Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 Jen, We actually saw most of the correction in the first couple weeks. Dane got his band at 5 mo and 4 days. I swear we saw 50 - 75% correction in the first two weeks. After a month we wondered if he was done! I'd say Cece probably got about 50% of her correction in the first 2-3 weeks. She was banded at 8.5 mo. The band should never shift as much as your saying. The ear piece should never come anywhere near the eye. Our bands shifted while they were sleeping but never anywhere near that much. Mom to Dane (4 yo) and Cece (13 mo) DOC Grads Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 Jen, We actually saw most of the correction in the first couple weeks. Dane got his band at 5 mo and 4 days. I swear we saw 50 - 75% correction in the first two weeks. After a month we wondered if he was done! I'd say Cece probably got about 50% of her correction in the first 2-3 weeks. She was banded at 8.5 mo. The band should never shift as much as your saying. The ear piece should never come anywhere near the eye. Our bands shifted while they were sleeping but never anywhere near that much. Mom to Dane (4 yo) and Cece (13 mo) DOC Grads Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 P.S. Sorry to hear about the double ear infection Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 P.S. Sorry to hear about the double ear infection Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 Jen, 's correct it shouldn't be shifting like that. I'd put a call into your ortho. My fingers are crossed that if you go in, they don't ADD anything to her helmet. Good luck and please keep us posted. > > Hi All, > > We are now 2 weeks into banding (well minus 3 days for a double ear > infection), and I've noticed that 's helmet seems bigger. It was > not shifting at all when we first got it, but now it seems to shift a > lot, especially when she is asleep. This morning she woke up and the > earpiece was almost over her eye. It doesn't shift during the day, > just when she is laying on it. Is this something that warrants an > adjustment? > > Also, just curious how long it takes until you see changes? is > in the Danmar Helmet. > > Thanks! > Jen > > Mom to 8 mos (banded 1/25/06) and Emma 4 years > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 Jen, 's correct it shouldn't be shifting like that. I'd put a call into your ortho. My fingers are crossed that if you go in, they don't ADD anything to her helmet. Good luck and please keep us posted. > > Hi All, > > We are now 2 weeks into banding (well minus 3 days for a double ear > infection), and I've noticed that 's helmet seems bigger. It was > not shifting at all when we first got it, but now it seems to shift a > lot, especially when she is asleep. This morning she woke up and the > earpiece was almost over her eye. It doesn't shift during the day, > just when she is laying on it. Is this something that warrants an > adjustment? > > Also, just curious how long it takes until you see changes? is > in the Danmar Helmet. > > Thanks! > Jen > > Mom to 8 mos (banded 1/25/06) and Emma 4 years > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 - Hi jen I was just having that same problem with Isabelle's helmet. It fit her good and it wasn't shifting too much and now a week later it goes over her ears and eyes when she is laying down. I called her ortho and she told me that it is probably because her head is already starting to change and round out a little bit, so we have an appointment tomorrow to get her helmet adjusted. Isabelle 6 mos STARband 1/31/06 -- In Plagiocephaly , " emsar14 " <jengruber@...> wrote: > > Hi All, > > We are now 2 weeks into banding (well minus 3 days for a double ear > infection), and I've noticed that 's helmet seems bigger. It was > not shifting at all when we first got it, but now it seems to shift a > lot, especially when she is asleep. This morning she woke up and the > earpiece was almost over her eye. It doesn't shift during the day, > just when she is laying on it. Is this something that warrants an > adjustment? > > Also, just curious how long it takes until you see changes? is > in the Danmar Helmet. > > Thanks! > Jen > > Mom to 8 mos (banded 1/25/06) and Emma 4 years > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 - Hi jen I was just having that same problem with Isabelle's helmet. It fit her good and it wasn't shifting too much and now a week later it goes over her ears and eyes when she is laying down. I called her ortho and she told me that it is probably because her head is already starting to change and round out a little bit, so we have an appointment tomorrow to get her helmet adjusted. Isabelle 6 mos STARband 1/31/06 -- In Plagiocephaly , " emsar14 " <jengruber@...> wrote: > > Hi All, > > We are now 2 weeks into banding (well minus 3 days for a double ear > infection), and I've noticed that 's helmet seems bigger. It was > not shifting at all when we first got it, but now it seems to shift a > lot, especially when she is asleep. This morning she woke up and the > earpiece was almost over her eye. It doesn't shift during the day, > just when she is laying on it. Is this something that warrants an > adjustment? > > Also, just curious how long it takes until you see changes? is > in the Danmar Helmet. > > Thanks! > Jen > > Mom to 8 mos (banded 1/25/06) and Emma 4 years > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 , The fit will change as the head is correcting. Is the piece by the ear going by her eye? That shouldn't happen. That is wayyyy too much wiggling. Good luck tomorrow. > > > > Hi All, > > > > We are now 2 weeks into banding (well minus 3 days for a double > ear > > infection), and I've noticed that 's helmet seems bigger. It > was > > not shifting at all when we first got it, but now it seems to > shift a > > lot, especially when she is asleep. This morning she woke up and > the > > earpiece was almost over her eye. It doesn't shift during the > day, > > just when she is laying on it. Is this something that warrants an > > adjustment? > > > > Also, just curious how long it takes until you see changes? > is > > in the Danmar Helmet. > > > > Thanks! > > Jen > > > > Mom to 8 mos (banded 1/25/06) and Emma 4 years > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 , The fit will change as the head is correcting. Is the piece by the ear going by her eye? That shouldn't happen. That is wayyyy too much wiggling. Good luck tomorrow. > > > > Hi All, > > > > We are now 2 weeks into banding (well minus 3 days for a double > ear > > infection), and I've noticed that 's helmet seems bigger. It > was > > not shifting at all when we first got it, but now it seems to > shift a > > lot, especially when she is asleep. This morning she woke up and > the > > earpiece was almost over her eye. It doesn't shift during the > day, > > just when she is laying on it. Is this something that warrants an > > adjustment? > > > > Also, just curious how long it takes until you see changes? > is > > in the Danmar Helmet. > > > > Thanks! > > Jen > > > > Mom to 8 mos (banded 1/25/06) and Emma 4 years > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2006 Report Share Posted February 8, 2006 Thanks for all of the input. We are seeing the ortho at 3pm today. I'll write later and let you know how it goes! > > > > Hi All, > > > > We are now 2 weeks into banding (well minus 3 days for a double > ear > > infection), and I've noticed that 's helmet seems bigger. It > was > > not shifting at all when we first got it, but now it seems to > shift a > > lot, especially when she is asleep. This morning she woke up and > the > > earpiece was almost over her eye. It doesn't shift during the > day, > > just when she is laying on it. Is this something that warrants an > > adjustment? > > > > Also, just curious how long it takes until you see changes? > is > > in the Danmar Helmet. > > > > Thanks! > > Jen > > > > Mom to 8 mos (banded 1/25/06) and Emma 4 years > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2006 Report Share Posted February 8, 2006 Thanks for all of the input. We are seeing the ortho at 3pm today. I'll write later and let you know how it goes! > > > > Hi All, > > > > We are now 2 weeks into banding (well minus 3 days for a double > ear > > infection), and I've noticed that 's helmet seems bigger. It > was > > not shifting at all when we first got it, but now it seems to > shift a > > lot, especially when she is asleep. This morning she woke up and > the > > earpiece was almost over her eye. It doesn't shift during the > day, > > just when she is laying on it. Is this something that warrants an > > adjustment? > > > > Also, just curious how long it takes until you see changes? > is > > in the Danmar Helmet. > > > > Thanks! > > Jen > > > > Mom to 8 mos (banded 1/25/06) and Emma 4 years > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2006 Report Share Posted February 8, 2006 What did the ortho say about it being crooked in the front? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2006 Report Share Posted February 8, 2006 What did the ortho say about it being crooked in the front? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2006 Report Share Posted February 8, 2006 Jen, My son is also in a danmar helmet. When I took him back to talk to the ps (the ps gave him his helmet as it is a passive helmet) I found out that I was just putting it back on wrong. I am noticing now that it does seem to fit him differently, but it does not shift THAT much. Where are you located? I am in North Carolina and the plastic surgeon that Logan sees uses this type helmet more because Medicaid does not cover the active bands here. I have decided that if there is not some changes when we go back on the 14th, I am going to talk to her about the possibility of an active band (which we would have to pay for.) Hanger said that I would have to pay $1500 and that they do a paymet plan if needed since he has no other insurance. Good Luck and let us know what the ortho says. Shanna Mother of Reece, 3 years old, and Logan, 9 months (dx with mild left plagio and ear asymmetry) in Danmar Helmet since 12/20/05 Hi All, We are now 2 weeks into banding (well minus 3 days for a double ear infection), and I've noticed that 's helmet seems bigger. It was not shifting at all when we first got it, but now it seems to shift a lot, especially when she is asleep. This morning she woke up and the earpiece was almost over her eye. It doesn't shift during the day, just when she is laying on it. Is this something that warrants an adjustment? Also, just curious how long it takes until you see changes? is in the Danmar Helmet. Thanks! Jen > Mom to 8 mos (banded 1/25/06) and Emma 4 years > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2006 Report Share Posted February 8, 2006 Jen, My son is also in a danmar helmet. When I took him back to talk to the ps (the ps gave him his helmet as it is a passive helmet) I found out that I was just putting it back on wrong. I am noticing now that it does seem to fit him differently, but it does not shift THAT much. Where are you located? I am in North Carolina and the plastic surgeon that Logan sees uses this type helmet more because Medicaid does not cover the active bands here. I have decided that if there is not some changes when we go back on the 14th, I am going to talk to her about the possibility of an active band (which we would have to pay for.) Hanger said that I would have to pay $1500 and that they do a paymet plan if needed since he has no other insurance. Good Luck and let us know what the ortho says. Shanna Mother of Reece, 3 years old, and Logan, 9 months (dx with mild left plagio and ear asymmetry) in Danmar Helmet since 12/20/05 Hi All, We are now 2 weeks into banding (well minus 3 days for a double ear infection), and I've noticed that 's helmet seems bigger. It was not shifting at all when we first got it, but now it seems to shift a lot, especially when she is asleep. This morning she woke up and the earpiece was almost over her eye. It doesn't shift during the day, just when she is laying on it. Is this something that warrants an adjustment? Also, just curious how long it takes until you see changes? is in the Danmar Helmet. Thanks! Jen > Mom to 8 mos (banded 1/25/06) and Emma 4 years > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2006 Report Share Posted February 8, 2006 Hi All, Everything went fine at the ortho today. They made some adjustments, and now the helmet seems to be fitting fine. I just check on in bed, and so far it is not shifting. As far as going to an active band, at this point I'm just going to trust that I've done the right thing. I trust the ortho completely, and have been told by 3 cranio-surgeons in the area that the is the best. I had a long talk with him today, and he reassured us that we should see a great correction even though she is almost at 9 months. Also, our insurance (Humana) has denied the helmet, and we are in the appeals process. It's going to be hard enough to handle the $1700 for the Danmar, so the thought of doing an active band scares me! But, I will do whatever is needed for my angel. Have a good night everyone! Jen > > Hi All, > > We are now 2 weeks into banding (well minus 3 days for a double ear > infection), and I've noticed that 's helmet seems bigger. It was > not shifting at all when we first got it, but now it seems to shift a > lot, especially when she is asleep. This morning she woke up and the > earpiece was almost over her eye. It doesn't shift during the day, > just when she is laying on it. Is this something that warrants an > adjustment? > > Also, just curious how long it takes until you see changes? is > in the Danmar Helmet. > > Thanks! > Jen > > > Mom to 8 mos (banded 1/25/06) and Emma 4 years > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2006 Report Share Posted February 8, 2006 Hi All, Everything went fine at the ortho today. They made some adjustments, and now the helmet seems to be fitting fine. I just check on in bed, and so far it is not shifting. As far as going to an active band, at this point I'm just going to trust that I've done the right thing. I trust the ortho completely, and have been told by 3 cranio-surgeons in the area that the is the best. I had a long talk with him today, and he reassured us that we should see a great correction even though she is almost at 9 months. Also, our insurance (Humana) has denied the helmet, and we are in the appeals process. It's going to be hard enough to handle the $1700 for the Danmar, so the thought of doing an active band scares me! But, I will do whatever is needed for my angel. Have a good night everyone! Jen > > Hi All, > > We are now 2 weeks into banding (well minus 3 days for a double ear > infection), and I've noticed that 's helmet seems bigger. It was > not shifting at all when we first got it, but now it seems to shift a > lot, especially when she is asleep. This morning she woke up and the > earpiece was almost over her eye. It doesn't shift during the day, > just when she is laying on it. Is this something that warrants an > adjustment? > > Also, just curious how long it takes until you see changes? is > in the Danmar Helmet. > > Thanks! > Jen > > > Mom to 8 mos (banded 1/25/06) and Emma 4 years > > > Quote Link to comment Share on other sites More sharing options...
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