Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 It's the Hashi's antibodies attacking the thyroid and killing it that is making you hypo... low thyroid. Hashi's is an auto immune disease. What that means is that your body, for whatever the reason is producing antibodies that think your thyroid is an invader, like a disease or germ. Those antibodies are working on killing your thyroid gland... as time passes, more and more of the gland will die and you will need total replacement hormone.. Even at 3.0 your TSH is too high.... but it's not the TSH that tells the tale, you need to know what your Free T4 and Free T3 levels are to know if the hormone that you have is sufficient for you to be healthy. Right now your body is using hormone that your baby is making. I know some of the things that we are talking about may not make sense to you yet... some may be review... but just in case, we have a web page set up that runs through the hormones, tests and available medications so that the emails you read make more sense... Topper () On Wed, 10 Aug 2005 08:48:24 -0700 (PDT) Jamila writes: I have been diagnosed with Hashimotos Thyroitis. I am taking synthroid 175 mcgs, but before this last test I was taking 100 mcgs. My antibodies were 22, my free T4 was 0.81. The highest my TSH has ever been that I can remember is 17, and I wasnt pregnant at that time. Throughout my last two pregnancies my TSH got to 8 during my first trimester, and then stayed under 3 during the rest because of synthyroid. My doctor doesnt want to use anything else other than sythroid, and I dont have any experience w/ anything else and dont want to experiment w/ anything while pregnant. I dont know why I am hypothyroid, nobody has said why. Any ideas???? Thanks again, Jamila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 It goes back to the stress of the baby's thyroid. Hospitals in the US, I'm not sure about other countries (you guys speak up if you know about your countries!!! Okay everybody?) Newborns are now checked at birth to make sure that they have proper levels at birth. If I remember correctly the TSH and Frees are highest at birth and then taper back a bit.. but are still higher than adults.... .... if anyone has that info handy... could you post? We could all use the review... The longer you go with the Hashi's the less thyroid function you have... Most likely... for some Hashi's damage is at a higher rate during a shorter period of time, for others there is less damage over a longer period of time... it's all very individual, based on what the antibodies are doing. Topper () On Wed, 10 Aug 2005 09:03:12 -0700 (PDT) Jamila writes: I dont think that this effects birth? I mean I have been hashimotos for a long time and have given birth at home twice before now with no problems. Do you know something I dont? I need all the information I can get Jamila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 It goes back to the stress of the baby's thyroid. Hospitals in the US, I'm not sure about other countries (you guys speak up if you know about your countries!!! Okay everybody?) Newborns are now checked at birth to make sure that they have proper levels at birth. If I remember correctly the TSH and Frees are highest at birth and then taper back a bit.. but are still higher than adults.... .... if anyone has that info handy... could you post? We could all use the review... The longer you go with the Hashi's the less thyroid function you have... Most likely... for some Hashi's damage is at a higher rate during a shorter period of time, for others there is less damage over a longer period of time... it's all very individual, based on what the antibodies are doing. Topper () On Wed, 10 Aug 2005 09:03:12 -0700 (PDT) Jamila writes: I dont think that this effects birth? I mean I have been hashimotos for a long time and have given birth at home twice before now with no problems. Do you know something I dont? I need all the information I can get Jamila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 It goes back to the stress of the baby's thyroid. Hospitals in the US, I'm not sure about other countries (you guys speak up if you know about your countries!!! Okay everybody?) Newborns are now checked at birth to make sure that they have proper levels at birth. If I remember correctly the TSH and Frees are highest at birth and then taper back a bit.. but are still higher than adults.... .... if anyone has that info handy... could you post? We could all use the review... The longer you go with the Hashi's the less thyroid function you have... Most likely... for some Hashi's damage is at a higher rate during a shorter period of time, for others there is less damage over a longer period of time... it's all very individual, based on what the antibodies are doing. Topper () On Wed, 10 Aug 2005 09:03:12 -0700 (PDT) Jamila writes: I dont think that this effects birth? I mean I have been hashimotos for a long time and have given birth at home twice before now with no problems. Do you know something I dont? I need all the information I can get Jamila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 Hi Jamila, The most common cause of hypothyroidism these days is hashimotos which is the body producing antibodies against its own thyroid gland -- which eventually destroys it. Being on replacement hormone stops or slows the destruction. With hashi's it is important to suppress the TSH to at least below 1. The lower it is, the less antibodies the body will produce ... I know it is scary to experiment while you are pregnant, but I agree with Topper that it is very important for you to get your TSH down and your Free T3 up-- which might mean adding a T3 med to what you take or switch to Armour which has both T3 and T4. It's important for you to get your Free T3 tested to see if you are converting the T4 you are taking into T3 (which is the hormone the body actually uses)! Hashimotos is often inherited and thyroid problems are very often undiagnosed and misdiagnosed. Did either of your parents or grandparents have any symptoms even if not diagnosed? Also, another cause of hashimotos or any autoimmune disease is exposure to toxins and chemicals (which we all are!) ... keep asking questions. I believe the best way is for all of us to continue our own research since we can't rely on doctors to know everything (or much at all sometimes!). Marlena --- Jamila wrote: > I have been diagnosed with Hashimotos Thyroitis. I > am taking synthroid 175 mcgs, but before this last > test I was taking 100 mcgs. My antibodies were 22, > my free T4 was 0.81. The highest my TSH has ever > been that I can remember is 17, and I wasnt pregnant > at that time. Throughout my last two pregnancies my > TSH got to 8 during my first trimester, and then > stayed under 3 during the rest because of > synthyroid. My doctor doesnt want to use anything > else other than sythroid, and I dont have any > experience w/ anything else and dont want to > experiment w/ anything while pregnant. I dont know > why I am hypothyroid, nobody has said why. Any > ideas???? > > Thanks again, > > Jamila > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 Hi Jamila, The most common cause of hypothyroidism these days is hashimotos which is the body producing antibodies against its own thyroid gland -- which eventually destroys it. Being on replacement hormone stops or slows the destruction. With hashi's it is important to suppress the TSH to at least below 1. The lower it is, the less antibodies the body will produce ... I know it is scary to experiment while you are pregnant, but I agree with Topper that it is very important for you to get your TSH down and your Free T3 up-- which might mean adding a T3 med to what you take or switch to Armour which has both T3 and T4. It's important for you to get your Free T3 tested to see if you are converting the T4 you are taking into T3 (which is the hormone the body actually uses)! Hashimotos is often inherited and thyroid problems are very often undiagnosed and misdiagnosed. Did either of your parents or grandparents have any symptoms even if not diagnosed? Also, another cause of hashimotos or any autoimmune disease is exposure to toxins and chemicals (which we all are!) ... keep asking questions. I believe the best way is for all of us to continue our own research since we can't rely on doctors to know everything (or much at all sometimes!). Marlena --- Jamila wrote: > I have been diagnosed with Hashimotos Thyroitis. I > am taking synthroid 175 mcgs, but before this last > test I was taking 100 mcgs. My antibodies were 22, > my free T4 was 0.81. The highest my TSH has ever > been that I can remember is 17, and I wasnt pregnant > at that time. Throughout my last two pregnancies my > TSH got to 8 during my first trimester, and then > stayed under 3 during the rest because of > synthyroid. My doctor doesnt want to use anything > else other than sythroid, and I dont have any > experience w/ anything else and dont want to > experiment w/ anything while pregnant. I dont know > why I am hypothyroid, nobody has said why. Any > ideas???? > > Thanks again, > > Jamila > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 Hi Jamila, The most common cause of hypothyroidism these days is hashimotos which is the body producing antibodies against its own thyroid gland -- which eventually destroys it. Being on replacement hormone stops or slows the destruction. With hashi's it is important to suppress the TSH to at least below 1. The lower it is, the less antibodies the body will produce ... I know it is scary to experiment while you are pregnant, but I agree with Topper that it is very important for you to get your TSH down and your Free T3 up-- which might mean adding a T3 med to what you take or switch to Armour which has both T3 and T4. It's important for you to get your Free T3 tested to see if you are converting the T4 you are taking into T3 (which is the hormone the body actually uses)! Hashimotos is often inherited and thyroid problems are very often undiagnosed and misdiagnosed. Did either of your parents or grandparents have any symptoms even if not diagnosed? Also, another cause of hashimotos or any autoimmune disease is exposure to toxins and chemicals (which we all are!) ... keep asking questions. I believe the best way is for all of us to continue our own research since we can't rely on doctors to know everything (or much at all sometimes!). Marlena --- Jamila wrote: > I have been diagnosed with Hashimotos Thyroitis. I > am taking synthroid 175 mcgs, but before this last > test I was taking 100 mcgs. My antibodies were 22, > my free T4 was 0.81. The highest my TSH has ever > been that I can remember is 17, and I wasnt pregnant > at that time. Throughout my last two pregnancies my > TSH got to 8 during my first trimester, and then > stayed under 3 during the rest because of > synthyroid. My doctor doesnt want to use anything > else other than sythroid, and I dont have any > experience w/ anything else and dont want to > experiment w/ anything while pregnant. I dont know > why I am hypothyroid, nobody has said why. Any > ideas???? > > Thanks again, > > Jamila > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 You are very fortunate. Thyroid problems definitely effect fertility and the entire endocrine system and the entire body. The thyroid effects every cell, every action, the pace at which everything happens, etc, so theoretically it certainly could effect birth ... it is also extremely genetic ... I hate sharing this info as I don't mean to scare you or be pessimistic -- I just think it is empowering to have all the info we can get so as to make the best possible decisions. Glad you joined and are with us on our quest to find answers and create a better world for ourselves and the future generations hopefully! Marlena --- Jamila wrote: > I dont think that this effects birth? I mean I have > been hashimotos for a long time and have given birth > at home twice before now with no problems. Do you > know something I dont? I need all the information I > can get > > Jamila > > > > " Sharon M. " wrote: > This is probably a good time for one. Good luck at > your appointment. If you give birth naturally, wow. > > > Sharon > NEWBI, PLZ > HELP!! > > > > Hi my name is Jamila, 28 yrs old and have had > hypothyroid for about 6 > > yrs or so. > > > > Right now I am pregnant with my fourth child and > yesterday the doctor > > got my labs back and my TSH was 92, I am 16 weeks > pregnant. My TSH has > > never been over 3 while pregnant, so I am freaked > out. > > > > I dont know how much of an effect this will have > on my child, in fact > > my endocrinologist didnt have much information > along those lines accept > > two studies which say his/her IQ could be lower > and or have central > > nervous system deformalities???? > > > > Has anyone else ever gone through this? Please any > and all information > > is so welcomed!!! > > > > You can email me off list or on, either is fine. > > um_hasheem@... > > > > TIA, > > Jamila > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 You are very fortunate. Thyroid problems definitely effect fertility and the entire endocrine system and the entire body. The thyroid effects every cell, every action, the pace at which everything happens, etc, so theoretically it certainly could effect birth ... it is also extremely genetic ... I hate sharing this info as I don't mean to scare you or be pessimistic -- I just think it is empowering to have all the info we can get so as to make the best possible decisions. Glad you joined and are with us on our quest to find answers and create a better world for ourselves and the future generations hopefully! Marlena --- Jamila wrote: > I dont think that this effects birth? I mean I have > been hashimotos for a long time and have given birth > at home twice before now with no problems. Do you > know something I dont? I need all the information I > can get > > Jamila > > > > " Sharon M. " wrote: > This is probably a good time for one. Good luck at > your appointment. If you give birth naturally, wow. > > > Sharon > NEWBI, PLZ > HELP!! > > > > Hi my name is Jamila, 28 yrs old and have had > hypothyroid for about 6 > > yrs or so. > > > > Right now I am pregnant with my fourth child and > yesterday the doctor > > got my labs back and my TSH was 92, I am 16 weeks > pregnant. My TSH has > > never been over 3 while pregnant, so I am freaked > out. > > > > I dont know how much of an effect this will have > on my child, in fact > > my endocrinologist didnt have much information > along those lines accept > > two studies which say his/her IQ could be lower > and or have central > > nervous system deformalities???? > > > > Has anyone else ever gone through this? Please any > and all information > > is so welcomed!!! > > > > You can email me off list or on, either is fine. > > um_hasheem@... > > > > TIA, > > Jamila > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 You are very fortunate. Thyroid problems definitely effect fertility and the entire endocrine system and the entire body. The thyroid effects every cell, every action, the pace at which everything happens, etc, so theoretically it certainly could effect birth ... it is also extremely genetic ... I hate sharing this info as I don't mean to scare you or be pessimistic -- I just think it is empowering to have all the info we can get so as to make the best possible decisions. Glad you joined and are with us on our quest to find answers and create a better world for ourselves and the future generations hopefully! Marlena --- Jamila wrote: > I dont think that this effects birth? I mean I have > been hashimotos for a long time and have given birth > at home twice before now with no problems. Do you > know something I dont? I need all the information I > can get > > Jamila > > > > " Sharon M. " wrote: > This is probably a good time for one. Good luck at > your appointment. If you give birth naturally, wow. > > > Sharon > NEWBI, PLZ > HELP!! > > > > Hi my name is Jamila, 28 yrs old and have had > hypothyroid for about 6 > > yrs or so. > > > > Right now I am pregnant with my fourth child and > yesterday the doctor > > got my labs back and my TSH was 92, I am 16 weeks > pregnant. My TSH has > > never been over 3 while pregnant, so I am freaked > out. > > > > I dont know how much of an effect this will have > on my child, in fact > > my endocrinologist didnt have much information > along those lines accept > > two studies which say his/her IQ could be lower > and or have central > > nervous system deformalities???? > > > > Has anyone else ever gone through this? Please any > and all information > > is so welcomed!!! > > > > You can email me off list or on, either is fine. > > um_hasheem@... > > > > TIA, > > Jamila > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 Thank you everyone for all of your answers and support!! My mom has hypothyroid, yet it was just found in the last two years. Who knows how long she has had it? I was told I had PCOS and couldnt have anymore children, then my doctor increased my synthroid and i was pregnant w/in one or two months. :-) Before that I would go one or more years w/out periods. My aunt goes years w/out periods. I dont know if she is hypo or not, but she is on my dads side anyhow. Jamila "Leave that which makes you doubt for that which does not make you doubt." "None of you [truely] believes until he wishes for his brother what he wishes for himself." "Let him who believes in Allah and the Last Day either speak good or keep silent, and let him who believes in Allah and the Last Day be generous to his neighbour, and let him who believes in Allah and the Last Day be generous to his guest."__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 Thank you everyone for all of your answers and support!! My mom has hypothyroid, yet it was just found in the last two years. Who knows how long she has had it? I was told I had PCOS and couldnt have anymore children, then my doctor increased my synthroid and i was pregnant w/in one or two months. :-) Before that I would go one or more years w/out periods. My aunt goes years w/out periods. I dont know if she is hypo or not, but she is on my dads side anyhow. Jamila "Leave that which makes you doubt for that which does not make you doubt." "None of you [truely] believes until he wishes for his brother what he wishes for himself." "Let him who believes in Allah and the Last Day either speak good or keep silent, and let him who believes in Allah and the Last Day be generous to his neighbour, and let him who believes in Allah and the Last Day be generous to his guest."__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 Thank you everyone for all of your answers and support!! My mom has hypothyroid, yet it was just found in the last two years. Who knows how long she has had it? I was told I had PCOS and couldnt have anymore children, then my doctor increased my synthroid and i was pregnant w/in one or two months. :-) Before that I would go one or more years w/out periods. My aunt goes years w/out periods. I dont know if she is hypo or not, but she is on my dads side anyhow. Jamila "Leave that which makes you doubt for that which does not make you doubt." "None of you [truely] believes until he wishes for his brother what he wishes for himself." "Let him who believes in Allah and the Last Day either speak good or keep silent, and let him who believes in Allah and the Last Day be generous to his neighbour, and let him who believes in Allah and the Last Day be generous to his guest."__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 My free T4 is 0.81. He never has checked my T3. Jamila topper2@... wrote: It's the Hashi's antibodies attacking the thyroid and killing it that is making you hypo... low thyroid. Hashi's is an auto immune disease. What that means is that your body, for whatever the reason is producing antibodies that think your thyroid is an invader, like a disease or germ. Those antibodies are working on killing your thyroid gland... as time passes, more and more of the gland will die and you will need total replacement hormone.. Even at 3.0 your TSH is too high.... but it's not the TSH that tells the tale, you need to know what your Free T4 and Free T3 levels are to know if the hormone that you have is sufficient for you to be healthy. Right now your body is using hormone that your baby is making. I know some of the things that we are talking about may not make sense to you yet... some may be review... but just in case, we have a web page set up that runs through the hormones, tests and available medications so that the emails you read make more sense... Topper () On Wed, 10 Aug 2005 08:48:24 -0700 (PDT) Jamila writes: I have been diagnosed with Hashimotos Thyroitis. I am taking synthroid 175 mcgs, but before this last test I was taking 100 mcgs. My antibodies were 22, my free T4 was 0.81. The highest my TSH has ever been that I can remember is 17, and I wasnt pregnant at that time. Throughout my last two pregnancies my TSH got to 8 during my first trimester, and then stayed under 3 during the rest because of synthyroid. My doctor doesnt want to use anything else other than sythroid, and I dont have any experience w/ anything else and dont want to experiment w/ anything while pregnant. I dont know why I am hypothyroid, nobody has said why. Any ideas???? Thanks again, Jamila"Leave that which makes you doubt for that which does not make you doubt." "None of you [truely] believes until he wishes for his brother what he wishes for himself." "Let him who believes in Allah and the Last Day either speak good or keep silent, and let him who believes in Allah and the Last Day be generous to his neighbour, and let him who believes in Allah and the Last Day be generous to his guest."__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 My free T4 is 0.81. He never has checked my T3. Jamila topper2@... wrote: It's the Hashi's antibodies attacking the thyroid and killing it that is making you hypo... low thyroid. Hashi's is an auto immune disease. What that means is that your body, for whatever the reason is producing antibodies that think your thyroid is an invader, like a disease or germ. Those antibodies are working on killing your thyroid gland... as time passes, more and more of the gland will die and you will need total replacement hormone.. Even at 3.0 your TSH is too high.... but it's not the TSH that tells the tale, you need to know what your Free T4 and Free T3 levels are to know if the hormone that you have is sufficient for you to be healthy. Right now your body is using hormone that your baby is making. I know some of the things that we are talking about may not make sense to you yet... some may be review... but just in case, we have a web page set up that runs through the hormones, tests and available medications so that the emails you read make more sense... Topper () On Wed, 10 Aug 2005 08:48:24 -0700 (PDT) Jamila writes: I have been diagnosed with Hashimotos Thyroitis. I am taking synthroid 175 mcgs, but before this last test I was taking 100 mcgs. My antibodies were 22, my free T4 was 0.81. The highest my TSH has ever been that I can remember is 17, and I wasnt pregnant at that time. Throughout my last two pregnancies my TSH got to 8 during my first trimester, and then stayed under 3 during the rest because of synthyroid. My doctor doesnt want to use anything else other than sythroid, and I dont have any experience w/ anything else and dont want to experiment w/ anything while pregnant. I dont know why I am hypothyroid, nobody has said why. Any ideas???? Thanks again, Jamila"Leave that which makes you doubt for that which does not make you doubt." "None of you [truely] believes until he wishes for his brother what he wishes for himself." "Let him who believes in Allah and the Last Day either speak good or keep silent, and let him who believes in Allah and the Last Day be generous to his neighbour, and let him who believes in Allah and the Last Day be generous to his guest."__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 Do you happen to have the lab ranges your lab used for the Free T4? With the frees we need to know the lab's ranges cuz there are several different tests used and each has a different range... TSH is standardized so we know that one .3 to 3.0 Seeing a number under 1.0 for the Free T4 has be thinking underdosed. Topper () On Wed, 10 Aug 2005 16:17:02 -0700 (PDT) Jamila writes: My free T4 is 0.81. He never has checked my T3. Jamila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 Do you happen to have the lab ranges your lab used for the Free T4? With the frees we need to know the lab's ranges cuz there are several different tests used and each has a different range... TSH is standardized so we know that one .3 to 3.0 Seeing a number under 1.0 for the Free T4 has be thinking underdosed. Topper () On Wed, 10 Aug 2005 16:17:02 -0700 (PDT) Jamila writes: My free T4 is 0.81. He never has checked my T3. Jamila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 Do you happen to have the lab ranges your lab used for the Free T4? With the frees we need to know the lab's ranges cuz there are several different tests used and each has a different range... TSH is standardized so we know that one .3 to 3.0 Seeing a number under 1.0 for the Free T4 has be thinking underdosed. Topper () On Wed, 10 Aug 2005 16:17:02 -0700 (PDT) Jamila writes: My free T4 is 0.81. He never has checked my T3. Jamila Quote Link to comment Share on other sites More sharing options...
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