter) so it's not a super-big worry. Protein-creatinine

> ratio is 0.2 (normal is <0.1 for kids). Having been between 5.0 and 6.0

in

> the past, this is good. The horrible times of two years ago seem behind

us.

> I know they'll come back, but right now we're just not thinking too much

> (well, not more than several times a day) about it.

>

> In closing, to new parents, kidney disease is NOT the end of the world.

> We've been at this two years. Parts of our journey are nowwheres as

> glowing as the current report (like the days when he was too anemic to

make

> it through a school day). You find out how much matters - and how much

> doesn't. And in the end, (for us, anyway - knock wood), at two years -

not

> much has changed.

>

> Cy

>

> PS - this post was interupted by a phone call. " Mom - this is a good

party.

> I want to stay. " " Did you take your meds? " " Yeah, mom - you were stuck

in

> an extra fish oil by mistake " . " Cool - have a good time, I'll pick you up

> at 10 " .

>

>

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

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Cy that boy of yours wants to make it into college with a scholarship ay?

Sorry to hear about the C3 numbers...I hope they do their same little dance

like last year and come back to better normal ranges again.

keep up the great work and don't knock those negotiating skills those

will get you further in life than anything you will learn in class. :o)

Congratulations on the theater group stuff too. I think it's great that you

have come away with so many parts and working as stage manager too, that is

truly awesome!

Keep on keepin' on.

Amy

update/some renal, some not/warning - LONG

> I've been meaning to check in for the longest time, but finally have a few

> minutes to do so! 's got a performance/cast party, so I've got a

bit

> of time. For the new people, does not have IgAN, but MPGN, which

is

> a generally a far more aggressive disease than IgAN. It is very rare, so

we

> hang here with you guys! What follows, is a rather long post - which will

> hopefully be helpful to the new parents.

>

> School year ended with a bang with two A+s, 4 A's and 1 A-. One of them

was

> supposed to be a B+, but -the-negotiator managed to get the teacher

to

> upgrade it to an A- (where he gets those skills, I don't know - however

> I've begun to take lessons from him. He tells me (and he's probably

right)

> that I escalate into nastyness too fast). ly, I don't give too many

> hoots about grades. It's like once his kidney problems were diagnosed, he

> turned into this straight A student... I'm sure there's a connection

there.

>

> Right now he is spending 12 hours/day at the theater. The summer began

with

> a bang when at the veritable age of 13, they let him stage manage a

> production of 1001 Dalmatians (I HATE DISNEY! However, that's another

> story). This was the first time Disney granted rights to an amateur

> theater. From there, he was cast as the Grand Duke in a production of

> Cinderella (closes tomorrow) - in which he really helped carry the show.

> He's currently in rehearsal as Razool (sp?) in Aladdin - (opens next week)

> and is auditioning for a tiny part in Macbeth later in the summer. Very

> unexpectedly, I was invited to join the board of the theater. 's

> been involved with this place for 5 years. Other than helping in the

> costume shop periodically, I've been very much a drop-and-run parent so

it

> rather surprised me. I'm feeling plunged into the miasma of local city

> politics - which is perversely fascinating.

>

> In the very few minutes that he's not at the theater, 's working on

> learning some geography with an eye to participating in the National

> Geographic Geography Bee next year. What is the capital of Lichtenstien?

> Where is San Marino? What mountains run down the Italian peninsula? What

> mountains are in northern Italy? He may not win (possibly too

Eurocentric),

> but we're having a blast with this.

>

> Kidney numbers are holding more or less stable. Got labs today. C3 (an

> MPGN thing, not an IgAN thing) went down (this is the 3rd month of

> decline), which is a little worrisome, but continues to be low-normal. We

> went through this before when his C3 values declined all fall, but bounced

> back in the winter) so it's not a super-big worry. Protein-creatinine

> ratio is 0.2 (normal is <0.1 for kids). Having been between 5.0 and 6.0

in

> the past, this is good. The horrible times of two years ago seem behind

us.

> I know they'll come back, but right now we're just not thinking too much

> (well, not more than several times a day) about it.

>

> In closing, to new parents, kidney disease is NOT the end of the world.

> We've been at this two years. Parts of our journey are nowwheres as

> glowing as the current report (like the days when he was too anemic to

make

> it through a school day). You find out how much matters - and how much

> doesn't. And in the end, (for us, anyway - knock wood), at two years -

not

> much has changed.

>

> Cy

>

> PS - this post was interupted by a phone call. " Mom - this is a good

party.

> I want to stay. " " Did you take your meds? " " Yeah, mom - you were stuck

in

> an extra fish oil by mistake " . " Cool - have a good time, I'll pick you up

> at 10 " .

>

>

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

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Share on other sites

Guest guest

---

Hi Cy:)

what a sweet letter.....I am so happy for you both... and you.

Your letter made my day!..or late evening to be more acurate:)

Love,

Elwira

In iga-nephropathy , " Cy Webb "

<cyashleywebb@s...> wrote:

> I've been meaning to check in for the longest time, but finally

have a few

> minutes to do so! 's got a performance/cast party, so I've

got a bit

> of time. For the new people, does not have IgAN, but MPGN,

which is

> a generally a far more aggressive disease than IgAN. It is very

rare, so we

> hang here with you guys! What follows, is a rather long post -

which will

> hopefully be helpful to the new parents.

>

> School year ended with a bang with two A+s, 4 A's and 1 A-. One

of them was

> supposed to be a B+, but -the-negotiator managed to get the

teacher to

> upgrade it to an A- (where he gets those skills, I don't know -

however

> I've begun to take lessons from him. He tells me (and he's

probably right)

> that I escalate into nastyness too fast). ly, I don't give

too many

> hoots about grades. It's like once his kidney problems were

diagnosed, he

> turned into this straight A student... I'm sure there's a

connection there.

>

> Right now he is spending 12 hours/day at the theater. The summer

began with

> a bang when at the veritable age of 13, they let him stage manage a

> production of 1001 Dalmatians (I HATE DISNEY! However, that's

another

> story). This was the first time Disney granted rights to an

amateur

> theater. From there, he was cast as the Grand Duke in a

production of

> Cinderella (closes tomorrow) - in which he really helped carry the

show.

> He's currently in rehearsal as Razool (sp?) in Aladdin - (opens

next week)

> and is auditioning for a tiny part in Macbeth later in the

summer. Very

> unexpectedly, I was invited to join the board of the theater.

's

> been involved with this place for 5 years. Other than helping in

the

> costume shop periodically, I've been very much a drop-and-run

parent so it

> rather surprised me. I'm feeling plunged into the miasma of local

city

> politics - which is perversely fascinating.

>

> In the very few minutes that he's not at the theater, 's

working on

> learning some geography with an eye to participating in the

National

> Geographic Geography Bee next year. What is the capital of

Lichtenstien?

> Where is San Marino? What mountains run down the Italian

peninsula? What

> mountains are in northern Italy? He may not win (possibly too

Eurocentric),

> but we're having a blast with this.

>

> Kidney numbers are holding more or less stable. Got labs today.

C3 (an

> MPGN thing, not an IgAN thing) went down (this is the 3rd month of

> decline), which is a little worrisome, but continues to be low-

normal. We

> went through this before when his C3 values declined all fall, but

bounced

> back in the winter) so it's not a super-big worry. Protein-

creatinine

> ratio is 0.2 (normal is <0.1 for kids). Having been between 5.0

and 6.0 in

> the past, this is good. The horrible times of two years ago seem

behind us.

> I know they'll come back, but right now we're just not thinking

too much

> (well, not more than several times a day) about it.

>

> In closing, to new parents, kidney disease is NOT the end of the

world.

> We've been at this two years. Parts of our journey are nowwheres

as

> glowing as the current report (like the days when he was too

anemic to make

> it through a school day). You find out how much matters - and

how much

> doesn't. And in the end, (for us, anyway - knock wood), at two

years - not

> much has changed.

>

> Cy

>

> PS - this post was interupted by a phone call. " Mom - this is a

good party.

> I want to stay. " " Did you take your meds? " " Yeah, mom - you were

stuck in

> an extra fish oil by mistake " . " Cool - have a good time, I'll

pick you up

> at 10 " .

Link to comment
Share on other sites

Guest guest

---

Hi Cy:)

what a sweet letter.....I am so happy for you both... and you.

Your letter made my day!..or late evening to be more acurate:)

Love,

Elwira

In iga-nephropathy , " Cy Webb "

<cyashleywebb@s...> wrote:

> I've been meaning to check in for the longest time, but finally

have a few

> minutes to do so! 's got a performance/cast party, so I've

got a bit

> of time. For the new people, does not have IgAN, but MPGN,

which is

> a generally a far more aggressive disease than IgAN. It is very

rare, so we

> hang here with you guys! What follows, is a rather long post -

which will

> hopefully be helpful to the new parents.

>

> School year ended with a bang with two A+s, 4 A's and 1 A-. One

of them was

> supposed to be a B+, but -the-negotiator managed to get the

teacher to

> upgrade it to an A- (where he gets those skills, I don't know -

however

> I've begun to take lessons from him. He tells me (and he's

probably right)

> that I escalate into nastyness too fast). ly, I don't give

too many

> hoots about grades. It's like once his kidney problems were

diagnosed, he

> turned into this straight A student... I'm sure there's a

connection there.

>

> Right now he is spending 12 hours/day at the theater. The summer

began with

> a bang when at the veritable age of 13, they let him stage manage a

> production of 1001 Dalmatians (I HATE DISNEY! However, that's

another

> story). This was the first time Disney granted rights to an

amateur

> theater. From there, he was cast as the Grand Duke in a

production of

> Cinderella (closes tomorrow) - in which he really helped carry the

show.

> He's currently in rehearsal as Razool (sp?) in Aladdin - (opens

next week)

> and is auditioning for a tiny part in Macbeth later in the

summer. Very

> unexpectedly, I was invited to join the board of the theater.

's

> been involved with this place for 5 years. Other than helping in

the

> costume shop periodically, I've been very much a drop-and-run

parent so it

> rather surprised me. I'm feeling plunged into the miasma of local

city

> politics - which is perversely fascinating.

>

> In the very few minutes that he's not at the theater, 's

working on

> learning some geography with an eye to participating in the

National

> Geographic Geography Bee next year. What is the capital of

Lichtenstien?

> Where is San Marino? What mountains run down the Italian

peninsula? What

> mountains are in northern Italy? He may not win (possibly too

Eurocentric),

> but we're having a blast with this.

>

> Kidney numbers are holding more or less stable. Got labs today.

C3 (an

> MPGN thing, not an IgAN thing) went down (this is the 3rd month of

> decline), which is a little worrisome, but continues to be low-

normal. We

> went through this before when his C3 values declined all fall, but

bounced

> back in the winter) so it's not a super-big worry. Protein-

creatinine

> ratio is 0.2 (normal is <0.1 for kids). Having been between 5.0

and 6.0 in

> the past, this is good. The horrible times of two years ago seem

behind us.

> I know they'll come back, but right now we're just not thinking

too much

> (well, not more than several times a day) about it.

>

> In closing, to new parents, kidney disease is NOT the end of the

world.

> We've been at this two years. Parts of our journey are nowwheres

as

> glowing as the current report (like the days when he was too

anemic to make

> it through a school day). You find out how much matters - and

how much

> doesn't. And in the end, (for us, anyway - knock wood), at two

years - not

> much has changed.

>

> Cy

>

> PS - this post was interupted by a phone call. " Mom - this is a

good party.

> I want to stay. " " Did you take your meds? " " Yeah, mom - you were

stuck in

> an extra fish oil by mistake " . " Cool - have a good time, I'll

pick you up

> at 10 " .

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