Guest guest Posted September 28, 2001 Report Share Posted September 28, 2001 I agree with this. I would like to know what the workup was that them decide that you do not have FMS or CFS. Take care, Irene co-moderator > If you can, I would check with another doctor, it took me 3 years and 9 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2001 Report Share Posted September 28, 2001 Has she checked the trigger points? Take care, Irene co-moderator > She suspects that I have fibro, so she'll do > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2001 Report Share Posted September 28, 2001 Has she checked the trigger points? Take care, Irene co-moderator > She suspects that I have fibro, so she'll do > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2001 Report Share Posted September 28, 2001 I have had *many* MRI's. I have been *microwaved* so many times that my clausterphobia doesn't bother me anymore!! The first one showed lesions, BUT that was when my spinal cord was being crushed. Nerve damage (and several other things) can also cause lesions to show up. I have also had a spinal tap that was done while I was out for the surgery in 1999. She is waiting for a copy of those results. Even after the first neurologist received the results of the MRI and the spinal tap, she hesitated to diagnose me with MS because I hadn't had any episodes. I have since had 2 or 3 " attacks, " but with me, they cannot be sure it is MS because of the cord compression then decompression. That can also cause numbness and lesions. AND because I never had anything happen til after the cord compression and decompression. The numbness comes then it goes and there is never a lasting effect from it, I have total recovery. I have nerve damage from the accident, so that complicates it too. I don't care either way anymore. If I have it, I have it, if not, great, but I'm not going to dwell on it. Heck, if I didn't have to give myself a shot everyday, I'd probably forget I even have it. If I do! Sorry to hear about your sister and friend. Did they do anything else, like a spinal tap, to confirm the diagnosis? Rhonda Re: Re: it's not fibro > If they do an MSI they will be able to know if you have MS on not. I don't > understand if your doctor is a good one, I am surprised that she has not had > this done already. > > My sister and a friend have MS and both were diagnosed after an MRI. > > Take care, > Irene > co-moderator > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2001 Report Share Posted September 28, 2001 I have had *many* MRI's. I have been *microwaved* so many times that my clausterphobia doesn't bother me anymore!! The first one showed lesions, BUT that was when my spinal cord was being crushed. Nerve damage (and several other things) can also cause lesions to show up. I have also had a spinal tap that was done while I was out for the surgery in 1999. She is waiting for a copy of those results. Even after the first neurologist received the results of the MRI and the spinal tap, she hesitated to diagnose me with MS because I hadn't had any episodes. I have since had 2 or 3 " attacks, " but with me, they cannot be sure it is MS because of the cord compression then decompression. That can also cause numbness and lesions. AND because I never had anything happen til after the cord compression and decompression. The numbness comes then it goes and there is never a lasting effect from it, I have total recovery. I have nerve damage from the accident, so that complicates it too. I don't care either way anymore. If I have it, I have it, if not, great, but I'm not going to dwell on it. Heck, if I didn't have to give myself a shot everyday, I'd probably forget I even have it. If I do! Sorry to hear about your sister and friend. Did they do anything else, like a spinal tap, to confirm the diagnosis? Rhonda Re: Re: it's not fibro > If they do an MSI they will be able to know if you have MS on not. I don't > understand if your doctor is a good one, I am surprised that she has not had > this done already. > > My sister and a friend have MS and both were diagnosed after an MRI. > > Take care, > Irene > co-moderator > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2001 Report Share Posted September 28, 2001 I have had *many* MRI's. I have been *microwaved* so many times that my clausterphobia doesn't bother me anymore!! The first one showed lesions, BUT that was when my spinal cord was being crushed. Nerve damage (and several other things) can also cause lesions to show up. I have also had a spinal tap that was done while I was out for the surgery in 1999. She is waiting for a copy of those results. Even after the first neurologist received the results of the MRI and the spinal tap, she hesitated to diagnose me with MS because I hadn't had any episodes. I have since had 2 or 3 " attacks, " but with me, they cannot be sure it is MS because of the cord compression then decompression. That can also cause numbness and lesions. AND because I never had anything happen til after the cord compression and decompression. The numbness comes then it goes and there is never a lasting effect from it, I have total recovery. I have nerve damage from the accident, so that complicates it too. I don't care either way anymore. If I have it, I have it, if not, great, but I'm not going to dwell on it. Heck, if I didn't have to give myself a shot everyday, I'd probably forget I even have it. If I do! Sorry to hear about your sister and friend. Did they do anything else, like a spinal tap, to confirm the diagnosis? Rhonda Re: Re: it's not fibro > If they do an MSI they will be able to know if you have MS on not. I don't > understand if your doctor is a good one, I am surprised that she has not had > this done already. > > My sister and a friend have MS and both were diagnosed after an MRI. > > Take care, > Irene > co-moderator > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2001 Report Share Posted September 29, 2001 Yes, they did have spinal taps. I have just been told that another friend, a man, which is not usual has MS and he had a MRI and a spinal tap. As for MRI, I, like you have had far to many. First to see if my tinnitus was caused by a tumor or something like that and to see if I am having anymore mini strokes. They are called silent strokes and I usually don't know when I get them. I take a blood thinner but I have had a nasty one where I slurred my words, couldn't remember how to spell my first name and was staggering all over the place and falling down. The doctor is not happy because this should not be happening because of the blood thinner. He would like to try a stronger one but it would turn me into a bleeder and since I fall quite a bit, that would be dangerous. In a matter of fact, I have fallen twice this week. I will know where these bruises come from. Take care, Irene co-moderator > > Sorry to hear about your sister and friend. Did they do anything else, like > a spinal tap, to confirm the diagnosis? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2001 Report Share Posted September 29, 2001 Yes, they did have spinal taps. I have just been told that another friend, a man, which is not usual has MS and he had a MRI and a spinal tap. As for MRI, I, like you have had far to many. First to see if my tinnitus was caused by a tumor or something like that and to see if I am having anymore mini strokes. They are called silent strokes and I usually don't know when I get them. I take a blood thinner but I have had a nasty one where I slurred my words, couldn't remember how to spell my first name and was staggering all over the place and falling down. The doctor is not happy because this should not be happening because of the blood thinner. He would like to try a stronger one but it would turn me into a bleeder and since I fall quite a bit, that would be dangerous. In a matter of fact, I have fallen twice this week. I will know where these bruises come from. Take care, Irene co-moderator > > Sorry to hear about your sister and friend. Did they do anything else, like > a spinal tap, to confirm the diagnosis? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2001 Report Share Posted September 29, 2001 Yes, they did have spinal taps. I have just been told that another friend, a man, which is not usual has MS and he had a MRI and a spinal tap. As for MRI, I, like you have had far to many. First to see if my tinnitus was caused by a tumor or something like that and to see if I am having anymore mini strokes. They are called silent strokes and I usually don't know when I get them. I take a blood thinner but I have had a nasty one where I slurred my words, couldn't remember how to spell my first name and was staggering all over the place and falling down. The doctor is not happy because this should not be happening because of the blood thinner. He would like to try a stronger one but it would turn me into a bleeder and since I fall quite a bit, that would be dangerous. In a matter of fact, I have fallen twice this week. I will know where these bruises come from. Take care, Irene co-moderator > > Sorry to hear about your sister and friend. Did they do anything else, like > a spinal tap, to confirm the diagnosis? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2001 Report Share Posted October 2, 2001 Welcome to this list Rhonda. No reason in the world you shouldn't be a member. Bernadette Digest Number 962 > > HOME PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-cfs.html > SEND POST TO: fibromyalgia-cfs > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2001 Report Share Posted October 2, 2001 Welcome to this list Rhonda. No reason in the world you shouldn't be a member. Bernadette Digest Number 962 > > HOME PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-cfs.html > SEND POST TO: fibromyalgia-cfs > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2001 Report Share Posted October 2, 2001 Welcome to this list Rhonda. No reason in the world you shouldn't be a member. Bernadette Digest Number 962 > > HOME PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-cfs.html > SEND POST TO: fibromyalgia-cfs > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2001 Report Share Posted October 5, 2001 Have you have an MRI of the brain? My understanding is that is the most conclusive Dx of MS. If they find lesions on the brain. I may be mistaken, but since I have an MRI scheduled to further rule out MS, I'm hoping that ends the discussion of it. I have had the symptoms of gait difficulties, coordination and speech, site loss, but those can also come from severe FMS, or SJS. ----- Original Message ----- From: DigitalAngel I don't really care if I have either of them or even both, there isn't really anything I can do about it anyway. Life goes on and I'm going to live it. Rhonda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2001 Report Share Posted October 6, 2001 I have had numerous MRI's, several of the brain. So many so that my clausterphobia doesn't bother me anymore! They found lesions, but there are numerous things that can cause lesions, like nerve damage.....my spinal cord was literally being crushed. I think that is why she is questioning it, they cannot say for sure if it was MS that caused those lesions or if it is because of the cord being crushed. She said that the lesions are not consistent with MS, they should be larger. I haven't had any of the symptoms besides the numbness which she thinks is coming from the nerve damage. The numbness was in my right hand, I have nerve damage on the right side of my neck/shoulder area. She also said that if it was an MS related attack, there should be a lasting effect, if even slight, but there isn't. I *hope* she has an answer for me on Monday. Good Luck, Rhonda Re: Re: It's not fibro > Have you have an MRI of the brain? My understanding is that is the most conclusive Dx of MS. If they find lesions on the brain. I may be mistaken, but since I have an MRI scheduled to further rule out MS, I'm hoping that ends the discussion of it. I have had the symptoms of gait difficulties, coordination and speech, site loss, but those can also come from severe FMS, or SJS. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2001 Report Share Posted October 6, 2001 Basically, it leaves something behind to let you know it's been there. Like if the hand went numb, maybe it would leave the tips of the fingers slightly numb. Rhonda Re: Re: It's not fibro > I'm not sure what lasting effects really means > Lots of warm thoughts, > > > Quote Link to comment Share on other sites More sharing options...
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