Guest guest Posted July 26, 2006 Report Share Posted July 26, 2006 Take a look at the FAQ on http://www.psc-literature.org/FAQ.htm for a starting point. My experience is: Upper right quadrant (often, URQ), right at the lower rib cages, " inside " , sometimes just below the sternum, sometimes stabbing, sometimes dull, sometimes radiating around to the back (especially during cholangitis episodes). Severity varies, from 1 to 10 depending on what's going on. It may be 1 during an intermittent bile " sludge " blockage, to 10 in full scale cholangitis. Some people may run a temperature, some are truly incapacitated (I characterize that as curled up around yourself!), some get pruritis (itching), some never do, some experience debilitating fatigue, some don't at all. Other indications of cholangitis may be jaundice (yellow skin/eyes), pale stools, dark (cola-colored) urine, nausea. Not a straightforward answer - sorry! Arne 55 - UC 1977, PSC 2000 Alive and (mostly) well in Minnesota ________________________________ From: [mailto: ] On Behalf Of Tomshine I have a question about PSC pain. I was diagnosed with PSC several years ago based on blood chemistry and liver biopsy (ERCP was negative for PSC -- my doctor described it as " small duct " PSC). I've always been asymptomatic, so I'm not exactly sure what PSC pain should feel like. I was wondering if someone who has experienced it could describe it: - where is the pain? - front/back/side/left/right? - above or below the ribs? - does it feel deep inside, or on the surface? - is it a sharp or dull pain? - how severe is it (1-10 scale)? Any other details would be helpful. I just want to be sure that I recognize the pain as PSC if I should experience it... Thanks, Jon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2006 Report Share Posted July 26, 2006 Take a look at the FAQ on http://www.psc-literature.org/FAQ.htm for a starting point. My experience is: Upper right quadrant (often, URQ), right at the lower rib cages, " inside " , sometimes just below the sternum, sometimes stabbing, sometimes dull, sometimes radiating around to the back (especially during cholangitis episodes). Severity varies, from 1 to 10 depending on what's going on. It may be 1 during an intermittent bile " sludge " blockage, to 10 in full scale cholangitis. Some people may run a temperature, some are truly incapacitated (I characterize that as curled up around yourself!), some get pruritis (itching), some never do, some experience debilitating fatigue, some don't at all. Other indications of cholangitis may be jaundice (yellow skin/eyes), pale stools, dark (cola-colored) urine, nausea. Not a straightforward answer - sorry! Arne 55 - UC 1977, PSC 2000 Alive and (mostly) well in Minnesota ________________________________ From: [mailto: ] On Behalf Of Tomshine I have a question about PSC pain. I was diagnosed with PSC several years ago based on blood chemistry and liver biopsy (ERCP was negative for PSC -- my doctor described it as " small duct " PSC). I've always been asymptomatic, so I'm not exactly sure what PSC pain should feel like. I was wondering if someone who has experienced it could describe it: - where is the pain? - front/back/side/left/right? - above or below the ribs? - does it feel deep inside, or on the surface? - is it a sharp or dull pain? - how severe is it (1-10 scale)? Any other details would be helpful. I just want to be sure that I recognize the pain as PSC if I should experience it... Thanks, Jon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2006 Report Share Posted July 26, 2006 Take a look at the FAQ on http://www.psc-literature.org/FAQ.htm for a starting point. My experience is: Upper right quadrant (often, URQ), right at the lower rib cages, " inside " , sometimes just below the sternum, sometimes stabbing, sometimes dull, sometimes radiating around to the back (especially during cholangitis episodes). Severity varies, from 1 to 10 depending on what's going on. It may be 1 during an intermittent bile " sludge " blockage, to 10 in full scale cholangitis. Some people may run a temperature, some are truly incapacitated (I characterize that as curled up around yourself!), some get pruritis (itching), some never do, some experience debilitating fatigue, some don't at all. Other indications of cholangitis may be jaundice (yellow skin/eyes), pale stools, dark (cola-colored) urine, nausea. Not a straightforward answer - sorry! Arne 55 - UC 1977, PSC 2000 Alive and (mostly) well in Minnesota ________________________________ From: [mailto: ] On Behalf Of Tomshine I have a question about PSC pain. I was diagnosed with PSC several years ago based on blood chemistry and liver biopsy (ERCP was negative for PSC -- my doctor described it as " small duct " PSC). I've always been asymptomatic, so I'm not exactly sure what PSC pain should feel like. I was wondering if someone who has experienced it could describe it: - where is the pain? - front/back/side/left/right? - above or below the ribs? - does it feel deep inside, or on the surface? - is it a sharp or dull pain? - how severe is it (1-10 scale)? Any other details would be helpful. I just want to be sure that I recognize the pain as PSC if I should experience it... Thanks, Jon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2006 Report Share Posted July 26, 2006 Hi Jon The only two symptoms of PSC I have is fatigue and what feels like a tender bruise in my back under my right shoulder blade I always notice it when I lie down in bed, on my back at night, and sometimes during the day. Hope this helps > - where is the pain? > - front/back/side/left/right? > - above or below the ribs? > - does it feel deep inside, or on the surface? > - is it a sharp or dull pain? > - how severe is it (1-10 scale)? > > Any other details would be helpful. I just want to be sure that I > recognize the pain as PSC if I should experience it... > > Thanks, > Jon > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2006 Report Share Posted July 26, 2006 > > I have a question about PSC pain. I was diagnosed with PSC several > years ago based on blood chemistry and liver biopsy (ERCP was negative > for PSC -- my doctor described it as " small duct " PSC). I've always > been asymptomatic, so I'm not exactly sure what PSC pain should feel > like. I was wondering if someone who has experienced it could > describe it: > > - where is the pain? > - front/back/side/left/right? > - above or below the ribs? > - does it feel deep inside, or on the surface? > - is it a sharp or dull pain? > - how severe is it (1-10 scale)? > > Any other details would be helpful. I just want to be sure that I > recognize the pain as PSC if I should experience it... > > Thanks, > Jon > I experienced dull throbbing back pain between the shoulder blades that radiates thru to the front right of the sternum(felt like a pulled shoulder muscle), then I would feel a mild body ache all over (similar to the onset of a cold). I would have this in waves. At the time I was pre-diagnoses. I would almost always take a very hot bath and an NSAID and it would pass. Of course the fatigue was terrible as well. Andi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2006 Report Share Posted July 26, 2006 > > I have a question about PSC pain. I was diagnosed with PSC several > years ago based on blood chemistry and liver biopsy (ERCP was negative > for PSC -- my doctor described it as " small duct " PSC). I've always > been asymptomatic, so I'm not exactly sure what PSC pain should feel > like. I was wondering if someone who has experienced it could > describe it: > > - where is the pain? > - front/back/side/left/right? > - above or below the ribs? > - does it feel deep inside, or on the surface? > - is it a sharp or dull pain? > - how severe is it (1-10 scale)? > > Any other details would be helpful. I just want to be sure that I > recognize the pain as PSC if I should experience it... > > Thanks, > Jon > I experienced dull throbbing back pain between the shoulder blades that radiates thru to the front right of the sternum(felt like a pulled shoulder muscle), then I would feel a mild body ache all over (similar to the onset of a cold). I would have this in waves. At the time I was pre-diagnoses. I would almost always take a very hot bath and an NSAID and it would pass. Of course the fatigue was terrible as well. Andi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2006 Report Share Posted July 27, 2006 Hi I get pain just under the ribs on the right side somethimes its just a little pain but when I have attacks ot is really bad. I am also really tried all the time,feel really sick all the time, and get really itchey. hope this helps Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2006 Report Share Posted July 27, 2006 Hi I get pain just under the ribs on the right side somethimes its just a little pain but when I have attacks ot is really bad. I am also really tried all the time,feel really sick all the time, and get really itchey. hope this helps Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2006 Report Share Posted July 27, 2006 Hi I get pain just under the ribs on the right side somethimes its just a little pain but when I have attacks ot is really bad. I am also really tried all the time,feel really sick all the time, and get really itchey. hope this helps Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2006 Report Share Posted July 28, 2006 Hi My goodness, what a time you have had. I do hope you are feeling better. An IV in your neck, they must have been desperate!!! With PSC do our veins disappear? with my last ERCP the nurses were desperately stabbing the veins in my inner elbow of each arm, muttering about moving onto my feet. They then dug into the vein that the nurse found (with lots of trouble) to get a blood sample the day before. I know the nurse at our local medical centre mutters about my 'awful veins' when taking a blood sample. Please take things easy and give your dog a big hug. Best wishes from the bottom of the world in New Zealand > seems to think it was probably mild > pancreatitis...MILD??????? Oh baby I don't EVEN want > to know what moderate or full-blown pancreatitis is. > Baudoux-Northrup Quote Link to comment Share on other sites More sharing options...
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